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Topic: So tired

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: May 2, 2021 01:38PM

Monarchandthemilkweed wrote:


Some background. My sister who is also chek2 positive was diagnosed with ovarian cancer this fall. Stage 3. Now stage 4. From October to Christmas I went and stayed at her house as much as i could to help out. She has three kids just like I do. Often staying days at time. By Christmas I was exhausted and worn out.

After Christmas I was too worn out to visit or help her. My kids needed me. Fast forward to March when I got diagnosed. I can’t shake the exhaustion and looking back wondering if the cancer is contributing to tiredness. Of course the stress of it all following the pandemic probably is causing the tiredness.

My surgery is a week away. And I’m both so ready yet scared. I guess I don’t have a question. Just missing what life was like before my sister and I both had cancer. My sister has been my best friend my whole life.

Sarah, Chek2 positive Dx 3/11/2021, IDC, Left, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/10/2021 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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May 2, 2021 06:21PM YesIamaDragon wrote:

I am so sorry to hear you are going through this!

Certainly caregiving is exhausting, and especially so in a pandemic. Then there is the anticipatory grief of knowing you are likely losing someone who has been with you your entire life! But yes, in retrospect, I do think my cancer was exhausting me well before it was diagnosed.


I am sending you many hugs!

Dx 6/2019, IDC, Right, 2cm, Grade 2, ER+/PR+, HER2+ Hormonal Therapy Arimidex (anastrozole) Radiation Therapy Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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May 2, 2021 06:46PM abigailj wrote:

Hi Sarah, so sorry to hear that you and your sister are both dealing with this awful disease. My sister, also my best friend even though 10 years older than me, was diagnosed with stage 4 lung cancer (Mets to pleurisy) a year and a half before my BC diagnosis. She remains with no further progression thankfully and hoping you sister likewise will stabilize. It’s emotionally exhausting not to mention physically helping out like I did with my sister when she had surgery to remove part of one lung regardless of whatever else could have been going on in our own bodies. However, I understand the majority of BC grows slowly I think what you’re saying is certainly possible, that the BC contributed to how tired you’ve felt on top of everything else. Hope your upcoming surgery goes as smoas possible and you heal well and quickly.

Abigail

Dx 1/2020, ILC/IDC, Both breasts, 2cm, Stage IB, 0/4 nodes, ER+/PR+, HER2- Surgery 6/23/2020 Mastectomy: Left, Right; Reconstruction (left): DIEP flap, SIEA flap; Reconstruction (right): DIEP flap, SIEA flap
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May 3, 2021 05:42AM Rah2464 wrote:

Sarah God bless you and your dear sister. I know you are a tremendous help to her and of course the stress and emotion of what you are both going through is fatiguing. However, I will add that for me, one of the symptoms of my cancer was unrelenting fatigue that no nap or extra sleep could alleviate. It began about three months prior to getting diagnosed. I wish you success on your surgery and I truly think once you are recovered you will feel much stronger. Sending you prayers.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/27/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 3, 2021 07:11AM Monarchandthemilkweed wrote:

yeslamadragon, thank you so much for your kind words. You got it exactly right! I was definitely going through anticipatory grief for the life I thought my sister and I would have.

Abigail, I am so sorry your sister also is a stage 4 cancer diagnosis. Sisters are so special. I pray that you and your sister experience wellness and health. Thank you for your kind words.

Rah, it's relieving to hear you experienced deep fatigue too. Somedays my mind spirals that my cancer is actually much worse. Thank you for sharing with me. It means a lot. It's so easy to feel alone in this.

Sarah

Sarah, Chek2 positive Dx 3/11/2021, IDC, Left, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/10/2021 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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May 3, 2021 08:13AM saltmarsh wrote:

Sarah, I'm so sorry. That's a lot.

You and I appear to have been diagnosed the same week, and I can tell you that after years of being a relatively energetic type of person (dancer, dance teacher, choreographer, would work a 40 hr/wk job and go teach dance at nights with lots of demonstrating), this past year I found myself getting drowsy, and then downright exhausted every day. I went from never napping, ever, to not being able to get through a day without a nap. Like, my husband and son would catch me fading between 10am-1pm everyday and send me to bed because I looked and felt awful.

While the doctors say there's no way to confirm that it was the cancer, and while they think that pandemic stress could have played a role, the reality is I'm really relatively lucky in that the pandemic has not impacted my life as badly as it has for most. I am way over on the introvert and curmudgeon end of things, and have been quite happy to stay home and not see people. So I'm not buying that. I do think it was the cancer.

Dx 3/8/2021. LCIS, ILC. Surgery 4/19/2021 mastectomy, right
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May 3, 2021 10:28AM Monarchandthemilkweed wrote:

salt marsh, I’m so glad you’ve had your surgery already. It’s been SO hard to wait for mine. That does make me feel better to you were exhausted too. I usually don’t sit down all day. A lot of my hobbies are very active. So it’s been hard. I hope you are healing well! Thank you for the response. It helps

Sarah, Chek2 positive Dx 3/11/2021, IDC, Left, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/10/2021 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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May 3, 2021 04:02PM LivinLife wrote:

Welcome Monarch! Really feeling for you and your sister! I too have been in your shoes.... helped 2 sisters with Stage 4 lung cancer driving back and forth many long weekends to spend time and help.... It's a terrible thing though I will forever cherish the time I was able to spend with them.... Gentle hugs.....

with expansive comedo necrosis & weak ER/PR Dx 7/2020, DCIS, Left, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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May 4, 2021 10:37AM 2019whatayear wrote:

You are going through so much. Tiredness certainly could be due to many different factors. I don't think being tired would mean your cancer is worse than your diagnosis says. Do you have support? Definitely take advantage of any programs your facility has for cancer patients and caregivers you have been doing double duty.

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020
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May 4, 2021 08:35PM duchess78 wrote:

I am so sorry you and your sister are dealing with all of this. How incredibly hard. This is one of those times where you question why. It is just crappy. Feel free to come here and vent. Sending some virtual hugs your way!

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