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Topic: Apparently I Am "Just Diagnosed." :(

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Jan 13, 2021 03:34PM - edited Mar 3, 2021 06:31PM by LW422

LW422 wrote:

Hello everyone. Here I am, terrified and confused like most of you were when you got "The News No One Wants To Hear." I had what appeared to be a light pink bruise on my right breast the week before Christmas and wasn't concerned. Watched it for a week or so to see if it would go away and decided to Google. Bad idea, but at least it prompted me to see my PCP right away. (Note that I have no peau-de-orange, no heat in the breast, no 1/3 of breast turning red, no lump, no hardness, no itching, no other apparent symptoms other than breast is slightly swollen and a light pink "bruise".)

My doctor took one look and said I needed to have a mammo/sono and I scheduled them as soon as I could. Luckily for me, I live 25 miles from MD Anderson in Houston, so that's where I spent my day yesterday. I had a diagnostic mammogram w/tomo (whatever that means), a sonogram, and two biopsies...needle biopsy to lymph node and core biopsy to the largest mass in my breast with clip placement. I will have followup MRI and skin punch biopsies next week (hopefully) and meet with my "team."

There are no results back from the core biopsy yet but the lymph node was positive for cancer so I'm pretty sure I know what the core biopsy will say. Naturally my biggest fear is IBC, so even though I'm holding it together so far, an IBC diagnosis will be devastating (not that any BC diagnosis isn't devastating, but IBC... UGH.)

Here's a little blurb from My Chart sonogram test results:

Right breast:
There is right breast global skin thickening, correlating with mammography. A dominant area of right breast skin thickening is seen at 3 o'clock position and correlates with an area of erythema. Skin thickening measures 0.5 cm maximally. There is no sonographic correlation for mammographic asymmetry in the anterior central breast.

There are multiple (at least 5) subcentimeter masses in the upper outer quadrant. This appears to correlate with the mammographic finding of asymmetry in the lateral breast. The largest mass is irregular and hypoechoic with angular margins at 10 o'clock position, 12 cm from the nipple measuring 0.9 x 0.6 x 0.5 cm. This mass was targeted for core biopsy and clip placement today.

Right nodal basins:
There is one malignant-appearing right axillary level I lymph node measuring 1.9 x 1.3 x 1.2 cm with replacement of the fatty hilum. This correlates with the mammogram finding of an abnormal-appearing lymph node. This lymph node was targeted for fine-needle aspiration and clip placement.

There is no right axillary level II, axillary level III, or internal mammary lymphadenopathy. There is no suspicious-appearing lymph node in the right supraclavicular region.

ACR BI-RADS Category: 5: Highly suggestive of malignancy.
Skin punch biopsy is recommended for right breast erythema.
Breast MRI is recommended.

And the result of the needle biopsy of the lymph node:

Immediate AssessmentAdequate cellularity, favor malignant
Major ClassificationMALIGNANT
DiagnosisA. Lymph node, right axilla, fine needle aspiration:

METASTATIC HIGH GRADE CARCINOMA, CONSISTENT WITH BREAST PRIMARY


I hope that "metastatic" thing isn't as scary as it sounds. Singing

Since I don't have the details of what type of cancer I have yet, I'll just put this here and move to the appropriate section once I know for certain what I am facing. I have been reading this forum for about a month but had nothing to contribute except a bunch of angst-filled questions, so I mainly read to see if others had already asked them. Nice to meet you all and I wish the best for all of us.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 20, 2021 10:47PM Beesy_The_Other_One wrote:

LW,

You're having chemo first and hopefully the chemo will have taken care of the cancer before you even have surgery--that's the goal of neo-adjuvant chemo, and you're getting going in almost record time. So many women are treated with antibiotics for "infection" before a doctor finally realizes it's not an infection. Your surgeon will most certainly allow you to have a bilateral mastectomy, but they always push back. That was my experience, also, but I knew what I wanted and they agreed to my request. If it's what you want, insist. I did not have reconstruction and was able to start radiation within two weeks. My tumor was hormone negative but HER2+, and grew very quickly right after the biopsy, even invading the nipple, according to an MRI. In that sense, it had gotten into the skin, not making it IBC but making it more like it than if it hadn't gotten to the skin. That's why even though I had a BMX, had a pathologic complete response (no live cancer cells in the removed breast or node), I still had to do radiation.

