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Topic: Juravinski or Princess Margaret or other?

Forum: Canadians Affected by Breast Cancer —

Canadian health care, clinical trials, and life in general in the north.

Posted on: Jul 25, 2018 06:26AM

Amica wrote:

I have just had a recurrence of metastasis after 20 year NED.

I have been referred to Juravinski in Hamilton Ontario but so far have found them slow and inefficient. Also Juravinski has some bad reviews on the internet.

I was wondering if anyone on here has had BC treatment at Juravinski or Princess Margaret in Toronto, or anywhere else in Ontario you would recommend? What were your experiences?

thanks in advance,

Amica

1998 at 39 Stage 2 IDC, 1/16 nodes, ER/PR +, HER2-,Gr 3, surgery, AC + Taxol, rads, oopher/hysterectomy, Tamoxifen, Aromasin completed 2010 - Aug 2018 metastatic recurrence Stage IV, ER+ PR- HER2-, Gr 3, Sept 2018 Letrozole/Ibrance, Prolia
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Jul 27, 2018 01:12AM - edited Jan 3, 2019 01:58AM by Amica

I did receive one private message to this which I am thankful for.

I have my first appointment at Juravinski in Hamilton soon, and I will update this post as time goes along so that someone else wondering the same thing in the future will at least get my impressions, which I do realize individual experiences can differ.

Amica

1998 at 39 Stage 2 IDC, 1/16 nodes, ER/PR +, HER2-,Gr 3, surgery, AC + Taxol, rads, oopher/hysterectomy, Tamoxifen, Aromasin completed 2010 - Aug 2018 metastatic recurrence Stage IV, ER+ PR- HER2-, Gr 3, Sept 2018 Letrozole/Ibrance, Prolia
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Jul 27, 2018 07:54PM wallan wrote:

Hi Amica:


I was treated at Juravinski for my first time around. I'm still here, so they did a good job medically.

The rest sucked. I am being honest. I have heard Princess Margaret is wonderful.

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 27, 2018 08:14PM - edited Jul 27, 2018 08:58PM by Amica

wallan

thanks for your reply. Wallan, would you be willing to send me a private message and let me know more specifically your experience with Juravinski? I mean, was it the staff, the procedures, the facilities, scheduling delays?

Were you treated there in both 2004 and in 2017?

take care,

Amica

1998 at 39 Stage 2 IDC, 1/16 nodes, ER/PR +, HER2-,Gr 3, surgery, AC + Taxol, rads, oopher/hysterectomy, Tamoxifen, Aromasin completed 2010 - Aug 2018 metastatic recurrence Stage IV, ER+ PR- HER2-, Gr 3, Sept 2018 Letrozole/Ibrance, Prolia
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Nov 8, 2018 05:14PM - edited Jan 3, 2019 01:59AM by Amica

Unfortunately, in Ontario, if you don't live in the correct geographical area, you can be refused a transfer to another cancer center.


1998 at 39 Stage 2 IDC, 1/16 nodes, ER/PR +, HER2-,Gr 3, surgery, AC + Taxol, rads, oopher/hysterectomy, Tamoxifen, Aromasin completed 2010 - Aug 2018 metastatic recurrence Stage IV, ER+ PR- HER2-, Gr 3, Sept 2018 Letrozole/Ibrance, Prolia
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Nov 8, 2018 07:35PM wallan wrote:

Hi Amica:


So sorry you are dealing with Juravinski. HUGs to you.

Hang in there.

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 8, 2018 08:08PM Kelly-Anne wrote:

Hi Wallan,

The credit valley hospital cancer centre in Mississauga is really excellent. I’ve had excellent care there these last months. The doctors and nurses have been very supportive of my condition and have addressed a myriad of issues regarding my condition promptly and with compassion.

I considered looking downtown but in the end decided to stay at CVH. There are just so many appts and things to do that geography should be part of your thoughts.

Best of luck!


Dx 5/31/2018, IDC, Left, 5cm, Stage IIB, Grade 3, ER+/PR+, HER2- Surgery 6/25/2018 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 8/13/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Jul 11, 2019 07:26PM Scottiee1 wrote:

I had treatment at Princess Margaret, and in fact, volunteered there for four years. I was very happy with my treatment here and how quickly I started radiarion

Dx 2/12/2012, IDC, Right, 2cm, Stage IA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/24/2012 Femara (letrozole) Radiation Therapy 5/2/2012 Radiation Therapy 5/2/2012 Radiation Therapy 5/2/2012
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Aug 27, 2019 09:18PM DutchieGirl wrote:

I am with Juravinski Cancer Centre. I know many of the reviews online are for Juravinski Hospital, and not the cancer centre. Easy mistake to make.

I cannot even begin to tell you how wonderful my care has been there. I have had amazing oncologists and feel very well taken care of. More recently, I was speaking to my radiation oncologist's nurse, and mentioned that I could use some therapy/counselling to deal with all of this. Juravinski offers this service (free) and I got in to the program very quickly. I truly feel blessed and grateful to be a JCC patient. If I have to go through this, I'm glad it's with Juravinski!

Dx 11/7/2018, IDC, Left, 1cm, Stage IIIA, ER-/PR-, HER2+ Surgery 1/13/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 3/3/2019 AC + T (Taxol) Radiation Therapy 7/28/2019 Targeted Therapy Herceptin (trastuzumab)
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Oct 22, 2019 02:21AM Amica wrote:

DutchieGirl

I'm glad you had a good experience with Juravinski. So different from mine though, so I guess the experience can vary a lot from individual to individual.

I asked for counselling/help and they gave me ONE session with a social worker. Is there some program that exists that they failed to tell me about? because now in my third progression, I sure could use some help.

Amica

1998 at 39 Stage 2 IDC, 1/16 nodes, ER/PR +, HER2-,Gr 3, surgery, AC + Taxol, rads, oopher/hysterectomy, Tamoxifen, Aromasin completed 2010 - Aug 2018 metastatic recurrence Stage IV, ER+ PR- HER2-, Gr 3, Sept 2018 Letrozole/Ibrance, Prolia
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Oct 29, 2019 07:31PM DutchieGirl wrote:

Hello Amica and my apologies for not seeing your post earlier. The JCC just implemented a new program for mental health. I currently see a psychiatrist on a fairly regular basis. The intake is about an hour with a nurse and then you see the psychiatrist. I wanted "tools in my toolbox" for dealing with my fears/anxiety, and I asked for no meds. I love my therapist! She is wonderfully warm and compassionate and she lets me guide the direction of my care. I think you should give it another try - it'll be worth it! Good luck to you!

Dx 11/7/2018, IDC, Left, 1cm, Stage IIIA, ER-/PR-, HER2+ Surgery 1/13/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 3/3/2019 AC + T (Taxol) Radiation Therapy 7/28/2019 Targeted Therapy Herceptin (trastuzumab)

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