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Topic: Canadians in British Columbia

Forum: Canadians Affected by Breast Cancer —

Canadian health care, clinical trials, and life in general in the north.

Posted on: Dec 19, 2011 06:17AM

suz45 wrote:

I'm wondering how many West Coast Gals we currently have on here. It makes it a little easier to compare notes as our health-care is provincial. Would be nice to share tips and such to each other as we wade though the health-care Bureaucracy.

I'm in Richmond BC (a part of the Vancouver Lower Mainland) and the majority of my treatment has been at Vancouver General Hospital and Vancouver Cancer Agency.. with a few small surgical procedures done at UBC and my original Lumpectomy at Richmond General. My GP is also in Richmond. Ive been on the BCO boards since 2007 with a few breaks.

Please pipe in even if only to let us know your here Wink

Hugs Suz

Laugh your heart out, dance in the rain, cherish the memories & ignore the pain, love and learn, forget & forgive. Remember you only have one life to Live. Dx 11/25/2010, IDC, 6cm+, Stage IV, 8/23 nodes, mets, ER-/PR-, HER2-
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Jan 31, 2018 12:15PM wrenn wrote:

I haven't used them but if you search "Dr. Chia" here there was a post years ago saying her was interested in it. They won't supply them but if you bring your own I don't think they would object. They did supply me with cold gloves which I didn't like because I couldn't use ipad.

Also you can change oncologists if you are really hating yours.

Keep us posted.


Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Jan 31, 2018 05:28PM AnxietyGirl85 wrote:

Hi wrenn!

Do you know who I might contact in the chemo unit to ask if I'd be allowed?? I've already been in touch with the brand I want to use, and I know the expense and onus is all on me, I just don't want to shell out thousand of dollars (that I don't have) for this only to show up with it and have them refuse to let me use it, that's a huge concern of mine.

I'm hesitant to just call and ask around because I haven't had a good experience with the Cancer Agency so far, lots of miscommunication on their part that has left me unhappy and very uneasy about this whole process, so if I knew just who to talk to, specifically, or what extension to call, that would help.

Dx 11/22/2017, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 12/14/2017 Lumpectomy: Right Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 6/12/2018 Whole-breast: Breast
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Jan 31, 2018 07:04PM NewDay123 wrote:

Hello,

Thought some of you might find this article interesting re: Ibrance and tumour marker testing that doesn't happen in Canada. The article seems to imply these are for stage 4 ... so if you don't want to read it, that's OK.

http://www.cbc.ca/news/canada/british-columbia/a-tale-of-2-friends-with-breast-cancer-1-has-coverage-for-costly-drug-the-other-forced-to-pay-1.4495123

It's a CBC article about "A tale of 2 friends with breast cancer" where 1 has coverage and the other is forced to pay. The one forced to pay lives in B.C.

---

Hi AnxietyGirl,

Welcome, and I'm sorry you have to be here. I didn't use a cold cap so I'm not able to help.

I'm wondering where you can purchase the cold cap, what is their return policy? If you never use it, can you get a full refund?

---

I'm not on this site much now that it has been a few years and I'm doing well. I hope you're all doing well too!! I didn't read through all the messages, but thought if more people knew about Ibrance in B.C./Canada can lobby for it, for those with stage 4.

I make sure to get some sunlight/daylight whenever possible and not to work too much. I hope you're all getting a chance to enjoy some sun.

Best wishes.

Dx 11/2015, 5cm, Stage IIIA, Grade 2, ER+/PR+, HER2- Chemotherapy AC + T (Taxol)
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Jan 31, 2018 07:42PM Ashlyn wrote:

FYI: Ibrance will be getting covered through BC Cancer Agency very soon.

