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Topic: Cold Caps Users Past and Present, to Save Hair

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Jun 14, 2009 07:04PM

Can-D wrote:

Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair.  I am on FEC100 X3 followed by Taxotere X3.  My dosage unfortunately is not a guaranteed success.  I am 40 days out from my first treatment and will have my third June 17.  So far I have thinned but have not required a wig.  I have no bald spots; however, around my right ear is the thinnest..I think because the cap wasn't tight there.  All in all, I am pleased to still have a good covering.  If you are using or have used the Cold Caps, I would love to hear your experience.  Take care, Candy

FEC100 X3 followed by Taxotere X3, Bilateral Mx w/ immediate reconstruction..Wake Me Up When September Ends!!! Dx 3/19/2009, IDC, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2-
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Posts 21421 - 21450 (21,455 total)

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Oct 8, 2021 01:38PM morrigan_2575 wrote:

Looks really good. Congratulations!

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 8, 2021 04:58PM AMG2 wrote:

Swimgal!!!! Congratulations on finishing the 12 AND keeping your hair!

Smile

I'm so happy for you. 6 weeks behind you, and using the Penguin system - thank you, beloved daughter! My infusion center does not support the automatic systems, unfortunately.

Mine has started shedding a bit more vigorously, but we shall see how the next 6 weeks go.


Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/3/2021 Lumpectomy: Right Chemotherapy 9/1/2021 Taxol (paclitaxel) Targeted Therapy 9/1/2021 Herceptin (trastuzumab) Radiation Therapy 12/14/2021 Whole-breast: Breast Hormonal Therapy
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Oct 9, 2021 03:52PM swimgal wrote:

Morrigan_25: Thank you!

AMG2: Thank you and good luck with your last six. I'm not familiar with the differences between Penguin and Dignicap. What do you mean by automatic system? I'm sure you know, but be VERY gentle with brushing or combing. I only used a very wide tooth comb and the brush I got from Dignicap. I hope your shedding slows down for you.

Dx 6/10/2021, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (FISH)
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Oct 10, 2021 12:17AM - edited Oct 10, 2021 12:19AM by morrigan_2575

"I'm not familiar with the differences between Penguin and Dignicap. What do you mean by automatic system? "

Dignicap is cooled via a machine that pumps freezing cold water through the cap. With the other system the caps are frozen and, you have to change them out as they thaw in order to keep the head cold.

With Penguin and others you generally need a helper for the caps.

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Oct 10, 2021 08:09AM swimgal wrote:

Thanks, Morrigan_25.

Dx 6/10/2021, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (FISH)
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Oct 13, 2021 05:45PM kellywilk wrote:

Hello team — I start chemo next Tuesday. I will be getting Taxol (12) and AC (4). I am seeing success with Taxol here but what about AC? I know that's particularly brutal across the board, including hair loss. Thanks so much, Kelly

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Oct 13, 2021 06:49PM AMG2 wrote:

Hi Kelly, I'm sorry for what you have to go through. I think I've seen toward the beginning of this thread some ACT successes as well as failures. I am not going to be able to tell you too much about success with taxol plus AC, as I am taxol herceptin, so no personal experience.

That said, what options do you have available to you? I am using Penguin, and my rep, who has had bc, had, I think more than taxol and her2 monoclonals for chemo, and also used penguin, was very upfront with me on success rates with various protocols. You might try giving them a call, if that is something you would be able to do. You have to have someone help you, and I think they offer this service for a fee, assuming you can have a visitor with you.

I didn't ever look into systems that don't rely on dry ice and a capper (my daughter is mine) because my center doesn't have that available.

