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All TopicsForum: Managing Side Effects of Breast Cancer and Its Treatment → Topic: Cold Cap Users Past and Present, to Save Hair

Topic: Cold Cap Users Past and Present, to Save Hair

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Jun 14, 2009 07:04PM

Can-D wrote:

Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair.  I am on FEC100 X3 followed by Taxotere X3.  My dosage unfortunately is not a guaranteed success.  I am 40 days out from my first treatment and will have my third June 17.  So far I have thinned but have not required a wig.  I have no bald spots; however, around my right ear is the thinnest..I think because the cap wasn't tight there.  All in all, I am pleased to still have a good covering.  If you are using or have used the Cold Caps, I would love to hear your experience.  Take care, Candy

FEC100 X3 followed by Taxotere X3, Bilateral Mx w/ immediate reconstruction..Wake Me Up When September Ends!!! Dx 3/19/2009, IDC, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2-
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Sep 13, 2017 01:13PM GoKale4320 wrote:

I am 20 weeks PFC. These pics are with no Toppik on (doesn't really hide the gray so I stopped using it).

Dx: January 2017, IDC, Stage IIa, 1/23 nodes, Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Sep 13, 2017 01:17PM GoKale4320 wrote:

thank you , Elberama, for the picture help

Dx: January 2017, IDC, Stage IIa, 1/23 nodes, Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Sep 13, 2017 01:28PM kaylie57410 wrote:

ok, getting the timing right takes some practice---I would start putting the caps in every 15/20 minutes when you check in at reception =one at a time starting them at the bottom=pay attention to the diagram you got about how to pack in the ice.Gel bands go on top of top ice. As soon as your nurse comes to get you to your room find out how long the premeds will take to go in and whether there is a wait to have them circulate till the actual chemo can start--ie-- for me, the 4 premeds went in one at a time from 2-2:15p-there then a wait of 1 hour-60 minutes till the first chemo med could start--so that meant 3:15-so back up 50 minutes from that 3:15 and started first cap on at 2:25--20 minutes for that one---second one on at 2;45 for 20minutes---at 3:05- cap 3 goes on --after 10 minutes of that it will be 3:15--chemo can start and that cap stays on for full 25 minutes and so do subsequent caps right till the end of your 4/5 hours post infusion- dont start that 4/5 hours post countdown until chemo finishes infusing--

take each cap out 5-10 minutes before applying and check temp on inner white body of cap only ,not all over. if too cold knead it with your gloved hands and keep checking temp-is why an infrared so easy to use- reading is instantaneous where the one sent to you by penguin takes 45 seconds,

You will get an ice cream headache for 5-10 minutes from first couple caps--just put up with it- it will ease as your scalp nerves adjust and not be bad to tolerate thru the others

I dressed in layers-long undershirt under loose sweater and thin leggings under loose pants with thin socks- I was not cold-didnt ice hands or feet- hands cold enough from handling caps=lol and have had no neuropathy issues=small potatoes compared to losing my hair anyway--I was never cold- you are busy helping so time flies--

After the first few changes you will get the hang of it and just keep going--how far do you lived from the infusion center? we change caps just as we were going out door and able to just get home in time to change to next one- we took it out in car as we were approaching home,otherwise you have to stop somewhere on way home and change by the car--fun--not!!

Let us know how it goes--hugs- you can do this --I did and was as confused as you at first==it will be worth it!!


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Sep 13, 2017 01:46PM - edited Sep 13, 2017 06:28PM by Travel_Girl

GoKale - you look great! For the gray coverage -- I use the gray root coverage spray -I posed above the blond spray I like. Thanks for sharing. What an inspiration!! you put your pix on the cold cap picture only group -- it would be great for others.

My shedding started like day 19/20 -- it is not significant in my mind, just strays of hair -- which I was expecting per all the literature, so not panicking. My hair is fine anyway. So thin hair is my normal. For some reason I think the PCC caps work the best -- no personal evidence, just all the research I have done.

I started with Digni and it was at my local place and the repunzel project said digna and pcc had the same success rate w/ taxanes (TC falls in that category) - so went with it. I just think the pcc's being colder and the longer cooling time might be the trick. But who really knows!

I just hope I fair as well as you have and if not, I have a plan B in place to get micro extensions or an interlace system - from the lucinda project that I also found on repunzel links. I have no regrets so far. No one that I don't want to tell knows I am going through chemo - that helps a ton!



