Log in to post a reply
Apr 24, 2017 01:50PM
Apr 24, 2017 03:37PM
GoKale4320- I had no drains! My surgeons (I had four, 2 interns) my primary was a board certified breast specialists at Stanford. Had no wire guides. Savi scout is an alternative to wire localization,, a little reflector inserted into the tumor(s) to guide the surgeons..less scary and not Barb-aric! Not painful just scary like the biopsy.
My story sorry if I'm repeating this....I put some repetitive photos in too. Mostly for newbies.
All would have been very different for me surgery wise if had I done my surgery first and locally in my home town. My first two local suregeons were going to take my nipple and no plastic surgeon standing by or reconstruction. they did mention they would put in drains, I'm loving no drains! . They both made mention of taking 20-40 axillary nodes! My Stanford surgeon took 7-10 nodes.... Part of the reason I chose chemo first was the scary surgery! I know I'm lucky no mastectomy!.... please don't be mad if I'm being a whimp in comparison surgery wise. I feel for all here who may not be so lucky. My breast lift and plastic surgery was covered by ins. They also removed my port without cutting it out seperately,I believe they must've pulled it out thru my nipple incision?
We did a load of interviewing and studying before doing any treatment. I even started chemo just to get going on killing the cancer! I changed oncologists and cancer centers when I found a better fit. I basically fought getting standardized treatment the whole way thru... Had the one one chemo then started running around looking for better answers!.....I pray my margins are clear now since fewer nodes removed. I had two large palpable almond sized lymph nodes that shrunk to 1/3 the size during chemo...my breast tumor all but disappeared it was tiny but was very close up to my nipple.
I did have a plastic surgeon in addition to my breast surgeon. I had a lumpectomy and 7-10 axillary nodes removed in my armpit. I had and equal amt of breast tissue removed from my healthy breast and a full breast lift. No drains anywhere! No drains a New thing maybe?
I did a fasting mimicking diet before and after each chemo. I fasted a total of fifty days during my chemo winter. Google 'fasting before chemo and Dr Longo'. Short term Fasting may or not be good for hair, it's all about not damaging normal cells with chemo! Fasting puts cells into hibernation-slows cell division except for the cancer cells which get targeted even more agressively. I feel my side effects were reduced so much so that I was able to ski all winter. Lost weight at first ...doing five day fast mimic then 9 days of eating everything in sight. Toward the end I was gradually gaining weight in between... a couple pounds per time ..my body got used to the fasting. We all adapt!
Fast mimick is 500 cals a day of mainly veggies..almost no carbs
Adaptation to new look and new you is key!
As far as cold capping I did the hardest ACT (DDtaxol) chemo for cold caps. I lost 80 percent of my hair. I don't need a wig with the help of toppik. It's not my normal look I had a mane of think long blonde highlighted hair. Now I have a Greyish mouse troll look. Would I do cold caps again? ABSOLUTELY, I get hot flashes from chemo- pause almost hourly...and having nothing.... no scarfs etc on my head is such a relief when I get hot I start ripping things off, so a wig would just fly off me instantly...I love that I still have hair! I think it hideous though.,
I'm 4 weeks pfc and my hair stoped shedding and has started growing brownish grey baby hair. It's filling in so quick I think I'll not be need toppik very soonish!
These photos below are before and after toppik. The last three are with toppik...med blonde and brown mixed. I leave my toppik in all week until wash day. The toppik can clump.
The first one is clean hair...as we know it gets worse before wash day!
Keep in mind I wore hats, ear muffs, and scarfs and a few helmets all winter too! A big no no. I sweated and my head got hot when I skied. I needed to ski!
11/4/2016, IDC, Right, 1cm, Stage IIIA, Grade 2, 2/9 nodes, ER+/PR+, HER2-
11/29/2016 AC + T (Taxol)
4/18/2017 Lumpectomy: Right; Lymph node removal: Right
5/22/2017 Whole-breast: Breast, Lymph nodes
7/19/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)