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Topic: New to Board

Forum: Male Breast Cancer — For men who have been diagnosed or are at high risk.

Posted on: Oct 3, 2012 01:32AM

Reddeer56 wrote:

Just joined the board and I have a few questions, maybe other members can help me with? I have read through most of the posts under this forum and most of the locations of lumps are directly under the nipple. I am going in for an ultrasound on Monday and I have lumps that are not under the nipple, but they are very close. I have a rather large one on the right breast above and to the side of the nipple and another one of the left breast that is small and below the nipple. I also have somewhere beteen 30-50 lumps from the left arm pit down to where your watch band would be. They range in sizes. There are a few similar lumps on the right arm around the elbow. None of these hurt or bother me.

My questions are: Do men get BC only under the nipple? Will they do an ultrasound on the lumps in my arm when they are looking at the breast lumps?

Thanks,

 Mike

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Oct 3, 2012 02:38AM - edited Oct 3, 2012 02:47AM by debbie6122

Hi  Mike- Sorry you had to come here for answers. I am not real sure but to my knowledge it could be any where on the breast. As you probably already know breast cancer in men is rare but not unheard of, there are several men here that do have breast cancer. From the sounds of the lumps on your nipple and down your arm I would see a special as soon as you can. Not to scare you because they could just be cysts but I would have them checked out. I will be keeping you in my thoughts and prayers and hope it is nothing serious. If you have any more questions we will be happy to help. Night time seems to run a little slow so if you don't get answers right away dont think we don't care because we do.

I just realized you are going to have an ultra sound on Monday. Yes, they should be able to do the ultra sound under the arm but may also order an MRI as well.

Please keep us posted!

Hugs! Debbie

masectomy, chemo, node positive Dx 12/20/2009, IDC, ER+/PR-, HER2-
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Oct 3, 2012 04:43AM chrissyb wrote:

Hi Mike and welcome to BCO although I hate the reason you are here.
In answer to your question, breast cancer can be anywhere there is breast tissue and it doesn't matter if its male or female.
Those lumps down your arms are rather concerning but it's good that you have the US already organized for Monday.

Please let us know how you get on and remember we are all here for support and information when ever you need.

Love n hugs. Chrissy

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Oct 3, 2012 10:27AM - edited Jul 27, 2020 10:39AM by TectonicShift

This Post was deleted by TectonicShift.
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Oct 4, 2012 03:46AM Reddeer56 wrote:

All,

Thanks for all the replies. I am just waiting around till Monday to see how this all plays out. I have more important problems right at the moment. My neurologist says I have a subdural hematoma in the head right now. So I guess were going to have to do something about that or maybe not? They have done an US on the lumps in the elbow before and they said they were not worried about them. This was before  I found them going all the way up the arm. Seems kind of strange they seem to follow the lymph system in the arm.

We will get to the bottom of this mystery pretty soon!

Mike

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Oct 5, 2012 04:00AM debbie6122 wrote:

Mike- Sorry about the other things you are dealing with, I don't know anything about a subdural hematoma so can't help you there maybe someone else will come along who has knowledge of that. You sure are going through a lot right now. Prayers for you and please keep us posted.

Hugs!

Debbie

masectomy, chemo, node positive Dx 12/20/2009, IDC, ER+/PR-, HER2-
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Oct 27, 2012 06:54PM 1NippledBandit wrote:

Mike,

Sorry I did not reply sooner.  I haven't been on in a while (school).  I hope everything went well with your ultrasound and you have the results.

If you ever have any questions you need another guy to answer, don't hesitate to ask.  Send me a message and I will respond sooner.  

