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Topic: Canadians in British Columbia

Forum: Canadians Affected by Breast Cancer —

Canadian health care, clinical trials, and life in general in the north.

Posted on: Dec 19, 2011 05:17AM

suz45 wrote:

I'm wondering how many West Coast Gals we currently have on here. It makes it a little easier to compare notes as our health-care is provincial. Would be nice to share tips and such to each other as we wade though the health-care Bureaucracy.

I'm in Richmond BC (a part of the Vancouver Lower Mainland) and the majority of my treatment has been at Vancouver General Hospital and Vancouver Cancer Agency.. with a few small surgical procedures done at UBC and my original Lumpectomy at Richmond General. My GP is also in Richmond. Ive been on the BCO boards since 2007 with a few breaks.

Please pipe in even if only to let us know your here Wink

Hugs Suz

Laugh your heart out, dance in the rain, cherish the memories & ignore the pain, love and learn, forget & forgive. Remember you only have one life to Live. Dx 11/25/2010, IDC, 6cm+, Stage IV, 8/23 nodes, mets, ER-/PR-, HER2-
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Nov 25, 2019 09:14PM Walden1 wrote:

Moth-thanks for the heads up. I’ll check my spam so I don’t miss the next one. Would be lovely to see you all again!

Looks like I’m switching to tamoxifen with buserelin for ovarian suppression. At least I don’t need to worry if the OS is fully working on Tamoxifen. I’m thinking of it more as a nice to have than a must do. Guess I have stubborn ovaries, they don’t want to quit! We will see if the buserelin does a better job than the Zoladex in a month. Fingers crossed

Dx 12/28/2017, DCIS/IDC, Right, 2cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Chemotherapy 1/10/2018 AC + T (Taxol) Surgery 5/2/2018 Mastectomy: Right Radiation Therapy Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin)
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Nov 28, 2019 12:34PM marianelizabeth wrote:

Moth, thank you for organizing out get-together last Saturday. It was interesting to have 3 of us with metastatic breast cancer and 3 not. I have the list of us who were at potlucks 3 years ago and will send an email to those who I think might like to attend another. It would be nice to host another potluck at a Vancouver friend's but will see if I am well come spring.

Marian

breastcancereh.blogspot.ca Dx 7/27/2012, IDC, ER+/PR+, HER2- Surgery 9/7/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 9/21/2012, IDC, 3cm, Stage IIIA, Grade 3, 7/14 nodes, ER+/PR+, HER2- Chemotherapy 10/15/2012 AC + T (Taxol) Surgery 3/5/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Hormonal Therapy 4/29/2013 Arimidex (anastrozole) Radiation Therapy 5/7/2013 External: Lymph nodes, Chest wall Surgery 12/6/2013 Reconstruction (left); Reconstruction (right) Surgery 12/12/2016 Reconstruction (right): Fat grafting, Silicone implant Surgery 6/26/2017 Reconstruction (right) Dx 8/22/2017, IDC, Right, 4cm, Stage IV, metastasized to other, 7/14 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 9/8/2017 Dx
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Nov 29, 2019 10:33AM cathy67 wrote:

Ladies,

I have a question. I did CT Scan this Monday, and the person who operated the machine told me, my report shall be ready this Wednesday or Thursday, so far I have not received call. Last time, the nurse in cancer clinic said, if I want to know the report, I shall call in to get an appointment with oncologist, the nurse won't tell me anything about the report. So it does not make sense to call nurse, just wait, call will come if back abnormal result.

Suppose the report is already there, I guess oncologist already read it, and if it is abnormal, nurse shall call me yesterday before the end of the day, right? I am very worried about this, we all experienced this, can some body share me the CT Scan stuff? I did a bone density test ten days ago, so far no call, I guess bone density shall be normal. My next appointment with oncologist will be in February, I understand I can only get the report from the doctor who ordered the test, that is oncologist, though some other doctors already got copies.

Thanks, good day.

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Nov 29, 2019 10:53AM GG27 wrote:

Cathy,

You can go to medical records and pick up a copy of the report if you are concerned. I do this because I don't like to be blindsides at my next appt. You can always put in a call to your MO to ask for your results over the phone. I have told my MO that the RN's are allowed to call me with results. But I also think that if something was concerning on your CT that your MO's office would have called to have you come in before February.

good luck, dee

Dx 10/2008, IDC, Both breasts, 3cm, Stage IIB, Grade 2, 3/9 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2009 Lymph node removal; Mastectomy: Left, Right Chemotherapy 2/1/2009 Other Radiation Therapy 7/5/2009 Whole-breast: Breast, Lymph nodes Hormonal Therapy 9/6/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/14/2014, IDC, Both breasts, Stage IV, metastasized to bone, 9/20 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 5/19/2014 Arimidex (anastrozole) Hormonal Therapy Faslodex (fulvestrant) Radiation Therapy External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Nov 29, 2019 11:01AM cathy67 wrote:

GG27, thanks. But here in richmond bc. When my oncotype report was back, I called in, front desk said cannot tell till next appointment, but nothing urgent so cannot see me earlier. Then another ten days waiting!

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Nov 29, 2019 11:04AM GG27 wrote:

Cathy, you can go to your Cancer clinic, if Vancouver it's the fourth floor, medical records and get a copy. Read the overall impression at the bottom of the page.


