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May 10, 2018 04:37AM
Thanks for everyone’s comments and encouragement!! sorry for the late response, being distracted with fighting off SE last 2 weeks, Swelling is down finally to have my normal face back, still have some itching skin issues
My MO is Chia. @@. I looked him up before I met him so I wasn’t expecting warm and fuzzy. tampering down expectation did help. he often send other doc to see me instead of seeing me himself. I just assumed he was busy being “the head” and all. I was mostly ok till the recent major SE incidents. I was surprised at his comments as I assumed probably shouldn’t have but assumed he would understand I had no experience with chemo SE so panic is normal when my face swelled up and chest pain hits.
I got over it by telling myself to think from his perspective, also learn more about being empathic to others myself given how it felt when I was on the receiving end of less empathic individual.
When I met with one the physicians at Inspire Heath, she assured me that I did what I should by calling the BCCA when new symptoms appearing or worsened given MO on call or GP oncology on call will have more experience than ER, which is precisely the reason I called BCCA. She acknowledged that her colleagues at BCCA are not best in communications. Did not know InspireHealth physician was part of BCCA network.
My MO seems to have good days and bad days so I am trying to think it is an hard job to be an oncologist dealing with many different patients.
Anyway. I am over it now. Moving on to focus on treatments. Will be much more interesting to see how open he is when discussing options of hermone therapy drugs or the length of the treatments. We will see.
Another thing to share is my MO is switching me to a new chemo regime tomorrow, Abraxane? . after he got it approved. said no allergy reaction reported so no longer need for steroids nor the grastofil shots. When I looked up the drug, it has the same side effect as taxol, and often used in treating advance BC which is not my case at the moment. Wondering why the instruction is not taking any counter measure as one would with taxol.
Has anyone had Abraxane? How was the experience if you don’t mind sharing.
That’s interesting. When I first met Chia, he introduced himself as the head of Breast cancer program in BC, after he said he worked in BCCA for 16 years. @_@
There is also someone who told me I won jackpot when I told her I had Chia, she used to be in the board of Breast Cancer society? and they thought highly of Chia.
I can deal with low empathy as long as there is strong competency and willingness to discuss options.
Your story and experience with docs are truly amazing of your MO and previously your GP calling multiple specialist offices to get you early appointment.
You got me thinking about moving to Fraser valley. :-)
So far the only kind and empathetic Doc I met so far have been 2nd opinion surgeon Doc davis and Radiation Oncologist Doc Keyes, both ladies have been super kind and easy to talk to and shared their perspectives openly with me. Kind of threw me off actually given how uncommon was to run into a nice talking doc in this journey so far. Haha.
Hope everyone is doing well. Your suppprt means a lot! Thank you.
12/6/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2-
1/5/2018 Lumpectomy: Left
3/7/2018 Abraxane (albumin-bound or nab-paclitaxel)
3/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
6/10/2018 Lumpectomy: Left
7/30/2018 Whole-breast: Breast
9/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)