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Topic: Canadians in British Columbia

Forum: Canadians Affected by Breast Cancer —

Canadian health care, clinical trials, and life in general in the north.

Posted on: Dec 19, 2011 05:17AM

suz45 wrote:

I'm wondering how many West Coast Gals we currently have on here. It makes it a little easier to compare notes as our health-care is provincial. Would be nice to share tips and such to each other as we wade though the health-care Bureaucracy.

I'm in Richmond BC (a part of the Vancouver Lower Mainland) and the majority of my treatment has been at Vancouver General Hospital and Vancouver Cancer Agency.. with a few small surgical procedures done at UBC and my original Lumpectomy at Richmond General. My GP is also in Richmond. Ive been on the BCO boards since 2007 with a few breaks.

Please pipe in even if only to let us know your here Wink

Hugs Suz

Laugh your heart out, dance in the rain, cherish the memories & ignore the pain, love and learn, forget & forgive. Remember you only have one life to Live. Dx 11/25/2010, IDC, 6cm+, Stage IV, 8/23 nodes, mets, ER-/PR-, HER2-
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May 1, 2018 12:34PM wrenn wrote:

That is horrible NVan. I would ask MO when you see them next to clarify how and when you are to call. Give the name of the on call doctor and tell them how he made you feel. As if you didn't have enough to deal with.

Bluesky I wish you were out enjoying the blue skies instead of being in an OR. Hoping all goes well for you. Update us when you are up to it.

Moth, I hope you are doing ok.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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May 1, 2018 12:42PM NVDobie wrote:

Everyone

Thanks for your support. It makes a huge difference to talk to you ladies who knows what I am talking about.

Probably the first moment since diagnosis I felt a bit helpless. Leaving our treatment plans and associated prognosis at hands of Doc who may or may not always care or at the same level of competency or experience or opinions.

Good thing is there is protocols at BCCA but still feel like a statistic to our doc. Of many things in life, We could walk way and find an new option. Not a option here.

My MO is the head of BCCA on BC, so walking away from him doesn’t help me to deal with BCCA.

I am trying to think from his point of view and be positive about his capabilities vs. bedside manners.

Also teaching me to be more empathic towards others.

Anyone know how Ontario manages their Cancer patients? Do they also have the cancer agency to coordinate all things?

Dx 12/6/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2018 Lumpectomy: Left Chemotherapy 3/7/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/10/2018 Lumpectomy: Left Radiation Therapy 7/30/2018 Whole-breast: Breast Hormonal Therapy 9/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery
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May 1, 2018 03:30PM DearLife wrote:

NVDobie I am really sorry that this happened to you. I don't accept that brilliance is any excuse for insensitive and inadequate patient care. The MO needs to get over himself and we should be able to speak up. Keep notes with dates and submit them at the right time if you aren't up to speaking to him directly, which I can certainly understand right now. Or you could fill out a patient comment card:

http://www.bccancer.bc.ca/about/accountability/patient-family-experience/measuring-patient-experience

My friend is receiving care right now from a leading MO who has a reputation for an awful bedside manner. Not sure if this is the same one. I mentioned this in a general way when asking my surgeon to send me to a “friendly" MO. She then asked me for his name, which I provided. She said “oncologists have a difficult job" but I don't buy it. Maybe he will never become Dr. Kildare but he can learn to behave differently.

(You are probably too young to remember Dr. Kildare!)

This is not the standard of care we should receive from a leading cancer centre. Every cancer patient deserves kindness. It is an essential part of healing.You will be helping other women by reporting this when you are ready and have the energy for it. For now, concentrate on being kind to yourself and finding support where you can

I hope your allergic reaction has settled down a bit. Gentle hugs 🤗.


I've looked at clouds from both sides now. Joni Mitchell Dx 12/1/1998, LCIS, Right Dx 1/9/2018, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 2/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Dx 3/1/2018, DCIS/IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/16/2018 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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May 1, 2018 03:54PM - edited May 1, 2018 05:15PM by wrenn

Since we have named oncologists or surgeons we like I think it is ok to name ones we don't like. It is just opinions but it does help people to feel like their experience is not unique. I had Chia and I felt like an idiot the first few times I saw him and assumed I was asking the wrong questions. I wish I had heard from others that their experience with him was similar.

