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Topic: Many nodes removed and you didn't developed lymphedema?

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Apr 9, 2019 07:34PM - edited Apr 9, 2019 07:49PM by Yndorian

Yndorian wrote:

I don't know if it is the correct place to this thread but my SO will remove me many nodes and I' m worried about the posibility of lymphedema. Looking for some hoping stories.

Pd: I didn't used lymphedema thread because is a place for women who already has it .

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/30/2019 Breast, Lymph nodes, Chest wall
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Apr 9, 2019 10:18PM trinigirl50 wrote:

I had 24 nodes out. I havent developed lymphedema. I am 4 years from surgery.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/13/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Apr 9, 2019 10:21PM Simbobby wrote:

Hi Y,

I had my bilateral mastectomy in March 2018. I had 26 lymph nodes removed and my surgeon said this is not a death sentence. I went to physical therapy and wore a sleeve during the day for prevention.

I was not diagnosed with lymphedema - until today. Over the past year my tissue expander became infected and had to be removed. I also had 33 sessions of radiation after my mastectomy which can increase the risk of lymphedema.

Four weeks ago I had Free Tram Flap surgery and started physical therapy today. That is when I got the diagnosis. Don’t want to scare you - just wanted to share my experience. I thought I was out of the woods.

Wishing you best of luck

Dx 9/15/2017, IDC, Right, 6cm+, Stage IIIB, Grade 2, ER+/PR+, HER2+ Chemotherapy 10/9/2017 AC + T (Taxol) Surgery 3/29/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right Dx 4/3/2018, Right, 24/26 nodes Hormonal Therapy 4/10/2018 Femara (letrozole) Surgery 3/12/2019 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 9, 2019 11:03PM vlnrph wrote:

Feel free to put questions on the LE forum. There are many with unique knowledge who read those threads.

Our lymph systems have been compared to roads on which we drive - some people are constructed like 8 lane super highways: they can have lots of nodes taken out with no ill effects. Others, like me, are more like a dirt track and live with chronic swelling. Impossible to predict where any given individual might find themselves...

A person can remain at risk even after years without symptoms. It's good to get baseline measurements done prior to surgery, read about precautions and have an action plan ready to put in place should this ailment occur.

IDC too! 🎻💊👪🐩 🇫🇮 🌹🦋 Rt MX+DIEP 4-2011; ALND 5-2011 d/t micromets; TC X 4; tamoxifen; lymphedema 9-2011; switch to letrozole 3-2014 for 1 yr; bone mets 8-2018: Zometa, rads to spine, Faslodex/Versenio Dx 3/7/2011, ILC, 2cm, Stage IIA, Grade 2, 1/25 nodes, ER+/PR+, HER2-
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Apr 10, 2019 08:17AM Misstic wrote:

Maybe it would be good to define what is the criteria of lymphedema.

I had 11 lymph nodes removed and I have a 2 cm difference between the size of my two arms. Living in France, it is considered to get lymphedema. I wore a sleeve at night and do physical therapy once a week.

Dx 6/26/2014, ILC, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/15/2014 Mastectomy: Left; Reconstruction (left) Chemotherapy 8/23/2014 Cytoxan (cyclophosphamide), Taxol (paclitaxel) Hormonal Therapy 3/7/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/4/2016 Reconstruction (left): Fat grafting Dx 1/5/2018, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2018 Gemzar (gemcitabine), Navelbine (vinorelbine) Radiation Therapy Whole-breast: Lymph nodes, Chest wall Hormonal Therapy 1/10/2020 Faslodex (fulvestrant)
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Apr 10, 2019 08:33AM letsgogolf wrote:

I had 8 lymph nodes removed and have not had any sign of lymphedema. I also had node radiation which increases my chances of developing it.

Oncotype DX = 3. IDC with Lobular Features. Sentinel Node had Micrometastases - Estrogen 100%, Progesterone 99.89%, Ki67= 3.3% Dx 2/14/2017, IDC, Left, 1cm, Stage IB, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left Radiation Therapy 4/6/2017 Whole-breast: Lymph nodes Hormonal Therapy 6/1/2017 Arimidex (anastrozole) Targeted Therapy
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Apr 10, 2019 09:25AM - edited Apr 10, 2019 09:27AM by Yndorian

Trinigirl50 and Letsgogolf - This is wonderful!

Simbobby - sorry about your recently diagnosis. I wish you can handle it. Good luck to you too!