DX 28 - stage 2B ; DX 34 - stage 4 (lung, mediastinal nodes) • PALB2+ (confirmed Apr '18) • RECQL vus Dx 1/3/2012, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 2/8/2012 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left) Chemotherapy 4/3/2012 AC + T (Taxol) Radiation Therapy 9/10/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 11/2/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 5/20/2014 Zoladex (goserelin) Hormonal Therapy 9/1/2014 Femara (letrozole) Hormonal Therapy 3/1/2016 Aromasin (exemestane) Dx 7/10/2017, IDC, Left, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- (FISH) Hormonal Therapy 7/12/2017 Zoladex (goserelin) Hormonal Therapy 9/14/2017 Femara (letrozole) Radiation Therapy 9/21/2017 External: Lymph nodes Targeted Therapy 10/15/2017 Ibrance (palbociclib)
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Feb 7, 2018 10:46PM stellamaris wrote:

Runor, my breast reduction was covered. I had it 3,? Months after mx


Dx 10/5/2015, ILC, Right, 4cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR-, HER2- Surgery 10/30/2015 Lumpectomy: Right Surgery 12/2/2015 Lumpectomy: Right Hormonal Therapy 12/18/2015 Femara (letrozole) Surgery 2/11/2016 Lumpectomy: Right Surgery 3/24/2016 Mastectomy: Right; Reconstruction (right): DIEP flap
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Feb 8, 2018 01:14AM runor wrote:

THank you, Stellamaris. Was it covered as part of cancer treatment or was it under a different reason? Like, boobs causing upper body problems?

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 8, 2018 03:07PM AnxietyGirl85 wrote:

Hi NewDay123,

I wanted to wait until I knew if I would be allowed to use it before I spent the money and made the arrangements, since it's all a big hassle and I can't really handle any more of that in my life these days! Trying to keep this all streamlined.

Then I spoke to the Cancer Agency and they turned me down flat, cooling caps are banned in all of their chemo units, end of discussion, so now it doesn't matter anymore. I'm doomed to lose my hair, there's nothing I can do about it. :( It would be hard enough if it was available and I couldn't afford it, but it seems exceptionally unfair that I'm willing and ready to put myself into debt for this and the Powers That Be are actively preventing me from doing it, it's almost like they ENJOY seeing their patients lose their hair. >:(

(Apologies if I seem angry, I am right now, it's just all too much to cope with at the moment.)

Dx 11/22/2017, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 12/14/2017 Lumpectomy: Right Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 6/12/2018 Whole-breast: Breast
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Feb 8, 2018 03:53PM moth wrote:

Oh that's a bummer AnxietyGirl. I'm sorry you didn't get the answer you wanted. I saw a news story from 2014 about it and I guess they're still not budging. http://www.metronews.ca/news/vancouver/2014/07/17/...

Do you know yet when you're starting chemo?

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Feb 8, 2018 04:32PM AnxietyGirl85 wrote:

I start next Wednesday, Valentine's Day, which has always been my least-favourite day of the year (ask me about my Valentine's Day horror stories, ugh). The irony isn't lost on me. It's times like this when it's hard to believe that the universe doesn't have it in for me.

I've been in touch with the Canadian distributor for the Paxman system and she's suggesting that I go to the media with it (CBC and CTV), but I start chemo in 6 days, I'm already exhausted and incredibly fragile from all the stress, I work very long days with no time or privacy to make phone calls to sort this out, and I'm doing everything in my power to keep this diagnosis private, it's all so much, I just don't think I have it in me to tackle this by myself right now.

It shouldn't have to be this hard. Cancer is hard enough all on its own, there's no need for those in power to make it more difficult for us.

Dx 11/22/2017, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 12/14/2017 Lumpectomy: Right Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 6/12/2018 Whole-breast: Breast
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Feb 8, 2018 05:04PM Meow13 wrote:

Anxiety, are there no other places? I don't know the Canadan health care systems but maybe you could come the US? In Seattle maybe?

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Feb 8, 2018 05:24PM wrenn wrote:

The use of cold caps is approved by Health Canada but some centres just don't allow it. There was an article about a woman being allowed to use it at Penticton Hospital (which is closer than Seattle) but might not be worth the struggle to travel while trying to maintain a heavy work schedule and to maintain privacy. Going to the media might be an added stress. Maybe once you are done treatment and have built up some strength you could make that a project.

Telling you your hair will be back by next year is not going to help but finding ways to face this nightmare with fewer stresses will help.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Feb 28, 2018 03:46PM - edited Feb 28, 2018 03:48PM by hugz4u

Hi gurlers!

