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Topic: 2019 Running Thread

Forum: Fitness and Getting Back in Shape — Conversations about exercise, diet, and getting back in shape after breast cancer diagnosis and treatment.

Posted on: Jan 6, 2019 06:13PM - edited Feb 12, 2019 10:40PM by panthrah

panthrah wrote:

"Welcome to the happiest thread on BCO!

We've had a lively conversation in the Run thread in the past, with busy times and lulls, about running through chemo, running bras, fitness watches, training regimens, physiotherapy, and so forth.

This thread is for anybody that's "running". "Running" is not a pace and it's not a distance. It's an intention and an action to challenge ourselves. Truth be told, there are times when walking is "running", and a few shuffling laps of the surgery ward a day after mastectomy is not much use for the body, but of immeasurable value to the mind. I recall a management trainer at a former workplace saying, "if a thing is worth doing, it's worth doing badly, if that's the only way you can do it." We've never judged pace or distance here. Some who will visit the thread are in Week 1 Couch-to-5K and some are veteran marathoners, and there's something to learn from everyone. We celebrate heart. We also commiserate with those tough outings, injuries, and recovering from surgeries and other treatments. Some people do lots of run events, and others don't ever do the events. That's okay, but we traditionally maintain a running event calendar at the top of the thread to cheer on those who are doing the events, and to encourage those who are "on the fence" about whether to do one."

I will do my best to update the race listings often :)

Jan 13 Resolution Half Panthrah

Jan 20 Carlsbad Half Panthrah

Feb 9 Mermaid Half Panthrah

Feb 24 Awesome 80s 10k Panthrah

March 10th San Diego Half Panthrah

June 1st Thelma and Louise Half Andraxo

Dx 7/14/2014, LCIS, Both breasts, 4cm, 0/0 nodes Surgery 9/2/2014 Lumpectomy: Left Surgery 5/1/2015 Lumpectomy: Right Surgery 8/14/2017 Lumpectomy: Right
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Jan 6, 2019 06:53PM - edited Jan 6, 2019 06:57PM by jo6359

Great. I've been a runner most of my adult life. Within 5 days post BMX I had already started walking 2 miles a day. Within three weeks I was running again. Running slowly but running. I ran throughout chemo, radiation and H and P for a year. I have one more h&p left that I'm finished. I tried to run daily or power walk. I run 5 and 10K race almost every weekend. I've never been a fast runner but I am a happy Runner. Next Saturday morning I have a practice climb of 49 flight of stairs. Stair climbing helps me with my running. I want to train for a half-marathon but I never seem to be able to reach that point. Maybe this forum can help me go on to the next level.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/15/2018 Perjeta (pertuzumab) Chemotherapy 2/15/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/16/2018 Herceptin (trastuzumab)
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Jan 7, 2019 12:16AM panthrah wrote:

way to rock it!!! this place will help for sure. I just signed up for a personal challenge called runtheedge.com its run or walk 2,019 miles this year. can have a team of 5 to divide out the miles. Im always back of the pack and not so good as this training thing people speak of :p and so far this year I have gone out every day run/walking. *pats self on back*

Dx 7/14/2014, LCIS, Both breasts, 4cm, 0/0 nodes Surgery 9/2/2014 Lumpectomy: Left Surgery 5/1/2015 Lumpectomy: Right Surgery 8/14/2017 Lumpectomy: Right
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Jan 7, 2019 09:13AM Andraxo wrote:

Yay running thread!

I ran throughout all my treatment (chemo, rads) and was even out hiking 8 miles at 10k starting elevation just 4 days after bilateral mastectomy with drains in....because I wasn't allowed to run until drains out. I'm 2.5 years past the end of rads and unfortunately my running is the worst it has been in my entire running life. I blame tamoxifen for a lot of it and all the injuries I've had in the past 2 years. I'm much more injury prone, don't recover well, and my joints and muscles don't tolerate the level of running I did even during chemo (5-6 miles every other day and a longer 10-12mile run on the weekend). That being said, I did run 10miles this past Saturday on packed snow - woohoo! It was ugly, but I did it because running is my favorite form of exercise!

