Topic: Learn what it's like to be a man with breast cancer

Forum: Male Breast Cancer — For men who have been diagnosed or are at high risk.

Posted on: Mar 31, 2022 09:06PM

Posted on: Mar 31, 2022 09:06PM

traveltext wrote:

Michelle Beck from the Breast Friends Cancer Support Network did an extended interview with me about my experiences, from diagnosis to treatment and as a patient advocate.

Video – you can watch or download the video here: https://youtu.be/m5B0RrpQDU0

Audio – you can download (or listen here). You can download by clicking on the "Download MP3" link on the left side of the page under the mall logo. https://www.voiceamerica.com/episode/136205/male-breast-cancer-not-just-a-female-disaese

Chemotherapy 3/6/2014 Other Chemotherapy 3/6/2014 AC + T (Taxotere) Chemotherapy 3/10/2014 FAC Hormonal Therapy 4/16/2014 Surgery 7/1/2014 Lymph node removal (Left); Mastectomy (Left) Surgery 7/23/2014 Lymph node removal (Left); Mastectomy (Left) Radiation Therapy 8/8/2014 Whole breast: Left breast, Lymph nodes Radiation Therapy 8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes Hormonal Therapy 10/24/2014 Liquid tamoxifen (Soltamox) Hormonal Therapy 10/30/2014 Hormonal Therapy 11/1/2014 Surgery 5/8/2022 Radiation Therapy Surgery Surgery Surgery Hormonal Therapy Surgery
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Mar 31, 2022 11:40PM elderberry wrote:

Great interview. I am so glad you did it!! Let's have blue pompoms in October. I really and have always HATED pink. Can you maybe post your MANifesto?

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Apr 1, 2022 12:37AM traveltext wrote:

Ha, thanks elderberry.

https://malebc.org/manifesto/

Chemotherapy 3/6/2014 Other Chemotherapy 3/6/2014 AC + T (Taxotere) Chemotherapy 3/10/2014 FAC Hormonal Therapy 4/16/2014 Surgery 7/1/2014 Lymph node removal (Left); Mastectomy (Left) Surgery 7/23/2014 Lymph node removal (Left); Mastectomy (Left) Radiation Therapy 8/8/2014 Whole breast: Left breast, Lymph nodes Radiation Therapy 8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes Hormonal Therapy 10/24/2014 Liquid tamoxifen (Soltamox) Hormonal Therapy 10/30/2014 Hormonal Therapy 11/1/2014 Surgery 5/8/2022 Radiation Therapy Surgery Surgery Surgery Hormonal Therapy Surgery
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Apr 1, 2022 08:56AM - edited Apr 1, 2022 08:58AM by moderators

This is wonderful, traveltext! Thank you so much for sharing with the community!

The Mods

Heart

To send a PM to the Mods: community.breastcancer.org/my/... Surgery 5/10/2022
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Apr 1, 2022 11:40AM serendipity09 wrote:

Traveltext - this is awesome. Thanks for sharing. Men are so underrepresented when it comes to BC, probably because it's commonly associated as a woman's "illness" for lack of a better term

I second the blue pompoms in October lol.


Chemotherapy 4/1/2020 AC + T (Taxol) Surgery 9/17/2020 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 11/3/2020 Xeloda (capecitabine) Surgery 7/9/2021 Reconstruction (Left); Reconstruction (Right) Chemotherapy Xeloda (capecitabine) Chemotherapy Carboplatin (Paraplatin) Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall
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Apr 3, 2022 12:45PM elderberry wrote:

taveltext: Thanks for the link. I so TOTALLY agree. Men are never mentioned except in ads that promise Stage IV HER2- an extra 8-10 months of life which isn't very uplifting either.

MODS: Fix my signature line. I AM NOT HER2- !!!! I keep going back to my Profile to fix but it says HER2+ there and has an extra ER-/PR- that I never entered. EVER

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)

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