Nov 28, 2012 12:53AM bcbarbie10 wrote:
Trail, the balls of my feet are burning, too, not red though, just the sensation. And i didnt have Xeloda.
Jeanieb, you are so right, lets all hope for a better, healthier, happier 2013. PLEASE!!!
Posted on: Jun 16, 2012 04:05PM
Posts 541 - 570 (1,267 total)
Nov 28, 2012 12:53AM bcbarbie10 wrote:
Trail, the balls of my feet are burning, too, not red though, just the sensation. And i didnt have Xeloda.
Jeanieb, you are so right, lets all hope for a better, healthier, happier 2013. PLEASE!!!
Nov 28, 2012 03:14PM PaEaglesFan wrote:
Amen to that ladies! I will be more than happy to close the book on 2012. But I will always remember and be thankful for the support that got me thru the year...family, friends, Dr's, nurses and the friends I have found thru these boards.
It was such a comfort to me when I was having my bad chemo days that I could log into these boards and share my experiences with someone else who totally understood what I felt like. There were times I would log in at some crazy hour of the morning just to read what others had posted and knowing I wasn't alone was so uplifting. Family and friends were wonderful but they had NO IDEA what coping with the Big D or the Big C, the loss of tastebuds, and the just plain miserableness of chemo.
Nov 28, 2012 03:34PM Trisha-Anne wrote:
Hello beautiful ladies
Jeannie - so glad you could have a good Thanksgiving, and I'm keeping everything crossed that after your last treatment the scans will show that the pain and suffering have been worth it.
My hair started growing back while I was on Taxotere. Not a lot, but I definitely had stubble. Funny thing was that every other hair on my body fell out lol. I also got a peach fuzz on my face that was quite thick. Very weird.
Hang in there ladies, it will finish.
Sending you all ((((hugs))))
Nov 28, 2012 07:56PM jeanieb2 wrote:
PAeaglesfan - I completely agree with you on the being thankful for wonderful family, friends, Doctors, nurses, and this board particularly. If not for this board I would have thought I was being a wimp, wondering if I was going crazy and if I would make it through the 10-12 days after treatment. You helped a lot with that along with lots of other ladies that responded to my questions. NO ONE can understand unless they have been there, and it is hard to explain to people just what is going on. I hope you continue to check in and keep us informed on how things are going.
Trisha-Anne - I know that the treatments are all going to be worth it in the end and I will look back and realize the last 4 or 6 months went fast, I remember that from the first time. It is just that the days you are feeling the worst seem like they are 72 hours long and the days you are feeling good seem like they are about 8 hours long. I just keep telling myself that "this to shall pass" and it does. I am so thankful for having this type of cancer instead of some of the others that are so much worse. Sending you a really long distance hug.
Hugs and well wishes to everyone, I know they can help us all very much!!!
Nov 29, 2012 11:22AM blondiex46 wrote:
got treatment yesterday still on 2 weeks on and a week off....port was not cooperating so I was there from 11 -430. Was really tired, my HMG was down and the nurse asked me if I was tired....went to sleep and thanks to the steroids I slept til 2am and have been up since then....since 4 on the laptop....wth.....
Nov 30, 2012 10:22AM Maddie57 wrote:
Hi Traii- the Tax does have that SE. I had pitting edema, but was lucky enough to escape the peeling skin. I think it was earlier on in this thread that I read about the solution to this problem, but I am not sure if it is too late for you to start it now. It is worth a try to stop it getting any worse. Maybe if you put your symptoms on the "search" option you will find it. Anyway the solution is "icing". You have to ice the fingers and toes - a similar solution to the ice cap for hair loss. The lady who posted said she uses bags of iced peas. You have to put them on the fingers and toes for a while before the infusion and after the tax infusion. I seem to remember it was half an hour before and after, but please ask your nursing staff about the time. They will know. Unfortunately it obviously makes your time in the chair a little longer, but this is such a horrible SE it is worth it. Take warm socks and gloves to wear after you have finished icing, if you have another infusion of a different chemo. It is uncomfortable when you start, but after a while your toes and fingers apparently go numb, and it is standable.
