Topic: New Jersey/NYC/CT/Eastern Pennsylvania ladies

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

Posted on: Mar 27, 2012 10:24AM - edited Apr 5, 2012 05:53AM by JoanQuilts

Posted on: Mar 27, 2012 10:24AM - edited Apr 5, 2012 05:53AM by JoanQuilts

JoanQuilts wrote:

I've seen a lot of postings from women who live not so far from where I live in Central New Jersey.  Since I know that many women travel for treatment, I've been thinking it might be helpful to have a thread of our own to share resources - not only doctors but support groups, locations for Reach to Recovery, retail sources for wigs, post-mastectomy products, etc.

I'll start.  I'm Joan and I was diagnosed with a Stage 1 IDC in December, 2011.  It is my second time with bc, having undergone a lumpectomy for another Stage 1 19 years ago.  The first time around, in 1992, I had my lumpectomy at Mt. Sinai Medical Center with Dr. Tartter and chemo with Dr. Ana Ferari, formerly of Mt. Sinai and now of NYU (I think).  This time, I had a bilateral mastectomy with Dr. Gendler at Morristown Medical Center, my PS is Dr. Isaac Starker and am undergoing chemo with Dr. Fein in Somerset, who is affiliated with St. Peter's.

Anyone out there for whom this might be a useful thread?

Joan

Diagnosed 10/92, lumpectomy, CMF. Diagnosed with second primary 12/11 (19 years later!). . BMX with TEs to implants; 6 rounds of TC. Dx 12/6/2011, IDC, <1cm, Stage I, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 1/5/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/5/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Dec 21, 2017 12:05AM thinkingpositive wrote:

sandcastle... sorry didn’t realize it wasn’t for you. I guess everyplace has people who aren’t happy and people who are. Do you mind if I ask who the doctor is that people aren’t pleased with.

Dx 9/2014, DCIS/IDC, Left, 1cm, Stage IIA, Grade 3, 1/17 nodes, ER+/PR+, HER2- Surgery 10/22/2014 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left); Reconstruction (Left): Silicone implant, Tissue Expander; Reconstruction (Right): Silicone implant Chemotherapy 12/4/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Femara (letrozole)
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Dec 21, 2017 06:46AM sandcastle wrote:

ThinkingPos....Sent you a PM.  Liz

Surgery 12/8/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx DCIS, Stage 0, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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Dec 21, 2017 07:26AM dtad wrote:

sandcastle...in north jersey I would recommend any of the university based hospitals. Hackensack, Robert Wood Johnson or MSK in Basking Ridge. Good luck and keep us posted.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Dec 21, 2017 02:28PM JoniB wrote:

sandcastle - I used to get my imaging done at Barnabas in W. Orange, They called me back because of calcifications and told me I needed a biopsy. I quickly found another facility when the radiologist did not know what type of biopsy I needed and looked to the ultrasound tech for the information. I have been treated at Weill Cornell (first cancer) and NY Presbyterian (second cancer). The only NJ facility that I had treatment was radiation of MSK Basking Ridge. They do not do surgery at Basking Ridge. I called my radiologist when I was diagnosed the second time and she recommended an MSK surgeon and that surgeon operates at Overlook! I was very surprised about this.

dtad  - I never realized we lived so close  to each other. You recommended Dr. Feldman to me. I always thought you lived in Manhattan!          

Two time breast cancer survivor. Recurrence after 8 years. First time 3 mm ER-, PR-, HER2+. Recurrence 4mm - triple positive.
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Dec 22, 2017 07:48AM dtad wrote:

JoniB..no I live in New Providence but all my docs are in the city. I'm a firm believer of utilizing these amazing facilities. We are very lucky to be so close to them. Good luck to all.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Dec 29, 2017 01:56PM SK2008 wrote:

Hi

Read some interesting comments about overlook hospital. I have been going to Medical Diagnostics associates in Overlook since 10 years. In 2008, I was diagnosed at Stage III with positive lymph nodes and 4 years ago, it spread to the bones. I had surgery at St.Barnabas but chemo and Cyberknife treatments at Overlook.

So dtad, are you referring to the main hospital or Medical Diagnostics for cancer treatment? I am not a medical professional, so it will be helpful to know if I am doing the right thing by going here. What kind of experience did you have at Overlook? Who was your doctor? Any information would help!