When my chemo ended after the first dose he was pretty compassionate and even came over closer to stand next to me instead of leaning on the wall near the door. :-)

I had a different impression of him then. I had also decided before this session that it was not about me so I was firmer with him and that changed our dynamic. I think it would be helpful here for people to know of certain doctor's patterns of behaviour so they can adapt their pattern of relating to them.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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May 1, 2018 04:56PM hugz4u wrote:

I felt chia to be stuck up but he did answer my many many questions ( probably eye rolling behind my back) and I think he does have brains to burn in the cancer field. I stayed with him and my agressive treatment plan. That was many years ago and I hoped if I ever had to see him again maybe his corners would have softened a bit. I didn’t prefer that I had new doc students asking questions but did understand this is how they train them. So I basically asked all the same questions when chia came into the room. I’m sure he heard them when the intern reported to him before he saw me. Oh well. Repition for emphasis!

He really disliked it when I told him I was on certain natropath and Tcm treatments. I shut up about it next visits Then we got along fine. Unless someone comes along that is five stars I guess id stick with him. My parting words to him were. Thx and goodbye I hope to never see you again ( meaning I don’t want cancer beast returning) we got a wee smile out of him

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May 1, 2018 05:30PM DearLife wrote:

Wrenn, it is encouraging to know that your MO was able to show compassion when it must have been a very difficult time for you. We all deserve that.

I have only had one meeting with my RO/MO so too early to comment but I like him so far. I had a long list of questions and a copy of research he had done that showed I might be able to skip rads. He gave me the choice and said no one had brought in his research before. My treatments start on Thursday.

I will ask my friend if she was ever able to build a rapport with her MO. I do think they should adapt to the patient instead of us trying to work around them. They may be stressed but I doubt that they would want to trade places with us.

I've looked at clouds from both sides now. Joni Mitchell Dx 12/1/1998, LCIS, Right Dx 1/9/2018, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 2/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Dx 3/1/2018, DCIS/IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/16/2018 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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May 1, 2018 05:38PM wrenn wrote:

Dearlife I agree that they should adapt to us but I felt like the odds of me changing him were remote and at the time I didn't have the energy to track down a different (and possibly worse) doctor.

I hope things go well for you Thursday. I'm glad your MO/RO respects you. It sounds like it will be good for you. Keep us updated on how it goes if you are up to it. Take care.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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May 1, 2018 07:29PM DearLife wrote:

Wrenn, it's true, we can't change them. But the hospital or cancer centre could expect more. Many medical schools today include sensitivity training and communications skills. I think some docs just get away with being brusque.

Thank you for the good wishes about my rads. I'm a bit nervous, since it is on my left side. But it offers some recurrence insurance so I will do it.

I hope everyone is enjoying the sunshine today!


I've looked at clouds from both sides now. Joni Mitchell Dx 12/1/1998, LCIS, Right Dx 1/9/2018, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 2/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Dx 3/1/2018, DCIS/IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/16/2018 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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May 1, 2018 07:35PM wrenn wrote:

Dearlife, I have a friend who joined a committee at the cancer agency a few months back to work on how things are going there. I understood (could be off) that they were finally addressing many patient complaints about the system at BCCA. My friend who has been unhappy with them for years is very hopeful that there will be changes coming eventually.

I am loving the sunshine. It makes such a difference.

I'll be thinking of you on Thursday and hoping for the best outcome.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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May 1, 2018 08:56PM moth wrote:

Just chiming in to say that I've met 3 different oncologists at the Fraser Valley Center and so far I've been ok with all. I have an allied health background & I always bring dh with me (an affable guy but he's used to hanging out with rich business people and lawyers and accountants etc so he's not easily intimidated, kwim?) & so there is a chance that this changes how people interact with us. I usually don't have a lot of questions but the questions I've had have been dealt with respectfully. I personally love students & always welcome them to my care team but I haven't had a single one at the cancer center.

When I was in hospital with febrile neutropenia the first time, one of my MOs called me on my cell just to chat & let me know they were aware of my hospitalization and had been in touch with my doctors at the hospital.

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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May 1, 2018 09:33PM Roaming_Star wrote:

What an amazing story moth! Hmmm seems like the Fraser Valley is the place to be!

Diagnosed at age 46. Taking low dose naltrexone as 30% of cancer patients have low endorphins impacting the body's immune system to kill cancer stem cells. Dx 5/24/2017, IDC, Left, 2cm, Stage IIIB, Grade 3, ER+/PR+, HER2- Chemotherapy 6/8/2017 AC + T (Taxol) Surgery 11/23/2017 Lymph node removal: Underarm/Axillary; Mastectomy Dx 12/6/2017, LCIS/IDC/IDC: Tubular, Left, 1cm, Stage IIIA, Grade 2, 6/16 nodes, ER+/PR+, HER2- Radiation Therapy 2/4/2018 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 3/13/2018 Femara (letrozole)
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May 1, 2018 09:41PM moth wrote:

NVDobie - your experience sounds scary & it's awful that you were brushed off like that by your MO. That sucks.

