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Topic: Canadians in British Columbia

Forum: Canadians Affected by Breast Cancer —

Canadian health care, clinical trials, and life in general in the north.

Posted on: Dec 19, 2011 06:17AM

suz45 wrote:

I'm wondering how many West Coast Gals we currently have on here. It makes it a little easier to compare notes as our health-care is provincial. Would be nice to share tips and such to each other as we wade though the health-care Bureaucracy.

I'm in Richmond BC (a part of the Vancouver Lower Mainland) and the majority of my treatment has been at Vancouver General Hospital and Vancouver Cancer Agency.. with a few small surgical procedures done at UBC and my original Lumpectomy at Richmond General. My GP is also in Richmond. Ive been on the BCO boards since 2007 with a few breaks.

Please pipe in even if only to let us know your here Wink

Hugs Suz

Laugh your heart out, dance in the rain, cherish the memories & ignore the pain, love and learn, forget & forgive. Remember you only have one life to Live. Dx 11/25/2010, IDC, 6cm+, Stage IV, 8/23 nodes, mets, ER-/PR-, HER2-
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Apr 29, 2019 03:46AM Walden1 wrote:

For those of you in Vancouver, wondering if anyone can recommend a GP that is particularly knowledgeable about breast cancer survivor care. I like my GP, but I feel like I need a specialist GP that knows what additional tests could be useful in monitoring me going forward.

Dx 12/28/2017, DCIS/IDC, Right, 2cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Chemotherapy 1/10/2018 AC + T (Taxol) Surgery 5/2/2018 Mastectomy: Right Radiation Therapy Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin)
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Apr 29, 2019 11:13AM wrenn wrote:

I love my nurse practitioner (provided to BCCA patients who don’t have/like their GP). My GP was a nightmare. She not only knew nothing much about types of breast cancer but was very impatient with my anxiety right after BMX complications. My NP is amazingly up to date and has great compassion especially with health anxiety related to cancer

I don’t think all MDs keep up with latest research.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Apr 29, 2019 11:28AM moth wrote:

Walden, it was Dr. Katharine Xing at FVCC who told me there were some new guidelines since January about this. I haven't been able to find them on the cancer agency website yet. She was a bit vague about it and I got the sense she wasn't sure if they would pay for it. Next time I go to my dr I will ask where that referral is in case I need to arrange and pay for the MRI in the fall privately.

I hope you find a good GP though I have to say that most people are reporting it's hard to find *any* GP, good or otherwise. I can tell you what my GP does:
cervical cancer screening every 3 years, colon (FIT) every 2 years, annual thyroid blood work (because I had previous thyroid surgery). I'm to show her any moles or weird skin things and she'll decide whether they need removing (or referral to a derm). I think she will also do just general blood work annually. No tumor markers or anything like that.

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Apr 30, 2019 02:04AM Pots wrote:

Thanks to wren, I go to the NP that BCCA sets up, she’s fantastic. I can get in to see her same day, she listens and orders tests as needed. If she isn’t sure, she looks things up and double checks with the GP in the clinic. I think I get better service, more time and more thorough attention. She can prescribe /order pretty much all the same stuff as the GP and she actually will read my file before we talk. PM if you want her name.

Hmm...interesting observations about MO and their ability to stay on top of protocol changes. I think some of the problem is their staff may not brief them well. Things seem to happen and work better at visits when the GPoncologist sees me first, then the MO and then the GPO does the paperwork. Sig

Dx 7/2013, Right, 3cm, Stage IIIB, Grade 2, 5/20 nodes, ER+/PR-, HER2- Dx 5/2017, Right, Stage IV, metastasized to other, ER+/PR-, HER2- Dx 3/2018, Right, Stage IV, metastasized to lungs/other Hormonal Therapy Femara (letrozole) Chemotherapy Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Targeted Therapy Ibrance (palbociclib) Chemotherapy Taxol (paclitaxel)
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Apr 30, 2019 02:06AM Pots wrote:

marianelizabeth, I see you are chugging along on Taxol. Are you still thinking of doing a spring get together in Vancouver?