I'm already planning for some races in the spring and summer, really wanting half marathons again, but I have to mentally prepare myself to accept that will not be able to complete them at the pace/level I did even my first few months after completing treatment. Right before diagnosis I was running the fastest of my life! No matter how hard I train now and push myself over the past year it just doesn't translate into better performance or really feeling great when I run. Also, my days of big races are done, and by big I mean high miles in the mountains at elevation such as the Imogene Pass Run. My mountain biking has gotten a ton better though! Yay! It's big fun, and a nice supplement to running along with weight lifting and plyometrics.

Gathering up some friends for the Thelma and Louise half marathon in Moab Utah the first weekend in June. It's such a fun race, all women, and can done as a two person relay if doing the half solo is too much!

- xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, Grade 2, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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Jan 7, 2019 10:31AM RunningCats wrote:

My sisters in more ways than one! I started running at 51 in 2015 and did my first marathon in 2016. In 2017, I ran Chicago Marathon. I had a lot of aches and pains during training, but I attributed it to high mileage, speed work and hill work. It was an awful race that I almost didn’t finish, but I had traveled from CA and spent a lot of money, and damn it, I was going to get that medal, 😂.

Three weeks later, my lower back began to ache and the following morning I couldn’t stand up. An MRI a week later revealed a disc herniation at l5-s1, with motor control lost to my calf. I couldn’t tip toe nor do a calf raise. Needless to say, my running was over for a bit.

I had a discectomy in January 18 and began physical therapy in February 18 and therapist was fantastic in working with me to get me running again. Memorial Day weekend i did my first walk run, set a goal to do a tri sprint and 1/2 marathon in February this year. My avatar is the finish of my first 10k back in September. Then, October 18, I was diagnosed with breast cancer. I had gotten up to 8 miles, which I ran right before my first chemo 11/18. I haven’t run since for fear of herniating my disc again. I’m so sad, it was my sanity. :(

I’m going to follow along and update when i start training again, hopefully the same time frame as last year - Memorial Day. I should be done with most or at the tail end of my treatment.

I’ll be living vicariously through you all and my run club friends for the next few months. Sorry for the long winded tale, but as you’re all runners, I thought you’d understand.

Good luck & happy training! Lisa
Dx 10/19/2018, DCIS/IDC, Right, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2+ (IHC) Targeted Therapy 11/26/2018 Perjeta (pertuzumab) Targeted Therapy 11/27/2018 Herceptin (trastuzumab) Chemotherapy 11/27/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 11, 2019 09:36AM Samnjb wrote:

hi

I have tissue expanders in and have always been active. For working out I do CrossFit and have for over 10 years. Since the expanders have been filled I get winded very fast. Will this get better once I get the silicone boobs in? Thank you all for any insigh

Dx 9/2018, LCIS/ILC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 11, 2019 09:38PM panthrah wrote:

since the year is just beginning.. look into runtheedge.com its a personal challenge to walk/run/crawl/step count 2,019 miles this year :p It has helped me !I have gone out everyday ( except the first cause we didnt know we would be doing this) I am currently contemplating another full.. crazy I know


Andraxo- Ill update the race cal with your race. and keep at it! youll get there :)

RunningCats- I am the crazy cat lady .. annnnd I live in Ca as well :p. and yes we fully understand

Samnjb- Check the previous years running threads for tips on running with TEs in. ( 2015-2018)


Let the miles be ever in your favor

Dx 7/14/2014, LCIS, Both breasts, 4cm, 0/0 nodes Surgery 9/2/2014 Lumpectomy: Left Surgery 5/1/2015 Lumpectomy: Right Surgery 8/14/2017 Lumpectomy: Right
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Jan 14, 2019 05:37PM ErinMFerrell wrote:

Hi all! I am newly diagnosed with BRCA2, just had double Mastectomy, and starting Chemo Jan 25 for 5 months then radiation. I went from triathlon training to no impact walks on treadmill.

Erin

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Jan 15, 2019 07:21PM Andraxo wrote:

Samnjb - usually the implants are much more comfortable than the TEs, but feeling winded isn't the same as discomfort. not sure why you're feeling that but I hope it improves soon!

