Topic: Apparently I Am "Just Diagnosed." :(

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Jan 13, 2021 12:34PM - edited Nov 11, 2021 09:58PM by lw422

Posted on: Jan 13, 2021 12:34PM - edited Nov 11, 2021 09:58PM by lw422

lw422 wrote:

Hello everyone. Here I am, terrified and confused like most of you were when you got "The News No One Wants To Hear." I had what appeared to be a light pink bruise on my right breast the week before Christmas and wasn't concerned. Watched it for a week or so to see if it would go away and decided to Google. Bad idea, but at least it prompted me to see my PCP right away. (Note that I have no peau-de-orange, no heat in the breast, no 1/3 of breast turning red, no lump, no hardness, no itching, no other apparent symptoms other than breast is slightly swollen and a light pink "bruise".)

My doctor took one look and said I needed to have a mammo/sono and I scheduled them as soon as I could. Luckily for me, I live 25 miles from MD Anderson in Houston, so that's where I spent my day yesterday. I had a diagnostic mammogram w/tomo (whatever that means), a sonogram, and two biopsies...needle biopsy to lymph node and core biopsy to the largest mass in my breast with clip placement. I will have followup MRI and skin punch biopsies next week (hopefully) and meet with my "team."

There are no results back from the core biopsy yet but the lymph node was positive for cancer so I'm pretty sure I know what the core biopsy will say. Naturally my biggest fear is IBC, so even though I'm holding it together so far, an IBC diagnosis will be devastating (not that any BC diagnosis isn't devastating, but IBC... UGH.)

Here's a little blurb from My Chart sonogram test results:

Right breast:
There is right breast global skin thickening, correlating with mammography. A dominant area of right breast skin thickening is seen at 3 o'clock position and correlates with an area of erythema. Skin thickening measures 0.5 cm maximally. There is no sonographic correlation for mammographic asymmetry in the anterior central breast.

There are multiple subcentimeter masses in the upper outer quadrant. This appears to correlate with the mammographic finding of asymmetry in the lateral breast. The largest mass is irregular and hypoechoic with angular margins at 10 o'clock position, 12 cm from the nipple measuring 0.9 x 0.6 x 0.5 cm. This mass was targeted for core biopsy and clip placement today.

Right nodal basins:
There is one malignant-appearing right axillary level I lymph node measuring 1.9 x 1.3 x 1.2 cm with replacement of the fatty hilum. This correlates with the mammogram finding of an abnormal-appearing lymph node. This lymph node was targeted for fine-needle aspiration and clip placement.

There is no right axillary level II, axillary level III, or internal mammary lymphadenopathy. There is no suspicious-appearing lymph node in the right supraclavicular region.

ACR BI-RADS Category: 5: Highly suggestive of malignancy.
Skin punch biopsy is recommended for right breast erythema.
Breast MRI is recommended.

Since I don't have the details of what type of cancer I have yet, I'll just put this here and move to the appropriate section once I know for certain what I am facing. I have been reading this forum for about a month but had nothing to contribute except a bunch of angst-filled questions, so I mainly read to see if others had already asked them. Nice to meet you all and I wish the best for all of us.
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Mar 22, 2021 10:10AM lw422 wrote:

Thanks -2, Astrid, and Jana. :heart: I hope you all know how much it means to me to have your support through this. It's so easy to get discouraged and fearful if I let myself "go there." Some days stark reality sets in and I'm forced to think about what's ahead, then I'm overwhelmed. Cancer SUCKS.

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Mar 22, 2021 03:14PM minustwo wrote:

Java - that's a great saying. Thanks for posting

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Mar 23, 2021 02:36AM Astrid wrote:

yeah!

Love thatHeart

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2-, Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2-, Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2-, Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy AC Radiation Therapy Whole breast: Breast, Chest wall
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Mar 23, 2021 05:51PM lw422 wrote:

I'm hitting a wall! - Album on Imgur

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Mar 23, 2021 05:59PM - edited Mar 23, 2021 06:00PM by lw422

So I'm officially HALF done with Taxol! :wlae: Next week I have an ultrasound on Wednesday, the day after chemo #7. Makes me a little nervous; I hope to get good news as far as the effect of the treatment, so keep your fingers crossed for me.

A lady got to ring the bell during my treatment today; that's the first time I've seen that. She was crying and it was a poignant moment to see. I don't believe I will ring that bell when my treatment is over; I'm superstitious about tempting fate.

In other news, I ordered a cheap hair clipper from Amazon; it's time to get over the hair whining and I'm sick of picking hairs off of every surface in this house. I wore a scarf to chemo today to hide the big bald spots. Baby steps!!!

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Mar 23, 2021 06:53PM - edited Mar 23, 2021 06:54PM by lw422

I had to look up the tradition of the bell, Jana. Apparently it began at MDA! Here's an interesting link, and a picture of the bell at League City... LINK

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Mar 26, 2021 09:29PM Astrid wrote:

Big congrats on halfway point LW.

Love the Egyptian dance emoticonHappy

Will keep you in my prayers for ultrasound.

🌾🌸🌾🙏💖

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2-, Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2-, Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2-, Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy AC Radiation Therapy Whole breast: Breast, Chest wall
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Mar 26, 2021 10:10PM minustwo wrote:

LW - So the glass is half full!!!

It was my experience that a buzz cut was better than shaving the head. Just short hairs and not as much problem with ingrown hairs. If you don't already have one, get a lint roller. That worked the best on all those little hairs - both on the pillow and on my head. I wore a cotton/jersey sleeping cap at night & around the house that contained most of them - then just rolled them off.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Mar 26, 2021 10:52PM lw422 wrote:

Hey there, Astrid. Hope you're doing well these days and are safe from those terrible floods. I appreciate the prayers and good wishes; scans can be so dang terrifying.


Thanks, -2. I thought I could deal with the pixie cut but it's just making me crazy(er), so tomorrow is buzz day. Honestly I don't have much left to buzz.

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Mar 27, 2021 12:32AM Astrid wrote:

Thanks LW

I'm in Melbourne

Quite safe from floods

Awful for all thosegoing through it.

Buzz cut sounds good.💖

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2-, Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2-, Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2-, Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy AC Radiation Therapy Whole breast: Breast, Chest wall

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