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Sep 9, 2014 06:41PM
Sep 12, 2014 04:04PM
I've used Latisse on and off for years. When I found out my ILC was back after 6yrs this past June, I started using it again every day (lining my top lashes all the way across AND using an extra drop or two to "color in" my brows from end to end). I've finished 9 of 12 weekly Taxol treatments and my lashes and brows look great, though what I have right now are definitely a result of Latisse and not my regular lashes (which are definitely gone). I have light gray blue eyes and haven't had any issues with darkening. As others stated above AND an RN told me from a training she attended on Latisse, unless you're using it as eye drops for an extended period of time (which of course you never would), your eye color will not change.
As for your fingers, toes and nails, I've kept mine painted black with a nailtique base coat the entire time, and I strap snack sized ziploc bags of ice to them over very thin cotton socks and gloves the entire hour the Taxol is dripping (to prep the bags, fill them with 1/3 rubbing alcohol and 2/3 water, then lay flat them flat in the freezer. The alcohol makes them more pliable). You can use ace bandages to secure them on your feet and then place bags by your side and kind of squish your fingers into them). I always bring extra bags in case I need more ice and transport them in a tiny cooler. The ice isn't fun, but its worth it. I've had zero issues; finger and toe nails all look as healthy as ever. I also think the ice has possibly helped with neuropathy, since I haven't had that either. FYI- I've heard the boots don't get or stay cold enough, so that's why I went with the homemade ice route. :)
If you have problems with mouth sores, you can also try holding ice chips in your mouth. So far that's worked for me as well.
I have no experience with the cold caps. My dr wouldn't allow me to use one because there is apparently a very very rare chance of BC returning in the scalp, so he said better to be safe then sorry and let the chemo get into my scalp as well.
I hope at least some of this info helps!
ILC 10/2007 age 36 (BMX, 410 gummies, 3 ½yrs Tamox, Oncotype 19). ILC recurrence 6/2014 age 43 (6mos Taxol & FAC chemo, ALND, LUMP, biopatch left sac to keep implant in place, 33 Rads, Oophorectomy & 10yrs Femara). I also had Thyroid Cancer in 2004!
10/19/2007, ILC, 1cm, Stage IB, 0/1 nodes, ER+/PR+, HER2-
6/19/2014, ILC, 1cm, Stage IIIC, 11/19 nodes, ER+/PR+, HER2-