1997: Phyllodes, R breast. 2018: IDC, L breast. TCHP, BMX, Radiation, Nerlynx. Dx 8/20/2018, IDC, Left, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC)
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Jan 20, 2021 10:59PM LW422 wrote:

MinusTwo--my instructions for the PET say this:

  • You must be fasting for at least 6 hours prior to appointment time. Nothing but plain unflavored, uncarbonated water is allowed. No coffee, tea, or soda.
  • No gum, candy, or mints, cough drops, or gummy vitamins within 6 hours of the study.
  • You make take your regularly scheduled medications except for diabetic medications or anything that may contain sugar. No liquid, chewable, or medicine that is made to dissolve in the mouth within 6 hours of the study.

    Also says to eat protein and vegetables, avoid carbs the night before.
Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 20, 2021 11:06PM MinusTwo wrote:

AH ha - yes carbs would be fast burning too. Trust MDA to have already covered all the bases!!!

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jan 20, 2021 11:18PM LW422 wrote:

Beesy--I still can't really put my mind around the determination of "IBC" since it is a clinical diagnosis based upon the oncologist's interpretation of symptoms. The IBC team didn't even consider the skin punch biopsy result as it was not mentioned and is still not in my lab results. (It was my understanding that a skin punch biopsy was the only true indicator for IBC...but apparently I was wrong, haha.) I believe my "Ki-67" high positive result indicating a fast growing cancer played a large part in the diagnosis.

Of course, I'm a total dolt about all of this and easily confused while being bombarded with information.

At any rate, I'm hopeful that getting started with chemo relatively quickly will work to my advantage. I suppose I will have more serious discussion with the breast surgeon about the bilateral mastectomy as the chemo winds down.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 20, 2021 11:20PM LW422 wrote:

MinusTwo--unfortunately for me, the Coffee Hound, my PET is scheduled for 11 a.m. which means the test will probably occur at 1 p.m. and I won't have had any coffee all day. Ugh.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 22, 2021 11:04AM blue22 wrote:

Hi LW,

I'm so sorry to hear that you were diagnosed with IBC, but glad you are at MD Anderson.

The PET scan was pretty easy for me, except I swear I had to pee really bad at some point while in the machine. Also your prep instructions sound the same as mine. I actually stopped drinking coffee for my entire chemo and surgery at that point. Chemo and coffee did not go well for me.

None of the Drs. I've seen - my MO, my RO, as well as an IBC specialist MO and RO disagreed with my SOs recommendation to have a unilateral mastectomy. I was too exhausted to dig into details, but I think they really don't want to risk delaying radiation for patients with IBC. The bigger the surgery, the higher likelihood of complications. I go back and forth on the idea of removing #2 at some point. On the bright side - still having #2 means I will continue to get regular scans every six months.

Good luck with everything!

Blue

Dx 1/2019, IBC, Left, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2- (FISH) Chemotherapy 2/15/2019 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Dx 7/30/2019, IDC/IBC, Left, 6cm+, Stage IIIC, Grade 3, 4/14 nodes, ER+/PR+, HER2+ (IHC) Surgery 7/30/2019 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left Dx 8/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+ Radiation Therapy 10/8/2019 Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Xeloda (capecitabine)
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Jan 22, 2021 04:47PM Astrid wrote:

Hi Blue!

I notice you had Dcis In right breast at same time? Lumpectomy for that and node removal tooo right side? Was that surgery at the same time?

You have really been through the ringer!

How are you going with the targeted therapies? Any side effects?

And are you manging the left right balance of breast and mx side ok? Back issues? Any LE for you?

Sending love and hope for a long, long cancer free time.

Astrid.🌺🙏

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Jan 22, 2021 04:56PM Astrid wrote:

Hi LW,

How are you going?

I figure a 5:45 am coffee (no sugarSmile) would fit in nicely to your schedule!

You will know what your body is up to ...good bad and ugly after these tests and that in itself can be therapeutic.

Then you just break it down into manageable bites. A new job of sorts.

I'm so glad you caught this early. And have landed in a centre of excellence for cancer care.

You can do this, and we are all right here with you. Being global means there is usually someone up and about when you are.