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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May 1, 2018 10:29PM marianelizabeth wrote:

Interesting commentary re MO's! Dr. Chia's name comes up often. NVDobie I do have a question re your comment about head of BC for BCCA. Your comments indicate it is a he but head of BC unless something major has happened, is Dr. Gelmon. Many years ago I wanted her because I had heard much about her and a friend who is an MO elsewhere thought she was the best. I could have had her but would have had to wait 10 days and my aggressive cancer wasn't waiting for 10 days said I and I could not have been happier with who I got. Names not going public but I missed her so much after I was assigned one here in Victoria. I was told by mo RO here that we could not ask for a preference and I was so much in shock I went with it. Having asked for a change last month after my MO in January suggested I was adversarial after I talked about a second opinion and the next month seemed wary of me, I made my way through the system. Yesterday I saw my new MO and I am so happy. If anyone wants names I don't mind but only in private. After almost 6 years BC I feel that I can navigate assertively. NVDobie, I am appalled by your treatment and do think you should document it as is our right.

My VR weeks are not in the same order as yours Wrenn or is it Hugz4u? Obduction is my last week and mindfulness (MBSR) was third week. I called Gordon yesterday to ask for a 2 days break. I had a yoga/hiking group reunion here from Sunday today and 6 women in one house meant no way I could start a new game yesterday! It was wonderful and those of you who know me are not surprised by my energy level to even contemplate such a group but it was great despite my total exhaustion. I am loving quiet tonight.

Love to you all,

Marian


breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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May 2, 2018 01:45AM hugz4u wrote:

Marian. How nice to be able to forget cancer for a few moments and have the yoga retreat.

My VR 1st game was obduction and now 2nd is meditation. 3rd will be the pipe connector puzzle. last butterfly one. Sorry can’t remember official names.

Hoping all the spring flowers brighten everyone’s day tomorrow

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May 3, 2018 02:59PM wrenn wrote:

Hello folks. I got an email about this workshop and thought I would pass it along here. I have no idea if it will be worth anything to anyone since most people here know more than many doctors already but I like that she is an internal medicine specialist who then specialized in radiation oncology and went on to get a masters in Chinese medicine and trained under Andrew Weil (who is usually careful about what he promotes).

Here is the link

https://www.lisaschwartzmd.com/p/video-1-the-nutrition-clarity-framework-EG

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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May 7, 2018 10:48PM Ossa wrote:

not been here in a while Been busy living life Hi Marian nice to see you are active on here I am still doing good Some of you know I was waiting for a new reconstruction due to mine not looking good It was great to start but things changed I will be having a tram flapdone June 20 and hope that will be my last surgery I would wenture to say however it turns out it will be my last surgery as I am getting tired of surgeries


Marion you are an inspiration to us all Thank you

Today is the first day of the rest of your life.... NED Nov 2011 Dx 4/7/2011, DCIS/IDC, Right, 6cm+, Grade 3, 3/7 nodes, ER+/PR-, HER2+ Chemotherapy 5/19/2011 AC Targeted Therapy 8/11/2011 Herceptin (trastuzumab) Chemotherapy 8/11/2011 Taxotere (docetaxel) Surgery 11/22/2011 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 12/28/2011 Radiation Therapy 1/27/2012 Surgery 5/11/2012 Reconstruction (right) Surgery 10/26/2012 Reconstruction (right): Fat grafting, Nipple reconstruction Surgery 11/15/2014 Reconstruction (right): Fat grafting
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May 8, 2018 09:20PM wrenn wrote:

Hi BCers, I found out about a group that explores poetry for stress management for cancer patients. It is group therapy starting on the 31st of this month but the Dr. running it will need to have a physician referral before the 17th because she is doing interviews on the 17th and 24th to check suitability.