I hope some ACT people can chime in here and help you directly.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/3/2021 Lumpectomy: Right Chemotherapy 9/1/2021 Taxol (paclitaxel) Targeted Therapy 9/1/2021 Herceptin (trastuzumab) Radiation Therapy 12/14/2021 Whole-breast: Breast Hormonal Therapy
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Oct 27, 2021 08:09PM NinaCA wrote:

Hi, I was Just got told I will be starting Taxol, weekly, for MBC, with a lobular focus. My MO discussed using a Paxman Cold Cap that is available at two Kaiser facilities. The question is whether I should go that route or just take my chances? What are the pros and cons? I will have to travel further if I want the cold cap. Is it done before or during or both when I have the infusion? My MO has said I don't need a port at the moment. I had a port for my initial BC, no cap, and lost all my hair but also was taking AC, in 1998. Thanks, Nina

Dx 2/1998, IDC, Left, 5cm, Stage IIIA, ER+/PR+, HER2- Dx 1/2003, Stage IV, metastasized to liver, ER+/PR+, HER2- Dx 7/2015, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Dx 1/2020, ILC/IDC, Stage IV, metastasized to liver/other, ER+, HER2- (FISH) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Chemotherapy Xeloda (capecitabine) Surgery Surgery
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Oct 28, 2021 10:06AM claire1973 wrote:

Hi Nina,

I'm in San Francisco, so we are neighbors. :) I did 12 weekly taxol and used the cold cap. I kept most of my hair....on my head. I last ALL of my other hair. My MO said I would have lost all of my head hair as well. I used the Dignicap which is plugged in, so you do all of the cold capping onsight for that one. Other people I've heard from on this site did Penquin Cap which is manual, so you can go home wearing it. For Dignicap, I was at the hospital for infusions from about 4-5 hours all in. Does Paxman plug in?

I think if you take your chances, you will probably lose your hair. I'm glad I did the cold capping. I'm also glad I had the port for the weekly taxol. My veins don't like to heal, so I would have had bruises all over myself from the IV.

Best of luck for getting through it without incident. Call me if you need any help, I can happily come there and help you.

Claire (415)515-8063

Dx 12/15/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR-, HER2+ Targeted Therapy 1/7/2021 Herceptin (trastuzumab) Chemotherapy 1/7/2021 Taxol (paclitaxel) Surgery 4/21/2021 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 1, 2021 10:25AM Calinana4 wrote:

Hi Nina. I did the Paxman at a Kaiser location which was a bit further than the facility I normally went to. It is all done on site while you are having the infusion. Does add some extra time to procedure but I felt worth it. At the time I started itwas fairly new at Kaiser so I think the first session wasn’t fitted as tightly as it should have been, resulting in hair loss at crown of head. I ended up keeping about 40%. Watch the Paxman videos and make sure no bubbles are left. Good luck!

Shirley

Dx 2/23/2021, ILC, Right, 2cm, Stage IIB, Grade 3, 3/5 nodes, ER+/PR-, HER2- Surgery 3/29/2021 Mastectomy: Left, Right Chemotherapy 5/10/2021 Radiation Therapy 8/10/2021 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 9/18/2021 Arimidex (anastrozole)
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Nov 2, 2021 03:27AM NinaCA wrote:

Thanks Shirley. I've chosen my closest Kaiser (not the ones with Paxman) and know I can get a portable Penguin cold cap (they were the originators before Paxman went in to facilities) delivered to me along with " white glove"service where someone is assigned to stay with you and change your cap every 30 min. for several hours. It's done with dry ice. I don't know if I want to "bother" since I may be on Taxol longer than the usual 12 weeks, I'm "as needed" depending on scan results. I have to decide if I want to "fuss" with all the added stuff or have more unstructured time to myself to do whatever. At 75, my hair is not as important as it once was and now I can go wig shopping!. Still not totally decided.

Dx 2/1998, IDC, Left, 5cm, Stage IIIA, ER+/PR+, HER2- Dx 1/2003, Stage IV, metastasized to liver, ER+/PR+, HER2- Dx 7/2015, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Dx 1/2020, ILC/IDC, Stage IV, metastasized to liver/other, ER+, HER2- (FISH) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Chemotherapy Xeloda (capecitabine) Surgery Surgery
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Nov 23, 2021 06:34PM Booklover12 wrote:

I am starting chemo soon. Four sessions, three weeks apart of Cytoxan and Taxotere. I’m thinking of trying a cold cap but concerned about how my dark brownhair would look with all gray roots coming in. I know during the pandemic I had a couple of inches of gray. I almost think I would look better with a wig than two toned hair.