Erin - did you find out what restrictions you have for activity? Often you can run and bike as soon as drains out, swim when your motion allows and no open wounds. Swimming will be out during radiation though - likely because of the markers (unless they tattoo them - I had that) but also the skin over time may weep like a wound. During chemo you can't swim if you have a port, but even without a port, you may not want to be in pool water. Likely you can run and bike during both chemo and radiation. I also had B mastectomy and chose not to mountain bike during chemo or radiation because at the time my skills weren't great and I tended to fall/crash on every ride. Road rides were fine. I hope you get back to the sports you love very quickly and can exercise as much as you want during chemo and rads - it makes a tremendous difference in how you feel.

Running cats - take your time and try to ease back into running...even if just for your sanity during chemo! nothing crazy, just a little at a time (start with walking, no hills, no rough terrain if on trails) and listen to your body. Hope you recover faster than you think! And...Keep doing whatever exercises your PT had you do to recover from the disc injury. Back care is lifelong. I'm a PT and I also have my own back exercises I must do a few x/week for my lumbar spine and imagine I will have to do them forever :)

- xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, Grade 2, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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Jan 24, 2019 02:28PM kec1972 wrote:

Hi Girls! Like many of you I'm sure, I am a very fit and active person who was completely blindsided by this diagnosis. Looks like Tamoxifen will be unavoidable for me, unfortunately. Do any of you take tamoxifen, and if so, does it impact your activity? I'm dreading starting it and feeling like an old lady!

Dx 12/17/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 1/7/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/19/2019 Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 28, 2019 09:47AM Andraxo wrote:

Hi kec1972!

As an athlete who was also blindsided by this diagnosis, I think Tamoxifen sucks (for lack of a better word right now). I was on it 2.5 years (mastectomy, chemo, radiation, then started Tam) and now I'm in the middle of an oncologist approved "holiday" from it which is supposed to be 4 weeks, but it will be 5.5 off it when I see her. The holiday was to tease out all my complaints - are they from are from Tamoxifen, being perimenopausal, or just getting old, or combination (most likely)? My head/brain/mood was way off, my muscles felt 'dead all the time and workouts never felt right. I couldn't push my muscles at all and the last year in particular I felt like a shell of my former athletic self, and that I had somehow aged 10-15 years in a short time. note: I ran ALL through chemo - up to 10mile runs - , weight lifted etc, super active. The first year on Tamoxifen was ok, or maybe I was blaming what I was feeling on other things, but the longer I was on Tamoxifen the worse I felt, and I finally said enough, I need a break. It takes 2 weeks to get out of the system because of long half life. I'm at 5 weeks off it now. These last 3 weeks have been the BEST my head/brain and muscles have felt since being on it. I feel awesome off it! I didn't realize how much I didn't feel like myself anymore until I started feeling like myself again being off it (hope that makes sense). I am so much happier!!! Still have joint pain, but not as bad and that is likely multifactorial or will simply take longer to improve. I will not be going back on it, at least not at 20mg. Willing to try lower dose despite the lack of published research for lower doses. Seeing oncologist this Friday to discuss it.

- xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, Grade 2, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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Jan 28, 2019 07:33PM Andraxo wrote:

Officially signed up for the Thelma and Louise half marathon June 1st in Moab UT. Yay! Have some friends running it too. Yay! Now I have to try to stay injury free until then. Ultimate Frisbee starts back in as soon as daylight savings begins. I played during chemo but couldn't play since radiation because of persistent and repetitive foot injuries once I started Tamoxifen (which was June 2016) - injuries which I am still nursing even now. Hoping to play weekly April and May because in the past it helped me be a faster runner due to all the sprinting.

- xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, Grade 2, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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Jan 29, 2019 09:28PM lorreymom wrote:

Any other streak runners here? I run every day, at least 2 km, and have done so for over 410 consecutive days now. I started running after my treatments in 2014, essentially from couch to 5 km. I have now ran 11 half marathons and training for my first marathon in 2019. I too had issues with tamoxifen and running, got frustrated and told my oncologist to find me something else. I’m now on exemestane (in menopause...long story...ask me if you really want to know). I am happy now. Running every day has brought back my health and happiness.