Dx 2/6/2006, IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR-, HER2- Surgery 2/10/2006 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 4/1/2006 Hormonal Therapy 6/1/2006 Dx 8/4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER-/PR-, HER2- (FISH) Chemotherapy 8/24/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/27/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Sep 13, 2017 01:57PM toughcookie_21 wrote:

gokale, I think you look great and I like the color. My hair is naturally dark reddish brown and my gray roots are very obvious. I have a lot of gray and usually had my roots colored every 3 weeks. When I knew that chemo was inevitable, I got 14 inches cut off my hair and had it lightened so that the roots wouldn't be so different. That was back in early July so it was a good 8 weeks before I started chemo. I hope I have as good of results as you do!

42 years old at diagnosis Dx 5/17/2017, IDC, Right, 2cm, Stage IB, Grade 3, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 7/18/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 9/7/2017 Herceptin (trastuzumab) Chemotherapy 9/8/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 13, 2017 01:59PM Willow22 wrote:

brightness,

According to their website, PCC has a different, patented gel inside their caps, so they cool faster and to a lower temp than the caps that you need to wet your hair with. The cap will be at the right temp in just 50 minutes since dry ice is so cold (I cool mine for 50 minutes, take them out 5 min before change time, and it is always too cold. My hubby lets it warm up for a few minutea to get it to my temp, which is minus 26' to -28' C). Just make sure to have the white side of the cap touching the ice at the bottom of the cooler. Follow your specific directions for when to add the next cap to the cooler, and make sure blue sides are together and the white side directly touches the ice bag. The blue outer side is insulated, so you can touch it without gloves, but it does not cool as fast if that side is the one directly contacting the ice (my hubby put a cap in the wrong way last time, so we know from experience).

Put your first cap into the cooler 50 minutes before your appointment. That way you are ready to start capping right after you are settled in the room. You can cap longer than 50 minutes before your chemo is started, but you want it to be at least 50 minutes of pre-cooling the scalp (I'd rather err on the generous side and cool a little longer 😉). My premeds only take about 35minutes, so even with starting my 50 minutes of precooling as soon as i get there, we are still waiting on finishing the prexooling time before we can start the chemo. The nurses have all been great about that, but its nice not to have a long delay.

I know it sounds like a lot, but you can do this! We were very surprised how easily it became a smooth routine!

Willow

Willow22 Dx 5/1/2017, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR-, HER2- Dx 5/26/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Dx 5/26/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 5/26/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 7/18/2017 Chemotherapy 7/28/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/23/2017 Whole-breast: Breast, Chest wall
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Sep 13, 2017 02:13PM Brightness456 wrote:

Gokale, your hair looks good, not at all like I'd expect of someone who'd been through chemo, and your pretty eyes are what I noticed first about you anyway.

Kaylie, I'm going to put all 4 caps and the gel bands in at 8:10 since that's what the rep suggested. I hope it works. I'm still a bit confused about how much dry ice to get and how to bag the pellets but I'll re-read my material before I pick it up, then cross my fingers

We'll have to time it right to put another cap on after treatment, then head home, which should put us close to the 25 minutes. I think it will be close, but ok.

I am worried about the cold head headache, but I've been through so much lately that it's just one more thing and I'll get through it. I keep reminding myself this may or may not work, but as of tomorrow, I'm trusting my helpers so I can focus on my health. Worst case scenario, I've got a few hats to wear until I figure out wigs. I really hope it doesn't come to that, but I'm trying to be realistic while also optimistic.

Invasive ductal carcinoma Dx 6/2017, IDC, Right, <1cm, Stage IA, 0/5 nodes, ER-/PR-, HER2+ (FISH) Surgery 8/10/2017 Lumpectomy; Lymph node removal: Sentinel Targeted Therapy 9/14/2017 Herceptin (trastuzumab) Chemotherapy 9/14/2017 Taxol (paclitaxel)
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Sep 13, 2017 08:08PM Willow22 wrote:

go kale, your hair looks awesome! I'd be very happy if my results are as good!

