Topic: Let's Post our Daily Exercise

Forum: Working on Your Fitness — Conversations about exercise, diet, and getting back in shape after breast cancer diagnosis and treatment.

Posted on: Sep 28, 2009 08:56AM

Posted on: Sep 28, 2009 08:56AM

Morgan513 wrote:

I'm doing the Firm Cardio Step mix and will walk the dog for a mile later today.


Dx 4/9/2008, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2-
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Mar 18, 2023 02:27PM rahrah2023 wrote:

Chemo treatment 3/17/2023. Walked 4 miles 3/18/2023, walking clears my head of negative thoughts. Blast music the whole time.

Surgery 3/21/2017 Lumpectomy (Right) Chemotherapy 8/28/2017 AC Chemotherapy 3/17/2023 Other Dx IDC, Right, 1cm, Stage IA, Grade 3, ER-/PR-, HER2- Dx translation missing: en.models.diagnosis.shorthand.type.i/translation missing: en.models.diagnosis.shorthand.type.d/translation missing: en.models.diagnosis.shorthand.type.c/IDC, Right, 1cm, Stage IA, Grade 3, ER-/PR-, HER2-
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Mar 18, 2023 02:52PM ruthbru wrote:

Welcome, rahrah! Good for you for your 4 mile walk! I walked like crazy during chemo, which helped me so much both physically and mentally.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Mar 19, 2023 08:44AM karen1956 wrote:

Thanks everyone. My sleep is awful!!! Two hour on and off. Last night got up 45 minutes after getting into bed and came out to the sofa - snack and fell asleep and went to bed, slept for 2 more hours then up every half hour. Managed to stay in bed till 5:45

Got my labs back from Friday - My PTH rose 50 or 60 points (parathyroid) way out of normal limits - this over less than 4 weeks. And my calcium is inching up higher. Sure hoping the endocrinologist calls me tomorrow. Our friend who is the endo came over Friday morning and was recommending some more digging based on the previous results. I'm going to mention the tests to my Endocrinologist when we talk next which I sure hope is this week and not at my appointment next month. Updated my primary care on Friday. Need to get back into the Nephrologist. How many specialists can one have!!!

Today is youngest's 25th birthday. She got the chocolate pretzels/candy tray we sent and seemed really happy. She has a final this afternoon and one more on Friday. We are going to tell DD#1 this afternoon - and DD#2 and her DH this afternoon. Then make sure when she talks to her sister that she doesn't bring it up as sometimes the girls talk Friday before DD#2 calls up. It will be such a relief when they all know. DS is coming over this afternoon and will stay for dinner.

It's going to be a long, long week. I just want to get to March 27th. Not scared of the PET/CT scan, but of what it might tell. Insurance pre-approved the scan. I'm a wreck. I have a medicare advantage plan, it is through the state retirement system and as a result it is a good plan.

Have a good Sunday.

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Mar 19, 2023 09:58AM ruthbru wrote:

Thinking of you today, Karen. Would you be open to prescription sleeping pills? I took them after my BC diagnosis. Like you, I was getting no sleep at all & I needed to get some restful sleep to be able to coup with everything. They REALLY helped me.

I will go to Yoga. It is supposed to be a 'balmy' 30 degrees this afternoon, so maybe I will go on the Dog Walk with DH & Bruno.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Mar 20, 2023 12:26AM karen1956 wrote:

Ruth - I took sleeping pills during breast cancer treatment and for several years after. I think I stopped for a time after I stopped the AIs. I have been taking them again since 2015. And I still sleep lousy. I was on Ambien for years and now I take Temazepam. Some nights I have trouble falling asleep, others not - then waking up at night varies as well. Very inconsistent. What is consistent is that even on good nights sleep, I'm awake after 5 1/2 or 6 hours sleep. My aresnal of Rx is going to grow significantly once I start treatment as well as required over the counter pre-meds.

This whole Multiple Myeloma is a lot to process. So many unknowns. The first part of treatment is called "induction therapy" - 16 weeks of chemo. I'll be getting the gold standard of care. Each chemo is in a different category. We need to learn more about phase 2 - when the bone marrow biopsy will be post chemo and when the stem cell transplant occurs. Like stage 4 BC, there is no cure for Myeloma - hope for a good response to treatment and a long time before relapse. The hematologist gave us a booklet from the LLS on Myeloma and it is so much to absorb. The count down is on. T minus 7 from tomorrow!! I just want to get the show on the road.

