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Topic: Canadians in British Columbia

Forum: Canadians Affected by Breast Cancer —

Canadian health care, clinical trials, and life in general in the north.

Posted on: Dec 19, 2011 06:17AM

suz45 wrote:

I'm wondering how many West Coast Gals we currently have on here. It makes it a little easier to compare notes as our health-care is provincial. Would be nice to share tips and such to each other as we wade though the health-care Bureaucracy.

I'm in Richmond BC (a part of the Vancouver Lower Mainland) and the majority of my treatment has been at Vancouver General Hospital and Vancouver Cancer Agency.. with a few small surgical procedures done at UBC and my original Lumpectomy at Richmond General. My GP is also in Richmond. Ive been on the BCO boards since 2007 with a few breaks.

Please pipe in even if only to let us know your here Wink

Hugs Suz

Laugh your heart out, dance in the rain, cherish the memories & ignore the pain, love and learn, forget & forgive. Remember you only have one life to Live. Dx 11/25/2010, IDC, 6cm+, Stage IV, 8/23 nodes, mets, ER-/PR-, HER2-
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May 2, 2021 02:29AM GG27 wrote:

I've only seen my MO in person once in the last 20 months. She was on sabbatical, then came back & Covid hit. She didn't want me traveling to Vancouver from the island just to see her. I do have a GPO in Nanaimo but only ever did phone calls with him. So I haven't had a physical check for almost 2 years.

Sadiesservant, I don't know much about this treatment, my MO called me to tell me she thought I should think about it. I too am now heavily treated. We are doing breaks in treatment when I am stable to prolong the length of a treatment. When I was on weekly doxil, I took 2 months off, it was wonderful.

I'm a bit nervous about this trial, the last one I was on was Piqray & it was horrible for me. I lasted 10 days. Luckily the trial allowed me to stay on Faslodex as a third arm of the trial. But I've blasted through most of the chemos offered other than weekly doxil which I would have stayed on but MO felt that we were getting pretty iffy on the amount of time I'd been on it, with heart damage being a concern.

take care all, think good thoughts for me for Monday's CT & meeting with trial RN & MO. cheers, dee

Dx 10/2008, IDC, Both breasts, 3cm, Stage IIB, Grade 2, 3/9 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2009 Lymph node removal; Mastectomy: Left, Right Chemotherapy 2/1/2009 Other Radiation Therapy 7/5/2009 Whole-breast: Breast, Lymph nodes Dx 5/14/2014, IDC, Both breasts, Stage IV, metastasized to bone, 9/20 nodes, mets, ER+/PR+, HER2- Chemotherapy Doxil (doxorubicin)
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May 2, 2021 10:30AM - edited May 2, 2021 10:31AM by wrenn

I so miss slamming down phones. When I first realized I couldn't do it I would just stare at the cordless in frustration.

Will be thinking of you during your treatment. Such a hard time to be going through this. Not that it is easy any time but really not fair to have a pandemic piled on.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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May 2, 2021 12:14PM moth wrote:

in your pocket for Monday!

I was seeing my MO face to.face because the trial required it..but now I'm off trial and she's on 3 month sabattical and her locum is doing telehealth only. It's ok I guess. I see my chemo nurses every 3 weeks for treatment.

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/2/2021 External: Bone
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May 2, 2021 03:25PM Sadiesservant wrote:

Hi Dee,

Your comments about your MO’s strategy is helpful on piecing together my own MO’s approach. I mentioned on another thread that I was surprised to hear that my MO wants me to stop Xeloda after six cycles, holding it in reserve since I responded well. I was a bit taken aback as many have been on it for years. In his view, it will only drag me down and he wants to try another endocrine treatment (appears he is leaning towards Aromasin). Sounds like a similar strategy to keep things in check as long as possible while limiting the negative effects. I have to admit that I am a bit relieved that I might not need to stay on Xeloda long term. It’s beating me up a bit more with each subsequent cycle and I am only on #5!

Wishing you success and minimal side effects with the new treatment.

Pat

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/10/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)
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May 7, 2021 03:09PM SaraJay wrote:

hi!


I've been hearing great things about incorporating acupuncture treatment to help with side effects of chemo and I'd like to give it a go.


I'm looking for recommendations for someone who has experience with cancer patients.


Thanks!

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