Brent - aka the 1 nippled bandit

Breast cancer, it's not just for women anymore! Dx 6/1/2010, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+, HER2-
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Jan 8, 2017 01:48AM - edited Jan 8, 2017 03:27AM by Reddeer56

Well, I am back 4 years latter. My original scans/mammogram in 2012 were supposed to be ok. I accepted that and moved on. I neglected to respond back with the good news to this board. My apologies for not doing so. I recently reported a lemon size lump under my right arm in the axillary area. The Dr. asked if I had found any new lumps in the chest area, I said no. Dr. sent me down to Sally Jobe for an ultrasound of the mass. I arrived on time and was informed I was getting a mammogram in addition to the US. Mammogram was done and nothing was said, moved on to the US. The tech performing the procedure was speaking to a student. My Dr. thought it was a lipoma on her discharge papers. The tech. immediately ruled out a lipoma and she sees nothing but a large lymph node etc. US finished and radiologist came in to recheck the findings. I was kind of surprised by what the radiologist said, it was the largest lymph node she had ever seen, 4.5 cm large. But, it had a shape that she had never seen before. She said she normally sees them 2.5 cm range, never this big. She rattled off a number of things it could be and said she was going to have to review the mammogram again and study my previous test results from 2012 to try to figure out what is going on. I said ok, and she was supposed to call me. Well no call was made to me on Friday. I received an urgent call on Sat. from Sally Jobe, my Dr. ordered an immediate breast MRI and one on the 4.5 cm mass. My Dr. does not work on Fridays or Sat. She only works 3 days a week. Great Dr. by the way.

This seems to be moving along rather fast? I was thinking they should probably just do a biopsy to just find out what it is. Radiologist said she did not just want to stick a needle in it. I thought that was kind of a strange way of saying something. I did not ask for a biopsy, the Radiologist just said she did not want to stick a needle in it right off.

Scheduled for MRI's on 1/17. My question is do they normally do an MRI first before doing a biopsy?

In addition to this axillary lump, I have a lump in the corner of my left eye and something growing on the right eye. Optometrist thinks the lump is a cyst. Growth on eye was after seeing optometrist. Have appointment with ophthalmologist, which is why I went to my Dr. in the first place. I also have a lump in the nasal cavity adjacent to the eye lump. Have appointment with ENT Dr. as well. So while I was with my Dr. I asked about my heart murmur. She listens to my heart and then says she is scheduling an echo cardiogram at the hospital. Normally she does this at the hospital associated with her practice. Imagine my surprise when the local hospital calls and says she wants an urgent echo cardiogram scheduled. I made the appointment and then wondered why would she schedule me at a competing hospital chain and why so urgent?

I am actually pretty calm about all of this. I have MS, Diabetic, Lupus and a couple of other things. My MS has moved into the Secondary Progressive MS. which is basically a downward spiral with out remissions anymore. I was in the tail end of a MS attack at the time of the US.

Any advice on what happens next with MRI results? I would assume they will want to do a biopsy of some kind. My old swollen lymph nodes have not gone away either. 1 side of neck (same side as 4.5 cm mass), 1 right parotid gland, 1 on each side under jaw. All 2.5 cm or larger.

Thanks,

Mike

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Jan 8, 2017 02:32AM voraciousreader wrote:

mike...i am sorry to see that you have reconnected....can't say with certainty what is happening...but it does sound like everyone seems invested in trying to get answers quickly. Regarding MRI....mine followed my biopsy....


Do keep us posted. I send you my thoughts and prayers. My mother-in-law had MS for more than 40 years and passed in her 80's. I know how tough this all must be for you and your loved ones.

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Jan 8, 2017 06:02AM - edited Jan 8, 2017 02:09PM by Reddeer56

Thank you for the kind reply. I have had MS now for 33 years. I have literally been severally ill for over half of my life now. I had to quite work because of MS, severe fatigue and severe cognitive issues. Those are the top 2 reasons for MS disability. Now for the good news. I have never let any of this bother me. I am just thankful for the things I can do. Any day I can get up is a good day. I cannot do some of the things I used to do. So I do something different and I am really good at finding a different way to do things.

So life is good and I have no complaints.

Just patiently waiting for the next chapter in my life to unfold and see what is new.

Mike

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Jan 8, 2017 10:58AM voraciousreader wrote:

mike! Your bad ass optimistic attitude is just like mine! I ALWAYS tell people, "It is a good day if I roll out of bed and my feet touch the ground." 😇


Mother-in-law seems to have had a similiar MS presentation to you....At times, very severe fatigue and it affected her brain as well...Early on in my marriage, I was touched by her limitations and it really inspired me to redouble my effort in accomplishing things....whether it be as simple as throwing on my coat, boots and gloves, despite the frigid temps, and take the garbage out, or be, sitting down and doing my best work, knowing in the back of my head, that, whatever it is I am doing may take a long while to get finished, so i need to be in my best physicial and mental state. Through her tough life, I learned that if I needed to accomplish things, I needed to be tough physicially and treat my mind gently.


