Mar 18, 2021 06:34PM ilowen wrote:
“Get out of jail free card” ... love it!!
Canadian health care, clinical trials, and life in general in the north.
Posted on: Dec 19, 2011 06:17AM
I'm wondering how many West Coast Gals we currently have on here. It makes it a little easier to compare notes as our health-care is provincial. Would be nice to share tips and such to each other as we wade though the health-care Bureaucracy.
I'm in Richmond BC (a part of the Vancouver Lower Mainland) and the majority of my treatment has been at Vancouver General Hospital and Vancouver Cancer Agency.. with a few small surgical procedures done at UBC and my original Lumpectomy at Richmond General. My GP is also in Richmond. Ive been on the BCO boards since 2007 with a few breaks.
Please pipe in even if only to let us know your here
Posts 2971 - 3000 (3,066 total)
Mar 18, 2021 06:34PM ilowen wrote:
“Get out of jail free card” ... love it!!
Mar 20, 2021 12:42AM BlueSky1969 wrote:
Moth - been reading your blog. You are rocking the no wig lewk - you have a perfectly shaped head :)
I'd like to plug back into to community, I'll keep checking for updates on a zoom call.
I'm off Tamoxifen - with mixed feelings. I couldn't tolerate it. My mental health was suffering too much. I hope after a year of no periods (halfway there!) I can try an AI.
*Hugs to all*
Mar 25, 2021 11:26PM Pots wrote:
I’m sorry to let you know that Marian Leighton aka marianelizabeth passed away earlier this week. Her daughter posted the following on FB today.
My mother Marian passed away Tuesday night at home, in a house that she loved for its views of the ocean and the many birds that live among the garry oaks and bushes of the garden.
I know she has a huge network, multiple networks, which are a testament to how she lived. She was keenly interested in other people, open-minded, and diligent about the follow up. Once she directed me to the coast of the Black Sea to meet up with a Romanian sailor, whom she had met years earlier, by wandering into a naval ship.
In place of sentimentality, she had enthusiasm, for travel, her chickens, rhododendrons, the Himalayas, her gardens, social justice. I remember one day in the last few months walking into her room and her asking, in exasperation, "What is wrong with white people?" She followed American and Canadian politics closely. After getting palliative radiation in January, while still drowsy in the hospital with brain swelling, she shouted "YES!" when I mentioned news about a U.S. senate seat flipping. She protested the Kinder Morgan pipeline and the Site C dam, donated to the Pull Together First Nations legal fund, and had planned to go to jail in resistance.
In spite of a lack of early family support and a lot of gendered bullshit, she discerned and achieved heartfelt dreams. She also became a blog writer and a meditator in response to the cancer journey, developments that she valued deeply.
My mom got the news that cancer had spread to her brain the same day I finished my teaching program in mid-December. "Let the good times roll" was our toast and motto from that night forward, as we sought to enjoy sunsets, games, and happy hours, as well as, somewhat bizarrely, powering through all 17 seasons of Grey's Anatomy. "10 blade" may have been our last inside joke.
The pandemic in some ways has made it easier to curl up into this time. I do find it a challenge to communicate outside of the bubble. I likely won't be in touch quickly. That said, please do feel welcome to share your memories and reflections about Marian. You who knew her were very much part of her story. And I will enjoy reading your words. ❤️
Mar 25, 2021 11:38PM cathy67 wrote:
RIP, Marine. Thanks for your kindness here when I joined this group more than one year ago, I always read your blog, yes, I know what you said in your last post, you said, you spent a wonderful day and you enjoyed time together with friends, and I always pray you have a smooth journey.
Mar 26, 2021 01:01AM Sadiesservant wrote:
Thank you for letting us know Pots. I have bern worrying about Marian a lot lately and went searching for news two days ago. May you rest well Marian. You left your mark on this world in countless ways.
Mar 26, 2021 04:21PM runor wrote:
Oh Pots, I was very sad to read this. M.E. was a trooper and bright spirit. Thank you for letting us know.