Any opinions? The place I’m going to for chemo doesn’t offer anything. I can travel to another center about 40 minutes away, but with the extra time it will take to get there and the extra time for treatment I’m not sure it’s worth it.

Dx 11/8/2021, IDC: Tubular, Left, 2cm, Stage IB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Nov 24, 2021 06:27AM kaylie57410 wrote:

Hi Booklover-I was in your shoes over 4 years ago facing same chemo protocol of cytoxan and taxotere--I used Penguin Cold Caps and my daugher was my partner- you do need a partner --I saved 80 percent of my hair and lost another 5 percent thru ongoing shedding for a few months- I looked normal thru it all and for me was totally worth the work ,time and cost to keep my privacy that I was going thru treatment, I have strawberry blond hair that have lightly touched up for years so the roots didnt show much-I did paint on my usual color product--Loreal to just the new growth after about 6 weeks and it was fine- I have read some gals with darker hair used Topik powder in the same shade as their own with good coverage.

I suggest you read thru this thread going back a ways- lots of good info ,advice. It seems the TC protocol can do well with capping--it is the Adriamycin--Red Devil part of the ACT protocol that can be tougher on hair retention

It comes down to personal choice and what your goals are. If you decide to go ahead with Penguin- ask to rent previously used caps-they are sanitized and consideraably cheaper to rent- the company does not tell you this upfront-they are a business afterall

whatever you decide-know you will get thru it day by day--I m 4.5 years out and life is 98 percent back to normal--stick with this forum - is invaluble to correspond with others who can relate and be supportive of all aspects of your treatment--Thanksgiving hugs to you,,Kaylie{Candace} in Vermont

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Nov 24, 2021 06:33AM kaylie57410 wrote:

Addendum--I see you are HER+--will you have to go thru addtional treatment for that ? that may help you make the best choice for yourself as prolongs the infusion process timeline---I have read that the drugs used for that are kinder on your hair as to retention---C

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Nov 24, 2021 11:39AM claire1973 wrote:

Hi Booklover,

I am glad I did the cold cap. I started out wanting to cold cap because i didn't want to look as sick to my kids (15 and 16 at the time). In the end I was grateful I made the choice because it maintained my privacy. I ran into about 4 or 5 acquaintances during chemo...just around town...I wasn't prepared to go into a whole story of the cancer/treatment. Thankfully, I didn't have to. Yes--my roots were GREY GREY GREY during that time....wasn't ideal, but totally a personal choice.

You can't make a wrong decision...just what works best for you. :)

Dx 12/15/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR-, HER2+ Targeted Therapy 1/7/2021 Herceptin (trastuzumab) Chemotherapy 1/7/2021 Taxol (paclitaxel) Surgery 4/21/2021 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 24, 2021 12:08PM Camama2 wrote:

Hi Booklover,

I've been through chemo twice, the 1st time was 15 years ago with TAC and yes I lost my hair. The 2nd time was last year with Carboplatin and Taxotere. I used the Penguin Cold Cap and did not lose my hair. After the 1st chemo I suffered partial permanent hair loss. I know it is very rare and my hair dresser of 40 years has worked with dozens and dozens of chemo clients and I'm the only one whose hair didn't come back fully. I could handle being bald for a few months but didn't want to take the chance that I might react the same again and then have total permanent hair loss (it's the taxotere that tends to do this). Going through chemo isn't easy but it was better the 2nd time to not have to deal with the depression of being bald when you already feel like $hit. My oncologist told me if I hadn't used the cold cap I would have been bald. Good luck with what ever decision you make. You will get through it!

