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All TopicsForum: Male Breast Cancer → Topic: Men and Tamoxifen

Topic: Men and Tamoxifen

Forum: Male Breast Cancer — For men who have been diagnosed or are at high risk.

Posted on: Jun 4, 2011 05:59PM

usetheforce wrote:

Hello! I just had my last chemo tx on April 29th. Starting to feel somewhat normal again, just waiting for my hair to grow back. I am to start Tamoxifen now. I am just wondering if any of the men on here can share what there experience with taking it is/was? What kind of side effects did you have? Any information, etc. would be great! 

Thanks!!

Dx 11/17/2010, IDC, 3cm, Stage II, Grade 1, 0/17 nodes, ER+/PR-, HER2-
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Jan 25, 2016 06:58PM - edited Jan 25, 2016 07:03PM by Moderators

This Post was deleted by Moderators.
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Jan 25, 2016 07:01PM Moderators wrote:

Agree with Traveltext, we are glad you found this forum, and please feel free to post here any time!

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Jun 2, 2016 06:33AM Charles_Pelkey wrote:

20mg a day for the last four years. My oncologist is recommending that I remain on Tamoxifen for up to 10 years. I have had no noticable side-effects.

Charles F. Pelkey Dx 7/27/2011, IDC, 2cm, Stage IIB, Grade 3, 1/10 nodes, ER+/PR+, HER2- Surgery 8/4/2011 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Surgery 8/10/2011 Mastectomy: Left, Right Chemotherapy 9/8/2011 AC + T (Taxol) Hormonal Therapy 1/15/2012
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Jun 2, 2016 07:23AM Traveltext wrote:

20mg a day for the last 18 months. My oncologist is recommending that I remain on Tamoxifen for up to 10 years. I have had no noticable side-effects. Never felt better and NED.

One percent of those newly diagnosed with breast cancer are guys. I'm one of those. Recently diagnosed and treated for prostate cancer. Now NED for both. More on Male BC here. Dx 3/6/2014, IBC, Left, 2cm, Stage IIIB, Grade 2, 2/23 nodes, ER+/PR+, HER2- Chemotherapy 3/17/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 9/14/2014 Breast, Lymph nodes Hormonal Therapy 11/3/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 8, 2017 02:06PM cliff wrote:

I havnt found any side effects from tamoxifen yet, coming up on one year now, markers still going down, bone scan shows hope too. side effects might be masked by all the other stuff I take, lots of diuretics, heart meds and such, but so far no big changes yet. the only problem I have is with the exgiva shot once a month to keep my bones from turning to silly putty, strange random pains from that. but if that's what it takes to kill this cancer, ok with me.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 4/1/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 8, 2017 07:38PM Traveltext wrote:

I've been on Tamox for over two years without side effects. Great that the exgiva is doing the job for you, too.


One percent of those newly diagnosed with breast cancer are guys. I'm one of those. Recently diagnosed and treated for prostate cancer. Now NED for both. More on Male BC here. Dx 3/6/2014, IBC, Left, 2cm, Stage IIIB, Grade 2, 2/23 nodes, ER+/PR+, HER2- Chemotherapy 3/17/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 9/14/2014 Breast, Lymph nodes Hormonal Therapy 11/3/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 17, 2017 03:27PM cliff wrote:

just had a side effect show up, sweating at night, around alarm clock time. Maybe I was confusing it with the low glucose sweats and shakes of diabetes. but I started checking my glucose and it was high enough to rule that out.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 4/1/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 11, 2017 03:04PM froid89 wrote:

Had erectile dysfunction issue!

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May 11, 2017 03:43PM Traveltext wrote:

Froid89, how long have you been on the drug?


One percent of those newly diagnosed with breast cancer are guys. I'm one of those. Recently diagnosed and treated for prostate cancer. Now NED for both. More on Male BC here. Dx 3/6/2014, IBC, Left, 2cm, Stage IIIB, Grade 2, 2/23 nodes, ER+/PR+, HER2- Chemotherapy 3/17/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 9/14/2014 Breast, Lymph nodes Hormonal Therapy 11/3/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 12, 2017 06:42AM - edited May 12, 2017 01:01PM by froid89

2 month and then quit. It was tough decision.

Tamoxifen citrate and Erectile dysfunction - from FDA reports
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May 12, 2017 07:06AM Traveltext wrote:

Well,according to that survey, just 0.43% of men had ED after tamoxifen. In other words over 99%had no problems. Sorry that you were in such a minority.

One percent of those newly diagnosed with breast cancer are guys. I'm one of those. Recently diagnosed and treated for prostate cancer. Now NED for both. More on Male BC here. Dx 3/6/2014, IBC, Left, 2cm, Stage IIIB, Grade 2, 2/23 nodes, ER+/PR+, HER2- Chemotherapy 3/17/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 9/14/2014 Breast, Lymph nodes Hormonal Therapy 11/3/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 12, 2017 12:58PM froid89 wrote:

Hmm. May be there was some other reason of ED. I don't know.

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May 12, 2017 05:43PM Traveltext wrote:

have you recently finished treatment? Often, it takes a while to regain confidence and, certainly, get used to your new look before you feel sexy again. Then you could also try Viagra or Cialis to get you started. I honestly believe, though, that your sexual function will return to normal given time.

One percent of those newly diagnosed with breast cancer are guys. I'm one of those. Recently diagnosed and treated for prostate cancer. Now NED for both. More on Male BC here. Dx 3/6/2014, IBC, Left, 2cm, Stage IIIB, Grade 2, 2/23 nodes, ER+/PR+, HER2- Chemotherapy 3/17/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 9/14/2014 Breast, Lymph nodes Hormonal Therapy 11/3/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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