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Topic: Cold Cap Before and After Photos

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Jul 8, 2017 05:02AM

Pamela23 wrote:

Hi Ladies--

I'd like to start a thread for PHOTOS ONLY. This will be a great reference for newbies or those who are considering cold capping. Discussions and questions about cold caps can be found in the forum: Cold Cap Users Past and Present, To Save Hair under Managing Side Effects of Breast cancer and It's Treatments.

Please post:

1. Before and after pic

2. Chemo regimen you were on

3. Brand of cold cap

9/15/2016, IDC, Left, 5mm, Stage IA, Grade 3, ER+/PR+, HER2- Dx 9/15/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 10/5/2016 Lumpectomy: Left Chemotherapy 11/15/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/19/2017
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Apr 2, 2018 06:29PM TWills wrote:

It looks amazing, do you mind saying how much it costs? Installation and the future visits.

Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/13/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 2/2/2017 AC + T (Taxol) Surgery 7/10/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/31/2017 Whole-breast: Breast, Chest wall Surgery 8/27/2017 Hormonal Therapy 11/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/2/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Apr 3, 2018 04:22PM - edited Apr 3, 2018 04:23PM by angiepie

The hair piece was $1000 (Similar to Microline which is $3000 but my guy has his own made so its cheaper). Custom made from human hair. He then colored and highlighted it based on pictures I showed him of my hair. Installation was $500..that included wash, cut, installation, glass of wine etc :) The piece was pretty long, I had him cut about 2 inches off then layer in. It looks identical to my former hair/hairstyle. I go back every 4-6 weeks (every other time is $100 for him to move the piece up and re-tighten. This includes any cutting of my real hair. And then every other time, he completely takes it off and then reattaches it to different pieces of my hair). I paid $1500 for cold caps and my friends generously donated and paid for all that so I figure this is my cold capping cost I had planned to spend myself..plus not having my hair done from July-March saved a lot of money. Just got sick and tired of crying about my hair and feeling bad about myself. My confidence is restored!! I had no idea how much i identified with my hair.

* At first my husband balked at the price and I said, don't even..I need to do this for me....

Dx 7/26/2017, IDC, Right, <1cm, Stage IB, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 8/25/2017 Lumpectomy: Right Surgery 9/8/2017 Lumpectomy: Right Radiation Therapy 9/22/2017 Multi-catheter: Breast Chemotherapy 10/7/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 3, 2018 07:06PM TWills wrote:

Thank you for the info, it really does look amazing:)

Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/13/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 2/2/2017 AC + T (Taxol) Surgery 7/10/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/31/2017 Whole-breast: Breast, Chest wall Surgery 8/27/2017 Hormonal Therapy 11/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/2/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Apr 6, 2018 06:07PM - edited Apr 8, 2018 05:10PM by Pamela23

Cali58--Did you purchase a halo? I bought the 16" and she trimmed it for me. Now that my hair is even shorter than last August from falling out, I want to go get another 1-2" off my halo. Here is me without it and with it. I wear a hat most days out, but socially put on my halo. It photographs better than my real hair and I feel it takes 5 years off me!

March 2018

with halo:

Hanging in there--hope this gives yo a reference--you should post some pics!!

Angie--I LOVE your topper!!! My struggles is how short my front & sides are compared to prechemo. I went from an 80's mullet the first 6 months to now more of a Rachel from friends 'do (90's) now. I'm thinking a decade every 6 months, right? Hopefully 1 year to go and I'll have the look I'm going for.

