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Oct 10, 2018 09:12AM
Oct 10, 2018 10:25AM
Hi there! I thought I'd add my Paxman cold cap experience thus far. I've had 6 weekly taxols so far, and am on day 35. So, I'm 50% through my treatments... 6 more to go.
So far so great. (But I will not rest on my laurels as I know this can change at any moment!). So far, I've lost LESS hair than I did before all this started...so I'd say 0% loss so far. !!! (I used to rake thru my very thick hair without a care in the world. Now I baby it like crazy.) It goes around 4" past my shoulders.
I have been taking Biotin daily since a week before I started any of this.
I rinse my hair the day after treatment, then wash 3 days after (with the paxman shampoo/conditioner), and that's it. Always with cold water. I comb out gently with a wide-tooth comb before rinse or washing showers. Those are the only times I comb through - before rinse, and before wash. Twice a week. I grip my hair at the scalp and comb out the ends to avoid pulling. I have NOT used the brush thing that came with the kit. My hair is way too thick for that thing!
After the 3rd treatment I started also wrapping the outer cap with an ace bandage to make tighter, as I learned from a girl I met there doing same. She was on treatment 9 with a full head of hair, so…. yeah. I was worried I didn't have things tight enough for my first two, but time will tell I guess.
The ONLY cold capping rule I break is that I do scrunch product into the ends of my hair as I have very frizzy (half-jewish) hair. With product it's a little more curly than frizzy.
I am also doing satin pillowcases, and thanks to the girl with the ace bandage tip, I also now wear a hair net at night to avoid extra tangling.
I ordered that EES stuff for brows. Hasn't been delivered yet. Got an Rx for latisse from my dr., but I keep reading it doesn't work so I haven't filled it… I bought some revitalash, but haven't started using it yet. Will tonight, I think. I may just teach myself how to do false eyelashes when that time comes.
It looks like my nose hairs are gone. I still have arm hairs, brows, lashes, pubes.. I haven't had to shave my armpits or legs for well over a week tho, which is a huge change as I am pretty hairy and things grow fast and I have to shave every single day normally.
Anyway, that's my experience so far. I'm sure I'll report back if things change!
6/20/2018, IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+
7/20/2018 Lumpectomy: Left; Lymph node removal: Sentinel
9/5/2018 Herceptin (trastuzumab)
9/5/2018 Taxol (paclitaxel)
12/3/2018 Whole-breast: Breast
1/5/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)