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Topic: Many nodes removed and you didn't developed lymphedema?

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Apr 9, 2019 05:34PM - edited Apr 9, 2019 05:49PM by Yndorian

Yndorian wrote:

I don't know if it is the correct place to this thread but my SO will remove me many nodes and I' m worried about the posibility of lymphedema. Looking for some hoping stories.

Pd: I didn't used lymphedema thread because is a place for women who already has it .

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Surgery 6/11/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes, Chest wall
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Apr 15, 2019 11:52AM - edited Apr 15, 2019 11:57AM by Yndorian

Thank you all ladies! My US shows a PCR in my armpit. The tumor is almost invisible. So my SO have the last word.

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Surgery 6/11/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes, Chest wall
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Apr 18, 2019 12:25PM Yndorian wrote:

My MO says in Argentina there is not the technology to analyze nodes during surgery. 😢

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Surgery 6/11/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes, Chest wall
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Apr 28, 2019 10:37AM Paintersdream wrote:

I had 15 lymph nodes removed during my mastectomy surgery on July 30, 2018 so far I have not developed Lymphedema. I did see a Lymphedema Physical Therapist during all my chem treatments (20 weeks) who taught me exercises to help keep Lymphedema at bay. I saw her once a week and did my home program everyday and still do. Be beautiful and be healthy

Dx 5/25/2018, ILC, Left, 1cm, Stage IIIB, Grade 1, 15/15 nodes, ER+/PR-, HER2- Surgery 7/30/2018 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left
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Apr 29, 2019 10:18AM SelenaWolf wrote:

I had 8 nodes removed and radiation to the armpit and have not developed lymphedema. I am 8 years out from treatment.


"... good girls never made history ..."
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Apr 29, 2019 12:52PM - edited Apr 29, 2019 12:55PM by Yndorian

Paintersdream a SelenaWolf - thank you and many many health years!

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Surgery 6/11/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes, Chest wall
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Apr 29, 2019 01:04PM - edited Apr 29, 2019 01:06PM by Yndorian

My own contribution. Today at the hospital y met a man who has 18 armpit nodes removed because he has a melanoma in his shoulder about six years ago. He is fine and he never heard about lymphedema. Good bless him!

Dx 9/24/2018, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 10/26/2018 AC + T (Taxol) Surgery 6/11/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes, Chest wall
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Jun 28, 2019 03:46PM Yndorian1 wrote:

BUMP!

"Only Love turns the mud into a Miracle" Silvio Rodriguez Dx 9/2018, IDC, Left, 2cm, Stage IIB, Grade 2, 4/8 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 10/17/2018 AC + T (Taxol) Surgery 6/10/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Radiation Therapy 9/1/2019 Whole-breast: Breast, Lymph nodes, Chest wall
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Jun 28, 2019 03:48PM Tmh0921 wrote:

I had 14 axillary nodes removed in 1999 and haven't developed Lymphedema.

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/14 nodes, ER+/PR+ Surgery 12/22/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/30/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/1/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/4/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jun 28, 2019 04:17PM Yndorian1 wrote:

Tmh0921: thank you for sharing! I've seen that you are scheduled to have a surgery on July, I wish you good luck and a full and easy recovery! HUGS

"Only Love turns the mud into a Miracle" Silvio Rodriguez Dx 9/2018, IDC, Left, 2cm, Stage IIB, Grade 2, 4/8 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 10/17/2018 AC + T (Taxol) Surgery 6/10/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Radiation Therapy 9/1/2019 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 7, 2019 03:41PM - edited Sep 7, 2019 04:16PM by CoppersMom

I had 11 nodes removed in 2005, and I went 14 years without developing lymphedema. I was careful. Over the summer, however, I reached into a small space behind my bed, got my fat arm stuck, and bruised my arm really badly! The funny thing is that I was in the middle of chemo for my other breast at the time. It's very minor. I don't know if I even would have noticed if I hadn't gone in to see a PT in preparation for that second mastectomy. But I digress.... lymphedema is not a given. If you protect your arm from blood pressure cuffs and other possible types of injury, I think it's possible to avoid it.

Dx 12/29/2004, DCIS, Left, Stage 0, Grade 3, 0/11 nodes Surgery 1/6/2005 Lymph node removal: Sentinel; Mastectomy: Left Dx 3/21/2019, IDC, Right, 4cm, Stage IIA, Grade 3, 0/1 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 4/5/2019 Perjeta (pertuzumab) Targeted Therapy 4/5/2019 Herceptin (trastuzumab) Chemotherapy 4/5/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole) Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Lymph node removal: Sentinel; Mastectomy: Right Surgery Reconstruction (left): DIEP flap
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Sep 7, 2019 03:45PM - edited Sep 7, 2019 03:56PM by pupmom

I had 21 nodes removed 8 years ago and never developed lymphedema. I even participated in a 2 year lymphedema study, which found no problem.

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Sep 7, 2019 04:09PM Yndorian1 wrote:

CoppersMom: Thanks for rescuing this thread from the bottom of the can! I'm in my first days of radiation so I"m constantly watching my arm ...

I'm sorry you are dx again, and you also have lymphedema now ... but fortunately you caught it early.

I wish you a full recovery. HUGS ❤

Pupmom: Congratulations, 8 years out and without lymphedema! And your puppy is a toy😊

"Only Love turns the mud into a Miracle" Silvio Rodriguez Dx 9/2018, IDC, Left, 2cm, Stage IIB, Grade 2, 4/8 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 10/17/2018 AC + T (Taxol) Surgery 6/10/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Radiation Therapy 9/1/2019 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 7, 2019 06:13PM pupmom wrote:

Sonia, thank you! I follow you and others surreptitiously on the fenben thread. Hug

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Sep 8, 2019 08:50PM - edited Sep 8, 2019 08:56PM by Tmh0921

As posted above, I had 14 nodes removed in 1999, with no lymphedema. I just wanted to update to add that I had a BMX, with Latissimus dorsi flap on my left side, and Bilateral tissue expanders. They also took an additional 2 nodes on the original side where I had the 14 nodes removed in 1999. I was seriously expecting all of this surgery and disruption to trigger lymphedema, but so far all is good.

Tracy

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/14 nodes, ER+/PR+ Surgery 12/22/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/30/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/1/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/4/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Sep 9, 2019 06:11AM Yndorian1 wrote:

Tracy, thank you. I hope you are doing well with chemo!❤

"Only Love turns the mud into a Miracle" Silvio Rodriguez Dx 9/2018, IDC, Left, 2cm, Stage IIB, Grade 2, 4/8 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 10/17/2018 AC + T (Taxol) Surgery 6/10/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Radiation Therapy 9/1/2019 Whole-breast: Breast, Lymph nodes, Chest wall

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