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Topic: Canadians in British Columbia

Forum: Canadians Affected by Breast Cancer —

Canadian health care, clinical trials, and life in general in the north.

Posted on: Dec 19, 2011 06:17AM

suz45 wrote:

I'm wondering how many West Coast Gals we currently have on here. It makes it a little easier to compare notes as our health-care is provincial. Would be nice to share tips and such to each other as we wade though the health-care Bureaucracy.

I'm in Richmond BC (a part of the Vancouver Lower Mainland) and the majority of my treatment has been at Vancouver General Hospital and Vancouver Cancer Agency.. with a few small surgical procedures done at UBC and my original Lumpectomy at Richmond General. My GP is also in Richmond. Ive been on the BCO boards since 2007 with a few breaks.

Please pipe in even if only to let us know your here Wink

Hugs Suz

Laugh your heart out, dance in the rain, cherish the memories & ignore the pain, love and learn, forget & forgive. Remember you only have one life to Live. Dx 11/25/2010, IDC, 6cm+, Stage IV, 8/23 nodes, mets, ER-/PR-, HER2-
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Dec 3, 2018 01:36PM janky wrote:

runor - I have now had 2 mamms since dx in November of 2016, and because of my BC,they advise me right away that all is good and see you next year the doctor reads it right away which is nice, so I am thinking that is the case with you too, not that you are a SHIT Disturber (though you may well be?!) ;) Wishing you well!

DearLife - I just returned from my dream trip to Australia - 5 weeks of awesomeness! I truly hope and pray you can go as it was an amazing experience for us. I am in Alberta so we flew Calgary to Vancouver, then straight to Brisbane (14 hours)! Praying all good things for everyone...

Dx 11/7/2016, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/16/2016 Chemotherapy 2/9/2017 Radiation Therapy 5/16/2017
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Dec 3, 2018 04:51PM - edited Dec 3, 2018 04:51PM by Walden1

I'm still under the care of my MO for annual mammograms,but wondering is there a point where they officially say, you are "discharged" from the cancer agency - i.e. start booking all your follow up imaging and checkups through your GP?

Dx 12/28/2017, DCIS/IDC, Right, 2cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Chemotherapy 1/10/2018 AC + T (Taxol) Surgery 5/2/2018 Mastectomy: Right Radiation Therapy Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin)
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Dec 3, 2018 05:37PM wrenn wrote:

My oncologist (Chia) told me that he follows patients for 2 years after treatment and any concerns would be dealt with through GP after that. The GP can contact your oncologist any time if they have concerns. My NP contacted Chia once and he looked at a scan/xray (can't remember what it was about) and he said everything looked ok.

I hope everyone gets good news soon and am hoping the sunshine this weeks helps somewhat. Waiting is so hard.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Dec 3, 2018 06:45PM DearLife wrote:

Thanks everyone for your good wishes.. They should call it SCARE TISSUE 🙄.

Runor my breasts have always misbehaved. Mostly benign, but not this year. I am sorry to hear but it is reassuring to know your swelling persisted too. Even after a reduction I am double D so there is lots to corral. And my tumour was small but 7 cm deep so it must be a big scar. It doesn't hurt, can't feel a lump and have no symptoms except anxiety. Yes the waiting is hard.

Went for a walk around the harbour today. Lots of ducks - including hooded mergansers - and a couple of sea lions. A slice of joy in the sunshine

Janky, I am glad you had your dream trip to Oz!

I will keep you posted.

❤️

I've looked at clouds from both sides now. Joni Mitchell Dx 12/1/1998, LCIS, Right Dx 1/9/2018, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 2/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Dx 3/1/2018, DCIS/IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/16/2018 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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Dec 3, 2018 07:30PM runor wrote:

Scare tissue - good one!

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 5, 2018 01:56AM Pots wrote:

Waiting for results sure messes with your mind...I think we all jump to the worst case to protect ourselves. I get CT scans every 3 months, it's how my MBC is being monitored and I usually work myself into a big knot the week before getting the results. Yes scanaxiety is real. To cope...I tell myself that the results are only information. Once I get the “information" I can make decisions, plans etc. I still get a mammogram on my remaining breast once a year. Yes it is part of monitoring.

If you don't mind, I would like to share a bit of wisdom living with this dreadful disease. My MBC wasn't found on my annual mammogram or in a CT scan. It was found on a chest X-ray that was done to check out a cough. Yes completely random. So my advise is that the monitoring is important but also pay attention to how you feel. Are you more tired, have a cough, have weird aches...it's hard figure out what is the new normal and what is weird. I keep a journal to track how I feel, track what's changed. It's all information.

On a happy note, my last CT scan shows that after 6 months of low dose Taxol, 2 out of 3 tumours disappeared. The remaining tumour shrank even further. I am considered stable which is terrific news. I’m back on an AI in the hopes that it will starve the last one. Yes I am more easily tired post-chemo and my feet hurt more from neuropathy but I actually feel pretty darn good.

