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Topic: Male Breast Cancer-GET checked while in Chemo

Forum: Male Breast Cancer — For men who have been diagnosed or are at high risk.

Posted on: Jun 26, 2018 11:21AM

jlee79 wrote:

This is a cautionary story and I'm sorry if it's a little sad. If you don't want to read this, just skip to the last line.

My cousin was diagnosed with male breast cancer. His son was the one who scratched him, on the bare chest, when playing, that's when he felt the bump for the first time and he thought it was from the scratch. When it didn't go away, he went to the drs and they told him it was breast cancer.

We thought we were in the clear because it was only stage two and nowhere else in the body. He had surgery to remove the lump and two lympnodes to be safe. They said he was in the clear and the chemo would make him in the clear. He went through chemo and apparently while he was doing Chemo it was spreading through his body. It went into his lungs then bones. From exactly one year after he was diagnosed, he passed away. He was in his early 30's. All the treatments he got, the drs couldn't give him any reassurance because there is so little research on how it effects male breast cancer. He went to the best drs. and they did their best.

I just wanted to post this to say...please continually get checked while in chemo. Fight for it.

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Jun 26, 2018 11:44AM Moderators wrote:

Hi jlee -- thank you for sharing your story. We're so sorry for your loss, and send our most sincere condolences.

--The Mods

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Jun 26, 2018 12:33PM NotVeryBrave wrote:

That is very sad indeed. He is not the typical male breast cancer patient. I hope that he had genetic testing done since it would seem to be more likely to be genetic at such a young age.

More needs to be studied for men with breast cancer - every person is individual as is every cancer, but men get very little awareness and very few studies include them.

TCHP x 6 with pCR. One year of Herceptin. DTI pre-pec surgery. Quit Tamoxifen after 3 months. Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/18/2016 Perjeta (pertuzumab) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 5/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/25/2020 Evista (raloxifene)
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Jun 27, 2018 04:21AM Traveltext wrote:

Thanks for sharing this story about your cousin. I've never heard of someone going from Stage II to Stage IV during chemo. Sorry for your loss.

NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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