Laurie

Laurie Dx 6/24/2005, IDC, Right, 5cm, Stage IIIB, Grade 3, 2/17 nodes, ER-/PR-, HER2- Surgery 7/21/2005 Lumpectomy; Lymph node removal Dx 4/29/2020, IDC, Right, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (IHC) Surgery 5/13/2020 Mastectomy: Left, Right; Prophylactic mastectomy: Left Chemotherapy 6/3/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy TAC Radiation Therapy
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Nov 24, 2021 12:56PM green804 wrote:

I’ve done 2 of my 4 TC infusions with the penguin cold cap. My MO said all my hair would be gone by now without the cold cap. I don’t love the grey roots but it would take almost 2 years to get my hair back to where it is today. I couldn’t deal with that. I use a root touch up spray on the most visible roots. It seems to be working. The not being able to use heat is the hardest part for me.

Dx 10/14/2021, IDC, Left, Grade 2, ER+/PR+, HER2- Chemotherapy 11/2/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Nov 24, 2021 09:08PM morrigan_2575 wrote:

i cold capped during 6 TCHP. I held on to most of my hair, like 75%

Dx 1/20/2020, DCIS/IDC, Right, 4cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 2/5/2020 Herceptin (trastuzumab) Targeted Therapy 2/5/2020 Perjeta (pertuzumab) Dx 6/19/2020, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 1/3 nodes, ER+/PR+, HER2+ Surgery 6/19/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 7/6/2020 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/10/2020 Whole-breast: Breast, Lymph nodes, Chest wall
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Nov 24, 2021 09:28PM JanieHS wrote:

I realize this is totally anecdotal but I used dignicap (TC x 4), lost most of the hair on top of my head (the cap never felt like it fitted correctly and the nurse assigned to do the cold cap was less than interested), but ironically when my hair on top grew back, there was/is virtually no gray. I definitely had a fair amount prior to chemo, have been coloring my hair for years (I am 67) and now I haven’t done so in almost a year. Really weird but I’ll take it.

Dx 12/16/2019, IDC, Left, 1cm, Stage IB, Grade 2, ER+/PR+, HER2- Surgery 2/10/2020 Mastectomy: Left, Right Chemotherapy 3/24/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/2/2020 Arimidex (anastrozole)
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Nov 26, 2021 01:18PM swimgal wrote:

Is there an equipment/supplies giveaway room on this site? I would like to donate my Dignicap if it would help anyone, but not sure where to post it. Thanks for any help. Or if anyone is interested in the cap feel free to private message me. I used the cap 12 times.

Dx 6/10/2021, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (FISH)
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Nov 26, 2021 09:32PM renbird wrote:

Hi everyone-

I cold capped using the Paxson system. I lost about 2/3rds of my hair, but still glad I did it. I was on Taxotere and cytoxan.

My last treatment was Feb 2021, so eight months ago. I’m almost 50.

Where I lost hair it came in dark, no grey, wavy but very soft and thin. I used to have lots and lots of hair, but it seems like a it’s just not growing in that way…

Has anyone heard of a situation where hair grows in differently for as long as mine has (8 months) but then comes back in stronger later? Or should I just accept that I now have very fine thin hair?

Thank you! -Renbird


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Nov 26, 2021 10:12PM Camama2 wrote:

Hi Renbird,

Taxotere can cause permanent hair loss, it's rare but it happens. I had taxotere 15 years ago (along with A & C) and suffered partial permanent hair loss (no cold cap back then). My hair went from a 10 (on a scale of 1 to 10) to a 2. My hairdresser of 40 years told me of dozens and dozens of women she worked with over the years I was the only one whose hair didn't come back the same. I was happy to have hair! Last year I went through a 2nd round of BC and had taxotere again (and carboplatin). This time I did Penguin cold caps. I retained most of my hair. Honestly, if I was only going to be bald for 6 to 8 months I would be okay but didn't want to take the chance to be permanently bald since I reacted to taxotere the first time. My hair is now a 1 out of 10 but I'm happy to be alive and not bald! Take care and hang in there! Sending hugs.