I live in east Van and would be happy to host a gathering if you would like a more central location. We have lots of room and a big dining room table. I’ll be back from our Australian/New Zealand adventure in mid-February so early March would work for me.

Be well,

Ann

Dx 7/2013, Right, 3cm, Stage IIIB, Grade 2, 5/20 nodes, ER+/PR-, HER2- Dx 5/2017, Right, Stage IV, metastasized to other, ER+/PR-, HER2- Dx 3/2018, Right, Stage IV, metastasized to lungs/other Hormonal Therapy Femara (letrozole) Chemotherapy Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Targeted Therapy Ibrance (palbociclib) Chemotherapy Taxol (paclitaxel)
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Dec 7, 2018 05:06PM NVDobie wrote:

Hi, Ann

Thanks for sharing your experience and wisdom. It is good education to some of us still learning about this. I am going to take your advice and learning to be more in tune with my body, know what is normal and what is not.

Great news on the latest scan! Sounds like Taxol kicked butt. That is great!



Dx 12/6/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/5/2018 Lumpectomy: Left Chemotherapy 3/8/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/11/2018 Lumpectomy: Left Radiation Therapy 7/30/2018 Whole-breast: Breast Hormonal Therapy 9/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery
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Dec 8, 2018 10:59AM DearLife wrote:

Pots that is such great news that the Taxol is working for you. Everything is going in the right direction. Now you can breathe and enjoy the holidays. And get ready for your big trip!

Taxol was originally derived from the Pacific yew tree. There is a yew growing along the path where I often walk. I like to pat the trunk as I go by. I love the fact that some of these treatments have come from natural sources.

Good advice to monitor how we are feeling.

I had my recall mammo yesterday and the spot in question did not show up! They said it might be an “anomaly". I have an ultrasound on Monday to check. (I was able to get an earlier appointment at BCCA than at X Ray 505.)

So far, so good, and I asked for way more info before I left the clinic. This time the tech was willing to talk to me. Seeing the two scans on the screen helped a lot. She said last time they may not have told me much because it was my first 3D mammo and they need more time to study the images.

I have heard that ultrasound monitoring is best for dense breasts and alternating mammos and ultrasounds is a good idea, say every six months. Even if you have to pay, ultrasounds are just $100.

Does anyone rely on regular ultrasounds for monitoring?

As for another get together, I am in and will go anywhere! All being well, we will be in New Zealand until mid March, so I hope it could be after that. Thanks to Marian, NVDobie and Pots for all offering to host.

Marian, how are you doing on the chemo?


I've looked at clouds from both sides now. Joni Mitchell Dx 12/1/1998, LCIS, Right Dx 1/9/2018, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 2/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Dx 3/1/2018, DCIS/IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/16/2018 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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Dec 14, 2018 12:52PM moth wrote:

Hello friends, I'm having a meltdown about hair on the hair hair hair thread https://community.breastcancer.org/forum/69/topics...

It's been months since I've cried about anything but I cried about my hair last night. stupid cancer.

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Dec 14, 2018 01:19PM van2018 wrote:

Hi Moth, I'm so sorry to hear about your experience. Wanting to turn back time is a heart wrenching feeling. I really do appreciate your sharing your experience with us. Even through your own pain you are helping others. Thank you. I've been very frustrated with how my hair has come back grey when it was not like this before the diagnosis. I've been thinking about shaving it again but have just resolved to leave things be. But I wish I could just look (and feel) like my normal self again. It will take time but one day things will be better. Take care Moth. Truly, I was taken back by your inner and external beauty when I saw you. xxxx

Dx 4/21/2018, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 5/22/2018 AC + T (Taxol) Targeted Therapy 7/17/2018 Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab)
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Dec 14, 2018 08:33PM - edited Dec 14, 2018 08:37PM by marianelizabeth


Moth, I have had hair meltdowns over the past 6 years but this time I decided to do this. I have read that hair should come back and mine did though over the years with AI's, age etc. It has certainly got thinner but somehow this time I just had to go wild. Mohawk with colour today. I had my second Paclitaxel IV yesterday and expect to lose my hair in the next week or so. Fun!

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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Dec 14, 2018 08:47PM marianelizabeth wrote:

Moth, I wet to the hair site and saw what happened. I had the exact thing happen when I was in my 40's and had to pick up kids from school with orange hair then went back and had the same thing done as you. I ended up with a weird reddish colour that just had to grow out. I have never had colouring done again except this washout stuff. What do you think about having it buzzed short before you go back to school?

I had some rough weeks of late but last Sunday I posted on my blog and decided to try harder not to be so angry, sad, in denial and the week went better and then Paclitaxel yesterday and not knowing how it will affect me as I go forward, I did the mohawk with colour. Made my day.