And....the DH has a rare metabolic form of muscular dystrophy. So....may I say, your words are BEYOND meaningful to me. Like you, they are a code for my life and are a reminder to me of how grateful I am for those beloved people in my life that through their limitations have taught me to be a better person.


Thank you for sharing....

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Jan 12, 2017 12:29PM Reddeer56 wrote:

voraciousreader,

Thank you for your nice comments. I finally heard back from my Dr.'s office yesterday. They said Sally Jobe was not able to determine what the mass was. So my Dr. ordered the MRI's.

Life certainly is interesting and full of challenges.

Mike

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Jan 12, 2017 01:53PM voraciousreader wrote:

do keep me posted...i was thinking of you and wondered how you were making out....

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Jan 13, 2017 04:04AM Traveltext wrote:

Reddeer, Certainly an MRI will help with a diagnosis of bc, although I was diagnosed with a US. I was then given an ultrasound guided biopsy with a needle to the nipple lump and an affected node. There is then the dreaded wait of a couple of days for the pathology report.

Good luck with your MRI. Keep us posted on your progress.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Jan 18, 2017 09:12PM - edited Jan 18, 2017 10:07PM by Reddeer56

Its been an interesting few days. I obtained the US report and it said they suspected a Lipoma or Liposarcoma, with a remote chance of Lymph Node involvement. Both the US tech and the Radiologist both were adamant it was not a Lipoma when they did the US. The Radiologist also said during the US that there was nothing on the Mammogram and confirmed that with the US tech. I was told she would have to review everything. Mammogram report from Dr.'s office says they found an axillary mass, hence the US. Recommendation was MRI before biopsy.

My Dr. calls today and says they MRI people are calling it a fatty Lipoma. My Dr. gave me the option of having it removed if it was bothering me? I said no for now. All though I might change my mind?

I am kind of having a hard time understanding how we go from no Lipoma (US) to Lipoma (MRI). The US Radiologist reviewed a CAT scan from 2 years earlier and it showed no mass at all in the area of question. So a 4.3 x 3.8 x 1.6 cm lump formed in 2 years and is still growing. I am going over on Thur and get a copy of the MRI report and see what else it says.

I am off to the ENT Dr. on Thurs to find out is blocking my nasal cavity. He straightened out my nose before and should know what is new or not.

Maybe the right thing is to just have the thing removed?

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Jan 18, 2017 10:15PM voraciousreader wrote:

red...each type of imaging has its pluses and minuses...usually, an MRI will give the most info..it usually sees more than the other modalities...i would certainly have a second opinion before deciding whether to remove it or not. That said, I had a lipoma that I had removed because it kept growing until it interfered with sitting ( it was inside of my crotch). Unfortunately, it began growing again and had to be removed again.


Sinuses? I have a lot going on in that department too. Hope everything gets resolved. Chronic sinus issues is no picnic. Good luck



Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Feb 3, 2017 09:58AM cliff wrote:

SENTINAL NODE INJECTION. now that I have your eyes all teared up, that was the most painfull thing done to me during the two weeks I had to undergo tests before my surgery on april 1 2016. since the surgery, my surgery area feels like someone elses shoe sole, lots of nerves cut. found out after surgery, it went to stage 4 and spread to my rib and baase of my spine. on tamoxifen and exgiva now, and treatment seems successful. the lymphedema from having 21 lymph nodes removed does not help much since it is on the left side, and I am left handed.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 3/31/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 3, 2017 10:15AM voraciousreader wrote:

cliff...you just took the wind out of my sails! I hope the meds will keep working for a very long time! Hope you get the arm under control too. Are you receiving PT?

