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Topic: Mammography Should Be Primary Tool to Diagnose Men

Forum: Male Breast Cancer — For men who have been diagnosed or are at high risk.

Posted on: Jan 13, 2017 09:58AM

Moderators wrote:

Mammography Should Be Primary Tool to Diagnose Breast Cancer in Men With Symptoms
January 6, 2017

Ultrasound doesn't add benefits beyond mammograms in diagnosing male breast cancer. Read more...

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Posts 1 - 18 (18 total)

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Feb 3, 2017 09:01AM cliff wrote:

but even a manual feeling would be better than most doctors do now.24 years 4 times a year to the same doctor and the first time he checked me was when I said " whats this doc? it kinda hurts". turned out to be stage 4 already spread breast cancer.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 4/1/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 3, 2017 02:51PM Traveltext wrote:

Doctors are blind to the fact that men get breast cancer and that's why we're diagnosed later and our prognosis is poorer. I blame the pink charities a lot for this situation, since they have failed to raise awareness that men get this disease too. Awareness levels that women get bc: 100%. Awareness levels that men get bc: 30%. This is criminal IMO.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Feb 7, 2017 06:56AM cliff wrote:

the state pays for mammograms for women, and actually gives mammograms to men, but only under 60 years old. they don't advertise the free mammograms for men at all. that is Kansas where I live.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 4/1/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 7, 2017 04:33PM Traveltext wrote:

They need to advertise that men can have mammograms. Does anyone know of other states that offer free mammograms for men?


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Mar 10, 2017 01:14PM cliff wrote:

with all the wonderful things that have happened since my lump was "found" I really think it might be difficult for me to not invert my doctors nose if he ignores my right breast on my next exam. it would have been so easy to check before stager 4.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 4/1/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 10, 2017 02:48PM Traveltext wrote:

Yes, indeed. Men's later diagnosis means a poorer prognosis. We've got to get that message out there.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Mar 11, 2017 07:06PM Traveltext wrote:

Too true KB870 Here's what we would like from the pink charities and the medical profession:

Male Breast Cancer Manifesto

We wish to build and promote a consistent profile and narrative within all cancer groups for male breast cancer that enables a more balanced perspective and supports improved health outcomes.

We ask breast cancer groups to:

• Provide inclusive imagery and de-gendered language across all mediums to acknowledge the disease exists in men as well as women.

• Build a sense of importance and belonging within cancer support groups for male breast cancer patients and their caregivers.

• Provide easy access to relevant up-to-date information for men that is prominently displayed and accessible by all groups.

• Institute breast cancer research and development funding to the equivalent of one percent of the total amounts raised.

• Include a splash of blue among the pink to promote awareness of male breast cancer.

• Set aside a day in October to publicise male breast cancer.

• Institute public breast screening programmes for all BRCA1 and BRCA2 males.

Please let us know if your organisation is able to adapt to a more inclusive agenda for the promotion of breast cancer prevention, diagnosis, treatment, and research.

NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Mar 11, 2017 07:13PM ChiSandy wrote:

Before I got my own diagnosis, my 32-yr-old son got a “Dear Patient” health-reminder letter to schedule a mammogram. We both laughed at the waste of paper & postage, saying maybe this was part of the reason for high premiums. Not laughing any more.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
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Mar 17, 2017 02:30PM cliff wrote:

good for you, chisandy, sounds like you got one of the rare doctors that actually has heard of male breast cancer.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 4/1/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 25, 2017 04:22PM badger wrote:

hi all, this post isn't meant to be political, it's about male breast cancer.

Apparently Sen. Pat Roberts (R-KS) doesn't know that men get bc and may indeed need a mammo.

cliff, you're from Kansas. This would be a great teaching moment.

Sen. Pat Roberts apologizes for 'mammogram' line

By Ashley Killough and Ted Barrett, CNN Updated 2:54 PM ET, Thu March 23, 2017

(CNN) — Sen. Pat Roberts, a Kansas Republican, apologized Thursday afternoon for making an apparent joke about mammograms related to what features are or are not included in Republicans' plan to repeal and replace Obamacare.

"I deeply regret my comments on such an important topic," Roberts said in a statement. "I know several individuals whose lives have been saved by mammograms, and I recognize how essential they are to women's health. I never intended to indicate otherwise, and I apologize for my comments."

Roberts, who's known for employing a dry sense of humor, told a Talking Points Memo reporter earlier in the day: "I wouldn't want to lose my mammograms."

He was referring to a potential change in the Republican health care plan that would gut a measure requiring insurers to cover "essential health benefits," including mammograms for breast cancer screening.