Laurie

Laurie Dx 6/24/2005, IDC, Right, 5cm, Stage IIIB, Grade 3, 2/17 nodes, ER-/PR-, HER2- Surgery 7/21/2005 Lumpectomy; Lymph node removal Dx 4/29/2020, IDC, Right, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (IHC) Surgery 5/13/2020 Mastectomy: Left, Right; Prophylactic mastectomy: Left Chemotherapy 6/3/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy TAC Radiation Therapy
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Nov 26, 2021 10:23PM AMG2 wrote:

Hi Booklover and Nina, I did Penguin cold caps for 12 weeks of taxol with my daughter as capper, and now, at 1 week and 2 days past my last taxol, I have at least 90% of my hair. I am now 57 and have plenty of grey hair. I found it rather hilarious that my son told me about 11 weeks in that I was going grey (been going grey for 20 years or so - started dyeing my hair so people wouldn't think I was my now 21 year old's grandma when he was in elementary school).

Anyway, yes, my roots and temples are showing, but I really, really love that I still have my head hair. I washed it today, and it felt so damn good to still have this one thing.

To any others considering capping or going through it, my scalp hurt basically the whole time which made me think my hair was going to fall out. It didn't. It did shed what seemed like big sheds at 3, 6, 7 and 10 weeks. I think that it just seemed really big because of washing only 2x per week and barely brushing it. (You really do get used to doing this). It is a bit thinner on the crown, but not noticeably so to anyone but me.

Scalp still hurts a little, but I barely shed any hair in the shower this morning.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/3/2021 Lumpectomy: Right Chemotherapy 9/1/2021 Taxol (paclitaxel) Targeted Therapy 9/1/2021 Herceptin (trastuzumab) Radiation Therapy 12/14/2021 Whole-breast: Breast Hormonal Therapy
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Nov 26, 2021 10:37PM AMG2 wrote:

Hi Claire, it's good to see you, and Swimgal, too!

I really do feel like my youngest was pretty freaked out by the visible effects of the neuropathy I was having from chemo (couldn't walk properly some days actually until today). I could almost feel his stress from watching me stumble around the kitchen. It wasn't a response I really anticipated. I think it would have been much harder on him to have to watch me go bald, too.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/3/2021 Lumpectomy: Right Chemotherapy 9/1/2021 Taxol (paclitaxel) Targeted Therapy 9/1/2021 Herceptin (trastuzumab) Radiation Therapy 12/14/2021 Whole-breast: Breast Hormonal Therapy
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Nov 27, 2021 09:22AM Hippmark wrote:

Thank you for the information on cold caps. I will be having surgery soon and will also need chemo. I am looking at Dignicaps because I don't have anyone to help with the Penguin caps. I could go with the white glove service, but I see that is an additional $450 a week for service. I already have some permanent bald spots (hidden) under my hair due to Lupus. It was very hard to lose that. So I would like to try to preserve what I can from chemo. I know it will be hard to adjust to them, but none of this is easy is it? I will need to go to a different center for the chemo portion as my group does not offer dignicap. That complicates things, but it is only a few miles away.

I would be grateful for anyone who has updates from those choosing the same or similar treatment.

DX 10/29/21, DCIS/IDC, R 1.8 CM, Grade 2, ER+, PR-, HER2- Surgery 12/23/21 Lumpectomy DX 1/10/22 IDC Grade 2, 2.2 cm, Stage 2B ,1/1 node
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Nov 27, 2021 10:37AM claire1973 wrote:

AMG2,

How is the neuropathy now? I felt very lucky (in my unluckiness) that I didn't have too much neuropathy--mostly just numb finger tips.