The painful balls of the feet seem to be a common SE. I experienced it, and so did other ladies on our chemo thread. One foot is often much worse that the other. The pain did not last the whole 3 weeks before the next chemo, but tended to wear off gradually by the 5th day post chemo. I am 7 weeks post final chemo, and my foot is no longer painful, but it does still feel very tight and crampish at times, although this is getting better gradually. Hang in there! Thinking of you
jeanie b - my hair did not grow during Tax, but several other ladies reported that their hair started growing a bit by the 3rd or 4th chemo. I say any hair is good hair! Leave it for a bit, and see how it develops.
Dec 3, 2012 06:26PM halfcan wrote:
Hi, it seems so many women are getting Taxotere that I am surprised at how quiet this thread is. I finished FEC for three treatments and start three of Taxotere on Wednesday. I will be icing for 15 minutes prior, during and 15 minutes after for my fingers. Same with sucking on ice. But, no toes in our chemo room. Just as well..don't think I could do that one. I start Dexamethasone 8 mg twice a day tomorrow for three days. That is double the dose of what I was taking before when I would get the red face and some puffyness. Should be interesting .... but if there is no nausea I will be thrilled. Also cut my fingernails pretty short and am going to hit them with 3 coats of clear hardener tonight. Any other recommendations ladies??? I am dreading it all again coming up but also am happy to be half way done with chemo! I hope all of you are doing well through this lovely stuff. Hugs.
Dec 3, 2012 06:35PM Trisha-Anne wrote:
Be aware that the dose of Dex that you'll be taking will probably make you hyper and unable to sleep. You may also experience a "crash" when you stop taking it. If that happens ask your onc if you can be weaned off it next time. In other words not suddenly stop taking it, but take a lower dose for a day or two after, it does help avoid the "crash" which can be awful.
Good luck, and Yay for finishing FEC :-)
Dec 3, 2012 06:46PM halfcan wrote:
Thanks Trish. I was wondering about that having read previous posts about ladies not sleeping. On the 4 mg dose I was taking, sleeping was never an issue but I can see how it could be with the doubled dose. It is for the day before, day of and one day after. One day at a time ...... Hugs
Dec 3, 2012 10:46PM Traii wrote:
I had severe sore feet this cycle...I'm # 2 day 13 and its easing but still sore. I didn't ice my feet only hands and sucked on lollies through the treatment.....nail beds a little sore ( but nothing compared to the #1 chemo where I did nothing because I didn't think the SE's would happen so quickly !
Other than the sore feet I am feeling fine.
Congrats Halfcan on half way there :) I am half way there on the 12th Dec last Taxotere then start my CMF hoping that the SE's are not as bad as Taxotere.
Dec 4, 2012 10:19AM websister wrote:
Hi - I didn't have too much trouble with the increased dose of dexamethasone but the pharmacist told me to take first dose of day by 6 a.m., then second dose no later than 2 p.m. That seemed to work for me. My fingernails were sore after second treatment for several days and I have had some numbness/ tingling with them but very mild. First dose of Taxotere/Herceptin had diarrhea and cramping starting about 4 days after and lasting several days, similar this time but not lasting as long. With each dose one episode of vomiting each time about same time as diarrhea started - hit me during the night.
Today is my last Taxotere :) Wishing all of you the best and minimal side effects
Dec 4, 2012 12:08PM PaEaglesFan wrote:
Congratulations on finishing your taxoterrible Websister!! I wish I had that piece of advice from your pharmacist when I was in treatment.
I am 3 months pfc today and can't believe it! I celebrated by combing my hair this morning lol (I have about 3/4-an inch of hair now). Good idea for the nail polish halfcan, and keep it up after chemo is finished. I stopped using it when I finished and now I've reached the growth that occured during chemo and 2 of them have split back past the quick.
Dec 4, 2012 12:54PM halfcan wrote:
Websister - Yea!!! Today is your last day of chemo!!! I am very happy and excited for you...I want to be in your pocket today when you do the happy dance after! :-) My fingers are crossed that this last dose causes a minimal storm for you. Sending you a virtual happy hug!
Traii - Congrats on finishing the Tax portion of your chemo. I had FEC which has two of the chemos you will be getting next. Nausea and constipation were my biggest side effects for the first 5 days and then it all eased off. Just a strange kind of no energy after that till about the halfway point and then felt almost normal for the last half. I took Emend and Ondansetron for the nausea and of course the steroid. I found that nibbling on food helped with the nausea a lot. Have you been getting Nuelasta or Nuepogen shots?
PAeaglesFan - thanks for the advice for my nails. I will do that. :-) Congrats on having hair to comb!!!