Vlnrph - I have been reading lymphedema forum. It is really helpful. Thanks

Misstic - of course physical therapy will be part of my life for ever now. Thanks

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/30/2019 Breast, Lymph nodes, Chest wall
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Apr 10, 2019 12:13PM - edited Apr 10, 2019 12:14PM by claireinaz

I had 11 nodes removed and nothing so far, knock wood. I'm careful never to let techs take blood, run i.v.s or do b.p. checks on my right arm. I heard that (no judgment on anyone, please know) being overweight can increase chances of getting lymphedema.


Claire in AZ


9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Apr 10, 2019 12:23PM hapa wrote:

I had 18 nodes removed and also had radiation to the remaining nodes. No lymphedema yet. My RO said for someone with an ALND these days risk of lymphedema is ~15%, but some surgeons run a much higher rate than others. He said at his cancer center, the rate is around 9% for ALND patients and radiation bumps it up to 10%. But...he also said that if caught early, it is reversible about 80% of the time, and that being in shape and doing your PT exercises during and after radiation reduces the likelihood of you ever developing it.

Lymphedema happens when an inflammatory response gets triggered in your arm and your lymphatic system can't clear it. This can happen even if you don't have nodes removed but is more common if you have for obvious reasons. I try to minimize inflammatory response by eating an anti-inflammatory diet (no processed foods) and exercising. And I have heard the same as claire about it being more likely if you are obese.

Dx 12/14/2017, IDC, Right, 3cm, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH) Hormonal Therapy 1/1/2018 Zoladex (goserelin) Hormonal Therapy 1/1/2018 Arimidex (anastrozole) Targeted Therapy 2/13/2018 Ibrance (palbociclib) Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/27/2018 Perjeta (pertuzumab) Targeted Therapy 3/27/2018 Herceptin (trastuzumab) Chemotherapy 3/27/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall
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Apr 10, 2019 01:00PM exercise_guru wrote:

I only had a few nodes removed on each side so I Can't speak directly to your question. I later found out that when they remove the nodes there is a vessel that is left behind. It can gum up and affect lymphatic circulation. I had some chording down both of my arms that caused significant restriction and loss of ROM. It was eventually resoved by going to a pt who was lymphodemia trained and used a myofascial release technique ( the barns method) I think that is important to find out if available in your area.

Also try to make sure your doc only removes nodes that are essential.

Age 42 05/15/2015 PALB2 mutation, DBL Breast Cancer Type 1A Grade 3 ER+PR+(right 1.3cm,.5cm) HERr+(left1.6 cm), 06/26/2015 BMX with TE 8/27/15 Chemotherapy TCH 12/30/2015 TAH/BSO/Reconstruction 1/29/16 Arimidex 3/1/16 Femara 5/6/16 Tamoxifen
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Apr 10, 2019 01:06PM Yndorian wrote:

Claire and hapa: thanks for your contribution. I have a normal weight so I am happy to hear that is a good thing to avoid LE. I am planning to do wathever to prevent it. Take care of yourselves ladies!

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/30/2019 Breast, Lymph nodes, Chest wall
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Apr 10, 2019 01:17PM Yndorian wrote:

Excercise guru: My armpit was positive before chemo so my SO won't even considerate another procedure than a complete remotion of nodes. Saddly mi MO says I have a high chance to develop LE. Yaggggggsss!!!

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/30/2019 Breast, Lymph nodes, Chest wall
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Apr 10, 2019 04:21PM CaliKelly wrote:

20 nodes removed , 8 positive after neoadjuvant chemo. Radiation after. No signs of l.e. Did weight training as soon as allowed by dr. I think the weight lifting helped prevent it.

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 10, 2019 07:15PM - edited Apr 10, 2019 07:20PM by Yndorian

CaliKelly - I always been a bit lazy but I've read that bounce in a minitrampolin helps to move lympha. I think I can try that

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/30/2019 Breast, Lymph nodes, Chest wall
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Apr 10, 2019 07:56PM CaliKelly wrote:

That sounds fun and doable. Put on some favorite music and go!

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 10, 2019 08:38PM Christene502 wrote:

I have lymphedema in my left leg. Went to a specialist who preformed the myofascial release technique and wrapped my leg in bandages, after that a custom compression sleeve was made for my leg.

I am really concerned about getting it in my arms. You can hide lymp in your legs with long pants and maxi dresses, not sure you can hide it when lymphedema reaches your finger tips.

My BS wanted me to have L-Dex test done, but it's not covered under Medicare.