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Feb 3, 2017 10:45AM Reddeer56 wrote:

I kept forgetting to come back with an update. I had a nose procedure to reduce swelling and inflammation in the turbinates in the nose. Not much to it except some bleeding. Had some bleeding in mouth, don't know how working on your nose causes your palate to bleed? I do seem to be breathing easier now.

As far as the lump goes the ENT Dr. thought it should be removed. He checked it and gave me his opinion, he is a really good Dr. He doubles as a high end plastic surgeon. I received a copy of the MRI and was looking at it. That lump is really big compared to everything else around it. Its so big on the MRI you cannot miss the darn thing. So I think I am going to have it removed unless someone talks me out of it, like a surgeon or someone. Now would be a good time to do it before spring arrives. I guess it would be better to be safe then sorry.

Eye Dr not to concerned about lump in corner and I do have something growing on my other eye, some benign growth from to much sun. She was more worried about me have Glaucoma of all things. Never saw such a well run Dr.'s office then that one. I was really impressed by it. Was also moved into the moderate Aortic Stenosis crowd.

Cliff:

Sorry to hear about your diagnosis and problems with the lymph node area. I hope everything will turn out positive for you. Keep your chin up and keep going.

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Feb 3, 2017 03:54PM Traveltext wrote:

Cliff. I can relate to the surgery area feeling like a shoe sole, and sorry to hear about the mets. And the lymphedema.

Hang around here, there's hardly any men posting, but you'll still get lots of good advice and support.

If you fill in your Profile stats, it will be easier for us to assess your situation. Best wishes, Rod.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Feb 3, 2017 04:06PM cliff wrote:

I filled them in, but they don't show up. a little background, I have been diabetic for over 25 years, diagnosed with congestive heart failure about 4 years ago, too. before this cancer mess showed up. and showed up at stage 4 at that. a bit of cancer in a rib, and the base of my spine.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 3/31/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 3, 2017 02:38PM - edited Jun 3, 2017 02:40PM by Reddeer56

I am back looking for advice after having a complete a complete axillary lymph node dissection by the surgeon. He was supposed to remove the the mass and I came out with a huge crater where it was and a suction device and bulb. I also had 2 hernias repaired, so I am hurting mostly in the groin area and back.

What can I expect going forward with lymph node dissection? He said he removed them because they felt rubbery to him and was intertwined the the main tumor, what ever that means?

Not expecting this turn of events, except for hernias

Thanks,

Mike

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Jun 3, 2017 04:43PM Traveltext wrote:

Welcome back Mike. Lymph nodes are commonly affected when guys have breast surgery because we are diagnosed later. Your surgery will heal in time, so hang in there. Keep us posted.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Jun 3, 2017 11:45PM Reddeer56 wrote:

Traveltxt, Thanks for the reply. I have been sitting outside enjoying a couple of pain pills. I have curious question. Did anyone ever have cancer surgery where the surgeon inserted catheters into the incisions. The catheters in my case 2 were inserted into the hernia repair incisions and both of them ran to a some kind mechanical ball that contained a pain killer in it. Boy did that make every thing go number literately. Everything in the immediate area was area was numb including the boys. I thought this was a pretty good idea as they did not tell me about it before hand. Took about 4 days for meds to run out of it and I pulled it myself, no problems. I thought might be a good thing for breast cancer, but what do I know?

Mike

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Jun 4, 2017 12:05AM - edited Jun 4, 2017 12:21AM by Traveltext

Mike, I don't think those are catheters, rather they are drains to take away the fluid around the incision. You need to measure the amount you empty and keep a record. When the amount coming out is down to around 30ml per day, they will remove the drains. If you get a swelling around the incisions, report it immediately, since you will need to have the fluid manually removed. As to the hernia drain, I assume its the same situation. But if you have swelling in your scrotum, I'd report this too.

More questions welcome.




NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Jun 4, 2017 12:07AM sbelizabeth wrote:

Reddeer, you crack me up. The mechanical ball with a pain killer is called an "On-Q" pain relief system:

http://www.myon-q.com/

It a tennis-ball shaped thing that holds a numbing medication that gradually drips in over several days. I'm a little surprised that no one told you about it ahead of time. I've had them several times--after reconstruction surgeries, and again after a bilateral knee replacement. They're great. My surgeon pulled it out a couple of times, and my husband pulled it out once or twice.

