Posted on:
Nov 29, 2021 04:50PM
D
QC, Canada
Joined:
May 2014
Posts:
464
Latest activity:
Jun 14, 2022
Posted on:
Nov 29, 2021 04:50PM
dancingdiva
wrote:
HI, has anyone received Proton therapy outside Canada since It's STILL not available here?
DD
Dx
5/2014, IDC, 6cm+, Grade 3, 5/7 nodes, ER+/PR+, HER2-
Surgery
5/31/2014 Lumpectomy; Lumpectomy (Left); Lymph node removal
Chemotherapy
7/15/2014 AC + T (Taxol)
Surgery
2/4/2015 Mastectomy; Mastectomy (Left); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander
Dx
5/2016, IDC/IBC, Right, ER+/PR-, HER2-
Targeted Therapy
Ibrance (palbociclib)
Hormonal Therapy
Femara (letrozole)
Log in to post a reply
M
minustwo
Joined:
Apr 2011
Posts:
16,353
Latest activity:
Jun 29, 2022
Log in to post a reply
Nov 29, 2021 05:45PM
minustwo
wrote:
dancingdiva - I will be interested to see the answer. I know several people who have had Proton Therapy, but not for breast cancer. Although more & more hospitals are building facilities.
2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
D
dancingdiva
Joined:
May 2014
Posts:
464
Latest activity:
Jun 14, 2022
Log in to post a reply
Nov 29, 2021 05:56PM
dancingdiva
wrote:
It's very frustrating. It's available across the world but not in Canada. I just don't know where to even start to see if/where I would be able to get this is the States. DD
Dx
5/2014, IDC, 6cm+, Grade 3, 5/7 nodes, ER+/PR+, HER2-
Surgery
5/31/2014 Lumpectomy; Lumpectomy (Left); Lymph node removal
Chemotherapy
7/15/2014 AC + T (Taxol)
Surgery
2/4/2015 Mastectomy; Mastectomy (Left); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander
Dx
5/2016, IDC/IBC, Right, ER+/PR-, HER2-
Targeted Therapy
Ibrance (palbociclib)
Hormonal Therapy
Femara (letrozole)
M
minustwo
Joined:
Apr 2011
Posts:
16,353
Latest activity:
Jun 29, 2022
Log in to post a reply
Nov 29, 2021 06:05PM
minustwo
wrote:
Try Loma Linda Medical Center in Southern California. They were one of the first to treat prostate cancer with Proton therapy so maybe they can give you some advice. But I do know that MD Anderson has a Proton system now, as well as several others. I just don't know if they are doing breasts yet.
2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
M
magiclight
Joined:
Jun 2015
Posts:
8,271
Latest activity:
Apr 25, 2022
Log in to post a reply
Nov 29, 2021 06:33PM
magiclight
wrote:
MDAnderson in Phoenix
Proton Therapy for Breast Cancer
Surgery
4/26/2015 Mastectomy; Mastectomy (Left); Mastectomy (Right)
Dx
IDC, 1cm, Stage IA, Grade 1, HER2-
Surgery
S
santabarbarian
Joined:
Aug 2018
Posts:
3,071
Latest activity:
Jun 11, 2022
Log in to post a reply
Nov 30, 2021 05:43AM
santabarbarian
wrote:
I had proton radiation for BC. I was treated at ProCure in New Jersey. THEY WERE AWESOME. Honestly the best medical experience I have ever had. Incredibly good people. Really personal, efficient, kind healing environment.
I got protons for a L sided TNBC because of heart damage fears. They worked with me financially.
I have a old thread about it "Proton Radiation: Share your experiences."
There are ~20 proton centers in US. If you google Proton Radiation a list of them will come up.
pCR after neoadjuvant chemo w/ integrative practices; Proton rads.
Dx
7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2-
Chemotherapy
8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
Surgery
12/27/2018 Lumpectomy; Lumpectomy (Left)
Radiation Therapy
2/10/2019 Whole breast: Breast, Lymph nodes
