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mswife
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Dec 4, 2021 01:03PM
- edited
Dec 4, 2021 01:08PM
by
mswife
Just wanted to check in for some advice.
My husband just started Tamoxifen this past week - 20 mg daily. This morning he woke up a bit 'blah' - nausea, mild headache and chills, body aches. It's possible he could have picked something up, but he's triple vaccinated for Covid and we have very low case numbers locally. Could also be just a regular cold or even food poisoning, I guess lol.
Anyways, most side effect profiles are from women, so I'm wondering if men who have taken it have any insight on how normal these symptoms are and what we can expect as he continues therapy. Hopefully if it's Tamoxifen related, they go awa quickly because I'm not sure he would tolerate being laid up like this every day!
Thanks!
A member to gather info for my husband ❤️ Dx 03/2021 IDC 2.6 cm, stage IIIA, nodes ‘undetermined’ (matted), grade 1, ER+/PR+, HER2 -
Dx
3/16/2021, IDC, Left, 2cm, Stage IIIA, Grade 1, ER+/PR+, HER2-
Surgery
3/24/2021 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left)
Chemotherapy
4/25/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
Whole breast: Breast, Lymph nodes, Chest wall
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traveltext
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Jun 28, 2022
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Dec 4, 2021 01:25PM
traveltext
wrote:
I'm a guy who has been on 20mg daily tamoxifen for the past seven years. Never had anything like this, but I started at age 64 and so not subject to the hot flushes that younger men report. How old is hubby?
NED breast and prostate cancer.
Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
Chemotherapy
3/6/2014 Other
Chemotherapy
3/6/2014 AC + T (Taxotere)
Chemotherapy
3/10/2014 FAC
Hormonal Therapy
4/16/2014
Surgery
7/1/2014 Lymph node removal (Left); Mastectomy (Left)
Surgery
7/23/2014 Lymph node removal (Left); Mastectomy (Left)
Radiation Therapy
8/8/2014 Whole breast: Left breast, Lymph nodes
Radiation Therapy
8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes
Hormonal Therapy
10/24/2014 Liquid tamoxifen (Soltamox)
Hormonal Therapy
10/30/2014
Hormonal Therapy
11/1/2014
Surgery
5/8/2022
Radiation Therapy
Surgery
Surgery
Surgery
Hormonal Therapy
Surgery
Hormonal Therapy
Surgery
Surgery
Surgery
Surgery
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mswife
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Dec 4, 2021 02:21PM
mswife
wrote:
Good to know how things went for you. He’s 53.
Will keep an eye and report back
A member to gather info for my husband ❤️ Dx 03/2021 IDC 2.6 cm, stage IIIA, nodes ‘undetermined’ (matted), grade 1, ER+/PR+, HER2 -
Dx
3/16/2021, IDC, Left, 2cm, Stage IIIA, Grade 1, ER+/PR+, HER2-
Surgery
3/24/2021 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left)
Chemotherapy
4/25/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
Whole breast: Breast, Lymph nodes, Chest wall
T
traveltext
Joined:
Jul 2014
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Jun 28, 2022
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Dec 4, 2021 02:51PM
traveltext
wrote:
This is a very effective drug for ER+/PR+, HER2- men. I take mine at 8am so that side effects show up in the day. By nighttime these should be minimal, and certainly next day virtually nothing that the drug could cause. Keep us posted.
NED breast and prostate cancer.
Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
Chemotherapy
3/6/2014 Other
Chemotherapy
3/6/2014 AC + T (Taxotere)
Chemotherapy
3/10/2014 FAC
Hormonal Therapy
4/16/2014
Surgery
7/1/2014 Lymph node removal (Left); Mastectomy (Left)
Surgery
7/23/2014 Lymph node removal (Left); Mastectomy (Left)
Radiation Therapy
8/8/2014 Whole breast: Left breast, Lymph nodes
Radiation Therapy
8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes
Hormonal Therapy
10/24/2014 Liquid tamoxifen (Soltamox)
Hormonal Therapy
10/30/2014
Hormonal Therapy
11/1/2014
Surgery
5/8/2022
Radiation Therapy
Surgery
Surgery
Surgery
Hormonal Therapy
Surgery
Hormonal Therapy
Surgery
Surgery
Surgery
Surgery
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mswife
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Dec 13, 2021 10:37AM
mswife
wrote:
just wanted to update you all:
What ended up coming out and probably causing his fever was a cellulitis (mild) to his chest wall, where he had radiation. He is on antibiotics now and it’s settling.
As for tamoxifen, he seems to be tolerating it well. He says he feels a bit hot and sweaty at times, but it’s not like a true hot flash where he’s dripping sweat or anything. He’s been taking his med at night but might switch to the morning at some point to see how it goes.
I’m hopeful all side effects will be gone in a few weeks
A member to gather info for my husband ❤️ Dx 03/2021 IDC 2.6 cm, stage IIIA, nodes ‘undetermined’ (matted), grade 1, ER+/PR+, HER2 -
Dx
3/16/2021, IDC, Left, 2cm, Stage IIIA, Grade 1, ER+/PR+, HER2-
Surgery
3/24/2021 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left)
Chemotherapy
4/25/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
Whole breast: Breast, Lymph nodes, Chest wall
M
minustwo
Joined:
Apr 2011
Posts:
16,357
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Jul 1, 2022
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Dec 13, 2021 05:38PM
minustwo
wrote:
Thanks for updating MSWife. It's great to have he follow up.
2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
