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Feb 11, 2017 09:55AM
Well, I'm finding out that this CMF is going to be scheduled month-to-month since my tumor markers are only going up in ten point increments. My ONC says it's a trend, and to be more worried about spikes not trends. I'm at around 127. He has me do a bone scan and chest/and/pelvic CT everything three months and then reassesses tumor markers monthly with it. April will have been 11 months on CMF. You have no idea on how excited I am that I have been able tolerate "one of the tools in my tool box" for that long! As a reminder, I am stage IV, and when I run out of tools in the tool box, I'm done to wait it out for a cure. The goal is to get the most out of every tool, as long as I have a decent quality of life on it.
My ONJ flare has receded and my jaw pain is a little less. I don't know if that's just cyclical or if it's because I added Naproxen 500mg every 12 hours, scheduled along side my other pain meds. Whatever, I am thankful for the relief. My ONC was able to locate non-alcohol containing Chlorahexadine rinse and spit, to prevent oral infection while the site heals. (The alcohol containing was mint, and burnt my mouth/tongue like crazy). (So did Biotene, Dry Mouth Rinse). Because cancer patients can't do hyperbaric treatment, I'm left to heal slowly on my own.
Ladies, I've been on many different chemo's & combinations, and I can tell you for me, CMF has the less s/e. The constipation, fatigue and mild hair loss are much more perferable to me than hand/foot syndrome, neuropathy, nausea, etc. I would recommend staying on it as long as your body tolerates it. Good luck with treatment! I am also a big believer in staying positive and appreciate your help with that here on this positive board!
More than just a cancer patient!
4/2009, IDC, Stage IA, 0/6 nodes, ER+, HER2-
5/28/2009 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
6/26/2013, IDC, Stage IV, 0/6 nodes, mets, ER+, HER2-
7/14/2013 Taxol (paclitaxel), Xeloda (capecitabine)
10/1/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
4/5/2014 Prophylactic ovary removal
12/31/2014 Arimidex (anastrozole)
8/2/2015 Faslodex (fulvestrant), Femara (letrozole)
AC + T (Taxol)