Log in to post a reply
Oct 25, 2017 06:29PM
Hello all and Happy Birthday MamaFelice and have fun at the beach! I had my port placement and it went well. I’m on the thin side, so I can feel all the tubing from the port up to my jugular. I’ve heard some people keep their port in for security or wait until they have surgery, if they need it, to remove it in one procedure. I may do that as I still have a bilateral mastectomy ahead of me after chemo. I had my first round of TC this past Monday. I’m 2 days out and experiencing fatigue, some bone pain (managed with Advil), some tingling in my fingers, even though I iced. Combating Big D with prune juice and probiotic coconut water I got at Whole Foods. Just a genreral feeling of blah.
As far as capping. My facility has a biomedical freezer, so we brought the 14 caps on Friday so that I could use them Monday morning. I had also planned on bringing a cooler with dry ice so that we could take the rest of caps home and finish the 4 hr post capping in the comfort of my home. However, I noticed that the digital temp display was only -35 which made me concerned, because when I first toured the facility and looked at the cooler, it was -41. I left the caps in the bio freezer and contacted PCC about the possibility of the freezer malfunctioning. Gerilyn suggested that since we were planning on bringing a cooler, that if there was a problem, we should switch the plan and start putting the caps into the cooler 15 minutes before they were needed to bring their temp down. Sure enough, after the 3rd cap, my team (husband and bestie), noticed the temp of the caps coming out of the cooler was rising. So they switched to plan B. Going forward we are going to just use the dry ice method, instead of the biofreezer. It was a bit stressful, but capping made the day go by very fast. The caps were tolerable, and as everyone says the first is the worst. I did ask to take 2 Tylenol before I capped, Incase of headache, and my MO said that was fine. I switched my part, with every cap change, very quickly, because I have fine hair and I was concerned about freezer burns. My scalp was red after we were done but it cleared up by the next day. Glad I have 3 weeks to recover, and build up the courage to do it all again. 5 more TC to go...
Good sleep and peace to everyone.
7/17/2017, IDC, Left, 1cm, Stage IIA, Grade 2, 3/8 nodes, ER+/PR+, HER2- (FISH)
8/14/2017 Lumpectomy; Lymph node removal: Left, Sentinel
9/14/2017 Lymph node removal: Left
10/19/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
2/26/2018 Mastectomy: Left, Right
4/29/2018 Whole-breast: Breast, Lymph nodes, Chest wall