Topic: Apparently I Am "Just Diagnosed." :(

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Jan 13, 2021 03:34PM - edited Nov 22, 2022 12:23PM by lw422

Posted on: Jan 13, 2021 03:34PM - edited Nov 22, 2022 12:23PM by lw422

lw422 wrote:

Hello everyone. Here I am, terrified and confused like most of you were when you got "The News No One Wants To Hear." I had what appeared to be a light pink bruise on my right breast the week before Christmas and wasn't concerned. Watched it for a week or so to see if it would go away and decided to Google. Bad idea, but at least it prompted me to see my PCP right away. (Note that I have no peau-de-orange, no heat in the breast, no 1/3 of breast turning red, no lump, no hardness, no itching, no other apparent symptoms other than breast is slightly swollen and a light pink "bruise".)

My doctor took one look and said I needed to have a mammo/sono and I scheduled them as soon as I could. Luckily for me, I live 25 miles from MD Anderson in Houston, so that's where I spent my day yesterday. I had a diagnostic mammogram w/tomo, a sonogram, and two biopsies...needle biopsy to lymph node and core biopsy to the largest mass in my breast with clip placement. I will have followup MRI and skin punch biopsies next week (hopefully) and meet with my "team."

There are no results back from the core biopsy yet but the lymph node was positive for cancer so I'm pretty sure I know what the core biopsy will say. Naturally my biggest fear is IBC, so even though I'm holding it together so far, an IBC diagnosis will be devastating (not that any BC diagnosis isn't devastating, but IBC... UGH.)


Dx IBC, ER-/PR+, HER2-
Log in to post a reply

Page 2 of 36 (355 results)

Log in to post a reply

Jan 13, 2021 05:42PM - edited Jan 13, 2021 05:56PM by lw422

Melissa--I'm waiting to hear on the appointment scheduling for the MRI and skin punch. They will do the MRI first because apparently the skin punch irritation can cause some questionable MRI indicators (?) I wish they'd hurry up and call, but I realize I am not the only patient in Houston and Covid is screwing everything up.

Do you happen to know what that "dfn: 12 cm:" means in that comment on my diagnosis? Is that the combined size of all the tumors or what? (Since each one is 1.4 cm or less.) Will the ER, PR and HER results be obtained from that core biopsy sample or will there be more tests to determine those? (Sorry if I'm annoying you with questions.)

My son went to UNT in Denton! I hope your move goes smoothly.


ETA: NEVERMIND about the "dfn:12 cm". Apparently that's "distance from nipple." Duh.

Dx IBC, ER-/PR+, HER2-
Log in to post a reply

Jan 13, 2021 05:55PM - edited Jan 13, 2021 05:58PM by ShetlandPony

My guess is that “dfn" means “distance from nipple". So that would just be part of describing the location.

Your report says markers are pending. That is the ER, PR, Her2 and possibly a couple others.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast Surgery Lumpectomy
Log in to post a reply

Jan 13, 2021 05:57PM lw422 wrote:

Hello there Shetland Pony, and thanks for your help. I'm such a goober with all the terminology right now. I appreciate your response very much.

Dx IBC, ER-/PR+, HER2-
Log in to post a reply

Jan 13, 2021 05:59PM melissadallas wrote:

It is “mapping out” the location where the biopsy was done-location in the breast. Can’t think of the “d” off the top of my head but the “fn” is “from nipple.”

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
Log in to post a reply

Jan 13, 2021 06:01PM ShetlandPony wrote:

It’s a learning curve! I edited my previous post while you were posting. Looks like they already have what they need to check ER, PR and Her2; just waiting for the lab to give the results.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast Surgery Lumpectomy
Log in to post a reply

Jan 13, 2021 06:26PM lw422 wrote:

Thanks, Melissa.

Dx IBC, ER-/PR+, HER2-
Log in to post a reply

Jan 13, 2021 06:28PM lw422 wrote:

Shetland Pony--you are so right about the learning curve. I think my brain is full already and I'm just getting started.

Dx IBC, ER-/PR+, HER2-
Log in to post a reply

Jan 13, 2021 06:31PM - edited Jan 13, 2021 06:33PM by ShetlandPony

Time to start a notebook with all your notes, records, reports, and a list of your questions. Or at least make sure everything has been released to the portal. Remember to take mental health breaks from this stuff. Go outside, pet the dog or cat, watch a comedy, exercise, etc.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast Surgery Lumpectomy
Log in to post a reply

Jan 13, 2021 06:49PM - edited Jan 13, 2021 06:50PM by lw422

Thank goodness for that "My Chart" portal. All the results are there, including the actual images. I'd have to dedicate a file cabinet to all that stuff! I will keep my own notes and lists questions; thank you for the suggestion. I am typically a "researcher" who annoys my doctors, but I know we are our own best advocates in this kind of thing.

I think it will be a while before I get a mental break. Right now I'm busy planning my own funeral in my head, and choosing my husband's next wife. :D

Dx IBC, ER-/PR+, HER2-
Log in to post a reply

Jan 13, 2021 10:01PM amanda6 wrote:

just sending support & I'm so glad you'll be treated at md anderson. Not currently in tx but have lived in Houston & still pine for it at times - the food! So sorry this happened to you - you'll soon be on a path, you're in fantastic hands at md & having your hubs there on speaker phone is a great idea. Cancer treatment is not a walk in the park but it is very doable- you'll be ok. Sending all good vibes & wishes...( & I like your sense of humor, that's a definite asset!)

Dx 2/2010, Left, 2cm, Stage IIIA, 4/10 nodes, ER+, HER2- Radiation Therapy 8/30/2010 Breast, Lymph nodes Hormonal Therapy Femara (letrozole) Surgery Lumpectomy; Lymph node removal Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)

Page 2 of 36 (355 results)

Scroll to top button