Willow

Willow22 Dx 5/1/2017, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR-, HER2- Dx 5/26/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Dx 5/26/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 5/26/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 7/18/2017 Chemotherapy 7/28/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/23/2017 Whole-breast: Breast, Chest wall
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Sep 13, 2017 09:07PM Mandeola wrote:

hi gang........I'm done, I'm done, I'm done!!! After 6 rounds of TCHP it's finally over!!! I am done with my PCCs and will be returning them in the morning. My husband and I purchased an infrared thermometer we used instead of the meat thermometer included in the kit. It worked great and was much easier to measure the temps of the caps. I would love to donate to someone to save them the trouble of ordering one. For someone just beginning cold caps or in the throws and using the meat thermometer let me know if you're interested. Just want to pass on some love and a handy tool for success. Either message me here or send a PM. I can get that sucker in the mail tomorrow

Dx 5/24/2014, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 7/9/2014 Mastectomy; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Dx 5/12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/0 nodes, ER+/PR+, HER2+ (FISH) Surgery 5/24/2017 Lumpectomy: Left Chemotherapy 6/1/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 13, 2017 10:31PM Willow22 wrote:

Congratulations Mandeola!!! So thrilled you are DONE!!!!

Willow22 Dx 5/1/2017, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR-, HER2- Dx 5/26/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Dx 5/26/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 5/26/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 7/18/2017 Chemotherapy 7/28/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/23/2017 Whole-breast: Breast, Chest wall
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Sep 13, 2017 11:11PM Cali58 wrote:

GoKale - Your hair looks terrific. I remember the pictures you posted before when your hair was extremely thin. Now your hair looks nice and very full. You don't even have any chemo hair, just healthy looking hair. Thanks for posting the pics

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Sep 13, 2017 11:17PM Hopfull2 wrote:

go kale, your hair looks so good.

Congrats mandeola. Yay.

E🌺37yrs.old/ oncotype score 39 Dx 7/5/2016, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 8/7/2016 Mastectomy: Right Surgery 9/15/2016 Mastectomy Chemotherapy 11/10/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/23/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/9/2017 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Latissimus dorsi flap, Tissue expander placement
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Sep 13, 2017 11:53PM - edited Sep 13, 2017 11:53PM by Travel_Girl

Mandoela - CONGRATS -- I am so excited for you and thanks for paying if forward and giving away the tool that helped you.

Willow how is your capping going after Treatment #3? Only one more to go right? I am wishing you as great as success as Kale & Manoela.


Dx 2/6/2006, IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR-, HER2- Surgery 2/10/2006 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 4/1/2006 Hormonal Therapy 6/1/2006 Dx 8/4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER-/PR-, HER2- (FISH) Chemotherapy 8/24/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/27/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Sep 14, 2017 04:39AM Brightness456 wrote:

Mandeola, that's great news!

I start my 12 weeks today. I'm so terrified, not just about losing my hair, but more about putting this stuff into my body. I was right at the brink of needing it or not. What if I don't even really need it? It was just too big a risk to not do it though.

I'm so afraid

Invasive ductal carcinoma Dx 6/2017, IDC, Right, <1cm, Stage IA, 0/5 nodes, ER-/PR-, HER2+ (FISH) Surgery 8/10/2017 Lumpectomy; Lymph node removal: Sentinel Targeted Therapy 9/14/2017 Herceptin (trastuzumab) Chemotherapy 9/14/2017 Taxol (paclitaxel)
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Sep 14, 2017 05:13AM kaylie57410 wrote:

hey girl -what helped me tremendously is to use some visual imagery as I saw the infusion dripping in and seeing it seeking out and killing any stray bad cells that may be floating around waiting to land somewhere--The chemo is our friend, not our enemy--and is trying to save us so we can go on after this bump in our life' s road and remain healthy. I was afraid of side effects and mine were so minimal both times so far -I only had a couple days of achiness,mild sore throat and some mild constipation--so surprised-remember to take your claritin- I did twice a day for a week after the neulasta- tylenol regularly also,also push fluids for a few dasy especailly today and tomorrow as chemo excreted thru kidneys and liver

Your doc is the expert and he advises this--listen!

Am around all day and thruthe weekend- write whenever-I promise- you can do this and do it well--hugs,Kaylie-{Candace}

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Sep 14, 2017 12:04PM Elberama wrote:

Brightness: It depends on the temperature you need. For me, the caps needed to get to -33 degrees Celsius, and PCC said it takes 50 minutes for the caps to get to that temp with dry ice. I confirm through my weeks of using PCC that this is indeed the right timing for that temp. I needed to start capping 50 minutes before the chemo infusion. My appointments were at 10:00. My premeds went first, then chemo would start around 10:30. That meant I needed to have my first cap on by 9:45, which meant the cap needed to hit the dry ice by 8:55.