I have my PET/CT scan on Thursday and I need to fast after 9:30am - only plain water. I was going to take the day off, but decided I'd do better if I was busy so I'm going to go into work. Yes, I know I'm nuts! but I can always change my mind.

We told our DD#1 and SIL. Needless to say they were in shock. I'm sure they are still processing. Son came over for dinner tonight and we talked at dinner. After dinner I gave him the Myeloma book and after a couple minutes he said his head was spinning and put it down. It is just all so overwhelming. We will tell DD#2 Friday morning our time (afternoon her time) - she will be done with finals. I dread telling her the most as she always worries about my health. Cancer coming back is a big fear for her.

Today was DD#2 25th birthday. When we called to wish her a happy birthday she was in tears because her final is so hard. It hurts to see your kids hurt. She was having a few close friends over for ice cream. Her roommate heard her crying and asked if she wanted to cancel ice cream and DD#2 said NO she didn't want to cry all night. She talked later on in the day and she was doing better and smiling. She also sounded good when she talked to her brother. Actually we face timed. She has a great sense of humor. When she was flying home from Italy, she told me there was an "old B" sitting next to her - and I made a comment about being old. She was joking with me about it this afternoon and said she should have told me that I'm not old (implying I"m a B as a joke). We do joke about our ages - most of her friends parents are 12-15 years younger than my DH and I. When she was 16 and at sleep away camp - some of her friends were talking about their mother's turning 40 and DD#2 and another girl said, "we didn't know our mother's at 42"!! I had her the same age as my mother when she was empty nest. DD#2 made our family complete.

Sweet dreams.

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Mar 20, 2023 02:41PM ruthbru wrote:

I have a bunch of relaxation, meditation, hypnoses CDs, that I play ever night to help me fall asleep & go back to sleep when I wake up during the night (which I do at least several times). They are somewhat helpful to me. Too bad we aren't backyard neighbors, Karen. We could put on our deck lights in the middle of the night & if the other one was up at the same time, we could get together & commiserate!

I'm an older than average mother too. If I had had a baby at 19, I could be the mother of DS's fiance! I'm the same age as her grandparents!! I don't feel (and I hope I don't act) my age!

I went to Zumba this morning & may go to Pound tonight. I ordered a couple new interactive puzzles (he has to figure out how to open doors/windows etc.that have treats behind them) for Bruno since the weather is precluding him having as much time outside as he'd/we'd like. More snow is predicted for tomorrow into Wednesday. No spring in sight around here!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Mar 20, 2023 10:50PM wonderland wrote:

Karen: I know you're so ready to get going on treatments. Wanted to let you know that I used Ativan during mine. Love my Ativan! Really took the edge off and stopped me from going too deep into dark places in my mind. I slipped one pill under my tongue a little bit before I went to bed. I fell quickly to sleep. Just letting you know what got me through. Heart

Welcome rahrah! Glad you found us.

Ruth: I can't believe how much snow you've had. All I wanted was one! Spring is all over the place here. Our dogwoods are just starting, the redbuds are blooming, daffodils everywhere, etc. But with Spring and all her beauty is also pollen! And red itchy eyes!

Walked/ran today. Temperature nice and cool in the lower 50s.

"Put on your coat. It's easier to stay warm than it is to get warm." George the Llama Man Dx 11/2006, IDC, <1cm, Stage IIA, Grade 2, 2/36 nodes, ER+/PR-, HER2- Surgery 11/27/2006 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 1/2/2007 AC + T (Taxol) Radiation Therapy 6/5/2007 Breast, Lymph nodes Hormonal Therapy 9/22/2007 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/9/2009 Reconstruction (Left): DIEP flap Hormonal Therapy 9/20/2009 Arimidex (anastrozole)
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Mar 21, 2023 07:48AM karen1956 wrote:

Wonder - I took Ativan the first time around. Both for nausea and anxiety. I'm on Xanax for several years now. The new/young psychiatrists don't like Benzos!!! Mine was going to start weening me off but now with the MM diagnosis, she said, I'm not going to take your meds away!

