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Oct 19, 2015 04:03PM
Oct 19, 2015 04:05PM
I was indecisive whether I should use the cold caps. I didn't know if I was up for the cost and the amount of work it required. Also, I thought I would be working throughout chemo and I didn't want to have to deal with greasy and un-styled hair in an office environment. Then I found out that I would be allowed to work from home. My husband thought it could be worth to try and whatever my decision, he was on board and willing and able to be my cold capper and my Mom was coming to stay with us for a few weeks, so I had two helpers. My MO didn't have much experience with cold capping patients, but did not have any contraindications for me and didn't mind if I tried. I started reading the Cold Capping thread and asking some questions and then Hope49 contacted me and offered to tell me about her experience. She also arranged for me to obtain all the necessary supplies from a previous cold capper in our area. I cannot tell you how helpful this was to have all the supplies already put together, and to have questions answered over the phone - thank you again, Hope49!
Today I am exactly 5 months PFC and nobody can tell that I went through chemo by just looking at me. My MO's PA was astounded that week after week I was coming in for my infusion with a full head of hair. I have been contacted twice already by my MO's office asking if I could talk to two other patients about my experience. I replenished the supplies and passed them on to one of these ladies.
I had minimal shedding throughout my chemo and I am one of the cappers who started shedding mostly after completing the infusions. I don't have any bald spots, just overall thinning but not noticeable to others, just me (at least nobody dared to tell me ). I have new growth above my ears and at the nape of my neck. All in all, I am VERY HAPPY that I gave cold caps a try.
This is about 10 days before first chemo, after wash and not styled. Sorry for the gloomy face, I was not in a great mood thinking of chemo:
This is the same day, still not styled, back of my head:
This is one week PFC, the day of wash. I do not see much difference from before chemo, even though I admit - I was collecting the hair that has fallen in a zip-lock baggie and it looked like I lost 5-10% of my hair by that time:
And the top of my head, one week PFC:
And the back, one week PFC:
And this the wash day, almost 16 weeks PFC:
This is the top:
This is the back:
And for final showing, this is my hair after some curling iron on the ends, with a smile!
Saved my hair with cold caps.
1/4/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
1/12/2015 Lumpectomy: Left; Lymph node removal: Left, Sentinel
1/17/2015, IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH)
2/2/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement
3/3/2015 Herceptin (trastuzumab)
3/3/2015 Taxol (paclitaxel)
6/1/2015 Reconstruction (left): Tissue expander placement
6/8/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
9/30/2015 Reconstruction (left): Silicone implant
3/8/2016 Reconstruction (left): Silicone implant
6/6/2016 Prophylactic ovary removal; Reconstruction (left): Fat grafting
10/10/2016 Reconstruction (left): Fat grafting
7/17/2017 Reconstruction (left): Fat grafting