Topic: Oncologist wants a Brain MRI

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Dec 13, 2021 02:28PM

Posted on: Dec 13, 2021 02:28PM

hray1993 wrote:

I have a brain MRI scheduled on dec 15th. I had triple negative stage 2 grade 3 breast cancer in 2020. Diagnosed Dec 2019. And cancer free August 3 2020. I did 12 weeks of taxol, 8 weeks of AC chemo then did a lumpectomy followed by six weeks of radiation. Then I started a chemo pill that was twice daily every day for a year. I just finished that up on dec 1st. For the past three weeks I’ve had constantly daily headaches that make me nauseous and lightheaded and dizzy. Also have some heart burn. A few weeks ago I was sick at work with a cough and fever so my work sent me for COVID testing. It was negative. They gave me steroid shot and sent me on. I still wasn’t feeling well and still having the headache symptoms so went to the ER. They tested for everything. It all was negative. I know it’s not a vision problem because I’ve got that checked recently and got glasses for that. I messaged my oncologist to let him know just so he could put it in my file and he says he wants a brain MRI as soon as possible. I go Wednesday Any thoughts? Has anyone had a brain MRI to look for Mets and it was nothing? Or if you have brain Mets what were your symptom

Diagnosed at age 26 with no family history and no genetic mutations. Cancer doesn’t have an age. 5% ER+, 20% PR+, HER2-. Treating like triple negative Dx 12/19/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 2/12/2020 AC + T (Taxol) Immunotherapy 2/13/2020 Surgery 8/3/2020 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 12/1/2020 Xeloda (capecitabine) Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall
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Dec 13, 2021 02:37PM krose53 wrote:

I developed vertigo about 2 months after chemo. It was quite severe. I called my MO and she ordered a brain MRI. My MRI was clear. I was treated for the vertigo and in resolved after several weeks. Have you ever had migraines? I get all those symptoms with my migraines. Luckily, you won't have to wait long. Waiting is the worst.Hoping your results are negative.

Dx 11/16/2017, ILC/IDC, Both breasts, 1cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2- Surgery 12/27/2017 Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 1/22/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 4/1/2018
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Dec 13, 2021 03:02PM - edited Dec 13, 2021 03:31PM by krose53

I developed vertigo about 2 months after chemo. It was quite severe. I called my MO and she ordered a brain MRI. My MRI was clear. I was treated for vertigo and it resolved after several weeks. Have you ever had migraines? I get all those symptoms with my migraines. Luckily, you won't have to wait long. Waiting is the worst. Hoping your results are negative.

Dx 11/16/2017, ILC/IDC, Both breasts, 1cm, Stage IIA, Grade 2, 2/5 nodes, ER+/PR+, HER2- Surgery 12/27/2017 Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 1/22/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 4/1/2018
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Dec 13, 2021 03:13PM moth wrote:

It's good that you're having the scan. Sounds like your oncologist is very on top of everything. Mets are something we always need to have listed as a differential diagnosis.

From ABC diagnosis, the main symptoms of brain mets are "Frequent headaches, vomiting (first thing in the am), dizzy, visual disturbance, seizure, impaired intellectual function, impaired motor skills, mood swings, balance, fatigue. Family members and friends may say you are not your normal self." https://www.abcdiagnosis.co.uk/resources/infograph...

I hope it turns out to be something else and easily treatable! Keep us updated - I'll be thinking of you

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/15/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy) Chemotherapy 6/1/2022 Other
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Dec 13, 2021 03:14PM hray1993 wrote:

I do have chronic migraines. I have since I was about 12. But after my son was born I rarely get them anymore. So it’s possible they could be that but I’m not sure

Diagnosed at age 26 with no family history and no genetic mutations. Cancer doesn’t have an age. 5% ER+, 20% PR+, HER2-. Treating like triple negative Dx 12/19/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 2/12/2020 AC + T (Taxol) Immunotherapy 2/13/2020 Surgery 8/3/2020 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 12/1/2020 Xeloda (capecitabine) Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall
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Dec 13, 2021 04:25PM threetree wrote:

hray1993 - I wouldn't rule out the possibility of sinus problems or migraines. I'm ER+ and take an AI, unlike your situation I know, but I started having some bad headaches, mild nausea, dizzy, etc. and I know for sure some of it is related to my sinuses. I was telling a relative about all of this and she said that what I described sounded a lot like migraines that she used to get. She also said that her husband could get just "killer" headaches, etc with sinus problems.

I've never had migraines in my life, but I think there might be something to the idea that after cancer treatment, some of us might be more prone to them. Also, have you recently had a Covid shot or booster? I noticed a lot of odd symptoms after the Covid vaccines and I've read on here where others suspect something from the vaccine also. Some of my problems come with movement, computer scrolling, bright lights, etc., but those same symptoms can just come from seemingly out of nowhere. I get them off and on, but they are not constant. When I use nasal spray and do nasal irrigation, things can improve, but not always. I've had fevers and had to go get anti-biotics, but no one has suggested a brain MRI. I did have a brain MRI when I was first diagnosed and it was all clear. I think there are a lot of possibilities other than mets that could be causing your problems, but the test would probably be good to rule things out, if nothing else. My headache problems get real scary too sometimes and I worry about mets also. When I google all my symptoms the three things that come up every time are sinus, migraine, and brain tumors. I totally sympathize with your fears, but hold on and see if any of these other possibilities aren't at the heart of your problems. I've got my fingers crossed for you that it is something else. Good, good luck to you!

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Jan 18, 2022 05:26PM positivityandhope wrote:

hray1993 - hope you are feeling better now. Hope the scan was all clear. I am TNBC and get scared all the time. Praying for you

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