Ruth - yes, too bad we aren't closer. Your son's fiance must be young!! I was talking to an ECE teacher yesterday and she is 41 - her mother is 4 years younger than me!! Till this, I wasn't feeling old and hoping treatment doesn't age me too much.

I miss my Gilda Radner hair. Need to get my haircut - I think it's been 6 months and its not looking nice anymore.

Insurance is driving me cray - My Revlimid need to be pre-approved and thankfully it was. It is being filled at a specialty pharmacy not my Optum mail order. The retail cost for one month of it is over 18K. Thankfully, my UHC Medicare Advantage is a good policy and my co-pay is only $75. Co-pay for each of the chemo drugs is $75 so $225/month for the three plus probably another $100 for all the other. The Velcade retail is about $7K and the Darasumumub)?) is only retail $700. Insurance denied the Promethazine saying it is not FDA approved for nausea from chemo and considered high risk for those over 65!!! I can buy it out of pocket, but want to see what oncologist office offers for an alternative in addition to the Zofran. Just the 16 weeks of chemo will be over $80K retail. I get text and emails from Optum Rx, so I ind myself checking with up on things. I shouldn't have to do that - but I don't want to let anything go to chance. I'm very worried about the cap on Rx - I don't know if my total out of pocket spending includes Rx - but there is no way I can afford 25K/month if insurance has a limit.

My work is amazing. yesterday I was meeting with one of admin early in the morning about a student and made a comment about feeling overwhelmed etc and she asked if I wanted to be at work or go home. When I told her I was looking into changing chemo to Tuesdays and why - she was like "don't worry about us". I'm at the school M-Th and the SP intern T-F and I said one reason looking to change is so I could be there Monday and the other reason was only working 2 days in a row - M, W,Th with chemo on Tuesday. I feel so fortunate as the principal I worked for 17 years ago was a Queen B. In the fall at the start of the new school year, she told me that they "got the short end of the stick" when I was out. I wanted to rip open my shirt and say who got the short end of the stick. From then on, she made my life miserable. I still need to tell my Float teammates about what is going on but I don't know how. Yesterday I had book study and we are all on the float team (about 1/2 the team) and I couldn't bring myself anything but I could feel myself feeling quite angry in my body.

T-6 and still so many questions. I still have lots of questions about the CST. I they harvest them from throughout the body - right now it is all so much to absorb. I want to know how soon the Bone Marrow Biopsy is after the induction chemo and how long after that is SCT. Generalities are fine but I want to be able to have some idea - to be able to plan a little. this unknown/uncertainty is driving me crazy. Feeling very vulnerable and pessimistic at times - just want to get the show on the road.

My husband has been volunteering with our local police department, helping with trainings for about 6 months. He called them yesterday to let them know he wasn't sure if/when he could help and before the end of the day, we got a beautiful gift box from his family at the department. Unfortunately, it's not kosher so my son will take it (he doesn't keep kosher). Soup, rolls and cookies and a beautiful ladle. My school wants to know what they can do to help, but unfortunately, I don't know at this point, but I will let them do something.

Going to be 60 today - but anymore I'm always cold. I keep the space heater on in my office and layer.

I've not proofread my post so hopefully everything makes sense.

Have a great Tuesday.

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Mar 21, 2023 10:29AM ruthbru wrote:

I'm glad you are working with good-hearted people, Karen. I had the same experience & that helped a lot. Could you send out a group email to your team? With my principal's okay, that's how I told the teachers at my school (except those who were also personal friends). I just couldn't explain things over & over; but if it wasn't addressed people would be speculating & not know if they should say anything to me or not. I also sent out occasional updates that way. Yes, when you think of things that would help, let them know. People really do want to help out so it's a win/win situation. What a nice gesture from the police department. DS can enjoy the food & you can enjoy the ladle. If I lived closer I would make you some soup so you could use it (although you would have to tell me what kind of soups are kosher!).

I went to Pound this morning. It's supposed to start snowing this afternoon (sigh) and we are in another (expletive deleted) winter storm watch throughout the night. If things are still open by evening, I will go to Zumba & maybe Yoga.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Mar 21, 2023 11:13AM ruthbru wrote:

Here's a 'First Day of Spring' picture from a town about 30 miles from where I live!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-

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