Hug

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Jan 22, 2021 05:44PM LW422 wrote:

Hi again, Blue! Thanks so much; I was disappointed to be diagnosed IBC but honestly not surprised. I just got home from the PET scan about an hour ago. It wasn't nearly as stressful as the MRI, but the sitting for an hour after the injection was kind of a bummer. Now I'm stressing about the results... I know if there is any spot anywhere else I'm an automatic Stage 4. Such a lot to take in as I feel bombarded and like a "stranger in a strange land."

I will keep pushing for the double mastectomy, especially if I have good response to chemo. I just don't want more surgical bills, another wound to heal, etc. if I can get around it. Of course my main objective is to LIVE, so I'll go along with the doctors but I'll be sulky. :D

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 22, 2021 05:50PM LW422 wrote:

Hello Astrid. You are a ray of sunshine in this gloomy Texas day my dear. There is one thing you must realize about me... I will never be awake at 5 a.m. unless I just haven't gone to bed yet. :giggle: I slept until 9 so drank some water and got on my way.

I'm so grateful for all my new BC friends, though it truly blows that we all ended up here. I'm just filled with gratitude that I have found you all.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 22, 2021 06:10PM Astrid wrote:

Smile🌞

Well I was way behind your schedule anyway LW. Noted....partygirl. (heheh)

I think you should read my posts with the southern hemisphere accent they deserve.

Think, 'a dingo took my baby', but much nicerHappyI am now reading your posts with a lovely texan accent.

So glad your PET scan is over. I always think, hmmm, I wonder if it will be a poodle or a pony today. Over here, we lie down and get to watch a video. Of course you never get to see the end which is annoying!! "Do you mind waiting...I HAVE to know what happens!!"

I mean camon people!Winking

Coffeee!!!!

Yes

Anxious wait ahead. Of course it is. Deep breath.

Heart

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Jan 22, 2021 06:11PM Astrid wrote:

yes. Sulky is good.

Works for me.

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Jan 22, 2021 08:18PM MinusTwo wrote:

LW - Glad your PET is done. Really, don't panic about the PET results. There are often ambiguous findings, which is why some docs will never order that test at all. Finding something does NOT automatically mean cancer - or for that matter Stage 4. Nothing's automatic about this damn disease.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jan 22, 2021 09:28PM blue22 wrote:

Hi LW,

Yes I did have DCIS in my right, and IBC in my left, but we did not know it was DCIS going into surgery, just abnormal cells (I can look up the exact terminology, don't remember it off the top of my head thanks to chemo brain...). I had a left mastectomy and lymph node dissection. Right side was only lumpectomy, no lymph nodes removed there. All my margins were clear.

I did have targeted therapy too - after surgery - one year of herceptin/perjetta. For part of that time I had Xeloda. Yes, I did have side effects, but honestly, you really just get through it all. It is not fun, but it is tolerable.

My medical team tends to not get into the nitty gritty details until it is time to deal with them. In other words, we didn't get into too much details of side effects and what to expect for treatment weeks or months off. It is much easier that way to take each treatment as it comes. That being said, I did have a general idea of what to expect. Once we were closer to treatment everything was covered in depth. My MO is amazing.

I highly recommend trying to focus on one treatment at a time Don't think about what is coming months from now, just what you have to do each day, or each week. It is manageable, and not as overwhelming that way. Honestly, the hardest part is psychological.

I'm also glad you are scheduled for the port - I loved having mine.

Hoping the best for the PET scan results. For me it was such a whirlwind and shock that I wasn't really thinking about them either. I think my mammogram/ultrasound was on a Thursday and the PET scan maybe the following Tuesday.

Hopefully the weather will cooperate and you can get outside this weekend? Taking walks etc is so important! Maybe you can do some shopping for head coverings or wigs, whatever you decide you want to do. Have fun with those. (I didn't really mind losing my hair... it is just hair, it grows back)

Take Care,

Blue

Dx 1/2019, IBC, Left, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2- (FISH) Chemotherapy 2/15/2019 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Dx 7/30/2019, IDC/IBC, Left, 6cm+, Stage IIIC, Grade 3, 4/14 nodes, ER+/PR+, HER2+ (IHC) Surgery 7/30/2019 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left Dx 8/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+ Radiation Therapy 10/8/2019 Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Xeloda (capecitabine)
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Jan 22, 2021 09:37PM Astrid wrote:

Hi Blue,

That was me asking questions, not LW.Smile

I thought there might be some reasurrance there if not having double mx.