Proud blogger about running back to health after cancer on pinkribbonrunner.com Surgery 10/23/2013 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Dx 11/5/2013, IDC, 5cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 11/21/2013 CEF Chemotherapy 2/13/2014 Taxol (paclitaxel)
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Feb 12, 2019 11:10PM panthrah wrote:

I walked my first two halfs both in 3:30 . I had no intentions of running them .. Just wanted to get out there and move. had a friend join me for the 2nd one " oh youre just going to walk it? pft.. I can totally do that" well.. mile 6 she started shutting down on me :p I got her through her first half though * pats self on back * however .. not sure I will be able to convince her to do another one. LOL

and then I last min signed up for the mermaid half. It was 49 degrees at the start ( that is damn right cold for us SoCal folks) . the race had no time limit, its a small race.. and i decided I was going to try a different form and a different interval. well.. it worked! I PR'ed by 6 mins!! That race was on sat.. holy ceiling cat Im still sore today! But Im wearing it with pride.

but with these 3 races.. at the end of each race and for the next few days.. my boob ached :( Im pretty sure the seroma is back and thats whats causing the ache. Mind you Im only an A cup so not much movement happening during my runs. especially the ones I walked. I already have an appt for the 26th. last year was a surgery free year .. Im hoping this year is the same.

and as far as a running streak? well I have a goal of 3-5 miles per day. since life happens and housework happens I know this is not 100% doable for me .. but with races and disney days thrown in.. I hope to make between 1,010-2,019 miles this year. so far i have 139 miles.. slightly behind but I was sick and chose not to push it . even though Im still sore.. I got on the treadmill and got 3.5 miles today :)

Dx 7/14/2014, LCIS, Both breasts, 4cm, 0/0 nodes Surgery 9/2/2014 Lumpectomy: Left Surgery 5/1/2015 Lumpectomy: Right Surgery 8/14/2017 Lumpectomy: Right
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Feb 19, 2019 04:26PM - edited Feb 19, 2019 04:28PM by ComeOn2019

Hi everyone! I am excited to find this thread. Before my diagnosis in May, I had run my first 5k and was lengthening my runs to some 6, 7 milers in hopes of doing longer races.

Fast forward to now, just over 4 months past chemo.. I ran five miles in 50min today, my longest run and most consistent mile times since before diagnosis!! I was ecstatic. Glad to find other runners, as other folks just think it's bragging sometimes when we're excited over such a milestone.

I do have exchange surgery coming up on 3/1, so I’m bummed to have yet another round of restrictions, but after a few weeks I should be back to it.

Dx 6/2018, IDC, Right, Stage IA, Grade 3, ER+/PR+, HER2+ (IHC) Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Feb 19, 2019 04:32PM - edited Feb 19, 2019 04:32PM by ComeOn2019

Oh! And I use the Nike run app.. anyone else

Dx 6/2018, IDC, Right, Stage IA, Grade 3, ER+/PR+, HER2+ (IHC) Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Feb 19, 2019 06:21PM Runrcrb wrote:

erin, i swam during chemo. I waited until my mastectomy incisions were healed but did have a portacath. I didn’t like how hard it felt to run so I walked during chemo. I started running again during radiation but had to stop swimming. I ran a half marathon 6 months after the end of radiation. The restart after each reconstruction surgery has been a pain bu whatever. I’m slower at everything but again, whatever. I remind myself that I am moving again.


Dx 6/27/2016, IDC, Right, 1cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Dx 6/27/2016, ILC/IDC, Right, 2cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Surgery 9/21/2016 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/8/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2017 Aromasin (exemestane) Surgery 12/12/2017 Reconstruction (right): DIEP flap
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Mar 6, 2019 05:33PM accentmj wrote:

Hi! Glad to find this forum. I am a casual triathlete sticking pretty much to sprints. I have my second half marathon this September. I am not an avid runner but do it because it does make me feel good when I’m done! Was diagnosed in January 2019 and had a BMX on February 20th. Looking for info on how to get back into a routine. I chose not to reconstruct so I can recover more quickly. I have been walking and doing my exercises. Am meeting with a PT next week and hoping she can guide me also. I welcome any advice.

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Mar 6, 2019 07:51PM Moderators wrote:

Welcome, accentmj! We're so glad you've joined our community, and hope you find this to be a source of support and encouragement as you get back your routine. It sounds like you're on the right track, and we hope meeting with the physical therapist helps!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Apr 22, 2019 07:18PM panthrah wrote:

Hey everyone.. I hope everyone is doing well and gettin in those miles ( walking/jogging/running/pacing) .