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Apr 10, 2019 08:40PM jo6359 wrote:

I am 15 months post-op with 18 nodes removed and one positive. Went through chemo and radiation. No signs of lymphedema. I started doing myofascial release and gentle passive range of motion and stretching within 72 hours post-op. No signs of lymphadema. I did not have reconstruction. I have always been physically fit.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/15/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Apr 10, 2019 09:00PM ruthbru wrote:

I had 11 lymph nodes removed (12 years ago), so lymphedema has always been an area of real concern and mindfulness for me. When I had my surgery, there was no one around here to go to for advice, so I did a lot of studying on my own. Here are some thoughts & tips I came up with.

First, I think that whether or not you are prone to LE has mostly to do with how your lymph system handles trauma. I would say most cases (unless you are in a horrible accident or are doing really extreme activities) are neither through any virtue or fault of your own; just a matter of good or bad 'luck'.

That being said, there are many 'little' things that we can do that may reduce the risk of developing LE or minimize flares (these are for people with SNB too):

  • No BP, IVs, needles, shots etc. in that arm....consider getting a medical ID bracelet (to wear when traveling anyway). There are some really pretty ones out there that look like jewelry
  • Wear gloves when doing yard work, gardening etc.
  • Wear sunscreen when out in the sun, bug spray when out with the bugs
  • If you get a cut, scrap, bite...wash it with soap/water and slap on a bandage. If you see any sign of infection, get to the Dr. & on antibiotics ASAP
  • Be sure to switch arms when carrying your purse, hauling around anything heavy, dragging luggage etc.
  • Be careful about saunas, I avoid them, and also manicures and massages (on that quadrant of my body anyway).....not everyone does this, but that's just me
  • Keep a healthy weight
  • Keep hydrated, limit alcohol
  • Don't wear tight rings, watches, bracelets on that arm (when flying, I put my rings on my other hand & leave them on that side fro a couple hours after I land)
  • Also, be sure to keep well hydrated when flying, move your arm around a lot, make fists etc. get up & walk around the cabin (which won't be a problem if you are well-hydrated because you will have to go to the bathroom!), if someone wants to help you hoist your carry on & off the overhead, let them.....maybe think of checking a heavy bag (that's what I do)
  • When exercising that arm; start very slowly, take your time...build up weights very slowly...don't skip levels...don't do too many reps in one session. Mix up your exercises, don't work the same muscle groups every day. You may want to work with an experienced trainer (or PT) to help you construct a balanced program.
  • One thing I do want to add; after my surgery I was scared to start doing upper body. Neither my surgeon nor my oncologist could give me any good solid advice, so I talked to my GP. What he said was that I DID want to exercise my upper body, that it was important to do so as it would actually build up the lymph system, and although, of course, I should be careful and notice if my arm felt heavy/swollen etc. that I shouldn't be afraid to have it feel a little 'normal' soreness...because anytime you exercise a part of your body that you haven't been using for awhile, of course, it will feel sore. That made sense to me, and gave me 'permission' to get moving.
"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Apr 10, 2019 09:16PM - edited Apr 10, 2019 09:19PM by Yndorian

Christene502 - did you get lymphedema in your leg because of a mama surgery? I didn't know it was posible!

Jo6359 - those are wonderful news!

Ruthbru - this information is very helpful to me and I will remind it. Thank you

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/30/2019 Breast, Lymph nodes, Chest wall
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Apr 10, 2019 09:28PM Christene502 wrote:

Yndorian I got lymphedema in my leg few months after having a total hip replacement. Few years later under went a total knee replacement which got the lymphedema under control. Have flare ups once in a while now.

My BMX is scheduled May 6th.

Its nice hearing others - they haven't experienced lymphedema.

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Apr 10, 2019 10:39PM LaughingGull wrote:

Hi,

I had 6 nodes removed, these were all the nodes in my cancer side, as I had a total axillary lymph node dissection -I just had 6 nodes. And this was followed by radiation. I am one year out of surgery, and so far no signs of lymphedema. I consulted with a physical therapist specializing in lymphedema, to get a baseline measurement, and also for physical therapy to regain mobility after surgery.

The therapist didn't give me any exercises to prevent lymphedema, because I don't have lymphedema, and unfortunately there is no way to prevent it. After the first five years, your risk of getting goes down but you can still get it. Being thin reduces your chances, being overweight increases your chances. I take the precautions of not getting IVs of blood pressure measurements on that side, but that is about it. I swim, and do a bit of weight training on that side,

Best of luck to all of us who got nodes removed. May we never get lymphedema OR a cancer recurrence.