Of course you are right in not looking too far ahead and getting overwhelmed.

So glad you got through all your tx without too much trouble.

Astrid.🌺

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Jan 22, 2021 09:47PM - edited Jan 22, 2021 09:47PM by LW422

Astrid, I'm certain you sound just like Crocodile Dundee, but in a higher pitch. Amirite???

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 22, 2021 09:51PM LW422 wrote:

Blue, I think we're having a rainy weekend but I'll try to do something fun. Did you have skin punch biopsies? I swear, those things have made the biggest mess of my poor boob. The holes they left are as big as BBs, and made the entire area bright red. I'm putting antibiotic cream on them.

I'm actually looking forward to getting started with chemo and to getting this show on the road. Now that I know what I'm facing I don't feel quite so terrified by the whole mess.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 22, 2021 10:49PM blue22 wrote:

I didn't have problems with the punch biopsies that I remember... but the MRI guided biopsy (right breast) was NOT fun. They didn't give me enough lidocaine and while they were digging in there they hit a nerve or something and it hurt, and I moved, not good.

After one of the core biopsies (I had multiple) I started bleeding again and had blood all over the bathroom counter and floor (sounds worse than it was) and my daughter nearly passed out.

I had one punch biopsy in the IBC breast before diagnosis, and one after I finished chemo.

I've become so numb to all of this at this point. I think I've had every possible biopsy at this point... I feel like I should have one of those punch cards for every possible medication, biopsy type, scan type, surgery type etc!

My left breast was a mess after the multiple biopsies. But I didn't really care since I knew they were going to chop it off anyway. My poor right breast (the remaining one) has had the MRI guided biopsy, the lumpectomy, and then after all that another type of biopsy that is similar to how they do the MRI guided one. That breast is now funny looking and kind of sad looking too.

I'm so glad I am not attached to the appearance of my chest... I get kind of mad sometimes at how the media etc. make women so self conscious about their breasts. It is so detrimental...

Dx 1/2019, IBC, Left, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2- (FISH) Chemotherapy 2/15/2019 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Dx 7/30/2019, IDC/IBC, Left, 6cm+, Stage IIIC, Grade 3, 4/14 nodes, ER+/PR+, HER2+ (IHC) Surgery 7/30/2019 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left Dx 8/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+ Radiation Therapy 10/8/2019 Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Xeloda (capecitabine)
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Jan 22, 2021 11:01PM blue22 wrote:

Hi Astrid!

Sorry for not paying enough attention - was catching up right before making dinner and in a bit of a hurry.

So far, no lymphedema - although this is always on my mind.

The radiation really did a number on my mobility, but not until several months later and I was not expecting it. Suddenly it was as if my skin was glued to my ribs and my range of motion was significantly different between the two sides. I should have gone back to physical therapy after I healed from radiation but forgot, then Covid hit, and suddenly I found I had serious mobility issues. I went back to physical therapy, and that helped a lot, but I have to stretch every day, multiple times a day. I do find that when I do yoga or some other types of exercises I can have sudden pain in my back that seems to stem from the imbalance between the two sides.



Dx 1/2019, IBC, Left, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2- (FISH) Chemotherapy 2/15/2019 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Dx 7/30/2019, IDC/IBC, Left, 6cm+, Stage IIIC, Grade 3, 4/14 nodes, ER+/PR+, HER2+ (IHC) Surgery 7/30/2019 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left Dx 8/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+ Radiation Therapy 10/8/2019 Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Xeloda (capecitabine)
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Jan 22, 2021 11:45PM Astrid wrote:

Oh Blue!

What a prolonged and awful ride you have been on. I so hope everything works well and keeps the beast at bay. Also glad you improved your mobility at least a bit. Yes I'm sure the imbalance would bring issues to keep an eye on.

LW....whelllllll!!! Crocodile Dundee up an octave? I almost spat out my tea!🤣

Oh dear Lord I hope not!!

