Topic: Post mastectomy and feeling alone

Forum: Just Diagnosed — Discuss next steps, options, and resources.

Posted on: Jun 16, 2022 09:45AM

Posted on: Jun 16, 2022 09:45AM

rla2144 wrote:

hello,


I am 7 weeks post-op bilateral mastectomy and feeling alone. I have gained weight and having a hard time with the pain from the tissue expanders. I am so disfigured and over my normal weight that I won’t go out in public. I am finding myself in a dark place and having trouble getting through the day. Did anyone else find themselves in this position?

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Jun 16, 2022 11:05PM - edited Jun 16, 2022 11:07PM by wc3

rla2114:

The changes that happen to our bodies during treatment can be difficult to cope with. I certainly had my low moments during treatment because I felt and looked so unwell at times. but I think it helps to keep sight of the fact that you are in a transitory period and many of the changes, such as weight changes, can be temporary. The expanders are also temporary and you might find yourself pleased with the final reconstruction results. This will all be behind you eventually and you will have a return to normalcy.

Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2- Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant
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Jun 17, 2022 05:46PM sunshine99 wrote:

Hi rla2144, I'm sorry you are suffering and are in a dark place. It's hard to look forward to healing when you are in physical pain. If your pain is keeping you from going out, you might mention it to your doctor - either your surgeon or your MO. The weight gain is no fun and is discouraging. I hope you find some relief very soon.

Wishing you a restful weekend.

Carol

my-sunny-side-up.com Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External Local Metastases 5/5/2020 Radiation therapy: Bone Radiation Therapy 5/12/2020 External Local Metastases 5/12/2020 Radiation therapy: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Jun 20, 2022 07:14PM typhoon wrote:

I'm so sorry that you're feeling low. If you haven't already done so, please consider speaking to a therapist (perhaps your GP, surgeon, or oncologist could offer some recommendations). Some PTSD symptoms, including depression, are not uncommon after the major events you've been through. I hope that things start to improve for you!
Depression (breastcancer.org)
Post-Traumatic Stress Disorder (PTSD) (breastcancer.org)

Dx 10/23/2020, IDC, Both breasts, <1, Stage IA, Grade 2, ER+/PR+, HER2-, IHC Surgery 12/1/2020 Lymph node removal (Left): Sentinel; Lymph node removal (Right): Sentinel; Mastectomy (Left): Nipple Sparing; Mastectomy (Right): Nipple Sparing Surgery 12/9/2020 Lymph node removal; Lymph node removal (Left): Sentinel; Lymph node removal (Right): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Hormonal Therapy 1/1/2021 Arimidex (anastrozole) Hormonal Therapy 1/14/2021 Arimidex (anastrozole)
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Jun 20, 2022 07:25PM bcincolorado wrote:

I am so sorry you are feeling so icky right now. I hated my expanders too. You are also having a lot of feelings you do not realize right now. That PTD article is a good one I know and know a lot of us go through that as well. There is light on the other side and there are people you can reach out to here and if you have support people there you can speak with you should do it as well. Best wishes in your recovery as well and heal quickly.

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/1/2010 Mastectomy (Left): Nipple Sparing; Reconstruction (Left): Tissue Expander Surgery 1/1/2010 Mastectomy (Left): Nipple Sparing Surgery 1/7/2010 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left) Hormonal Therapy 1/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/30/2016 Femara (letrozole) Hormonal Therapy Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 21, 2022 06:40PM - edited Jun 21, 2022 06:41PM by serendipity09

I am sorry you are feeling so down. I can def relate as my body has changed drastically and I'm not comfortable in my own skin right now. I do, however, have the hope that all of this is temporary and that time is needed to heal from the physical and emotional toll treatments and surgeries have had on us. We are our own worst critics. Nothing that you've been through is easy.

You are not alone and my hope for you is to be gentle and kind to yourself.

Hugs


"You can't wait until life isn't hard anymore, before you decide to be happy" - Nightbirde
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Jul 2, 2022 11:52PM msphil wrote:

Most of us here know what your feeling that alone No one on my big family had breast cancer. But fiance and parents siblings were there for me. But couldn't know what I was feeling we were planning our 2nd marriages when I found the lump went thru and opinions biopsy etc. Forward 28yrs later cancer Survivor Praise God my faith helped me to have Hope and Positive thinking. We are here for you. msphil. Idc stage2 0/3 nodes 3 mo chemo before and after L mast expander then removed body rejected it got married then 7 wks rads 5 yrs on tamoxifen this also Your 28yr Wedding Anniversary. Hold on keep Hope.

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Jul 3, 2022 03:37PM sbelizabeth wrote:

Hold on. I promise you there are brighter days ahead.

My oncologist started me on an anti-depressant during treatment. I wasn't aware I was depressed, just scared and sad. It made a world of difference. I felt like a heavy black cloud was lighter.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIB, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy; Mastectomy (Left) Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap
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Jul 19, 2022 04:45PM lehrski wrote:

How are you doing now? Are you starting to heal?

I too went through a dark time. It's a lot of changes to accept. I found friends were much more accepting of me than I was of myself. If you are well enough, even just getting outside to sit in a park or a phone call with a friend could help. I definitely wished I had gotten therapy to deal with feelings.

You are not alone. This board can be a good resource of people who understand. Hugs and warm thoughts.

Dx 7/24/2020, IDC, Left, Stage IV, metastasized to bone/lungs, ER+/PR-, HER2- Targeted Therapy 8/1/2020 Verzenio Hormonal Therapy Arimidex (anastrozole)

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