Dx at age 38; pregnancy associated (had baby boy in July 2016) Dx 4/7/2017, IDC, Left, 4cm, Stage IIIA, Grade 3, ER+/PR+, HER2- Chemotherapy 5/12/2017 AC + T (Taxol) Surgery 10/23/2017 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 14, 2017 12:34PM Mandeola wrote:

it's ok Brightness - you got this! I am in medicine myself and was still petrified. For me days 3-5 post chemo were the worst. Remember MOST importantly to use your meds to help with the side effects. Zofran for nausea, Claritin to counter act the histamine cascade with Neulasta and Imodium to help with the diarrhea. Try to stay hydrated which can be a challenge on those bad days. If you can't get enough fluids in never be afraid to call your team and go in for fluid repletion. A banana bag does wonders! Stayed hydrated makes a big difference for not only keeping your hair but your nausea as well. Being dehydrated can actually exacerbate your nausea. Little sips all day long as you remember and are able. Trust the process and the community here who has endured it before you. You can do it, we are all here for you!!

Dx 5/24/2014, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 7/9/2014 Mastectomy; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Dx 5/12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/0 nodes, ER+/PR+, HER2+ (FISH) Surgery 5/24/2017 Lumpectomy: Left Chemotherapy 6/1/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 14, 2017 12:40PM Mandeola wrote:

Here I am after final chemo. I had short fine blonde hair to start and have (less) but who cares still fine blond hair. Excuse the permanent bed head in the back. I'm so happy to have kept as much as I have. Hoping the weeks and months to come will continue the same path

Dx 5/24/2014, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 7/9/2014 Mastectomy; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Dx 5/12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/0 nodes, ER+/PR+, HER2+ (FISH) Surgery 5/24/2017 Lumpectomy: Left Chemotherapy 6/1/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 14, 2017 04:54PM ykh wrote:

Brightness, 12 weeks of Taxol is an easy regimes with minimum side effects. Remember to ice your fingers and toes to prevent neurapothy and protect your nails. You should keep them iced 15 mins before, during the infusion and 15 mins after. Good luck!

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Sep 14, 2017 07:45PM Travel_Girl wrote:

Mandeola -- fantastic!!!! I have shorter kinda fine blonde hair and i know I will have less - I hope I fair as well as you did - super cute and -- you did well! As my MO said, you will notice the difference, others will never know you are going through chemo -- thanks for sharing. yes, you are making me happy this eve :)

Dx 2/6/2006, IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR-, HER2- Surgery 2/10/2006 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 4/1/2006 Hormonal Therapy 6/1/2006 Dx 8/4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER-/PR-, HER2- (FISH) Chemotherapy 8/24/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/27/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Sep 14, 2017 08:59PM Brightness456 wrote:

Mandeola, wow, cold capping really worked well for you.

Ykh, icing fingers and toes was in the back of my mind, but I couldn't even think about it today.

I had a panic attack, so the nurse gave me Ativan right away. The timing of the start of chemo was a little mixed up so I think I only had 40 minutes of precooling instead of 50. The caps were cold, but not at all unmanageable, which worried me a bit since I was expecting extreme pain. They measured the right temp though and felt tight, so we'll see.

I made it through the first one. Now I'll start to mentally prepare for my second treatment. I have a headache, but it's tolerable. Otherwise I'm feeling ok, just tired.

Thank you everyone for talking methrough the day.

Invasive ductal carcinoma Dx 6/2017, IDC, Right, <1cm, Stage IA, 0/5 nodes, ER-/PR-, HER2+ (FISH) Surgery 8/10/2017 Lumpectomy; Lymph node removal: Sentinel Targeted Therapy 9/14/2017 Herceptin (trastuzumab) Chemotherapy 9/14/2017 Taxol (paclitaxel)
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Sep 14, 2017 09:10PM - edited Sep 14, 2017 09:18PM by KD2016

Mandeola, may I ask if you had a mastectomy of the left breast back in 2014, how did you end up with IDC on the same side/breast?

I had DCIS and IDC in my right breast and had mastectomy last year, and always scared of recurrence. I'm triple positive, had the TCHP regimen, followed by a whole year of Herceptin,and have been on Arimidex since last Aug. Thx.

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Sep 14, 2017 10:13PM Radmonkey wrote:

Great results, Mandeola!