LaughingGull

ACx4, THPx4, Right MX+ALND, Radiation, Oophorectomy, Left MX (prophylactic), AI 10y (expected), H+P to complete 1y, Nlx 1y Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
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Apr 11, 2019 09:14AM Yndorian wrote:

Christene502- I glad to read your LE is under control now. Best of luck for your BMX!

LaughingGull - I wish the same thing for all of us. No LE and no CA recurrence never again.

Thank you all for your contribution

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/30/2019 Breast, Lymph nodes, Chest wall
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Apr 11, 2019 11:50AM vlnrph wrote:

Don’t start stretching too soon after surgery. Give your lymph vessels a week or two so they can recover from the trauma. Also look at the excellent stepup-speakout website.

IDC too! 🎻💊👪🐩 🇫🇮 🌹🦋 Rt MX+DIEP 4-2011; ALND 5-2011 d/t micromets; TC X 4; tamoxifen; lymphedema 9-2011; switch to letrozole 3-2014 for 1 yr; bone mets 8-2018: Zometa, rads to spine, Faslodex/Versenio Dx 3/7/2011, ILC, 2cm, Stage IIA, Grade 2, 1/25 nodes, ER+/PR+, HER2-
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Apr 11, 2019 04:47PM Yndorian wrote:

Vnlrph: 👍😘

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/30/2019 Breast, Lymph nodes, Chest wall
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Apr 12, 2019 02:19AM Newnorm wrote:

There's lots of helpful information here. I've done pretty much everything Ruthbru mentions and I've managed to avoid LE after ALND. I would recommend doing research on an LE Physio specialist. I found a great one and have been seeing her every 4-6 months to get measured. She also measured and ordered a proper fitting sleeve which I wear when I fly as a precaution. Touch wood, I keep LE away!

Dx 12/23/2016, IDC, Left, 6cm+, Stage IIIB, Grade 2, 6/17 nodes, ER+/PR+, HER2- Chemotherapy 1/5/2017 AC + T (Taxol) Hormonal Therapy 7/26/2017 Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/27/2017 Lymph node removal: Left; Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 13, 2019 01:51PM Yndorian wrote:

Anyone more there?

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/30/2019 Breast, Lymph nodes, Chest wall
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Apr 14, 2019 09:38AM sbelizabeth wrote:

I had a boatload of nodes removed, six of them with cancer. Then 37 radiation treatments. I have a small area on my wrist that seems to be a bit bigger than the other side, but nothing significant. I don't wear compression sleeves.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Apr 14, 2019 11:45AM Jsniffs wrote:

I had 39 nodes removed, 2.5 years ago. I also did radiation. I did physical therapy after surgery and have worn compression sleeves at night (although not so much anymore), but haven't had any issues thus far (knock on wood). I do qigong and yoga on a regular basis, and have kept my weight down, which I think helps. I could also just be lucky.

Original dx at 36 while pregnant. My daughter and family give me hope. You never know what you can get through until you have to. Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Apr 14, 2019 11:53AM ElaineTherese wrote:

Hi!

I had 20 nodes removed during surgery because one had tested positive before chemo. (All were clear after chemo.) I have not developed lymphadema, and I haven't really done much to prevent it. I don't wear a sleeve while flying, but I do make sure to move my arms around during the flight, just to keep things circulating. I always get my blood pressure, IVs, etc., taken on my "normal side," not my surgery side. And that's it.

Hope you're as lucky as me!

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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Apr 14, 2019 12:42PM - edited Apr 14, 2019 12:44PM by Yndorian

Thanks to you all for giving hope to me and others who have to get a surgery! Kisses

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 6/30/2019 Breast, Lymph nodes, Chest wall
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Apr 15, 2019 01:32PM Rose_d wrote:

I had 18 lymph nodes removed 7 years ago (1 with cancer) and also did radiation on that side but wasn't targeted at the axillary. No lymphedema yet (knock on wood). I am careful about no blood pressure, IVs, wearing a watch, pressure, etc. on that side but that's it. I also travel a lot and was told I should not wear a sleeve or anything while flying.

I was very very worried about lymphedema particularly given I needed radiation but have been ok so far.

Best of luck!

Rose

Dx 1/5/2012, IDC, 1cm, Stage IIA, Grade 2, 1/18 nodes, ER+/PR+, HER2- Surgery 2/7/2012 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 4/15/2012 AC + T (Taxol) Hormonal Therapy 8/31/2012 Radiation Therapy 9/16/2012

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