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Topic: With Gratitude, for Julie

Forum: Commemorating Loved Ones —

Honor those who have passed.

Posted on: Jan 14, 2020 08:37AM

PaulL wrote:

Thank you to everyone on these forums for the wisdom and knowledge they imparted. My wife, Julie, was diagnosed stage IV at 55 and with treatments got 5 years of life. It was a roller coaster at times; but witnessing the real-life experiences here helped us to navigate the side effects and medical choices.

I did write up some of her story (and her cancer journey) at julieslife(dot)com and I will do more to support this community for the future.

I hope that others can witness her life and know that she made everything around her that much better and helped myself and others see the beauty in people, animals and everyday objects.

Also a reminder to always opt for Joy where-ever you can find it. I was able to bring our big dog into the hospital near the end.

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Jan 14, 2020 08:38AM PaulL wrote:

[Looks like I can't post links, but the photos are very touching]

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Jan 14, 2020 09:23AM Brilee76 wrote:

Thank you for sharing this beautiful tribute to a beautiful woman. I'm sorry for your loss.

~Bridget (BRCA2, 7/1/19-Lupron, 12/30/19-Zometa) Dx 5/16/2019, ILC, Left, 3cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 6/30/2019 Hormonal Therapy 6/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/5/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 9/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/15/2019 Femara (letrozole) Hormonal Therapy 12/29/2019 Surgery 1/19/2020 Prophylactic ovary removal
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Jan 14, 2020 09:29AM MelissaDallas wrote:

https://www.julieslife.com/home


LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Jan 14, 2020 09:39AM PaulL wrote:

Thank you @MelissaDallas Under the "More" item is her Cancer journey. It was a bit of a ride, Taxol -> Ibrance -> Xeloda -> Doxil -> Piqray with radiation treatments mixed in.

I was fortunate that I was able to focus on care during this time. My heart goes out to everyone going through similar journeys.

Wishing everyone here strength and love,

-- Paul

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Jan 14, 2020 10:41AM Beesie wrote:

Paul, the website is a beautiful tribute to a beautiful woman. Thank you for sharing it with us.

I am so sorry for your loss.

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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Jan 14, 2020 11:01AM Jaylea wrote:

Paul, what a beautiful tribute to an amazing woman. You were so descriptive I felt like I was walking the bay area with the two of you. May your bountiful memories be a comfort in the days and months to come.

Dx 10/2006, IDC, Left, Stage IIB, ER+, HER2- Dx 5/2017, IDC, Stage IV, metastasized to bone/lungs, ER+, HER2- Hormonal Therapy 6/20/2017 Femara (letrozole) Targeted Therapy 7/26/2017 Ibrance (palbociclib) Dx 2/2019, IDC, Right, Stage IV, metastasized to liver/other Chemotherapy 3/22/2019 Gemzar (gemcitabine), Taxol (paclitaxel) Chemotherapy 6/10/2019 Halaven (eribulin) Chemotherapy 1/13/2020 Ixempra (ixabepilone)
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Jan 14, 2020 12:45PM PaulL wrote:

Thank you Jaylea and Beesie.

I will be looking for ways to contribute back to this community and efforts to get more and better treatments for everyone, especially metastatic.

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Jan 14, 2020 12:55PM MinusTwo wrote:

Paul - the website is a wonderful tribute. May the years of memories comfort you.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jan 14, 2020 01:19PM - edited Jan 14, 2020 01:19PM by SandiBeach57

Paul..you just gave me inspiration to keep going. I feel imprisoned in my home and I need to open my door more often.

Thank you and I am so sad you are parted from this beautiful woman.

S

(2006 and 2007 DCIS) Oct 2016 Stage IV, widespread liver mets with pulmonary tumor emboli syndrome, IDC, ER+PR-HER2-, Oct 2016 AC, Jan 2017 Ibrance Letrozole, NEAD since Oct 2017.
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Jan 14, 2020 01:27PM PaulL wrote:

Thank you MinusTwo and SandiBeach57 as I go through my mourning. I hope that you can look upon the world and find joy in it.

And I will be forever in gratitude to the people here who shared their stories of treatment.

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Jan 14, 2020 02:55PM DebAL wrote:

Wow Paul. What a beautiful tribute. Thank you for sharing. I'm so sorry. Wishing you strength and love too.

"Opt for Joy" will do.


Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/11/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/12/2018 Mastectomy: Left, Right Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/13/2018 Arimidex (anastrozole) Surgery 8/8/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/19/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Jan 14, 2020 04:50PM dysonsphere wrote:

I am so sorry for your loss. What a beautiful tribute. She was lucky to have your support.

Age 50 at Dx, 11/20 abnormal Mammo, 12/2 Ultra sound, 12/3 Biopsy 1/9/2020 Node biopsy, malignant 1/13/2020 Genetic Test negative 2/6 Started 16 cycles of chemo Dx 12/10/2019, IDC, Right, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- Chemotherapy 2/6/2020 AC + T (Taxol)
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Jan 15, 2020 01:14PM PaulL wrote:

Thank you dysonsphere and DebAL. Sending strength and support to both of you.

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Jan 27, 2020 03:40PM edwards750 wrote:

What a wonderful heartfelt tribute to your wife. She was indeed an amazing lady. So sorry for your loss.

I lost my one and only sister to Stage IV BC last August. My sister was DX in 2012. Her cancer came back 3 times and the last time it took her life.

I know the pain of losing someone you love from this insidious disease. My sister was a fighter too but she suffered so. I miss her every day.

Cherish your memories as I will.

Diane

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Feb 14, 2020 09:15PM PaulL wrote:

Thank you edwards750 and so sorry to hear about the loss of your sister.

It can be such a roller coaster.

I still miss Julie every single day and remember how much I love her.

This week KEXP Radio did a whole day of telling cancer stories. It was so powerful. They told Julie's story and played two of her favorite songs. It brought forth tears and a smile.

https://www.kexp.org/musicheals/

And you can see the playlist and dedications here:

https://www.kexp.org/playlist/?month=February&day=...

Just keep clicking on 'Earlier' for the whole 12 hours. Very powerful.

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