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Topic: Runners on Prolia for osteoporosis

Forum: Working on Your Fitness —

Conversations about exercise, diet, and getting back in shape after breast cancer diagnosis and treatment.

Posted on: Jul 22, 2019 08:10AM

edj3 wrote:

Would you share your experience with me? Met with my endocrinologist last week and after reviewing my DEXA scan, and doctor's charts from the fractured pelvis last year, he says I have osteoporosis in the left hip and because the pelvic fracture was on the right side, that's considered osteoporosis too.

I'm up for giving Prolia a try, however I have a race in 6 weeks. So if the side effects are likely to slow me down, I'll wait until after that race.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 4, 2020 10:42PM striveforhealth wrote:

Hi edj3. I am not a runner, but I'm wondering if you ever went on Prolia for your osteoporosis. My endo has filed a request for my insurance to approve Prolia two times....both denied. I've had osteopenia and osteoporosis for over 10 years and multiple fractures and now this BC.

Keeping a positive attitude with life's challenges. Dx 12/25/2019, DCIS, Left, 1cm, Stage 0, Grade 2, ER+ Surgery 2/25/2020 Lumpectomy: Left; Reconstruction (left); Reconstruction (right) Radiation Therapy 4/4/2020 Whole-breast: Breast
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Feb 5, 2020 05:24AM edj3 wrote:

Yes, I did. I waited for the first round until after the race I mentioned in my original post. Now in a weird ironic twist, my insurance has removed Prolia from the formulary of approved drugs. There's an appeal process so I've asked my endo if he does that and if not, what my options are.

That stinks that your request was denied :(

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 16, 2020 03:27PM edj3 wrote:

And I had my second injection Friday, and an allergic flare by Sunday. My endocrinologist said that's it for me with Prolia and we'll look at other options when I see him in July. Guessing this means I move to the daily Forteo injections.

Boo.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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