I hope you can find something fun to do with you hair.

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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Dec 14, 2018 11:09PM DearLife wrote:

Oh Moth I'm sorry the hair colouring turned out that way. I agree with Van2018 that you are a beauty inside and out. Oh She Glows. That's you!

Marian that is a wild hairdo! Love the cheeky smile and glint in your eye. What a fun thing to do!

❤️


I've looked at clouds from both sides now. Joni Mitchell Dx 12/1/1998, LCIS, Right Dx 1/9/2018, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 2/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Dx 3/1/2018, DCIS/IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/16/2018 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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Dec 31, 2018 10:28PM Walden1 wrote:

Happy New Year! Wishing you all the best in 2019

Dx 12/28/2017, DCIS/IDC, Right, 2cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Chemotherapy 1/10/2018 AC + T (Taxol) Surgery 5/2/2018 Mastectomy: Right Radiation Therapy Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin)
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Jan 1, 2019 07:40PM DearLife wrote:

Happy New Year Walden and all BC BCO sisters. My very best wishes for happiness and good health in 2019 and beyond. Hope to see you again soon!

❤️


I've looked at clouds from both sides now. Joni Mitchell Dx 12/1/1998, LCIS, Right Dx 1/9/2018, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC) Surgery 2/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Dx 3/1/2018, DCIS/IDC, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 4/16/2018 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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Jan 1, 2019 11:20PM wrenn wrote:

Happy New Year everyone. I wish for peace and comfort for everyone struggling here. xo

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Mar 12, 2019 04:25PM Kay88 wrote:

Hi,

I am quite worried. Four-five weeks ago I found a lump and I had a diagnostic mam and an ultrasound on Friday, I have a appointment with my family doctor tomorrow for the results. The technicians were super nice but had that quiet, worried expression that I remember from when I had complications with one of my pregnancies. I go in to see my family doctor tomorrow for the results. I am in Kamloops. I don't know what next steps might be but does anyone have doctor recommendations? I should be ready with some names, I think, in case the news is not good tomorrow. Thanks for any help.

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Mar 12, 2019 04:45PM - edited Mar 12, 2019 04:46PM by runor

Kay88, first, I am sorry you are here posting this. I sincerely hope it turns out to be nothing and that is the last post you ever make on this site.

In my case I had no doctors to pick from. I was told who my surgeon was going to be. I think I could have put up a fuss and insisted on someone different. But frankly I was in shock, freaked out, trying not to have a breakdown and pretty much not firing on all rockets. I said I would not bother with the needle biopsy and went instead to a surgical biopsy and they told me who would be doing it. Okay then, I guess that's who I see. I was very happy with her, she also did the lumpectomy. I had complications with my lumpectomy but I have never felt this was an error on the surgeon's part, more one of those fluke things that goes wrong. Kind of like getting breast cancer.

I had my surgery in Salmon Arm. I saw the oncologist in Salmon Arm. You can private message me if you want more information. I hope to god this turns out to be nothing.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 12, 2019 10:00PM marianelizabeth wrote:

Me too, Kay88. I lived in Kamloops decades ago when I was doing my nursing diploma Cariboo College which of course is long gone. It has certainly grown since then so I would think that you should have some choices. First first things 1st though I'm for you I suspect tomorrow cannot come fast enough. Runor is quite close to you and I hope that she's able to help you too.

Let us know tomorrow and I will be thinking of you.

Marian

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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Mar 13, 2019 12:25AM van2018 wrote:

We're thinking about you Kay88 and hoping it's nothing. I felt a lump and didn't go to the walk-in clinic until 5 weeks later. Had a mammo and ultrasound 2 days later and they told me right away they wanted to schedule me for a biopsy. I don't have any recommendations for specialists in Kamloops but if for any reason you need any names in Vancouver, just ask. But fingers are crossed you won't need any recommendations! Sending positive thoughts.

Dx 4/21/2018, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 5/22/2018 AC + T (Taxol) Targeted Therapy 7/17/2018 Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab)
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Mar 13, 2019 12:29AM Moderators wrote:

Hi Kay88-

We're so sorry you're here with this worry, we know how scary it can be. Please keep us posted on what you find out, we're here for you either way!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Mar 15, 2019 08:20PM moth wrote:

Hi Kay88 - I hope it's turned out to be nothing.

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Mar 17, 2019 07:06PM BlueSky1969 wrote:

Same Kay88 - hoping that's its nothing...


Dx 3/28/2018, IDC, Right, Grade 2, ER+/PR+, HER2- (IHC) Surgery 5/1/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 5/15/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/9/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/28/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 23, 2019 02:09PM - edited Apr 12, 2019 06:57PM by moth

Hi everyone, just checking in.