Thank you for hanging in there with us. Breast cancer is a "women's" cancer, but clearly men get it too, and your contributions here mean a lot. My husband came to me many years ago with a lump in his breast, and neither of us knew what to think. He had a mammogram (in a very pink, lacy suite) and was fine, but the knowledge of breast cancer in men is very inadequate.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jun 4, 2017 12:34AM Traveltext wrote:

Thanks for describing the device sbelizabeth, Ive never had one!


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Jun 4, 2017 12:50AM Reddeer56 wrote:

Traveltxt and Liz, Thanks for the replies!!

Happy

I have a drainage tube from the tumor/lymph node resections and I do have to drain and milk it twice a day. Now abut 100 ml a day. Liz nailed the catheters on the head. It sounds like they may be used on breast cancer and other surgeries. I am really thankful for them, I would hate to have found out how painful the hernias would be with out them.

My friends have been helping with the swollen areas, pack1, pack 2 and pack 3 are my best friends now. Pack 3 is my baby that sits in my arm pit area. I hold her like a new born baby, very gentle and make sure she is comfortable!! All three friends gets change of diapers(ice) every once in a while. I just love the little rascals. So far my under arm is numb around the pec muscles area and I have pain running down the back of my arm to the elbow and stops. Not bad pain, in fact I would not take a tylenol for it, but then again I am taking narcotics for the hernia pain. So hopefully it won't get any worse. I was just looking for some loving experiences of others who had this procedure done.

Right now I have no idea of any cancers of any kind. Just sitting around waiting for a shoe to fall off the centipede of life and show itself.

I think I might go for a short stroll down to the corner after Bluebloods is over. It helps with the back and butt pain from sitting to long.

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Jun 4, 2017 01:35AM - edited Jun 4, 2017 01:40AM by Traveltext

"Right now I have no idea of any cancers of any kind. Just sitting around waiting for a shoe to fall off the centipede of life and show itself."

So did you also have breast surgery as well as lymph node removal? Do you have the pathology report from the lymph surgery?

When you get a moment you could fill in the diagnosis and treatment section of your admin panel and this will help us understand where you are at with all this.

Good luck with the drains!


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Jun 4, 2017 02:03AM - edited Jun 4, 2017 03:47AM by Reddeer56

Traveltxt,

No they did not do any breast surgery of any kind. They were supposed to be removing a fatty tumor, supposedly a lipoma. I wake from surgery to find out they removed everything in axillary arm pit area, the fat pad, tumor and all of the lymph nodes. The question is why? The said results would be back in 4-5 days. I am guessing business days which would make it next Mon or Tue. The Dr. said the nodes felt hard and rubbery to him. Realistically I doubt I will hear anything from until my next appointment with them on June 13th.

I actually spent 3 whole days in the hospital due to low blood pressure. 87/47 not real good, nor was it safe to go home with it that low. Nice people in the hospital they took real good care of me. They told me I was a dream patient or was it I was dreaming allot because of the meds. It must be the first part right!!!???

Happy

So I am just trying to figure what happens next with all my lymph nodes being gone now, as I said I was not expecting that to happen, very surprised. As you probably know google searches on this lymph node dissection only come up with breast cancer diagnosis which did not happen in my case. All though that is why I was sent down to Sally Jobe in the first place. Which is where the ultrasound found the mass not the mammogram.

Mike

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Jun 17, 2017 05:17PM Reddeer56 wrote:

The results for the tumor and lymph nodes came back as benign. Good news.

I still have my drain where they removed the tumor/nodes. My outer/inner arm feel like some one took a cheese grater and scraped all the skin off my arm. My inner forearm is now starting to hurt some to. The right breast area is all swollen up now I guess from lymph fluid having no where to drain. If you push or move wrong the lymph fluid comes gushing out the hole where the drain tube is. Fluid is still draining into the collection bulb. I think more is draining down my side now.

Any advice out there axillary nodes removal? I am going back to the Dr. next Wed. I tried an ice pack on the right breast last night, looked like it might have helped, hard to tell.

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