Dx 7/2013, Right, 3cm, Stage IIIB, Grade 2, 5/20 nodes, ER+/PR-, HER2- Dx 5/2017, Right, Stage IV, metastasized to other, ER+/PR-, HER2- Dx 3/2018, Right, Stage IV, metastasized to lungs/other Hormonal Therapy Femara (letrozole) Chemotherapy Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Targeted Therapy Ibrance (palbociclib) Chemotherapy Taxol (paclitaxel)
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Apr 30, 2019 06:16PM marianelizabeth wrote:

Ann, I would like to yes to get-together and mentioned it only yesterday. I found the lists of women from previous potlucks.

I am on a 2 night holiday on Saltspring with a couple of friends. I am also still doing the Paclitexel and Thursday is end of cycle 6 and tolerating well.

Maria

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx
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May 23, 2019 11:27PM NVDobie wrote:

Maria

So glad you finished paclitexel. How are you feeling?

Walden1

Yes. I have my GP ordered Ultrasound to be done at BCCA. BCCA did it without giving me any trouble. For the most of screening tests including regular blood work before BC, I normally request thru GP on my own. I have never had a GP ordered voluntarily without me asking, one GP in Ontario made suggestion once to do Mammo once a year after I turn 40 due to dense breast. The rest of GP's I have, although friendly, but not proactive on anything.

When I had inconclusive Mammo. my GP did suggest ultrasound which is a progress. However I am still puzzled why Chia thinks 3D mammo will be sufficient for Dense breast. Shouldnt he know? Anyway, that was his answer when I asked him way back when how to monitor dense breast.

Now on the mammo result from BCCA, it actually states that no finding of the mammo report doesnt proven there is no issue. :-)


Goes back to what Wren said, we really need to know our body and be our own advocate. MO and Doc seems all fall into the programs of " waiting for symptoms"


Hope everyone is doing well, enjoying the great weather. I am up for it for our next get together.


April


Dx 12/6/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/5/2018 Lumpectomy: Left Chemotherapy 3/8/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/11/2018 Lumpectomy: Left Radiation Therapy 7/30/2018 Whole-breast: Breast Hormonal Therapy 9/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery
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May 23, 2019 11:31PM NVDobie wrote:

Elderberry

Welcome to the group. Have you got your chemo schedule now?

How long have you waited for already? I remembered waiting for 2 months or so before starting chemo. I dont personally think they prioritize based on stage, more likely based on sequence of referral from surgeons. But in any case, call them if you dont hear from them. Sometime mistake happen.

On this forum, there are some previous thread on an extensive list of chemo tips. Might be worthwhile to dig it up and get prepared.



Dx 12/6/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/5/2018 Lumpectomy: Left Chemotherapy 3/8/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/11/2018 Lumpectomy: Left Radiation Therapy 7/30/2018 Whole-breast: Breast Hormonal Therapy 9/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery
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May 24, 2019 12:29AM Pots wrote:

The waiting for results is the worst. I agree that you need to know your body and listen to it. Not all aches and pains are a reoccurrence. Unfortunately there is no 100% prediction test/tool so monitoring and symptoms is the best we have.

It would be great to get together again, maybe in June? Marian, are you still thinking of hosting or is that too much for you?

Be well,

An

Dx 7/2013, Right, 3cm, Stage IIIB, Grade 2, 5/20 nodes, ER+/PR-, HER2- Dx 5/2017, Right, Stage IV, metastasized to other, ER+/PR-, HER2- Dx 3/2018, Right, Stage IV, metastasized to lungs/other Hormonal Therapy Femara (letrozole) Chemotherapy Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Targeted Therapy Ibrance (palbociclib) Chemotherapy Taxol (paclitaxel)
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May 24, 2019 12:35AM marianelizabeth wrote:

Ann, the friend whose house I would use has some health problems so I won’t ask her. Fall would be better and I think she is going on a trip so we could certainly do it then. I am finding many people are starting summer plans in June. Chemo today and #2 of cycle 7 and going well at low dosage. Would still love to talk to you.