I had my 6 month'ish after treatment end meeting with the MO and was discharged from the FVCC back to my family doctor. (they did ask if I was ok with this & I got the sense that if I didn't have a good family doctor they would have kept me but I love my doctor so it's all good & I'd just as soon not have to go to the cancer agency for check ups if not necessary). I had a clean mammo a couple weeks ago and the MO said she'd put in a request for a bilateral breast MRI 6 months from now. She said that there are some new guidelines out since January and BC is increasing funding for breast MRI for women with dense tissue. She said that in my case it would be reasonable to ask for mammo + u/s or an MRI at regular intervals. I will do the MRI hopefully in 6 months and then see whether I want to continue an alternating sched of mammo and mri.

Seeing the endocrinologist next month for input about my osteoporosis. I've already had one shot of Prolia so not sure she will add much more to the conversation but I'll go anyway.

I've been having some hip pain on & off since Dec, had an xray which found nothing obvious so I think my next step is physio - but I'm dragging my feet on it because I already have a bunch of shoulder exercises which I've not been doing. I'm sure they'll add exercises for my hip and I'll just end up with a longer list to feel guilty about not getting to.

Hope everyone is doing well and enjoying the finally warmer weather

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Apr 10, 2019 09:30PM NVDobie wrote:

moth

sounds like each MO has different approach on how long they follow the patient post treatment. So lucky to have a good GP.

I requested a Dexa scan thru my GP as discussed, and came back Osteopenia. I have since read Tamoxifen could cause it for pre menopause women. Haven’t got a chance to discuss with my MO yet.

Had my first post treatment Mammogram, ordered by my MO, 3D mammogram at BCCA. I remember when I asked my MO last year about dense breast he said 3D machine can assist with that. Then reading my 3D report says too dense and an clean mammogram shouldn’t not be used as indication of non issue.

I didn’t want to wait till end of May to ask my MO, so I requested ultrasound from my GP, will get it done at agency tomorrow.

Not sure how useful an ultrasound will be for dense breast. So I will have to wait and see.

Hope everyone is doing well.


Dx 12/6/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/5/2018 Lumpectomy: Left Chemotherapy 3/8/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/11/2018 Lumpectomy: Left Radiation Therapy 7/30/2018 Whole-breast: Breast Hormonal Therapy 9/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery
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Apr 15, 2019 03:16PM moth wrote:

NVDobie - bummer to hear about your osteopenia. Will be interesting to see what your doctors want to do if anything.

The mammo+ ultrasound is what they seem to be recommending right now for dense breasts but as you saw above, my MO also put in a requisition for an MRI - but I don't know if they'll approve it. Are you thinking of doing MRI for some of the screenings?

I met the endocrinologist for my osteoporosis today & really liked her. My vitamin D levels are really low so she's got me increasing my supplementation and we will monitor it. Plus we came up with a plan for treating my osteoporosis & tentative plans for how long I'll stay on Prolia and the strategies to come off it (because when you come off it the bone density can fall again and so you need to take another medication to lock it in). It was reassuring to talk to her because she ran some fracture risk assessment calculations on her computer and said I'm low to moderate risk and it's actually not even clear that treatment is necessary at this stage...but there's nothing wrong with pursuing treatment and it might have some additional benefit of prevention of bone metastases so I'm doing it.

I'm definitely looking to add more exercise as muscle is what strengthens bone.

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Apr 15, 2019 09:18PM marianelizabeth wrote:

NVDobie and Moth, nice to see you as always! As for Prolia, I have been on it for about 3.5 years and really need to phone the Vancouver endocrinologist to see exactly when I started. I continued it every six months when I moved here and I see my I see my Victoria endocrinologist in May. I will be asking about whether I should stop prolia. In Vancouver I had an annual bone density test in the doctors office but have not had one since I left. I will also ask about that.

As for chemotherapy, I start cycle six of paclitaxel this week and the BCCA protocol is six cycles. I see my MO the day before chemo and have many questions for her.

Marian

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx Dx DCIS
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Apr 18, 2019 05:39PM Elderberry wrote:

mariaelizabeth: hello fellow Canadian. Let me know how you do on paclitaxel. I am STILL waiting to get a spot on a chemo chair. I worry about long delays. I feel like since I am Stage IV I am going to die anyway (their thoughts, sometimes mine) - so get those early stage people in first and "cure" them. I don't know how long those liver mets were percolating. I live in Burnaby. BC Cancer Agency has crazy stupid "wait lists"

Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Chemotherapy Taxol (paclitaxel) Targeted Therapy Targeted Therapy Herceptin (trastuzumab)
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Apr 18, 2019 05:44PM Elderberry wrote:

marianelizabeth: see the other post. I misspelled your name.

Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Chemotherapy Taxol (paclitaxel) Targeted Therapy Targeted Therapy Herceptin (trastuzumab)

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