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All TopicsForum: Managing Side Effects of Breast Cancer and Its Treatment → Topic: Neuropathy Starts Years After?

Topic: Neuropathy Starts Years After?

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Jun 9, 2017 07:16AM

internutz1 wrote:

Looking for anyone who may have experienced neuropathy years after finishing treatment. I am days away from my 5 year anniversary and started to get "pins and needles" in my affected side hand for no other reason such as diabetes, slept on the arm, or any of the myriad of ways it could be caused.

Seeing the onco in a few weeks, just wanted the real scoop from real people who may have experienced this. Thank you....

The best steel must go through the fire. Dx 6/25/2012, IDC, Right, 2cm, Stage IIB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/25/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 9/21/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jun 9, 2017 09:08AM MinusTwo wrote:

internutz - sorry I don't have an answer, but how frustrating for you. My neuropathy started with Taxotere #4. Do you have any other risk factors? Maybe you could schedule an appointment with a neurologist. Mine was most informative.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 9, 2017 09:12PM dtad wrote:

So sorry you are suffering from neuropathy symptoms. I agree that you should see a neurologist. Good luck ad keep us posted..

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jun 9, 2017 10:21PM Dawner wrote:

Internutz, I started experiencing neuropathy 2 years out of treatment, My symptoms began in my left hand and fingers... numbness, tingling and an itch that can't be scratched, (which my Oncologist doesn't understand, sent to a neurologist, negative findings for nerve damage) the itching is horrendous!! it slowly moved up my forearm, it's been about a year since this all began with no relief!! Currently, the itching has moved to my right arm. I'm not experiencing numbness or tingling just the itching. I'm beginning to think this might be caused from meno, any thoughts? I'm going crazy!

Dx 9/15/2014, IDC, Both breasts, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+ Surgery 9/16/2014 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement
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Jul 4, 2017 08:52AM - edited Jul 4, 2017 08:53AM by Peregrinelady

This Post was deleted by Peregrinelady.
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/17/2016 Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)
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Jul 4, 2017 10:46AM Peregrinelady wrote:

internutz1, I have similar symptoms and have an appt. with a physical therapist in a couple of days to see if it might be lymphedema, even though I only had 2 lymph nodes removed. Have you seen your onco yet?
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/17/2016 Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)
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Jul 5, 2017 04:35AM Peregrinelady wrote:

After doing some research, neuropathy can be caused by Arimidex. I didn't have chemo so thought I would avoid this side effect, but evidently not. Are you taking an AI, internutz1

Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/17/2016 Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)
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Jul 30, 2017 07:47AM Fiddler wrote:

I am curious about this too. I finished my last chemo back in mid-November and in the past week am starting to have pins and needles feelings in my arms and upper back. Wondering if it can be delayed neuropathy, I was on Taxol and I know that does cause neuropathy. I had numbness in my hands and feet at the time which went away. I'm hoping this is not the start of some permanent problem because I am finally feeling better the last few months and am ready to move on!

Alana Dx 6/24/2016, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2+ Surgery 8/8/2016 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 9/26/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 10/17/2016 Herceptin (trastuzumab) Radiation Therapy 12/27/2016 Whole-breast: Breast
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Aug 13, 2017 04:44AM - edited Aug 13, 2017 04:46AM by carolincincy

I finished my chemo august 2016 (ACT). Also had partial mastectomy with lymph node removal and 25 rads. I still have neuropathy in both legs and my left arm/hand. Have tried gabapetein but didn't like the SE from that so I just deal with it every day. It's never kept me from doing anything and I keep active: swimming, walking and yoga.

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Aug 13, 2017 04:56AM BosumBlues wrote:

3 1/2 years out from chemo. It is only getting worse.

Dx IDC
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Aug 13, 2017 08:37AM AngryBird wrote:

I am still experiencing numbness under my arm where they removed ONE lymph node. Have never felt better since I had cancer in 2014. Still feel like crap pretty much 24 hours a day 7 days a week.

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