Hippmark,

I used Dignicap and was very happy with it and very thankful there was a trained nurse who did the heavy lifting. The cold was well very cold--but it only bothered me on my head for the first 10-20 minutes. It was very painful for my ears for the whole time. It was just hard to protect the ears for me. I had 12 weekly taxol infusions. I had the normal shedding every few weeks and lost about 20% or less of my hair. Interestingly, once it stopped shedding--it has totally stopped falling out. I don't even have the usual small amount of hair in the drain after I shower. My last infusion was March 25th. The hair I lost is growing in and is maybe about 3 inches long, so I am glad I have all of my other hair training that new crop. My oncologist is an active advocate for trying to get Dignicap covered by insurance because of the mental health issues that come for patients with cancer who then have to manage total hair loss and the feeling of empowerment enabling women to preserve their hair.

For me--I was fully prepared for it to NOT work but wanted to try anyway. I'm glad I did.

Dx 12/15/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR-, HER2+ Targeted Therapy 1/7/2021 Herceptin (trastuzumab) Chemotherapy 1/7/2021 Taxol (paclitaxel) Surgery 4/21/2021 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 27, 2021 12:04PM Hippmark wrote:

Thanks. That helps! There is a subsidy of $1000 (if you qualify) on Hair To Stay towards treatment with Dignicap. For anyone interested in that. I'm going to apply. I agree though, that it should be covered as hair loss for many (not all) is another factor in the equation of coping.


DX 10/29/21, DCIS/IDC, R 1.8 CM, Grade 2, ER+, PR-, HER2- Surgery 12/23/21 Lumpectomy DX 1/10/22 IDC Grade 2, 2.2 cm, Stage 2B ,1/1 node
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Nov 27, 2021 05:11PM AMG2 wrote:

Hi Claire, my foot issues come and go, which makes me think that is just going to be temporary. I can walk almost normally today. My fingertips are still numb, and my right outer forearm is numb to the elbow. Left hand and foot are slow to respond, but getting faster, so I think most everything should return to normal. Fingertips have been numb and stayed that way since week 6, so I'm not as hopeful about getting sensation back in them, but they function just fine.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/3/2021 Lumpectomy: Right Chemotherapy 9/1/2021 Taxol (paclitaxel) Targeted Therapy 9/1/2021 Herceptin (trastuzumab) Radiation Therapy 12/14/2021 Whole-breast: Breast Hormonal Therapy
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Dec 20, 2021 03:33PM TeeHa2 wrote:

Hi everyone,

I have 4 rounds of TC, I have my 3rd chemo session on Dec. 28th and last one on Jan. 18th. I'm using DigniCap and have lost probably 70% of my hair. My hair was very thick and during my first chemo, the cold cap didn't bother me at all (even though the temp was turned up to almost max level), I think I lost a significant amount of hair because my thick hair prevented the cap from keeping my scalp cold.

My hair is thin now, especially on the crown (though I'm not completely bald, I just have a funky comb-over situation up there :) I will continue the cool cap for my 3rd chemo session on Dec. 28th. At this rate of hair loss, I'm afraid my hair will be way too thin for me to do the cold cap on my last round on Jan 18th.

Did anyone continue to do the cold capping even when your hair was extremely thin? And if so, did you do anything to protect the spots that have almost no hair?

I'm really hoping to be able to do the cold capping on my last session. I feel like if I stop, that would undo any benefits gained from the cold capping I've done so far.

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Dec 20, 2021 03:48PM Hippmark wrote:

Hi TeeHa2. I'm so sorry the Dignicap did not work for you as well as you hoped. I plan on using it for my chemo when I start in January. I have medium but fine hair. The only thing I have seen but not studied, is that some people wet their roots with a spray bottle and lightly comb it down before the Dignicap is placed to get your hair as close to the scalp as possible. Perhaps you are already doing this, but I wanted to mention it in case it might help.

DX 10/29/21, DCIS/IDC, R 1.8 CM, Grade 2, ER+, PR-, HER2- Surgery 12/23/21 Lumpectomy DX 1/10/22 IDC Grade 2, 2.2 cm, Stage 2B ,1/1 node

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