9/15/2016, IDC, Left, 5mm, Stage IA, Grade 3, ER+/PR+, HER2- Dx 9/15/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 10/5/2016 Lumpectomy: Left Chemotherapy 11/15/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/19/2017
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Apr 7, 2018 02:58AM Travel_Girl wrote:

Angiepie - love it! I wear a topper as well, just a clip in - thought about the permanent style like yours - will investigate --

Dx 2/6/2006, IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR-, HER2- Surgery 2/9/2006 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 3/31/2006 Hormonal Therapy 6/1/2006 Dx 8/4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER-/PR-, HER2- (FISH) Chemotherapy 8/23/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/27/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Apr 9, 2018 05:12AM SarahSC wrote:

Just finished my last round of chemo on Tuesday April 3rd. I had 4 rounds of T/C. I used penguin cold capping. I had the rep come out and stay for 3 hours to show my husband exactly how to do it and then he took over from there. I cold capped 1 hour prior to chemo, the 4 hours of chemo and then 5 hours after chemo for a total of 10 hours : ( It was long and hard but i was able to tolerate. I have a low pain tolerance and was really scared the first time but it was not as bad as i thought. I took 3 advil and 1 tylenol 1/2 hour prior to first cold cap. I tried to do everything by the book or at least what my cold capping rep said. I only washed my hair once a week, combed hair once a day, no heat, no products, no hats or working out that would cause sweat on head. I used room temp/cold water to wash it and used the hand held shower. I had to wear a rash guard in the shower because it was so cold. honestly the chemo day was easier than all the maintenance after. i took some before and after pics. These are not the greatest pictures but hopefully they can give u an idea. I know i will continue to shed for awhile post chemo but i'm happy with the results so far. I highly rec PCC.

3 days prior to 1st chemo infusion

after last round of chemo (4th infusion of T/C)

GOOD LUCK EVERYONE!!!!!

Dx 11/8/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 1/30/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 12, 2018 04:33AM NoRougeCells wrote:

sherryowang. So glad I stumbled on this tread. Your situation is very similar to my journey right now. Low-grade ovarian that was surgucally removed , but still needing 6 sessions of the same cocktail you had.

Today I had my second infusion. About day 18, my hair started to shed. It's been shedding a lot ever since that date ( about 5 days now). Did you ever experience a massive shed? If so, how long does that massive shed last? With the costs associated with cold capping, I want to ensure that it will work to a high degree.

Any information about your experience with cold capping, like shedding, would be greatly appreciated.

thank you,

No rouge cells

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Apr 12, 2018 04:52AM NoRougeCells wrote:

Your hair looks great! Did you experience a major shed? If so, how long does it last?

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Apr 12, 2018 07:06AM SarahSC wrote:

NoRougeCells: Thank you!! 21 days after the first chemo infusion i had a big shed that lasted about 5-6 days. It was weird seeing it come out in the comb but after that I didn't ever shed that much again. I part my hair usually on the side instead of down the middle and that is where i got my small bald spot. Its easy to hide and it was under my top layer of hair so u only see it if i pull up my top layer of hair. I corrected the problem by parting my hair down the middle so that my hair was dispersed evenly. After that I didn't shed as much. Don't get me wrong, i shed daily, but it just looks thinner (no big spots) and most people can't tell. Good luck!!

Dx 11/8/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 1/30/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 12, 2018 07:09AM - edited Apr 12, 2018 07:09AM by SarahSC

This Post was deleted by SarahSC.
Dx 11/8/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Chemotherapy 1/30/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 12, 2018 08:55PM NoRougeCells wrote:

Thanks SarahSC! My first chemo was on March 21st. Didn't have any shed until day 18 which was last Friday/Saturday. I have been shedding a ton of hair since that day. It just falls out without me even touching it. I am on day 6 of the shed and hope I start to see smaller amounts. Had my second chemo yesterday and have been following all instructions to a T.

Thank you for your response!

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Apr 13, 2018 12:46PM MamaFelice wrote:

Hi NoRougeCells! Love your name!