Dec 4, 2012 08:10PM bcbarbie10 wrote:
Traii and websister,
Happy for both of you on finishing taxotere! Whew!!!!
Im 10 weeks PFC and still get tingling on my hands and feet which wake me up at night. Makes me feel like im holding my celphone in vibration mode.
PAeagles, combing my hair now, too! (Tho i really dont need to, i just want to..)
Hang in there, ladies, minimal se's to all.
Dec 5, 2012 07:45AM Traii wrote:
Thanks for your info on FEC...I can't have the E part of FEC due to having a 'heart' drug Adriamycin when i was undergoing treatment for Hodgkins Disease thus why they are giving me some M drug !! (all these drugs and their long names) ! lol
Yes I did have the Nuelasta shot one day after chemo. My last Taxotere is on next Wednesday so happy that part will be over and CMF on the way (which I've heard the SE's aren't tooo bad or not as half as bad as Taxotere......(fingers crossed) !
Congrats PAeaglesFan on running your fingers through your hair.....now thats definetly worth a celebration
Dec 5, 2012 10:21AM halfcan wrote:
Saw MO yesterday and got the green light to start the taxotere today. So BGC @ 11:00. I'm thinking I should dress warm or I'll be freezing in there with ice in my mouth and on my fingers. Brrr. Thinking the 1 1/2 hours are really going to drag! Not super happy with my MO yesterday. Talked to him about L Glutamine, 24 hour Claritin and/or a prescription for the nasty 3 days of bone pain from the Nuepogen I had last time. He informed me that I could also now experience some additional bone, muscle and joint pain from the Taxotere! Then he told me NO to any of the above!! Only got him to say yes to try Aleve because Tylenol wasn't working so great. He says that should be enough....great.... Anyway I am off in a few hours to begin the second half of my chemo journey. Oh and on almost no sleep! Double dosing of the DEX saw to that!
websister - Hope you're feeling ok this morning. Did you ice your fingernails during Tax?
Hugs to all :-)
Dec 5, 2012 10:48AM PaEaglesFan wrote:
halfcan, I didn't have any muscle aches or joint pain from the Taxotere. I had MILD aches from the 1st shot of neulasta and it was easy to manage with Tylenol. Most of my SE's were very minimal and I KNOW I was lucky there :) After round 1, I had my game plan down pat. Tuesday was my chemo day so I would prepare for it by taking Colace w/a mild stimulant that Sunday and keep taking it until Saturday to keep from getting constipated. (SE of the anti-nausea meds) Friday was my crummy day. I could usually work in the morning but by afternoon I was very dizzy and my vision was really blurry so I'd go home at lunch time and pretty much sleep off and on until Saturday morning. On Monday I would need to take 2 anti-gas pills and 2 immodium to stop from having to run to the bathroom every time I ate or drank something.
Hope any or all of this helps you and I wish you minimal SE's for this part of your treatment.
One other weird thing I noticed was that I would get the hiccups a lot for a few days after treatment. Not sure if that was related to chemo or not.
Dec 5, 2012 10:55AM halfcan wrote:
Thanks PAeaglesfan. I'm not on any nausea meds really so not sure whether to expect constipation again or the trots. BTW: Hiccups are a side effect of the Dexamethason steroid.
Dec 5, 2012 01:17PM websister wrote:
Halfcan - in your pockets today, hope all goes well. I didn't ice my fingers as it hadn't been done for the previous two. Probably would if I had to do it over again. Found I had joint pain sooner this time, during the evening, even with having taken Claritin pre-chemo. Also noticed soles of my feet sore on walking - burning kind of pain. Not too bad re: side effects though. Very regular this a.m., hoping it settles down but no nausea and otherwise feeling good, just relaxing and taking it easy.
Take care everyone
Dec 5, 2012 06:37PM jeanieb2 wrote:
bcbarbie and PAeaglesFan - I am smiling at you two combing your hair, or what there is now , and agree with Traii, so I am celebrating for you. Glad to hear you are completely done and starting to grow that hair.