Might have a rotten recurrence coming up and so I'm doing my homework.

If I had to go to surrey who would you recommend for MO and RO. Not wanting to get too excited and ticked off yet but not being in dark either.

I went on ratesdoctors website but there are not to many recommedations and fvcc surrey website has no MO/RO profiles to view. I called about their profilesand they are clueless.

I'm cancer savvy and I need a mo that can match my questions and research.Bed side manner and patience would be a plus. Not blow me off in five minutes.

Many years ago I saw dr chia at bcca who is arrogant as all but a smart cookie with my stage three hockey puck size ILC tumor. He does know what he is doing but I'm not sure if I want to travel one hour into town to see him if I'm in for the long haul.

Thx in advance.

Anyone know when Ibrance is approved?

Hey all I wish you well!

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Feb 28, 2018 04:24PM runor wrote:

Oh Hugz, I hate to hear this. I am hoping it is all a horrible mistake. You sound like you have your ducks in a row. Hope you don't need them. Prayers.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 28, 2018 04:31PM hugz4u wrote:

Thx runor. I like to be prepared. I know the recommendations from our girls speak volumes.

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Feb 28, 2018 04:36PM Sadiesservant wrote:

Hi Hugs4u. I don't think that Ibrance is approved yet. The last I heard it Pfizer was in negotiations with the BCCA but I don't know if there has been a final outcome. I was able to access it through my extended health when I was initially on it. I had to stop due to severe anemia but my MO is now thinking we may try again at a lower dose. I'm not sure if access will be an issue for me now.

As to oncologists in Surrey... sorry I have no suggestions as I am on the island. I don't know how easy it is to request someone in any event. Our system isn't really designed around choice. Fortunately, I think the world of my MO.

Pat

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Hormonal Therapy 1/18/2018 Faslodex (fulvestrant)
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Feb 28, 2018 05:07PM - edited Feb 28, 2018 05:08PM by Ashlyn

Ibrance on its way. Negotiations are complete. Now for each province to sign off and approve individually. I was told it could still be months. But there is also Ribociclib trial in the meantime (pretty sure you get the drug. Or letrozole alone.

DX 28 - stage 2B ; DX 34 - stage 4 (lung, mediastinal nodes) • PALB2+ (confirmed Apr '18) • RECQL vus Dx 1/3/2012, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/12 nodes, ER+/PR+, HER2- Surgery 2/8/2012 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left) Chemotherapy 4/3/2012 AC + T (Taxol) Radiation Therapy 9/10/2012 Whole-breast: Breast, Lymph nodes Hormonal Therapy 11/2/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 5/20/2014 Zoladex (goserelin) Hormonal Therapy 9/1/2014 Femara (letrozole) Hormonal Therapy 3/1/2016 Aromasin (exemestane) Dx 7/10/2017, IDC, Left, Stage IV, metastasized to lungs/other, Grade 2, ER+/PR+, HER2- (FISH) Hormonal Therapy 7/12/2017 Zoladex (goserelin) Hormonal Therapy 9/14/2017 Femara (letrozole) Radiation Therapy 9/21/2017 External: Lymph nodes Targeted Therapy 10/15/2017 Ibrance (palbociclib)
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Feb 28, 2018 05:31PM - edited Feb 28, 2018 05:32PM by hugz4u

Sadie/Ash. Thx for heads up on Ibrance. Sure hope I won’t be having a recurrence but’s it’s nice to be educated.

Nope we sure don't get to choose our oncologist except sometimes the rule of “squeaky wheel gets the oil" works. If I hear of some good surrey MO/RO recommendations which I hope you girls will chime in then I am sure to be the squeaky wheel. :)

When your dealing with your life you want the best. I did fire two docs in the last ten years. One said he hates paperwork and yup you guessed it, I required paperwork that he kept sitting on. But the last straw was when he laughed straight into my face and said I wouldn't get lymphedema. dang it anyway to say the least, that did it. BTW I did get lymphedema.

