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Topic: Canadians in British Columbia

Forum: Canadians Affected by Breast Cancer —

Canadian health care, clinical trials, and life in general in the north.

Posted on: Dec 19, 2011 06:17AM

suz45 wrote:

I'm wondering how many West Coast Gals we currently have on here. It makes it a little easier to compare notes as our health-care is provincial. Would be nice to share tips and such to each other as we wade though the health-care Bureaucracy.

I'm in Richmond BC (a part of the Vancouver Lower Mainland) and the majority of my treatment has been at Vancouver General Hospital and Vancouver Cancer Agency.. with a few small surgical procedures done at UBC and my original Lumpectomy at Richmond General. My GP is also in Richmond. Ive been on the BCO boards since 2007 with a few breaks.

Please pipe in even if only to let us know your here Wink

Hugs Suz

Laugh your heart out, dance in the rain, cherish the memories & ignore the pain, love and learn, forget & forgive. Remember you only have one life to Live. Dx 11/25/2010, IDC, 6cm+, Stage IV, 8/23 nodes, mets, ER-/PR-, HER2-
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Posts 2011 - 2022 (2,022 total)

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Jan 8, 2018 10:52PM Fembot wrote:

Hi Marianelizabeth,

You've been through the wringer. Have you completed your treatments, or must you continue for longer?

(#)(@) Dx 12/6/2017, DCIS, Right, 2cm, Stage 0, Grade 3, ER+
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Jan 9, 2018 12:27AM marianelizabeth wrote:

I am a forever on treatments but no worries~~I am loving and living life

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy
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Jan 12, 2018 02:31PM Vilma65 wrote:

Hi all, I just have been diagnosed with bone mets, my doctor wanted to put me on Ibrance but my extended doesn't cover it, we are going to appeal it. Does anyone had experience with it? will appreciate any input also in regards to alternative medication

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Jan 12, 2018 04:45PM - edited Jan 12, 2018 04:45PM by Ashlyn

hi Vilma

Who is your provider? I was able to get coverage with GWL after my MO filled out the forms and contacted Pfizer for partial pay. Pfizer picks up a portion that GWL won't pay through their compassionate assistance program. This was back in July for me that I was able to access it.

There is also a trial for a similar drug called Ribociclib (Kisqali) that you could ask your MO about getting into if you don't get Ibrance covered. This was the drug I would have been put on if I didn't get Ibrance covered.

Best of luck.

Ash

DX 28 - stage2b • DX 34 - stage iv (lung, mediastinal nodes) // Somatic BRCA (not hereditary) Dx 1/3/2012, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 2/8/2012 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left) Chemotherapy 4/3/2012 AC + T (Taxol) Radiation Therapy 9/10/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 11/2/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 5/20/2014 Zoladex (goserelin) Hormonal Therapy 9/1/2014 Femara (letrozole) Hormonal Therapy 3/1/2016 Aromasin (exemestane) Dx 7/10/2017, IDC, Left, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- (FISH) Hormonal Therapy 7/12/2017 Zoladex (goserelin) Hormonal Therapy 9/14/2017 Femara (letrozole) Radiation Therapy 9/21/2017 External: Lymph nodes Targeted Therapy 10/15/2017 Ibrance (palbociclib)
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Jan 12, 2018 09:39PM marianelizabeth wrote:

Vilma I am on Ibrance and was lucky our insurance covers mine. I am not sure what GWL stands for in Ashlyn's post but from what I know about the Ibrance process is that Pfizer wants people on Ibrance and there seem to be a number of ways to that you can get coverage. Did you have a three way conversation with Pfizer and your insurance company?

I would not have wanted to be on a trial that is 50/50 (Ibrance/placebo) at this point. What does your oncologist say? I am crossing fingers for you. If you have no luck (or even so) I am on a Facebook group for Canadians with metastatic cancer. Let me know if you want an invite.

Ashlyn, how many cycles have you been on? I start cycle 6 tomorrow night.

Much as I hate to say this, I am grateful that there are some of us on this BC/BC thread that are in this mets boat together.