Maria




breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx
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May 26, 2019 08:15PM NVDobie wrote:

Any of you ladies dealing with low White Blood Cell counts and Neutrophils post chemo?

It has been a year since last chemo, the number is still quite a bit lower than the normal range. Blood sugar is also higher than normal. Both numbers are heading towards the wrong direction instead of improving. Would be a bummer if chemo gives me type 2 diabetes. :-(

Moth

How has your WBC and Nurtophiles been? How is your fasting glucose? How is your MO monitor them? My MO doesnt seem concerned. I requested test from my GP on my own, 6 months apart. One friend has the same issue, her MO from BCCA is ordering labs every two months.




Dx 12/6/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/5/2018 Lumpectomy: Left Chemotherapy 3/8/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/11/2018 Lumpectomy: Left Radiation Therapy 7/30/2018 Whole-breast: Breast Hormonal Therapy 9/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery
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May 26, 2019 08:32PM moth wrote:

NVDobie, bummer about your lab results. My neutrophils are still sluggish as well. Mostly hovering in the 1.6 range all last fall (last chemo was July). I got as high as 3.3 in March but then a month later it was back down to 1.6 (the only reason I had 2 tests fairly close together was that the GP ordered one and then I got an appointment with the endocrinologist and she ordered a whack more)

The oncologist was not particularly concerned about my low #s when I asked them about it last year. They said so long as my RBC was up and the neutrophils were in the 1.5 range, they weren't concerned and I shouldn't be either so I try to hang on to that.

My GP told me she will check the numbers for me whenever I ask. I'm in clinical now twice a week in hospitals so I'm super careful and always assume that I'm a bit immuno-compromised. I was super happy to see that one 3.3 result because for a while I had a secret fear that we'd thrashed my bone marrow and I'd have leukemia or something but now I think that maybe this is just a slow recovery. FWIW, I did read last year some study that was looking at whether people maintained their vaccine mediated immunity post chemo & they were saying that they still saw changes in the blood for well over a year post chemo so maybe this is relatively normal to have a long recovery.

I will be seeing her next month for my osteoporosis injection so I might ask to check and see what's happening now. I have to check vitamin D again in mid july anyway and see if the 4000IU/day for 3 months has been effective in raising it to normal. I haven't had glucose checked in over a year so maybe she'll order a full panel with glucose and lipids and everything just to see.

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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May 26, 2019 11:16PM NVDobie wrote:

Thanks, Moth

It is annoying as I really want to put all these behind me and move on with life.

My WBC was 2.8 last Oct, it is at 2.9 this week. However neutrophils has gone down from 1.5 to 1.4. Fasting Glucose has gone up from 5.8 to 5.9 (normal is 3.3-5.5)

A new number now jumped out into the abnormal range is HemoglobinA1C, it has gone up from 5.5 to 6.1 in 6 months. i am 0.4 points away to be type 2 diabetes. @@ MO did say last time that sometimes chemo messes up blood sugar, but 12 months after still?

Same as you. after each round of lab, I generally spend a couple of days research chemo induced Acute Myeloid Leukemia. I have also read that vegan generally have lower WBC than omnivores.

Seeing my MO tomorrow. If MO doesn't do it, I am thinking about requesting an hematologist referral thru my GP if possible. Would like to at least understand how it works and why it is lasting this long. MO is too busy to answer my long list of questions.

Did your MO referred you to the endocrinologist or your GP?

Thanks for your suggestion of Dexa scan. Otherwise I wouldn't have know that i am osteopenic. Still not sold on taking calcium supplements yet, so i am up the in take on fish and tofu to boost my calcium.

3 reasons to exercise: reduce chance of recurrence, prevent type 2 diabetes, slow down or hold off osteopenia. Start to think maybe i should get a job as a group fitness instructor or something.