Here is a link:

https://www.drtmkope.com/patients

Hope all enjoyed the sunshine. I think tomorrow will be grey and cooler just to remind us that we live in Vancouver.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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May 9, 2018 09:37PM NVDobie wrote:

Hi, everyone

Thanks for everyone’s comments and encouragement!! sorry for the late response, being distracted with fighting off SE last 2 weeks, Swelling is down finally to have my normal face back, still have some itching skin issues

My MO is Chia. @@. I looked him up before I met him so I wasn’t expecting warm and fuzzy. tampering down expectation did help. he often send other doc to see me instead of seeing me himself. I just assumed he was busy being “the head” and all. I was mostly ok till the recent major SE incidents. I was surprised at his comments as I assumed probably shouldn’t have but assumed he would understand I had no experience with chemo SE so panic is normal when my face swelled up and chest pain hits.

I got over it by telling myself to think from his perspective, also learn more about being empathic to others myself given how it felt when I was on the receiving end of less empathic individual.

When I met with one the physicians at Inspire Heath, she assured me that I did what I should by calling the BCCA when new symptoms appearing or worsened given MO on call or GP oncology on call will have more experience than ER, which is precisely the reason I called BCCA. She acknowledged that her colleagues at BCCA are not best in communications. Did not know InspireHealth physician was part of BCCA network.

My MO seems to have good days and bad days so I am trying to think it is an hard job to be an oncologist dealing with many different patients.

Anyway. I am over it now. Moving on to focus on treatments. Will be much more interesting to see how open he is when discussing options of hermone therapy drugs or the length of the treatments. We will see.

Another thing to share is my MO is switching me to a new chemo regime tomorrow, Abraxane? . after he got it approved. said no allergy reaction reported so no longer need for steroids nor the grastofil shots. When I looked up the drug, it has the same side effect as taxol, and often used in treating advance BC which is not my case at the moment. Wondering why the instruction is not taking any counter measure as one would with taxol.

Has anyone had Abraxane? How was the experience if you don’t mind sharing.

Marian

That’s interesting. When I first met Chia, he introduced himself as the head of Breast cancer program in BC, after he said he worked in BCCA for 16 years. @_@

There is also someone who told me I won jackpot when I told her I had Chia, she used to be in the board of Breast Cancer society? and they thought highly of Chia.

I can deal with low empathy as long as there is strong competency and willingness to discuss options.

Moth

Your story and experience with docs are truly amazing of your MO and previously your GP calling multiple specialist offices to get you early appointment.

You got me thinking about moving to Fraser valley. :-)

So far the only kind and empathetic Doc I met so far have been 2nd opinion surgeon Doc davis and Radiation Oncologist Doc Keyes, both ladies have been super kind and easy to talk to and shared their perspectives openly with me. Kind of threw me off actually given how uncommon was to run into a nice talking doc in this journey so far. Haha.

Hope everyone is doing well. Your suppprt means a lot! Thank you.

Dx 12/6/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2018 Lumpectomy: Left Chemotherapy 3/7/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/10/2018 Lumpectomy: Left Radiation Therapy 7/30/2018 Whole-breast: Breast Hormonal Therapy 9/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery
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May 14, 2018 04:38PM - edited May 15, 2018 11:56AM by hugz4u

How is everyone going in virtual reality study. This is my last week and doing butterflytrek. It makes me dizzy. I might have trouble with this one. Looking forward to the 400 hundred dollars. Donating it to relief disaster work! It feels good to do this for a good cause.

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May 15, 2018 01:20AM marianelizabeth wrote:

No one has mentioned any $ to me? How did you hear about this? Butterflies was tricky with motion sickness. Obduction is too far over my head and my pain was/is really bad and the frustration increased the pain. I liked Medtaion guided best and Carpe Lucem second. I am done.

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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May 15, 2018 02:09AM hugz4u wrote:

project manager crystal sun told me in her introduction email. Have fun spending!

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May 15, 2018 11:32AM wrenn wrote:

I didn't have Carpe Lucem in my group and Obduction was really hard for me. I didn't get far in that one and I mostly used the walkthrough to get as far as I did.

Gordon called a couple of weeks ago to say they would be sending the cheques for $400 in about 3 weeks.

I thought the 4 weeks went by pretty quickly and didn't mind doing them but am relieved to not have to continue. The meditation one I would do again.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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May 15, 2018 12:01PM hugz4u wrote:

I hated cape Lucem. Basically did the ones I knew over and over but I found a few easy ones that players thumbs up.

Found out the trick to butterfly one is to pull trigger real slow and then not to suddenly turn the track paid fast. It keeps u in a straighter line otherwise you get a spinney dizziness.

5 more days and I’m done. Was interesting but I’d like to be a bit free from being home so much. I think it worked while I was doing it but pain came back as soon as I was done distraction VR

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May 22, 2018 11:24PM wrenn wrote:

Hi guys, I think some of you will remember Wendy3. She attended a get together at Marian's a few years back that I was at in Vancouver. I read in another thread that she had died yesterday. She hasn't been on this thread for a while but was active in other threads.