Marian

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy
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Jan 12, 2018 11:06PM - edited Jan 12, 2018 11:12PM by Ashlyn

GWL: Great West Life - Pfizer did all the organizing for me once my oncologist filled out the paperwork. I hope you find a way Vilma! In the meantime, will you start Letrozole

Marian: I was under the impression that Ribo was into PHASE II trials. Does that not mean that you're guaranteed the drug?

I'm in the middle of cycle 3 right now. How are you doing on Ibrance Marian? I have yet to scan since I started. End of this month. Nervous.

I've been mostly hanging out over on the Ibrance board since I started in October. Managing but chronic low counts and lately GI issues giving me grief. I've been getting Grastofil (like neupogen) to get me through.



DX 28 - stage2b • DX 34 - stage iv (lung, mediastinal nodes) // Somatic BRCA (not hereditary) Dx 1/3/2012, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 2/8/2012 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left) Chemotherapy 4/3/2012 AC + T (Taxol) Radiation Therapy 9/10/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 11/2/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 5/20/2014 Zoladex (goserelin) Hormonal Therapy 9/1/2014 Femara (letrozole) Hormonal Therapy 3/1/2016 Aromasin (exemestane) Dx 7/10/2017, IDC, Left, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- (FISH) Hormonal Therapy 7/12/2017 Zoladex (goserelin) Hormonal Therapy 9/14/2017 Femara (letrozole) Radiation Therapy 9/21/2017 External: Lymph nodes Targeted Therapy 10/15/2017 Ibrance (palbociclib)
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Jan 13, 2018 01:49PM Vilma65 wrote:

Hi Ashlyn and Maryelizabeth, Pfizer rep said that they will help me to appeal, I haven't had the change to talk with my MO yet about what are her thoughts due to the weekend, just received the info on Friday, so looking forward to Monday to see if I can start moving things along

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Jan 13, 2018 09:16PM marianelizabeth wrote:

Ashlyn, I don't know anything about Ribo trials or phases so you are ahead of me on that. I only know that I don't want to on any trials. If I had wanted Faslodex free for instance, I could have got it from Victoria BCCA but I am lucky that my insurance pays for both my Ibrance and Faslodex.

Vilma, keep us posted and I suspect all will go well.

Marian

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy
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Jan 14, 2018 12:56PM Vilma65 wrote:

Thanks, I hope so. I'm getting a bit discouraged since I just was told that the extended won't cover the denosumab either. I did get a call from the victory program and they offered to cover up to 50%, but that will still mean 300$ from my pocket each month that I'm reluctant to spend since I will provably have to reduce my work and I'm a single mom living in very expensive Vancouver

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Jan 14, 2018 10:31PM mandytam87 wrote:

Hi lovelies!

My mother is a 3-time breast cancer survivor and her lymphedema (swelling of the arm) has gotten a lot worse the last year (it will swell up instantly by bending down to tie her shoelace). Has anyone had any success in completing the LVA surgery (lymph node transfer surgery) in Canada or Asia?

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Jan 16, 2018 03:02PM Ashlyn wrote:

Vilma: from Rethink Breast Cancer's Facebook today...

"IBRANCE ANNOUNCEMENT📢📣

Yesterday we received the news that Ibrance is one step closer to being publicly funded in Canada. The negotiations at PCPA were completed and we are waiting for provinces to sign the letter of intent to fund the drug!"

Hope this means you and everyone else who has been waiting will get it fast!

DX 28 - stage2b • DX 34 - stage iv (lung, mediastinal nodes) // Somatic BRCA (not hereditary) Dx 1/3/2012, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 2/8/2012 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left) Chemotherapy 4/3/2012 AC + T (Taxol) Radiation Therapy 9/10/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 11/2/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 5/20/2014 Zoladex (goserelin) Hormonal Therapy 9/1/2014 Femara (letrozole) Hormonal Therapy 3/1/2016 Aromasin (exemestane) Dx 7/10/2017, IDC, Left, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- (FISH) Hormonal Therapy 7/12/2017 Zoladex (goserelin) Hormonal Therapy 9/14/2017 Femara (letrozole) Radiation Therapy 9/21/2017 External: Lymph nodes Targeted Therapy 10/15/2017 Ibrance (palbociclib)
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Jan 16, 2018 03:20PM Vilma65 wrote:

Wow, thanks that is great news!!

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