"Cancer is no joke," Rep. Judy Chu, D-California said on Twitter. "Mammograms save lives. Same reason we pay for prostate exams. Government shouldn't decide what care women can access."

Roberts, in an interview with CNN Thursday before he issued the apology, argued that not all of the benefits declared essential are "really needed," and suggested individuals should be able to choose plans that let them decide what's essential.

"I don't think it's the end of the world in terms of coverage by any means," he said. "That would be by the decision of the individual and the doctor of their choice. That's the whole point. "

Asked whether mammograms should be covered, Roberts suggested he wouldn't need them because he's a male. "Not for me," he said.

And while he said it was up "for the House to decide," he said mammogram coverage is a "reasonable topic of discussion" and argued that it would help premiums go down.

http://www.cnn.com/2017/03/23/politics/pat-roberts-apology-mammogram/

7,715.5 miles walked ~ Find your calm. Move forward from this place. Dx 12/22/2009, IDC, 2cm, Stage IIB, Grade 1, 1/4 nodes, ER+/PR+, HER2-
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Mar 25, 2017 04:29PM - edited Mar 25, 2017 04:41PM by Traveltext

You're right Badger, this is a great male bc teaching moment and I know the Male Breast Cancer Coalition are on to it.

Cliff, this might be an opportunity for you to contact your senator and explain that men can get this disease too.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Mar 26, 2017 03:41PM Meow13 wrote:

I wonder if Robert's was informed on male breast cancer and the use of mammograms for men.

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Mar 26, 2017 04:00PM Traveltext wrote:

Likely, yes, if he reads THIS.

NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Jun 23, 2017 02:57PM cliff wrote:

Mamogram, been there, done that. got the surgery, and now the tamofloxn .so what if all the mamogram places are pink, and the " ladies there give you the stink eye for going into their clinic. get over the embarrassment and get it done, its your life on the line.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 4/1/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 23, 2017 09:59AM NfrnoDave wrote:

I had an interesting conversation with my Mammogram Tech a few months ago:

MT: Soooo, what brings you in today?

Dave: I am 1 year post dx of my breast cancer. My Dr wants a follow up mammogram.

MT: Sorry, we don’t give mammograms ‘Willy Nilly’

Dave: I have breast cancer and my doc ordered one.

MT: men don’t have breast

Dave: I’m here to tell you that MEN HAVE BREAST TOO!

MT: your breast formed because of your breast cancer.

Dave: you need to read a book on your next break

MT: I’ll call your doc and explain it to her

Dave: are you serious? You are questioning my Dr’s orders???

Mammogram Tech actually left the room and came back with the Radiologist. One of them called my oncologist.

Radiologist: we are going to give you a mammogram just this one time

Dave: you are correct,,, because I will never return to this office again.

My oncologist flipped and told me that she made a few calls. She didn’t tell me the outcome but my guess is that the MT doesn’t work there anymore.


This is just a sample of the way I have been treated this past year. I have been treated like a freak by some people.

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Dec 23, 2017 04:23PM Traveltext wrote:

Wow, that's one of the worst cases of medical ignorance I've heard of in a long time. Good on you for sticking to the plan and drawing attention to the issue.

I hope things are going well for you post treatment. Do feel free to post questions here, since there's a small group of us guys to give support from the man perspective.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Feb 13, 2020 10:49PM TallnTerrific wrote:

I logged into these threads about male breast cancer to do some research for a book I am writing. As a female I have had breast cancer, but had no idea of the stupidity of medical professionals related to men with breast cancer. I plan to include a man with breast cancer in my book. I will be sure to reflect in the story the confusion and lack of understanding about how this cancer can attack men as well as women. I hope the book helps inform more people about male breast cancer.

Having a male relative that suffered breast cancer is one of the more dangerous family histories for a woman with a lump or other symptoms, according to my oncologist. Also I want to caution against being lulled into a sense of security that a you do not have a “genetic” link to your breast cancer just because it is not reflected in your genetic testing. If there is a family history of breast/thyroid/prostate and other hormone sensitive cancers there is likely an unknown genetic link. When my mother was diagnosed in 1987 they only tested for BRCA I and II. When I had genetic testing in 2015 they tested for 23 different genetic variants. Today there are probably even more. We are just in the early stages of understanding the information available in our genetics.

Dx 8/26/2015, DCIS/IDC, Left, 5cm, Stage IIB, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 11/9/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 1/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 2/29/2016 Arimidex (anastrozole), Femara (letrozole)
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Feb 13, 2020 11:51PM Traveltext wrote:

Hi TT, what a good idea. If you need any help,I’m very active in the male breast cancer scene and have been posting on BCO for years. . You can check out my website in the link of my signature.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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