Other was my breast surgeon. Wow she got so flustered at my thoughtful questions she had to leave the room temporarily to relieve the hot flash I gave her. When I told my MO I wanted another surgeon scheduled he hummed and hawed and quietly said something under his breath about hospital politics (?) not going to like it.Dang it, I'm dying of cancer and do I look like I care about their scheduling of docs and who get OR time etc, just give me what I want... ugh! Btw girls the pleasant words “I'm not comfortable with that doc" works pretty good" as squeaky wheel ammunition.

I'm going to try my best to make sure my wheel is extra, extra squeaky for requesting a mri Friday. I hope it works! Thery hard to get as we all know. New doc so I'm in unchartered waters.

Funny how cancer makes you gutsy. I'm pretty passive otherwise.

Ok all, have a smashing great day all you and looking forward to MO/RO recommendations. Dishes piling up here and are calling out to me. ;) dang

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Feb 28, 2018 06:09PM wrenn wrote:

I have friends who switched oncologists in Vancouver. Two of them fired Chia. I have him and although he is socially inept he will answer questions and did soften up a bit when chemo failed me. (I just changed that sentence from "when I failed chemo". :-)

I was in VGH for yet another complication post surgery and told emerg docs I was not going back to my surgeon. She was a nightmare for me. They asked the surgeon on call to take me on and he agreed. I also refused to return to Mt. St. Jos.

It is sad that this has to be an issue for you. I hope someone comes along with some good info regarding Surrey docs.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Feb 28, 2018 07:40PM - edited Feb 28, 2018 07:42PM by hugz4u

Wrenn: Many moons ago,and I shouldn't say it but it's true, I found chia not to be socially inept when he was training female interns. This is when he would pull out his full show of peacock feathers. I was entertained by it all and he was more attentive. Yes he will answer all your questions which is wonderful, but boy he sure didn't want to hear about my vitC IV. I learned to shut up really quick when it came to complementary med.

Anyway I don't want this thread to be a gossipwagon so I'll quit while I'm ahead. Just looking to see if there are any good MO /RO in surrey then I may not request chia. I am grateful that he treated me aggressively.I do feel he is brilliant.

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Feb 28, 2018 08:31PM wrenn wrote:

I always thought oncologists looked up type of cancer in a binder and prescribed the chemo routinely given for that type. :-) I once joked that I would prefer the pharmacist at London Drugs to an onc because parking was free. :-)

When I was cut off chemo I asked onc what now and he shrugged and said "You could try a low fat diet". I said "what about sugar" and he said there was no research showing that sugar was harmful.

When I was upset about having been cut off chemo he actually walked over to me (instead of leaning against the opposite wall) and patted my arm and said "You gave it a good try". He seemed compassionate.

Since I believe they all have the same knowledge I hope you find someone with a heart and open mind.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Feb 28, 2018 09:22PM hugz4u wrote:

Wrenn lol, yah I remember the good ole days when I went to bcca and the parking was something like a buck an hour. That all changed as I think they went private. My pet peeve is paying to park a car and unless I’m really ill I’d don’t mind walking up to half a mile even in the rain If it saves bucks.

For my giant tumor stuck to chest wall they sat around the table and discussed who would do the job and how. But yeah they do have a protocol to follow. The smart oncs can tweak your treatment to optimum, so experienced onc is good. Also a onc that loves his job is a good pick! (And yes I did have mammos for five years starting age 4O but tumor was was missed for dense tissue.) I hear Karen Gelmon is good and Marianne liked Shenkier. At bcca.

I’m glad mo did have some compassionate words for you. We sure do need them in times like this.

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Feb 28, 2018 09:42PM wrenn wrote:

I hope someone comes along with some good recommendations. This is a quiet thread. I think someone here recommended Dr. Simmons. I think she might be at Vancouver though. I am pretty sure people here are seen in Surrey too so hopefully you will get some responses.

It sounds like yours wasn't routine so good that you had someone who knows his stuff. Will be thinking of you and hoping for the best.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Mar 1, 2018 02:16PM moth wrote:

UBC is enrolling cancer patients with chronic pain in a study - sounds like they're wanting to use immersive /virtual reality media for pain

http://blogs.ubc.ca/arvrha/files/2017/05/Recruitme...