Happy holidays to all.

Sandy.


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Dec 30, 2017 07:09AM dtad wrote:

Hi all...Many family members, friends and myself have had awful experiences there. IMO when they were acquired by Atlantic Health they fell to the bottom of the barrel. They tout themselves as a primiere neurological hospital but my dear friend had a ruptured brain aneurysm and had a terrible experience there too. I have not gone there for many years. When people ask me for recommendations I always tell them to go into the city. For those who refuse I recommend a university teaching hospital in NJ. My advice to you is to go to one of the major NYC facilities to get a second opinion. Once you find out what their protocol is for you, you can then make a decision. Hope this helps. Happy New Year!
Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jan 29, 2018 03:07PM Jenwith4kids wrote:

Hello NJ friends!! It's been a long time since I've posted! I'm four years out this month!! So good to have so much of this nightmare behind me. I'm ready for 3d tattoos and I'm wondering if anyone knows anyone in the NY, NJ area who is good. My PS gave me the name of Marie Barbuto (www.skincareofnj.com) but I'm not impressed by her website or the before and after photos.

Thanks!!

Jen

So many changes since 1/8/2014 - Much good has come from the bad, and I do remember to allow myself the fact that "it's okay to not be okay". Looking forward to having this further and further behind me each day. Dx 1/9/2014, IDC, 2cm, Stage IIIA, Grade 2, 5/14 nodes, ER+/PR+, HER2- Surgery 2/13/2014 Lymph node removal: Right, Sentinel Surgery 2/13/2014 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/13/2014 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/19/2014 AC Chemotherapy 5/14/2014 Taxol (paclitaxel) Surgery 9/1/2014 Prophylactic ovary removal Radiation Therapy 9/7/2014 Lymph nodes Hormonal Therapy 9/11/2014 Arimidex (anastrozole) Hormonal Therapy 3/4/2015 Femara (letrozole) Surgery 4/26/2015 Reconstruction (left); Reconstruction (right)
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Feb 1, 2018 04:43AM Janetanned wrote:

Hi Jen

I used Mandy Sauler 6 years ago. At that time she worked out of my PS's office (UPenn) 1 day a week. She also has a practice in NYC. I really liked her bedside manner and her work. My tattoos still look great. She matched the ink to my skin color so they look very natural and much like the originals. I believe she has multiple locations and other artists working with her.

Also, keep in mind that often the before and after pics that are posted on these sites are taken on the same day, when the tattoo is fresh. I found that the color was darker right after the tattoo procedure and that the area was also more irritated looking, so the real results are not obvious for a few days to weeks after the procedure when everything calms down and the colors look more natural.Mine faded slightly, but did not require a touch up, which she offered if I was not satisfied with the end results. Six years later and I'm still happy with how everything turned out.

https://www.saulerinstitute.com/our-team/mandy-sau...


Janet 11/10/11 BMX/DIEP reconstruction, 1/6/12- 4 AC DD followed by 4Taxol DD, followed by 33 rads, 10yrs hormone blocker Dx 10/11/2011, ILC, <1cm, Stage IIIA, 4/30 nodes, ER+/PR+, HER2-
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Feb 5, 2018 07:27PM Jenwith4kids wrote:

thanks Jane! I could totally get to NYC. My sister lives near one if her offices in PA too. I've decided to go to the consult for the place my PS recommended... then I'll take it from there.

So many changes since 1/8/2014 - Much good has come from the bad, and I do remember to allow myself the fact that "it's okay to not be okay". Looking forward to having this further and further behind me each day. Dx 1/9/2014, IDC, 2cm, Stage IIIA, Grade 2, 5/14 nodes, ER+/PR+, HER2- Surgery 2/13/2014 Lymph node removal: Right, Sentinel Surgery 2/13/2014 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/13/2014 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/19/2014 AC Chemotherapy 5/14/2014 Taxol (paclitaxel) Surgery 9/1/2014 Prophylactic ovary removal Radiation Therapy 9/7/2014 Lymph nodes Hormonal Therapy 9/11/2014 Arimidex (anastrozole) Hormonal Therapy 3/4/2015 Femara (letrozole) Surgery 4/26/2015 Reconstruction (left); Reconstruction (right)

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