Dx 10/2008, IDC, Both breasts, 3cm, Stage IIB, Grade 2, 3/9 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2009 Lymph node removal; Mastectomy: Left, Right Chemotherapy 2/1/2009 Other Radiation Therapy 7/5/2009 Whole-breast: Breast, Lymph nodes Hormonal Therapy 9/6/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/14/2014, IDC, Both breasts, Stage IV, metastasized to bone, 9/20 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 5/19/2014 Arimidex (anastrozole) Hormonal Therapy Faslodex (fulvestrant) Radiation Therapy External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Nov 29, 2019 05:08PM cathy67 wrote:

Hi GG27,

I will try this, thanks. But do you know if the report is available for us to copy before the doctor's talking? Anyway, will try it. Thanks.

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Nov 30, 2019 10:38AM moth wrote:

Cathy, yes you can get medical records as soon as they're available & filed with your electronic chart - which often means earlier than your appointment with the doctor. I frequently arrived at the appointment with my test results in my hand. If you sign up with the medical records office at the cancer agency you will get ALL your records, including the progress notes that your surgeon and oncologist etc write after every appointment plus all lab and test results. I have a whole binder with everything. Once you sign up, they keep track of when you last got copies and next time you go in, they will just give you copies of whatever is new.

Dx at 50; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Nov 30, 2019 07:14PM cathy67 wrote:

Moth,

Thanks!

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Dec 1, 2019 11:16AM GG27 wrote:

cathy,

your ct reports should take about 2-5 days depending on how busy the radiologists are. labs are usually ready within a few hours and tumour markers take 24-36 hours. i show up at every MO appt with my scans in hand. I don't like to be blind sided, i like to have an idea of what is going to be discussed before getting into the room.

cheers, dee

Dx 10/2008, IDC, Both breasts, 3cm, Stage IIB, Grade 2, 3/9 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2009 Lymph node removal; Mastectomy: Left, Right Chemotherapy 2/1/2009 Other Radiation Therapy 7/5/2009 Whole-breast: Breast, Lymph nodes Hormonal Therapy 9/6/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/14/2014, IDC, Both breasts, Stage IV, metastasized to bone, 9/20 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 5/19/2014 Arimidex (anastrozole) Hormonal Therapy Faslodex (fulvestrant) Radiation Therapy External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Dec 1, 2019 04:55PM cathy67 wrote:

GG27,

Thanks. My appointment with MO will be February 5.

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Dec 1, 2019 07:18PM cathy67 wrote:

One more question, ladies, can I talk to radiation oncologist about my CT Scan? I am doing radiation now, and will see him the coming Tuesday.


Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Dec 1, 2019 08:50PM GG27 wrote:

cathy, you are "allowed" to ask anything but they may or may not have looked at that CT scan. All they can say is no... Happy

Dx 10/2008, IDC, Both breasts, 3cm, Stage IIB, Grade 2, 3/9 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2009 Lymph node removal; Mastectomy: Left, Right Chemotherapy 2/1/2009 Other Radiation Therapy 7/5/2009 Whole-breast: Breast, Lymph nodes Hormonal Therapy 9/6/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/14/2014, IDC, Both breasts, Stage IV, metastasized to bone, 9/20 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 5/19/2014 Arimidex (anastrozole) Hormonal Therapy Faslodex (fulvestrant) Radiation Therapy External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Dec 3, 2019 02:35PM cathy67 wrote:

Thanks everybody.

I got all copies from patient record release department on fourth floor, but no bone density on November 18 and CT Scan on November 25. And no call from richmond cancer clinic, next appointment will be February.

Maybe just call richmond cancer clinic for MO appointment. But doing radiation every day makes me tired, cannot find time to see MO.


Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Dec 3, 2019 03:13PM GG27 wrote:

Cathy,

did you have a bone density scan or nuclear bone scan? 2 different tests, my bone scan is always done at VGH, Jim Pattison pavilion and they fax the results very quickly to your GP. Also, can you call your GP's office for a copy of the CT? I sometimes get a copy from there if it's not available before I head home. Also you can call your MO's secretary & tell her that you would like to know the results of your tests before February. I always say that I'm happy to have an RN read me the "overall impression"

I've been doing this a long time & never take no for an answer. But I'm always nice about it and believe that cookies open doors. A couple of times a year I take a package of homemade cookies for the unit to share, it's amazing what I am able to ask for & receive.

good luck, cheers, dee

Dx 10/2008, IDC, Both breasts, 3cm, Stage IIB, Grade 2, 3/9 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2009 Lymph node removal; Mastectomy: Left, Right Chemotherapy 2/1/2009 Other Radiation Therapy 7/5/2009 Whole-breast: Breast, Lymph nodes Hormonal Therapy 9/6/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 5/14/2014, IDC, Both breasts, Stage IV, metastasized to bone, 9/20 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 5/19/2014 Arimidex (anastrozole) Hormonal Therapy Faslodex (fulvestrant) Radiation Therapy External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Dec 3, 2019 07:23PM cathy67 wrote:

GG27,

Thanks! I will call them tomorrow. Bone density test in women's hospital, and CT Scan in richmond hospital, then bone scan year end in richmond hospital.


Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Dec 3, 2019 07:26PM wrenn wrote:

I agree that your GP will have copies. Mine will email copies of reports for me.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Dec 3, 2019 07:34PM cathy67 wrote:

Thanks! I will call cancer clinic at first tomorrow, after my morning radiation appointment.

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Dec 6, 2019 03:33PM cathy67 wrote:

Today,

I met my MO and got the CT Scan report, it is negative! MO said he won't recommend another one unless any symptoms. But I forgot to ask how about other tests, such as mammography, maybe back to screening then. Anyway, I will plan to travel, next spring break.

Enjoy weekend!

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes

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