Just wanted to lead you to another thread that I pasted below that is active with women cold capping and sharing their experiences as well as alum answering questions and offering guidance. I think you will find great capping comrades there! I too completed 6 infusions of TC, and had great success capping with Penguin caps. I just posted my update 10 weeks PFC at the other threadand getting ready to post photos on this one. Best wishes to you, and sending giant hugs your way!., 🤗❤️

https://community.breastcancer.org/forum/6/topics/735873

Dx 5/10/2017, IDC, Right, 2cm, Stage IIB, Grade 3, 2/3 nodes, ER+/PR+, HER2- Surgery 5/25/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 9/5/2017 Mastectomy: Right; Prophylactic mastectomy: Left Dx 9/13/2017, IDC, Right, 5cm, Stage IIIB, Grade 3, 10/11 nodes, ER+/PR+, HER2- Chemotherapy 10/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 3/2/2018 Prophylactic ovary removal Hormonal Therapy 3/15/2018 Radiation Therapy Lymph nodes
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Jun 9, 2018 01:46AM Rwns wrote:

8 days past round 3 of TC. Lots of shedding, but still able to avoid the wig/scarf. Fingers crossed.

Rwns Dx 1/30/2018, IDC, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR-, HER2- Surgery 3/5/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 4/18/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jun 22, 2018 07:06PM sherryowang wrote:

Hi ladies! I posted previously in this thread. I finished chemo on July 20th 2017. I had amazing results from cold caps. I did 17 rounds of carboplatin/taxol. Here are some updated photos. My hair feels thicker than before I started chemo!


This is my most recent color and cut, 11 months post chemo.


This was roughly 6 months post final chemo

I kept my braids in for nearly 20 weeks! The hair loss was so traumatizing for me. Keep going ladies, it works, and its WORTH IT!

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Jul 28, 2018 07:14PM GoKale4320 wrote:

Hello, it's been a long time since I last posted, but I felt compelled to share some pics. I did Taxotere and Cytoxan for 4 rounds in February-April, 2017.

Before chemo - just a few weeks before I started.

2 months PFC - that's cornstarch darkened with toppik stuck to my head. I struggled with dirty hair and having to be presentable at work and thought corn starch was the way to go. Definitely don't do this! The cornstarch built up on my scalp and I had to scrape it off - taking much hair with it.

One year PFC - haircut and highlighted hair.

I used Wish Caps from Texas because it was the cheapest I could find. Customer service was not very good, but once I got through the first round, I didn't need anymore help from them.

Dx: January 2017, IDC, Stage IIa, 1/23 nodes, Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Sep 11, 2018 01:11PM - edited Sep 11, 2018 01:12PM by Fernanda2812

This Post was deleted by Fernanda2812.
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Sep 23, 2018 03:30AM - edited Sep 23, 2018 02:45PM by LillyDuff

This Post was deleted by LillyDuff.
Dx 4/25/2017, IDC, Left, 2cm, Stage IIB, Grade 3, 0/4 nodes, ER+/PR-, HER2+ (FISH) Chemotherapy 5/15/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 5/16/2017 Herceptin (trastuzumab) Targeted Therapy 5/16/2017 Perjeta (pertuzumab) Surgery 11/14/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 1/25/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/18/2018 Prophylactic ovary removal Hormonal Therapy 9/30/2018 Arimidex (anastrozole) Surgery 11/16/2018 Reconstruction (right): Fat grafting Hormonal Therapy Arimidex (anastrozole) Surgery
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Sep 23, 2018 03:39AM LillyDuff wrote:

Everyone looks great! What amazing transformations! I'm stunned how well cold capping works! Wished I knew about it at the time. Also,the hair toppers seem like a great solution. It's great to see everyone's progress! Congratulations to all! You all are strong and amazing ladies!

Dx 4/25/2017, IDC, Left, 2cm, Stage IIB, Grade 3, 0/4 nodes, ER+/PR-, HER2+ (FISH) Chemotherapy 5/15/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 5/16/2017 Herceptin (trastuzumab) Targeted Therapy 5/16/2017 Perjeta (pertuzumab) Surgery 11/14/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 1/25/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/18/2018 Prophylactic ovary removal Hormonal Therapy 9/30/2018 Arimidex (anastrozole) Surgery 11/16/2018 Reconstruction (right): Fat grafting Hormonal Therapy Arimidex (anastrozole) Surgery
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Feb 11, 2019 02:33AM - edited Feb 11, 2019 03:21AM by Poppy_Spruce

I started using Penguin Cold Caps on 12/13/2018 with my first round of Adriamycin/Cytoxan. I was scheduled for 4 rounds, every other week, followed by 12 rounds of weekly Taxol. This is me, before chemo


I unfortunately developed a reaction from my previous cancer treatments, 11 years ago, called radiation recall. My skin did not tolerate the AC and after only 2 AC, I moved on to weekly Taxols.