Mar 26, 2021 07:59PM SaraJay wrote:
Hi everyone. This past month has been so crazy and surreal. I live in Maple Ridge. 39 years old single mom of a 12 year old daughter. I noticed my right breast looked very different while getting into the shower at the beginning of the month. It also felt as if the upper outter right quadrant was a massive lump. I found out that I am not able to book my own screening due to not being 40, so I decided to go to a walk in clinic (in hind sight should have gone to my family doctor). She performed a manual exam of both breasts and agreed that I needed a scan. The clinic called me the next business day to say my mammogram and ultrasound were April 15. I told them that seems much too far away almost 6 weeks at that time) and asked them to look around at other imaging places. After much argument, they called back with an appointment date which was just a few days away. The mammogram was my first, so I didn't know what to expect. I had an ultrasound right afterwards. They took so many images I felt like I was there forever. I knew it wasn't good when the technician told me she was going to get the doctor. The doctor took a look herself and told me I needed a biopsy. I just started bawling and this is where my anxiety went into overdrive (and hasn't subsided since). Another wait of a week and a half, the walk in clinic calls again to tell me my biopsy appointments ((2??) We're scheduled for April 14 and May 7. I was really feeling like this wasn't being taken seriously enough. I phoned the breast imaging department at Royal Columbian hospital and the receptionist coldly told me "we are busy. We are booking the urgent appointments in April and other ones into June". I begged to be put on the cancellation list. I also decided then to get my family doctor involved, though he's in Delta and I don't see him often. I spoke with him on the phone, asked him to get the records from the walk in clinic and try to find me an earlier date somewhere else. They put in a requisition at Jim Pattison breast health clinic. The following day, RCH called because there was a cancellation. I was moved to March 25. So I had my ultrasound guided biopsy yesterday and it wasn't pleasant. I was in the room for an hour and a half. I found out that I have another mass next to the one I can feel (she said it's hard to measure the large one due to my breast tissue, but it's between 3.5 and 5cm...Ugh). They also mentioned a third mass, but weren't totally sure if it is just breast tissue (in another quadrant). They biopsied the two in the same quadrant (4 samples of each) as well as one lymph node in my armpit that's been swollen. I was most concerned about the lymph node and this really scared me. Once the radiologist left the room, I started crying uncontrollably and the attending nurse (technician) told me that the lymph node doesn't look bad. It's just slightly thickened in the outside, but looks normal on the inside. So...we wait for results. Saying I'm terrified is an understatement, as I'm sure many can relate. My family doctor's office called today to tell me they already have an appointment for me at the Jim Pattison breast health clinic for April 9. After doing some reading, it sounds like their team is great. I obviously don't know yet what my next steps will be, but wondering if anyone here has had experience with the Jim Pattison breast health clinic? Any reason why I should or should not go somewhere else?
Mar 26, 2021 08:33PM wrenn wrote:
So sorry to hear about Marian. I guess I expected her to keep on kicking. She was so upbeat. I know she had a lot of pain so it is good she is at peace.Thanks Pots for the post. :-(
Mar 26, 2021 08:37PM cathy67 wrote:
Hi, I just received vaccine shot invitation, and I plan to go, just want to conf it is pfizer.
Mar 26, 2021 08:39PM wrenn wrote:
cathy I was told mine (coming Monday) will be Pfizer or Moderna and there will be no choice. Wherever you are scheduled only has one or the other is what I have heard.
Mar 26, 2021 08:42PM Sadiesservant wrote:
Envy you having a shot of any kind as my clock is ticking louder these days.. No letter for me yet. I read they are prioritizing Fraser Health given case counts although that was not stated in relation to the clinically vulnerable. Sigh....
Mar 26, 2021 08:50PM Sadiesservant wrote:
Sara, I can’t provide any advice regarding JP’s clinic but would recommend you give them a chance given you have had such a run around. I can certainly understand how you are feeling. I was initially diagnosed at 38. While my GP was amazing, getting me in for a core biopsy immediately (and BTW, I likened it to being harpooned - not precisely pleasant) they lost my results and so I waited, and waited. Then I was scheduled for surgery in the middle of a nurse’s strike. Up to the morning of my surgical date it was unclear if I would actually have the surgery. While the experts say breast cancer rarely moves that fast, our gut instinct is get it out, now!
Hope you get speedy answers. Sending a virtual hug.
Mar 26, 2021 09:12PM cathy67 wrote:
wrenn, please come back and update. From Monday, I can call, not sure when the shot will be.
Mar 26, 2021 09:34PM wrenn wrote:
Cathy, I was first allowed to call today at noon (74 years old) and I had a choice of Monday or April 9th depending on which place I wanted to go to. I chose Monday to get it over and done since I am very anxious about getting sick. I will have mine at UBC.
I will report back.
Mar 26, 2021 11:19PM cathy67 wrote:
So you are age group. I am 53 years old, from coastal health, not sure when the appt will be. Will try to call on Monday.
Mar 27, 2021 12:07AM wrenn wrote:
cathy they advise not calling until it is your group. The lines are tied up. I had to try for a while. If you google vaccination times or BCCDC they have all the info and when it is closer to your time they put out explicit dates and times. Should be coming up soon. Hard to wait. :
Mar 27, 2021 01:06AM moth wrote:
clinically vulnerable with a letter from Bonnie Henry are Monday at noon by phone.
Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
Mar 27, 2021 01:30AM cathy67 wrote:
Moth, does it start from Monday noon not Monday morning? I will ride daughter to school Monday morning, will call around noon. I saw your post that you are doing exercise, that is great. I enroll my fitness class every Monday morning, fitness class full within 30 minutes after enrollment open. Busy Monday, booking Monday.
Wrenn, I got invitation as "clinically vulnerable" group, can call from March 29. I searched richmond clinics, sounds they offer services in different clinic every day, will want to get it asap!
Mar 27, 2021 02:01AM - edited Mar 27, 2021 02:02AM by akmom
SaraJay, I'm so sorry you are having to go through this. My surgeries were at the Breast Health Clinic at Jim Pattison. I got very good care there and found the staff kind and thorough. My doctor said that was the best place to go for treatment and I think he was right. Follow up care (radiology the first time and MO appointments the second time) was at the BC Cancer Agency at SMH.
The unknown and the waiting is really hard... it's difficult to think of anything except whatever is going on in your breast. Once a diagnosis is determined and a treatment plan in place, many have said they found iteasier to cope. Hope this is the case for you.
This is a good site to come to for information and support. Just keep breathing and putting one foot in front of the other for now, and be kind to yourself. Keep us posted xx hugs
Mar 27, 2021 02:21AM akmom wrote:
SaraJay, I forgot to say that the breast health clinic will assign you a surgeon, should you end up needing surgical treatment. (Dr. Rhonda Janzen did my lumpectomy in 2012; my double mastectomy in 2018 was done by Francis Zhi.)
Mar 27, 2021 09:57AM wrenn wrote:
I'm so relieved to hear about "clinically vulnerable" getting in now. So many people I know have been worried about that. I feel kind of guilty being seen so soon since I am able to just stay home. I worry about people having to go out to work. My daughter works very closely with people and every time I pick up curbside groceries I worry about workers serving us.
Stay safe everyone.
Mar 27, 2021 10:26AM cathy67 wrote:
Yes, quite a few people around us are clinically vulnerable, I am not sure if I can make the call connected the coming Monday. They will have online system running after April 6, anyway, a good news. I also go for shopping, ride daughter, visit clinics, ... Wish you a smooth experience, and what I am concerned most is, it is either pfizer or moderna, that I can accept.
Mar 27, 2021 10:56AM wrenn wrote:
Mar 27, 2021 10:56AM - edited Mar 27, 2021 10:57AM by wrenn
The above was from the BC page regarding clinically vulnerable patients. So either Pfizer or Moderna?
Mar 27, 2021 01:45PM cathy67 wrote:
wrenn, yes, I saw that page, should be.
Mar 27, 2021 02:12PM SaraJay wrote:
Akmom, thank you. I appreciate your kind words and support. I'm feeling confident in the expertise of the team at Jim Pattison. These next few days of waiting are going to be so hard.
I'm worried that if I receive positive results from the biopsy, the waiting on further test results will be the absolute worst. My mind has already been going to worst case scenario for weeks due to the size of the tumor that I can feel. Then I found out during the biopsy that there are two other areas. While I know that everyone is different, I can't help but think it's really bad.
Mar 28, 2021 07:30PM DearLife wrote:
Pots thank you for letting us know about Marian. I am so sad to learn that she has died. She was a courageous, caring and feisty woman who brought many of us together from BCO. I met her twice and enjoyed her company. A loss for us all. Peace to you Marian Elizabeth. ❤️
Mar 28, 2021 07:35PM DearLife wrote:
SaraJay the wait is the absolute worst. I am sending positive thoughts your way that it will turn out better than expected. You have a great team and you have done all the right things to get answers as quickly as possible. Wishing you the best outcome
Mar 28, 2021 11:05PM Pots wrote:
SaraJay, yes the waiting and waiting is hard. It feels like each day is a week and drags. I’m glad you have an appointment at the breast Health Center April 9, now you have a target and they have a date to get all the reports and imaging done. Having been a similar circumstance in 2013, try to stay away from dr. Goggle....and focus on getting you’re information from reputable sources. Try to focus on preparing a medical case history to give them on April 9...maternal history, date first period, pregnancies, any surgeries, list of drugs, medical conditions, etc. Feel free to ask us questions, you aren’t alone.
Mar 29, 2021 12:25AM SaraJay wrote:
DearLife: I am grateful for the support on this forum. While it's definitely not something I'd like to be doing, it's brought some sense of comfort to me over this past week or so. I know I can't do anything now to change the outcome. Thank you for your positive thoughts 💕.