Sad news. She was a kind, vibrant woman. Sad for her family.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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May 22, 2018 11:51PM BlueSky1969 wrote:

Blurg! I just wrote an update that disappeared!

Will work on another...

Dx 3/28/2018, IDC, Right, Grade 2, ER+/PR+, HER2- (IHC) Surgery 5/1/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 5/15/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/9/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 23, 2018 12:17AM marianelizabeth wrote:

I just saw it on another site~~Facebook for Canadians with mets. She was vibrant, Wrenn. She came to a Kinder Morgan protest at the Burnaby tank farm with me pre dawn in January. We talked about her 19 year old twin boys and her daughter too. Her treatment sucked and she ad horrible blisters on her feet but had just started Ibrance in April. Fuck cancer.


breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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May 23, 2018 12:19AM BlueSky1969 wrote:

Hi all;

Apologies for the delayed update. I got the all clear on Tues May 15th - feels like I just got off a Tilt-A-Whirl. I go from thrilled to nauseous to stunned to overwhelmed, w a few other emotions in that cycle. I had keep everything so compartmentalized for myself and my boys, I think this will take awhile to settle.

I was told my surgery went as well. I asked for an additional lidocaine plus magnesium block (I had read sci papers, outcomes were better w the block for chronic breast pain after surgery). I was pleased the aenesthesiologist immediately said yes. I felt confident in the team working on me, and was calm. I downloaded a surgery guided meditation which helped me. I pictured all my supporters around me, holding the space around the OR table, protecting me and guarding me no matter the outcome. With some effort haha I replaced the fear w love - even from the trees and flowers - and drew on that to keep calm. You all were around me. Hope that's not too smarmy.

I had a skin and nipple sparing Mx w a TE. First night was awful, home the next day happily. Had my drains removed May 15, same day I was given the all clear. I can put my own socks on! Bath! Even drive now. Feeling better, still discomfort but definitely through the tough post op part.

I feel very unsettled - topsy turvey. Had a couple curve balls thrown my way this week - same day I was given all clear I was told my ex mother in law dx w lung cancer, unrelated to her 2 BC, not mets and non smoker. The next day I opened my computer to send out my good news to a friends mother who has supported me - l've always held her in high esteem, always adored her - to see an email that she had passed away two days earlier of lung cancer - inoperable. Not BC mets either (she went 2 rounds), non smoker. She didn't want to tell me, she wanted to support me and save all her energy for her family. Was a blow to my solar plexus, really has taken the wind out of mw. She had been texting and emailing me the week earlier. She only found out a month ago.

She recco'd I join a dragon boat team, which I may do after I'm healed. She also recco'd a support group. She's wasn't a group person - neither am I - but said it settled her somehow. Does anyone know of a BC support group?

I don't feel like jumping back into a full schedule yet. Need some sunshine, walks and nutrition. Trying to hold back the demands, the administrative part of life for a bit longer. Boys are back, so not that quiet around these parts.

Thanks for reading. Deep thanks for coming along side me for the last few months - It would've been so difficult without you all, xo P


Dx 3/28/2018, IDC, Right, Grade 2, ER+/PR+, HER2- (IHC) Surgery 5/1/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 5/15/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/9/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 23, 2018 12:23AM BlueSky1969 wrote:

PS: Haven't made contact w an MO yet for what I assume will be Tamox?

Yeah - fuck cancer. I'm sorry it took another vibrant woman from a world that desperately needs them.

Dx 3/28/2018, IDC, Right, Grade 2, ER+/PR+, HER2- (IHC) Surgery 5/1/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 5/15/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/9/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 23, 2018 12:27AM BlueSky1969 wrote:

No idea why my surgery date shows as Apr 30th when it was May 1st - checked the info, reads as correct but once I post it changes to Apr 30th?

Dx 3/28/2018, IDC, Right, Grade 2, ER+/PR+, HER2- (IHC) Surgery 5/1/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 5/15/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/9/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 23, 2018 12:34AM BlueSky1969 wrote:

Ha! bet you are all sorry I'm back clogging up this thread with my non-working brain! Sry Loopy

I think I fixed my dx and surgery info...

Dx 3/28/2018, IDC, Right, Grade 2, ER+/PR+, HER2- (IHC) Surgery 5/1/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 5/15/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/9/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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