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Topic: Vaginal Estrogen after ER/PR +

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Dec 17, 2017 08:15PM

Krma wrote:

I’ve had a oomph and am taking AIs. I was 95% + for ER/ PR. My doctor gave me a prescription for vaginal estrogen. I’m concerned about the safety of use due to ER/ PR +. Has anyone used vaginal estrogens? Please let me know your experience

IDC PR/ER+, HER2- Grade 1 Dx 12/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Dec 29, 2017 04:41PM - edited Dec 29, 2017 04:42PM by macb04

I am on a specially compounded Vaginal Estradiol Suppository for 14 days, with Vitamin E and Hyaluranic Acid, then I switch to 3 or 4 times per week of a Compounded Estriol plus Vitamin E and Hyaluranic Acid thereafter. I am also on oral Bioidentical Progesterone. I had the same ER/PR as you. I get those compounded RX's from my Naturopath. It has helped the terrible dryness and loss of stretch from that tamoxifen crap. The Progesterone is to help prevent overgrowth of my uterine lining that will otherwise be likely to occur with unopposed estrogen.

It is helping. Sex had become painful, no matter what kind of lube. I also had very frequent UTI's.

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May 18, 2020 02:40AM Krma wrote:

My doctor gave me a prescription for this but I was too afraid to take it. I am on AIs not Tamoxifen so it seemed very risky to me. In the end I decided it wasn’t worth the risk. I now use KY liquid beads before sex. They are very helpful

IDC PR/ER+, HER2- Grade 1 Dx 12/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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May 18, 2020 06:10AM Jons_girl wrote:

Thank you for posting this. I just entered menopause and feel in some aspects that my body is falling apart. My gma had breast cancer and took tamoxifen for years. Then hit 7 yrs and dr said she could go off it. She too was miserable. Asked her gyn for hrt. I realize taking hrt is different. But I am scared to death to use anything even creams. Cause her cancer came back (Mets) and she’s died within about a year after that

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 7/5/2017 Lumpectomy: Left; Lymph node removal: Sentinel
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May 21, 2020 01:28PM Jrzygrl0821 wrote:

I've been using vaginal estrogen for awhile now due to frequent UTI's. It helps but leaves me with a sticky vaginal discharge. I take it twice a week. My oncologist said there is a very low risk of this type of estrogen causing a problem with hormone positive breast cancer. I trust him.. My husband notices a difference too. I also use a water based lubricant for sex and sex has never been painful. I also take a probiotic formulated for urinary health.

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Dec 5, 2020 05:46AM Jons_girl wrote:

I had a special test done (urine) for hormone levels through a functional medicine doctor. Some of my medical team including my MO are supporting estrogen cream vaginally as well as testosterone cream vaginally for my symptoms and deficiencies. My MO stated there are studies that support the body doesn't uptake the estrogen cream. But because of the testosterone and just out of caution my doctor will be running blood tests to make sure my estrogen and testosterone levels don't go up. If they do then we change amount of med.

I haven't started yet on this protocol yet. I want my breast doctors approval too. My MO has approved tho.

I'm not telling anyone else to do the above info but I'm considering the advice of my functional medicine doctor.

I’m wondering how many women who have had breast cancer safely use these products without recurrence

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 7/5/2017 Lumpectomy: Left; Lymph node removal: Sentinel
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Feb 16, 2021 02:09PM ilana_lisa wrote:

I was already in menopause when I started chemo last year (I'm 50) and am now experiencing the vaginal dryness and pain with intercourse. The fun doesn't stop! I am considering the estrogen creams but am leaning more towards vaginal rejuvenation (Mona Lisa). Its a laser treatment that promotes collagen and I hear it is highly effective. Aside from being ER+ I am not sure i feel like messing with a cream if I can just fix it altogether.

Dx 7/10/2020, IDC: Cribriform, Left, Stage IIB, Grade 2, ER+/PR-, HER2+ Chemotherapy 8/4/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/4/2020 Perjeta (pertuzumab) Targeted Therapy 8/4/2020 Herceptin (trastuzumab) Surgery 12/21/2020 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy
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Feb 16, 2021 02:15PM LaughingGull wrote:

I am interested in this too -I am about to book an appointment with a gynecologist to talk estrogen creams, for which the MO gave me her "permission". Can someone share some evidence of efficacy for the Mona Lisa treatment? Who prescribes that? Gynecologist?

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
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Feb 16, 2021 03:16PM Nsbrown54 wrote:

Hi ilana_lisa and LaughingGull - I had 3 Mona Lisa Touch treatments several years ago. My GYN suggested it. I had to be recommended to a GYN practice that had the equipment. I didn’t notice any improvement. I’m post menopausal and also had a hip replacement (which limits positions), so I don’t know if that made the difference or not. I moved, so I didn't follow up to see what else could be done or have additional MLT yearly treatment as is recommended.

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Feb 16, 2021 04:33PM Krma wrote:

I decided I would go ahead and try the Estradol (vaginal suppository). I started it 2 weeks ago everyday. Now I am down to 2x per week. It worried me so I’ve been putting it off. I really neede something though so I’m trying it. I would like to know about reoccurrence after use. I asked my oncologist and my surgeon and they both told me the reoccurrence risk is low.

IDC PR/ER+, HER2- Grade 1 Dx 12/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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Feb 16, 2021 05:06PM amanda6 wrote:

Ive been using a vaginal estrogen cream, currently estridol, for 10 years, pretty much ever since my treatment. My gyno said there was very little risk, my onco said there was some risk but it was my choice. I don't use a lot - a tube lasts me for several months...

Dx 2/2010, Left, 2cm, Stage IIIA, 4/10 nodes, ER+, HER2- Radiation Therapy 8/29/2010 Breast, Lymph nodes Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Femara (letrozole) Surgery Lumpectomy; Lymph node removal

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