I have been reading some others side effects from Tax and I am wondering what is wrong with me. I have treatment on Thursdays, by Saturday around noon I am getting off balance, blurry eyes, tired, no energy and by Sunday afternoon, food and drink are almost intolerable. Mondays I get up and can barely focus, still off balance, hold on while I walk anywhere, have to lay down and rest for several hours, diarrhea, can hardly stand to eat anything. Tuesdays seem a little better for a while then it starts over again, run a low grade temp of 99.2 off and on beginning on Mondays through Thursdays when I go for fluids to rehydrate and usually end up with a Neulasta shot, as white count is usually .5 or .6, then I have to stay away from people for 3 or 4 days while my white count comes back up. This happens every time, even if I am taking the Xeloda along with it or it is my off week from X. I know it sounds like I am whining but I really am not, I just admire those of you that can go to work and carry on as normal. I know this will end one day, I go tomorrow for fluids so I will start to feel better by Saturday or Sunday and then I go on the 20th for my 6th treatment. After that we will scan and see how many more I have to take.
Well, I better go lay down again, I am sure this is the low point talking and I will be better the next time I get on here. Wishing all of you a good evening and sending cyber hugs to you all.
Dec 6, 2012 10:18AM PaEaglesFan wrote:
jeanieb2, I wonder why they wait so long to give you the extra fluids? I've read some of the ladies have gone in within a day or 2 of treatment and felt immensely better afterward. Maybe you should ask (tell) them to do it sooner.
As far as eating and drinking, yeah... everything tasted like crap and was pretty much impossible to do either. LOVED cranberry juices tho. Just keep taking care of yourself, I know how lucky I was to get thru it as easily as I did and I wish everyone had it so well. Hugs back to you :)
Dec 6, 2012 10:20AM websister wrote:
Jeanieb2 - you are not whining, that doesn't sound like fun at all!
I find with Taxotere that it hits me about 3 - 4 days after infusion. I don't have the dizziness but I do have nausea and last two times one episode of vomiting each time, during the night. Coincides with onset of diarrhea. Don't feel like eating or drinking, taste is altered. I have also been very tired and it will hit suddenly. May be out and running errands or having lunch with someone and all of a sudden total exhaustion.
This time the diarrhea started the day after, no nausea or vomiting yet though, hope I've avoided that. Find the muscle and joint aches started the day of and are continuing today, walking like a very old lady.
Sending hugs, hope your scans show no further need for more Taxotere after the treatment on the 20th.
Dec 6, 2012 08:11PM jeanieb2 wrote:
PAEaglesFan - I went today for fluids and did have to have the Neulasta shot, WC and Neutrophil was low. I asked the nurse about coming back before and she said she also agrees that this time frame works the best because the counts have hit bottom and if I came back on Monday or Tuesday the counts would probably be fine and then tank later in the week. We live 25 miles from the cancer center which is not a big deal to go twice but I also think it seems to be worse on Wednesday and Thursday. Mondays are not good but on Tuesday I feel human for the most part, this time on Wednesday I felt pretty good most of the day and last night felt real good but got up this morning feeling miserable. I even went into one of the rooms with a bed and laid down the whole time I got the fluids and napped. My white count was only at 1.52 which is better than they have been and Neutrophil was .76. Also when I was there last Thursday for treatment my white count was at 10 so I am thinking that by Monday or Tuesday they would not have been down a lot. I think my sister asked the onc last time and he said it is usually the lowest 7 days later, I think that is what he said, I will ask again and try and remember or else write it down so that I can look back at what he said. I am going to try the cranberry juice also, we have some but have not even thought about drinking it so will get it in the frig to get cold and try that.
I have been more fatigued today than I have the last two treatment times and still off balance more than usual with this, I have been keeping track and usually feel better after the fluids but I am sure tomorrow I will feel much better, if not I will hold the couch down again and just look at the Christmas tree and all of its twinkling lights, this is my favorite time of the year and now I have an excuse to lay and look at the tree, there is definitely a bright side to this.
websister - I am sorry to hear you have the nausea and aches and pains with this treatment, can you take Zofran or anything for the nausea? I have not had the nausea with this treatment and if I have it is usually the week I am taking Xeloda with it, that makes me nauseated so just assumed it was that instead of the Tax. I also have not had the aches and pains with this, and am fortunate that the Neulasta shot does not bother me much at all.
Dec 7, 2012 09:46AM websister wrote:
Jeanieb - I have Maxeran if I need it for nausea but it seems to just be once and hit suddenly middle of the night then that's it but the diarrhea/cramps set in or remain. I do have Immodium and an anti-gas for that. Re: aches and pains - manageable, just not that pleasant - thought it was more from Neulasta before but no Neulasta this time and started evening of treatment. Could be a combination of Taxotere and the Herceptin that makes it worse.