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Mar 1, 2018 02:18PM moth wrote:

hugz - I'm at FVCC but I'm early in my journey and my MO actually went on medical leave right after we started treatment. I haven't even met the new MO who's covering for her (I've spoken to him by phone several times tho...)


Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Mar 1, 2018 02:44PM - edited Mar 1, 2018 02:59PM by hugz4u

moth. Thx for the info on the study. I'm signed up. It's a month long study and takes 30 min a day. That's doable. I'm waiting for all the particulars in my email to come. Apparently you wear a head set that's maybe about two pound size and they come and set up equipment for you. I'm on vaca early March so will start late March if all goes well.

They are recruiting 100 people so act fast if you are eligible and want to. Thx.

Also did you get a good flavour from talking to your new surrey mo? Does he answer all your questions. How was your first round chemo on you?

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Mar 1, 2018 02:51PM Tabatha_76 wrote:

Hi

I am receiving care at FVCA and my MO has been excellent. His name is Dr. Gary Pansegrau. My tumours were Triple Negative. I have been working with him since Sept. 2017 and he has been not only very informative but he always takes the time to answer all my questions.

As for an RO I recently saw Dr. WInkle Kwan at the FVCA, I have only seen him once but he was very informative and again he took the time to answer all my questions.

Hope this info helps those looking for doctor recommendations at FVCA.

Dx 9/1/2017, IDC, Left, 2cm, Stage IIB, Grade 3, 0/4 nodes, ER-/PR-, HER2- Surgery 10/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 12/4/2017 AC + T (Taxol) Radiation Therapy 6/13/2018 Breast, Lymph nodes, Chest wall
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Mar 1, 2018 02:57PM - edited Mar 6, 2018 02:11AM by hugz4u

I did read up on Pansegrau and his rating said he was pleasant and answered questions. Glad you confirmed it! Thx

I wonder if he likes dr google. Most docs don't like the competition as it keeps them on their toes when you saddle them down with googles research. I don't bother with anything that sells products just university type and major cancer centres.

So far he looks like my only choice if I do decide on surrey. Nope you can't pick your MO unless your a squeaky wheel. But I'm gonna try.

AnxietyGirl how did you valentines treatment day go. So sad they won't cold cap. I could handle no hair but no brows and lashes was such a blow. I felt like I was ETs sister.

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Mar 1, 2018 03:51PM moth wrote:

hugz - I got febrile neutropenia a week after my first round. I was in hospital 4 days. My neutrophils are still in danger zone but they took me off IV abx and sent me home on oral once the fever came down.

I haven't really had questions and really there isn't a lot of deciding right now, kwim? Everything is obviously on hold until my bone marrow decides to wake up and do its thing.

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Mar 2, 2018 02:16AM - edited Mar 2, 2018 07:33PM by hugz4u

moth I've had that great drug. It works! Towards my last chemo to be finished, one morn I came out of my bedroom and felt so weak my brain said to lay on the kitchen floor and so I did and didn't move muscle. Thankfully My sis had one look at me and packed me off to bcca where they admitted me for deadly low levels. So low I was not in my right mind to even know how Ill I was. They gave me that nupeogen (sp?) drug.I bounced back quick and they discharged me after a day. Oye the things you go thru. I hope you recover super speedy so you get your next chemo on time. Keep marching forward

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Mar 2, 2018 07:41PM hugz4u wrote:

Ok interesting day here. Off to surrey for my ultrasound except after Dr Jantzen saw me she ordered ct instead and said, well if you have recurrence you will want to go back to old onc. Dr chia. Looks like I may give him a whirl again unless he won’t take me. If he doesn’t I’ll ask for gelmon or Shenkier. Hate the drive and parking.

Now my md will have to put in a referral to BCCA Vancouver as I’m out of catchment. She told me before she didn’t know how to send me to van but only surrey so I did the legwork for her and will help her with this task. Oye talk about being your own advocate.

How long before doc gets ct results? Thx you have been much help.

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