Log in to post a reply
Jun 9, 2022 11:45AM
Yesterday, while awaiting in the darkened hospital room for the US tech to return - I thought of you Cathy.
(And furthermore, if it is high suspicion, they shall book biopsy for you right there.. that was what I experienced, the tech person back with biopsy appt, no any explanation.)
(I read, pray for this strong Canada crew, and rarely have enough courage(? ) to post)
When the tech didn't return for a long while, I knew...it's bad.
I'm lost...sad,...don't know where to turn...
this is another cancer, (suspicious due to blood vessel/solid for sarcoma/lymphoma)
on top of BC and I'm still recovering (mentally not even digested )
(&I'm still not yet well enough for RT since April's lumpectomy--the consult in Vancouver was for 27 July )
but I will say-this 'thing' has been with me for a decade.
Absolutely, under diagnosed. (Long story)
Even when I showed the article to my surgeon at UBC, he dismissed it as 'rare' (https://pubmed.ncbi.nlm.nih.gov/11079174/)
(I have every symptom but NO doctor wanted to believe it -->(????)
My family doctor (TY GOD that I have one in BC. I pray for his health)
who read the entire published study said
"Don't worry" "This is rare"
No doctor -not even the head of Oncology in RI or the famous MG of Boston
(we can't say names but he's famous and published a main stream medical book)
could diagnose what CA doctors did yesterday---- in less than 6 ms.
I'm awaiting a contrast MRI now-
like Cathy mentioned-if it is bad-you know right away because you have an appt in hand "-D :-(
It is just my poor husband and me- we are wrecked
My real name was Swtpoto (everywhere, ebay etc) but here in what looks truly awful
in a foreign but beautiful <3 country with this is very scary,
but having this board -is my rope. I'm glad you are here BC BC
Thank you for 'listening' this morning.