Hope you are enjoying the Christmas tree lights, I really need to get decorating before the season is over ;)
Dec 7, 2012 11:00AM SpecialK wrote:
websister - two thoughts - I had the Big D throughout chemo and it continued on Herceptin alone. One of the chemo nurses suggested starting a probiotic - worked like a champ, and I wouldn't be without it now. Also, how fast are they running your Herceptin infusion? The first Herceptin only infusion for me was done in 30 minutes and I had a lot of leg/hip aching, which I had not really experienced on Taxotere, Herceptin (which during TCH was run in 90 minutes) or Neulasta. I asked them to slow the drip back to 90 minutes on subsequent infusions and did not have that aching again. There is also a school of thought that there is more cardio-toxicity potential if they run it fast.
Dec 7, 2012 02:36PM halfcan wrote:
Wednesday was #4 chemo/#1 Taxotere day. It started out fun with the chemo nurse trying to access my port! I had read of others having this issue so I wasn't too freaked out. After trying a bunch of different positions with my head and body, I had to get up and walk all around the chemo room swinging my arms over my head like I was swimming and then go lay down on a bed so they could lower my head. Happy to say it worked and didn't require any meds to open it up which would have made my visit at least another hour of infusion! Then it was on to the fun, freezing, huge gloves past my wrist to suffer through plus ice in my mouth for the 1 1/2 hours. It might have been ok except I was nauseas all morning and still was, so it was challenging to suck ice. I was very glad when it was all done. Headed home to sweats, a cozy blanket and my couch for a 2 hour nap. Awoke feeling much better and no longer sick to my stomach. Not sure why I felt like that all day other than from the double dose steroids or major lack of sleep for two nights. Anyway, yesterday I get up and feel pretty darn good so attack some house chores, go out to lunch and for a walk with a friend, then later out to mexican food for dinner and some grocery shopping. I was totally pooped by the end of the day and fell asleep on the couch again for awhile. Another restless night of sleep after a good 3 hours but then this morning feeling good again so decided to do some organizing of closets. lol Well, done with that for now...all of a sudden I am beat. Maybe did too much but wanting to be useful while I am feeling ok. I keep expecting the bomb to drop with some crappy SE from the Taxotere! Today I start the nuepogen 7 day injection series and I know that 5 days from now I will be misserable with bone pain again for 3 days. It so sucks, but if it keeps the white count happier than most likely worth it!!!
websister - why no Nuelasta this time? Hope you are feeling better!
Dec 7, 2012 07:29PM websister wrote:
SpecialK - thanks for that advice. They did run the Herceptin over 30 minutes this time, last time was 45, first time 90 minutes. Don't need cardio-toxicity or the muscle/joint pains. I do need to take a probiotic regularly, used to but got out of the habit when this all started. Appreciate you popping in and helping :)
Halfcan - glad you are feeling well with exception of the tiredness that hits. I didn't get Neulasta again as that a was my final Taxotere, neutrophils don't need to be up again for another round of it. They'll do lab work again mid-January to ensure everything is behaving itself. I know that I will probably be on the low side of WBC/neutrophil count for a bit but hope all is well by Christmas.
Dec 8, 2012 12:59PM halfcan wrote:
BC....new day....new shit! Please tell me if my SEs sound familiar. Started feeling worse yesterday ... chemo on Wed. so day 3 I guess. Awake most of the night with ears hurting and pressure and shooting pains everywhere it seemed from my ankles, knees, hips, back and generally most everywhere. Took some Ibuprofin a couple hours ago but it is my ears that seem strange. Achy muscles and pains doesn't seem too surprising nor the headache. Looks like I'm not getting out of bed much today! Hope everyone else is having a better day. Hugs
Dec 8, 2012 01:23PM SpecialK wrote:
halfcan - let your onc know know about your SE.
all - I used these SE sheets from the American Cancer Society, found them useful because I could record the SE as it happened and it gave a good timeline.
Dec 8, 2012 03:15PM jeanieb2 wrote:
SpecialK - Thanks so much for that link to the side effect sheets, that is so useful. I am going to print it off and use it, even though I am in the 5th cycle of Tax. I still keep a journal of how I feel each day and this will just take the place of it.