Dx 7/14/2014, LCIS, Both breasts, 4cm, 0/0 nodes Surgery 9/2/2014 Lumpectomy: Left Surgery 5/1/2015 Lumpectomy: Right Surgery 8/14/2017 Lumpectomy: Right
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Apr 23, 2019 12:25PM Andraxo wrote:

Hi everyone!

So my half marathon is just 6 weeks away. I had stopped Tamoxifen for 3 months (Jan-March) and felt so great at 3 weeks off it, that I bumped up my running intensity and immediately injured my foot. I'm still a bit injured, and now back on Tamoxifen and my muscles are hating it, but I'm running again. Managed a 9-miler this past weekend. Slower than I'd like, but I did it. Still thinking I can run the race though no where near my pre cancer tx pace, or even immediately post cancer tx pace (which was before Tamoxifen side effects). I have so many friends doing it that I'd still go even just to support them if I can't run. It's in Moab UT - so pretty to run there and smart to have a 6am start time to beat the heat! Hope you all are enjoying spring and getting outside to run!

- xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, Grade 2, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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Apr 24, 2019 10:21PM panthrah wrote:

crowd support is one of my highlights of every race. i LOVE the signs!!!! so yes I support being involved one way or another :)

Dx 7/14/2014, LCIS, Both breasts, 4cm, 0/0 nodes Surgery 9/2/2014 Lumpectomy: Left Surgery 5/1/2015 Lumpectomy: Right Surgery 8/14/2017 Lumpectomy: Right
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Apr 27, 2019 06:25PM DogMomRunner wrote:

Hi - I was just diagnosed with IDC (haven't gotten the final biopsy report so don't know much more than that) on April 24th. I have been training for a half marathon since December. The race is May 5th and I am so glad that I get to run this race. I hope to keep running through whatever treatment I get.

It's nice to see other runners here

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/16/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Apr 29, 2019 12:46PM Andraxo wrote:

Welcome DogMomRunner! I'm also a dog mom (3 dogs!) and a runner :) So sorry you have to be in our group, but hoping you don't need a lot of treatment for your IDC. You're already in great condition, so just try to stick with your routine as best you can if you end up needing more treatment than you had hoped. I found it to make a huge difference when managing side effects. Sometimes the run/post run was the best I felt all day in the few days after chemo. I had B mastectomy, chemo, and radiation and ran through it ALL. During chemo I still ran up to a 10 miler on weekends, and few shorter runs (5-6 miles each) during the week. I just tried my best to continue with what I was already doing (running, weight lifting, hiking, snowboarding etc). I only gave up mountain biking for a little while because it was too risky for injury. Depending on any surgery, you'll just have to follow whatever restrictions your surgeon wants - typically it is 2 weeks no running and no lifting weights or arm above 90 degrees shoulder flexion (if mastectomy and have drains), but there's always walking/hiking during those run restricted periods. Hope your half marathon goes well!

- xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, Grade 2, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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Apr 30, 2019 05:00AM DogMomRunner wrote:

Thank you Andra (or Andraxo)!

My husband said that he saw the phrase "high grade" on the preliminary report and the radiologist said that my tests seemed to be low estrogen/progesterone. From what I read here that may point to a more aggressive tumor. If so, I have already decided bilateral mastectomy would be what I prefer. I'm 56 and quite frankly will not miss having to buy running bras. Plus - I would be more aerodynamic. :)

I will definitely be on here seeking advice as I go along. My husband has a planned full marathon (big mountain route) in July and I want to be able to run the last few miles with him. I'm not crazy enough to run the whole thing. ;)

De

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/16/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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May 1, 2019 01:54PM Andraxo wrote:

Are there any writers (even people used to keeping a journal/writing for themselves) on here? Wildfire is a publication for young-ish women with Breast Cancer, but really no age limit to participate. here is the website:

https://www.wildfirecommunity.org/about

The contributors are people s/p breast cancer just like everyone else, who tell their stories. I've been conversing with the publisher/editor/creator about the struggles/problems many of us have with our athletic endeavors in post-cancer treatment world for one reason or another (Tamoxifen side effects, post-op issues, fatigue etc). It is something I don't see discussed anywhere except for here on these threads. I am not a good writer though by any means. I have never even kept a journal and hated it every time I tried (because people tried to get me to many times in my life). Writing is stressful to me and not a good outlet. Anyway....please check it out and contact the editor if you want to contribute something about athletic challenges in post-cancer world.

- xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, Grade 2, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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May 7, 2019 07:30PM FindingOptimism wrote:

Pretty pleased that I completed the 10 mile Broad Street Run 7 months after surgery. More surprising was that my time was a little faster than last year so tamoxifen hasn't beat me yet.

Dx 8/2018, IDC, Right, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 12/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy; Lymph node removal: Sentinel Radiation Therapy Whole-breast: Breast
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May 21, 2019 04:12PM EndBC wrote:

Hey there! I hope this forum is helpful to you. I am sorry that you are here. I just went through what I hope is my final surgery for reconstruction yesterday on my left breast, I had a left breast mastectomy on 11/1/18 ,and the right one lifted so they are hopefully symmetrical when all is healed. I ran 5 days after surgery, with a tissue expander and drains and continued to do so throughout more treatment. I also ended up doing 4 rounds of chemo(unexpected). I ran 7 miles a day, with the exception of chemo day. I felt like it was all I had to keep my sanity during this longest winter ever!! It's a part of my life so much so that not being able to run is like taking a limb from me.

Here I sit wondering how I can start running again with this implant and breast lift going on. I will start walking which I am not fond of and hopefully find that I can at least run slowly :)

I wish you the best and know you will see your way through it all. Us runners are strong willed and can push through anything. At least that's what I believe.

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May 21, 2019 07:08PM RunningCats wrote:

hello my friends, hope everyone is doing well.

I’m scheduled for mastectomy with expander tomorrow. PS says no running for 4 weeks, we’ll see about that 😂. I made some progress after I finished chemo and was able to get to 3 times a week and up to 2.5 miles. But....I’ve encountered a problem, constant diarrhea. It hits me about 1.5 miles in. Ive tried Imodium and it doesn’t seem to help much. I’m on maintenance Herceptin until November.

Anyone else experienced this? Found a solution or an adult diaper that works? I keep a bathroom within 1/2 mile range but that’s a little tight. Am I going to have to become a cyclist!?


Dx 10/19/2018, DCIS/IDC, Right, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2+ (IHC) Targeted Therapy 11/26/2018 Perjeta (pertuzumab) Targeted Therapy 11/27/2018 Herceptin (trastuzumab) Chemotherapy 11/27/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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May 21, 2019 07:42PM DogMomRunner wrote:

I missed that there were replies to this. My half went good considering it was raining like crazy the whole time. I had decided to give myself a week off and then back to the running but then I got a port and I held off a week to heal. Last minute lumpectomy and lymph node removal this past Friday so again no running. I'm starting to get a bit twitchy here! Congrats on the race FindingOptimism! I wish I had someadvice for you RunningCats.

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/16/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Jun 4, 2019 09:00AM Andraxo wrote:

Thelma and Louise half marathon done! Beautiful day, beautiful course along the Colorado river and orange rock walls of the southwest. Whew that was hard! My muscles were already sore in the last 4 miles, with the final mile being really painful and ugly. I'm still so freaking sore now at 4 days later, despite not getting sore after a 12mile run 2 weeks prior (though that was much slower and with dogs). I pushed as fast as I could the entire time. 1:58 - I'll take it. That's about 13 min slower than my pre cancer time, approx 1 min/mile slower. This is probably they best I can do with this Tamoxifen body and all my ortho conditions/injuries. I'd like to run another half at the end of the summer, but not sure I can find one nearly by that works with my schedule. Actual races make me push myself in ways I just cannot do when I'm out on a regular run or a run with my dogs. One of my dogs is almost 14 and she can't really run anymore, or go long distances, so she walks fast at her own pace off leash for 2-3 miles and I double back repeatedly to keep encouraging her. That's kind of what my spouse does to me when we run together - hahaha! Hoping I can really start doing more aggressive trail running. I mostly run on dirt, but flat. I miss rocky courses. They seem to injure me now.

Hope you all are getting out for some miles! - xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, Grade 2, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016

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