Topic: Male breast cancer

Forum: Male Breast Cancer — For men who have been diagnosed or are at high risk.

Posted on: Sep 6, 2019 12:53PM

Posted on: Sep 6, 2019 12:53PM

Johnnybgood wrote:

Hi I am a 64 year old living in Scotland I was first diagnosed with Breast cancer in Febuary 2010 and had a mastectomy followed by Radiation treatment. In 2015 I was diagnosed witth a small cell lung cancer on the same ,right,side Just 5 weeks ago after a routine mammogram they found a new primary Breast Cancer on my left side.The medics say that I am a rare man I would love to know about any others like me. On Monday i had a full mastectomy and now recovering regards to all here

jbeardsmore
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Dec 4, 2021 04:03PM - edited Dec 4, 2021 04:08PM by mswife

Just wanted to check in for some advice.

My husband just started Tamoxifen this past week - 20 mg daily. This morning he woke up a bit 'blah' - nausea, mild headache and chills, body aches. It's possible he could have picked something up, but he's triple vaccinated for Covid and we have very low case numbers locally. Could also be just a regular cold or even food poisoning, I guess lol.

Anyways, most side effect profiles are from women, so I'm wondering if men who have taken it have any insight on how normal these symptoms are and what we can expect as he continues therapy. Hopefully if it's Tamoxifen related, they go awa quickly because I'm not sure he would tolerate being laid up like this every day!

Thanks!

A member to gather info for my husband ❤️ Dx 03/2021 IDC 2.6 cm, stage IIIA, nodes ‘undetermined’ (matted), grade 1, ER+/PR+, HER2 - Dx 3/16/2021, IDC, Left, 2cm, Stage IIIA, Grade 1, ER+/PR+, HER2- Surgery 3/25/2021 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left) Chemotherapy 4/26/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall
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Dec 4, 2021 04:25PM traveltext wrote:

I'm a guy who has been on 20mg daily tamoxifen for the past seven years. Never had anything like this, but I started at age 64 and so not subject to the hot flushes that younger men report. How old is hubby?


NED breast and prostate cancer. Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
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Dec 4, 2021 05:21PM mswife wrote:

Good to know how things went for you. He’s 53.

Will keep an eye and report back

A member to gather info for my husband ❤️ Dx 03/2021 IDC 2.6 cm, stage IIIA, nodes ‘undetermined’ (matted), grade 1, ER+/PR+, HER2 - Dx 3/16/2021, IDC, Left, 2cm, Stage IIIA, Grade 1, ER+/PR+, HER2- Surgery 3/25/2021 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left) Chemotherapy 4/26/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall
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Dec 4, 2021 05:51PM traveltext wrote:

This is a very effective drug for ER+/PR+, HER2- men. I take mine at 8am so that side effects show up in the day. By nighttime these should be minimal, and certainly next day virtually nothing that the drug could cause. Keep us posted.


NED breast and prostate cancer. Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
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Dec 13, 2021 01:37PM mswife wrote:

just wanted to update you all:

What ended up coming out and probably causing his fever was a cellulitis (mild) to his chest wall, where he had radiation. He is on antibiotics now and it’s settling.

As for tamoxifen, he seems to be tolerating it well. He says he feels a bit hot and sweaty at times, but it’s not like a true hot flash where he’s dripping sweat or anything. He’s been taking his med at night but might switch to the morning at some point to see how it goes.

I’m hopeful all side effects will be gone in a few weeks

A member to gather info for my husband ❤️ Dx 03/2021 IDC 2.6 cm, stage IIIA, nodes ‘undetermined’ (matted), grade 1, ER+/PR+, HER2 - Dx 3/16/2021, IDC, Left, 2cm, Stage IIIA, Grade 1, ER+/PR+, HER2- Surgery 3/25/2021 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left) Chemotherapy 4/26/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall
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Dec 13, 2021 08:38PM minustwo wrote:

Thanks for updating MSWife. It's great to have he follow up.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014

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