With you now in hospital environment all the time for your school, sanitizers are our best friends. I still have the list from you during chemo about food safety etc.

How is school going?










Dx 12/6/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/5/2018 Lumpectomy: Left Chemotherapy 3/8/2018 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 3/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/11/2018 Lumpectomy: Left Radiation Therapy 7/30/2018 Whole-breast: Breast Hormonal Therapy 9/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery
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May 26, 2019 11:44PM moth wrote:

My MO ordered the dexa scan and referred me to the endocrinologist. FWIW, my endo said she's way less worried about calcium than Vitamin D. If you haven't had your vit d checked, ask your GP to add it to bloodwork but be aware than MSP will only pay for it if a specialist orders it. It's something like $65 otherwise. But I was severely low in vit d even though I'm light skinned and spend time outdoors year round. I wish I'd had it tested years ago because I suspect I've been low for a long time.

exercise is definitely one of the best things we can do! One of my zumba instructors keeps suggesting I become an instructor too but I just love to be a participant and dance - I don't want to have to think about choreography and classes and whether the person in the back is going to have a heart attack.

School is INTENSE. I hear from students further ahead that this term and the next are probably the worst in terms of workload and stress. We've lost a number of students already in our cohort -either quit or failed. I'm struggling to eat well and exercise and sleep enough as it seems there's just not enough hours in the day.... but mostly I'm enjoying it and apart from the moments of panic and nerves and trying to not faint at the super gross things, and the crazy number of things I'm trying to memorize, it's been fun!

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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May 27, 2019 03:05PM marianelizabeth wrote:

moth, good to hear about school. What area is your clinical and I can't recall what year you are in? My son is working day 3/4 shifts in his first rotation as a graduate nurse where he did his nursing degree in Terrace. I leave Friday for Terrace for his pinning ceremony and also his convocation. He said that 3rd year was his hardest.

My blood work has been very good considering the fact that I finish Cycle 7 of low dose Paclitaxel this week and will carry on with it as long as it works or creates side effects like neuropathy.

Marian

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 Breast, Lymph nodes Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx
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May 29, 2019 09:47PM moth wrote:

Marian, I'm in term 3 of a consecutive 9 term program (I'll graduate in Aug 2021); clinical placement until end of July is on an acute care of the elderly unit in major hospital. Congrats to your son! My dd is in the same program as me; she's graduating in Dec so I'm following in her footsteps lol

Very glad to hear your bloodwork is holding up well! That's certainly a major issue and impacts so much of the treatment choices. Fingers crossed for no neuropathy either.

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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May 30, 2019 09:10AM - edited May 30, 2019 09:11AM by Ossa

HI ladies 

Welcome to all the "new" ladies 

Have not been here for a long while. Been living life, enjoying m grandchildren.  I had a re-reconstruction with latissimus flap, so much better than what I had. During my post-op I asked my plastic surgeon to have a look at a spot on my nose. Turned out to be basal cell carcinoma, Had surgery with skin graft. Two weeks ago I saw a dermatologist as a precaution, He found several cell changes in my face and recommended photodynamic therapy. This would lower my chance of getting skincancer by 80% so that was a no brainer.. Hope life is good to

Today is the first day of the rest of your life.... NED Nov 2011 Dx 4/7/2011, DCIS/IDC, Right, 6cm+, Grade 3, 3/7 nodes, ER+/PR-, HER2+ Chemotherapy 5/19/2011 AC Targeted Therapy 8/11/2011 Herceptin (trastuzumab) Chemotherapy 8/11/2011 Taxotere (docetaxel) Surgery 11/22/2011 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 12/28/2011 Radiation Therapy 1/27/2012 Whole-breast: Breast, Lymph nodes Surgery 5/11/2012 Reconstruction (right) Surgery 10/26/2012 Reconstruction (right): Fat grafting, Nipple reconstruction Surgery 11/15/2014 Reconstruction (right): Fat grafting

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