This is after cold capping, 2 rounds of AC


Of course, AC is the biggest, baddest boy out there, and the real shedding starts 3 weeks in. I've stuck close to the hair care guidelines, and only wash my hair 2 days before and 4 days after. I have lost a lot in the top, and scattered all over. I've been able to cover it, so far.

I'm 3 Taxol treatments in.



I've noticed less shedding with shampoos. I still have a long way to go! Prayers for all my Cold Capping Sisters out there! I will update!

This is my current look.




TCH q 3 wks til 10/31/2007 Herceptin q 3 wks til 07/15/2008 Dx 4/30/2007, IDC, Right, 3cm, Stage IIB, 1/12 nodes, ER+/PR+, HER2+ Dx 10/11/2018, IDC, Right, <1cm, Stage IIIC, Grade 3, 11/16 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 12/13/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery Lumpectomy Surgery Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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Mar 14, 2019 08:12PM - edited Mar 14, 2019 08:14PM by kathymd

Angiepie (or anyone else with the information)-- Your hair topper is beautiful! I have had only one treatment with the Dignicap and already I have bald spots on top. My next treatment is tomorrow. I know you mentioned that you were 3 months out when you got the topper piece-- my question is do you know if it would be safe to get one earlier than 3 months out? My son is graduating from high school one month after my last treatment and I would love to have it then. Thanks so much for your time.

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Mar 15, 2019 12:01AM Poppy_Spruce wrote:

kathymd,

Are you thinking of this type of Halo? http://halocouture.com/thelayeredhalo/

I know Penguin recommendations babying your hair, no wigs, no hats, etc. But I also know ladies who have used a wig for a special occasion. You could always email Halo or your cap people to be sur

TCH q 3 wks til 10/31/2007 Herceptin q 3 wks til 07/15/2008 Dx 4/30/2007, IDC, Right, 3cm, Stage IIB, 1/12 nodes, ER+/PR+, HER2+ Dx 10/11/2018, IDC, Right, <1cm, Stage IIIC, Grade 3, 11/16 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 12/13/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery Lumpectomy Surgery Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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Mar 20, 2019 03:24AM Laurenl34 wrote:

I am doing the same exact treatment. Are you doing the cold capping through the weekly taxol too? Would you say it’s been worth it?

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Mar 20, 2019 01:51PM Poppy_Spruce wrote:

Yes, as I said, due to complications, I only made it through 2 of 4 ACs. Adriamycin is really tough and according to the Rapunzel Project, Penguin has the most success with it. My shedding was the worst on AC and has stabilized through Taxol. I have read that taxene shedding tends to be more uniform, where harsher chemos cause shedding in certain areas. My thinnest is at the crown.

There will be shedding and that’s different than your hair coming out in clumps. It’s important to adhere to the hairstyling tips as well. There’s a great video on You Tube by a guy who did the whole capping thing with his girlfriend. They aren’t paid by Penguin but it was helpful for us to know what we were doing.

https://youtu.be/0plD_d7rXBs

I have 4 rounds to go and people tell me if they didn’t know I was losing hair, they wouldn’t know. I’m waiting til the end to post more pictures. Hoping that I’ve seen the worst of the shedding. It’s definitely gotten better through my shampoos.

Good luck with your treatments and capping!

TCH q 3 wks til 10/31/2007 Herceptin q 3 wks til 07/15/2008 Dx 4/30/2007, IDC, Right, 3cm, Stage IIB, 1/12 nodes, ER+/PR+, HER2+ Dx 10/11/2018, IDC, Right, <1cm, Stage IIIC, Grade 3, 11/16 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 12/13/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery Lumpectomy Surgery Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)

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