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Sep 15, 2017 06:57AM kaylie57410 wrote:

Yea==good for you- you are on your way! sounds like you did fine- you will not be so anxious the next time-remember to push fluids today and tomorrow-important

I am not familiar with your protocol--how many taxol treatments to you have to have?

does the herceptin continue beyond the taxol treament-? I read the herceptin does not cause hair loss but can slow regrowth of what comes out from the Taxol. Are you having the neulasta to boost your blood cell production back up?

you may well feel fine today--usually any side effects start a couple /few days--remember you can and are doing this- be proud of your self,C

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Sep 15, 2017 08:34AM Brightness456 wrote:

I get taxol weekly for 12 weeks. Every third week I get herceptin after the taxol. The herceptin will continue for 1 year. I don't get neulasta.

I'm drinking so much water, but I've really adjusted to it pretty well. I really hope I get less and less afraid now that it's not such an unknown.

I do feel good today which is good since it's a busy day. I'm hoping to feel well enough for a gentle to moderate hike Sunday, but we'll see.

Invasive ductal carcinoma Dx 6/2017, IDC, Right, <1cm, Stage IA, 0/5 nodes, ER-/PR-, HER2+ (FISH) Surgery 8/10/2017 Lumpectomy; Lymph node removal: Sentinel Targeted Therapy 9/14/2017 Herceptin (trastuzumab) Chemotherapy 9/14/2017 Taxol (paclitaxel)
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Sep 15, 2017 10:14AM Mandeola wrote:

Hi KD2016 - that was my exact question when I was diagnosed with the recurrence this year. I had a very large area of DCIS on the left. I had narrowly clear margins and my surgeon actually removed a small amount of chest wall because of the extent of the DCIS. My pathology was all grade 3 DCIS. My team's best guess is that there were likely 1 or 2 microscopic cancer cells left behind that then replicated causing the lump I felt. The lump developed at exactly the place they stopped removing chest wall tissue which leads everyone to believe this is what happened. They are calling it a stage 1 chest wall recurrence as I have no breast tissue left. What happened in my case only happens in 1-3% of women, too bad I wasn't in the 1% of people that win the lottery!

Brightness - way to go! You made it through the first cycle. Like everyone says just keep staying hydrated and using your meds for side effect management. Sounds like the caps went well

Dx 5/24/2014, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 7/9/2014 Mastectomy; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Dx 5/12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/0 nodes, ER+/PR+, HER2+ (FISH) Surgery 5/24/2017 Lumpectomy: Left Chemotherapy 6/1/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 15, 2017 11:51AM Willow22 wrote:

travel girl, I'Ve been shedding pretty consistently since day 28 or so after my first TC, and would've been freaking out over the amount if it weren't for Elberama's pictures! I'm shedding much less than her pics, but I also didn't have her wonderfully full head of hair to start with either (fine hair already thinned a bit by perimenopause hormones).

This is day 8 after TC #3 (woohoo, only one more to go!!!). It's a shampoo day, and I'm afraid my part will be growing or my scalp will start peeking out at the sides.... but you ladies have shared so many great tips on how to work with what remains, so I know I can handle it!

Brightness, glad your first session is done and you are feeling well!

Willow

Willow22 Dx 5/1/2017, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR-, HER2- Dx 5/26/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Dx 5/26/2017, IDC, Right, <1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 5/26/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 7/18/2017 Chemotherapy 7/28/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 10/23/2017 Whole-breast: Breast, Chest wall
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Sep 15, 2017 12:12PM KD2016 wrote:

Mandeola, thank you for your reply. I'm so sorry about that. My DCIS led to the discovery of IDC. I wish all of us never go through what we already have ever again.

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Sep 16, 2017 03:18PM - edited Sep 16, 2017 04:25PM by Newgammy905

This Post was deleted by Newgammy905.
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Sep 17, 2017 08:11AM Brightness456 wrote:

Okay ladies, it's day 3 post chemo so I can finally wash my yucky, dirty hair. I seem to remember that I'm supposed to focus the shampoo on my scalp and use gentle fingers. I've got a soft spouted cup for rinsing. I can put conditioner on the ends only and rinse very well. Comb through with a wide tooth comb, using care not to pull at the roots. Is there anything else I need to remember?

Invasive ductal carcinoma Dx 6/2017, IDC, Right, <1cm, Stage IA, 0/5 nodes, ER-/PR-, HER2+ (FISH) Surgery 8/10/2017 Lumpectomy; Lymph node removal: Sentinel Targeted Therapy 9/14/2017 Herceptin (trastuzumab) Chemotherapy 9/14/2017 Taxol (paclitaxel)

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