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Topic: Cold Caps Users Past and Present, to Save Hair

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Jun 14, 2009 07:04PM

Can-D wrote:

Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair.  I am on FEC100 X3 followed by Taxotere X3.  My dosage unfortunately is not a guaranteed success.  I am 40 days out from my first treatment and will have my third June 17.  So far I have thinned but have not required a wig.  I have no bald spots; however, around my right ear is the thinnest..I think because the cap wasn't tight there.  All in all, I am pleased to still have a good covering.  If you are using or have used the Cold Caps, I would love to hear your experience.  Take care, Candy

FEC100 X3 followed by Taxotere X3, Bilateral Mx w/ immediate reconstruction..Wake Me Up When September Ends!!! Dx 3/19/2009, IDC, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2-
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Posts 21421 - 21427 (21,427 total)

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Oct 8, 2021 01:38PM morrigan_2575 wrote:

Looks really good. Congratulations!

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 8, 2021 04:58PM AMG2 wrote:

Swimgal!!!! Congratulations on finishing the 12 AND keeping your hair!

Smile

I'm so happy for you. 6 weeks behind you, and using the Penguin system - thank you, beloved daughter! My infusion center does not support the automatic systems, unfortunately.

Mine has started shedding a bit more vigorously, but we shall see how the next 6 weeks go.


Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/3/2021 Lumpectomy: Right Targeted Therapy 9/1/2021 Herceptin (trastuzumab) Chemotherapy 9/1/2021 Taxol (paclitaxel) Hormonal Therapy Radiation Therapy Breast
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Oct 9, 2021 03:52PM swimgal wrote:

Morrigan_25: Thank you!

AMG2: Thank you and good luck with your last six. I'm not familiar with the differences between Penguin and Dignicap. What do you mean by automatic system? I'm sure you know, but be VERY gentle with brushing or combing. I only used a very wide tooth comb and the brush I got from Dignicap. I hope your shedding slows down for you.

Dx 6/10/2021, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (FISH)
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Oct 10, 2021 12:17AM - edited Oct 10, 2021 12:19AM by morrigan_2575

"I'm not familiar with the differences between Penguin and Dignicap. What do you mean by automatic system? "

Dignicap is cooled via a machine that pumps freezing cold water through the cap. With the other system the caps are frozen and, you have to change them out as they thaw in order to keep the head cold.

With Penguin and others you generally need a helper for the caps.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 10, 2021 08:09AM swimgal wrote:

Thanks, Morrigan_25.

Dx 6/10/2021, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (FISH)
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Oct 13, 2021 05:45PM kellywilk wrote:

Hello team — I start chemo next Tuesday. I will be getting Taxol (12) and AC (4). I am seeing success with Taxol here but what about AC? I know that's particularly brutal across the board, including hair loss. Thanks so much, Kelly

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Oct 13, 2021 06:49PM AMG2 wrote:

Hi Kelly, I'm sorry for what you have to go through. I think I've seen toward the beginning of this thread some ACT successes as well as failures. I am not going to be able to tell you too much about success with taxol plus AC, as I am taxol herceptin, so no personal experience.

That said, what options do you have available to you? I am using Penguin, and my rep, who has had bc, had, I think more than taxol and her2 monoclonals for chemo, and also used penguin, was very upfront with me on success rates with various protocols. You might try giving them a call, if that is something you would be able to do. You have to have someone help you, and I think they offer this service for a fee, assuming you can have a visitor with you.

I didn't ever look into systems that don't rely on dry ice and a capper (my daughter is mine) because my center doesn't have that available.

I hope some ACT people can chime in here and help you directly.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/3/2021 Lumpectomy: Right Targeted Therapy 9/1/2021 Herceptin (trastuzumab) Chemotherapy 9/1/2021 Taxol (paclitaxel) Hormonal Therapy Radiation Therapy Breast

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