I'd rather sound like Mary Poppins....NerdySillyHeartno....no....Benedict Cumberbatch if he was female. If you don't know who he is, I recommend downloading the Sherlock Holmes series with him in it. (I hope folks don't mind us bringing a little light relief to these truly awful dx's)


"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Jan 23, 2021 01:55PM LW422 wrote:

Bless you, Blue. You have really been through a lot of horror and I'm so sorry that you had to endure it. But on the other hand, I'm glad all the advances in care have made it possible for us all to have such care at this point.

Right now I need to thank heavens my left breast is symptom-free and pray that it stays that way. I still want a double mastectomy so we'll see how things progress.

Hope you're having a good weekend so far.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 23, 2021 01:58PM LW422 wrote:

LOL, Astrid. I was trying to come up with a famous Aussie and suddenly Crocodile Dundee popped into my head. I'm sure no one objects to a little fun on these threads; we can't all be morose and playing funeral music in the background all the time. Have a great weekend.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 24, 2021 05:11PM Astrid wrote:

How are you doing LW? How is your DH coping?

Thinking of you

Hug

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Jan 24, 2021 05:38PM LW422 wrote:

Hiya, Astrid. Hub and I are doing OK. I have my moments but he is steady on the course; he's so positive that I can handle anything. We are a blended family with 5 kids; 3 his and 2 mine... and they are all very supportive and loving. I can't imagine facing this without each of them in my life. (All are grown and living in different parts of the state; one son on the west coast in Oregon.) I have loving support and it really helps.

How are you doing these days?

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 24, 2021 06:27PM Astrid wrote:

Hey there L Dub!

Well, we were fortunate our daughter came to stay for a few weeks over Christmas. She missed a covid related border closure in Sydney by only a few hours. So lovely to spend time with her.

It is really really hot today, so a bit of movie watching until the cool change methinks!

Having a staycation right now until the work/study year kicks back into full swing.

Booked a little beach stay down the coast mid feb.

Waiting for results from bone scan and dexa scan . Hopefully get both from GP (internist?) On Wednesday. Not expecting anything more sinister from bone scan than more evidence of osteoarthritis and maybe bursitis.

Dexa...a bit worried...I already have osteopenia so hoping it still is.


So very happy to hear you have such beautiful family support. Love gets us through eh?

Hoping your port op goes smoothly.

🙏🌺🙂

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Jan 24, 2021 06:56PM LW422 wrote:

Sounds like a lovely visit with your daughter. I am sending good vibes for your scan results; the waiting is always hard. I'm anxious over my PET scan and wish I could relax for just a while. It's time for me to get a good result for a change. :hrmm:

Tomorrow's the brain MRI and somehow I'm not concerned about that. The tech may have trouble finding a brain in there, though.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 24, 2021 07:25PM Astrid wrote:

Happyha!!!

Sorry ma'am. We tried, but could not locate it. Have you perhaps left it in your car? Or maybe your youth?

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Jan 24, 2021 07:26PM Astrid wrote:

yes, no doubt. PET scan results. A big one for you. When will you get those?

"You cannot step into the same river twice, for other waters are continually flowing on." Heraclitus Dx 6/2002, IDC, Both breasts, 1cm, Stage IIB, Grade 2, 1/7 nodes, ER+/PR+, HER2- (FISH) Dx 7/2003, IDC, Left, 1cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 6/2012, ILC, Right, 1cm, Stage IIB, Grade 2, ER+/PR-, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Chest wall Chemotherapy AC Surgery Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right
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Jan 25, 2021 07:20PM LW422 wrote:

Astrid--I don't know when I'll get the PET scan results; there's nothing in My Chart so I suppose that's a good thing. I'd be making myself crazy(er) trying to interpret terminology which would just upset me again. I had a meltdown last night and I'm trying to hold it together.

I had the brain MRI today. Thursday I have a full day... port pre-op consultation, blood work, another Covid test, EKG, echo-cardiogram. Port installation is Monday; consult with MO on Tuesday. It's show time, people.

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/8/2021 Taxol (paclitaxel)
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Jan 25, 2021 07:28PM Beesy_The_Other_One wrote:

LW—Give yourself some grace. This was hard for all of us but during a global pandemic, it quadruples the stress, in my opinion. You have friends who are rooting for you. Remember, you don’t have to be brave. You just have to show up. 😉

1997: Phyllodes, R breast. 2018: IDC, L breast. TCHP, BMX, Radiation, Nerlynx. Dx 8/20/2018, IDC, Left, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC)

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