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Topic: Tamoxifen/Uterine Cancer

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: May 20, 2020 06:43PM

khoagland wrote:

Has anyone has their fibroid enlarged due to Tamoxifen? Mine is slightly larger since Ive started taking it.

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May 21, 2020 05:10PM Cricketdog wrote:

Good morning, khoagland. I was just speaking with my MO yesterday about my concerns with starting tamoxifen since I've had fibroids for years. I had an ultrasound performed right before my surgery last year where my ob/gyn counted my fibroids and recorded their locations and sizes. My MO promises me that I'll have a uterine lining measurement each year at my ob/gyn while I'm taking the drug.

Sorry I can't answer your question. Hoping someone chimes in as I've read that the drug can increase the size of fibroids and cause other uterine issues, too.

Dx 10/2019, ILC/IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/11/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/12/2020 Whole-breast: Breast, Lymph nodes Chemotherapy 2/13/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 5/7/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 24, 2020 04:25PM KARW41 wrote:

My mother got a hysterectomy on Tamoxifen due to what they said was some kind of uterine cancer (she later claimed they misdiagnosed her) but I don’t know what it did to her fibroids.

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Dec 25, 2020 11:08PM pleasantsa wrote:

Hello,

I didn't have fibroids prior to taking Tamoxifen but I did develop a 6cm mass that turned out to be endometrial cancer (uterine cancer). I was pre-menopausal and the only symptom was abnormal bleeding (between periods).

I just had a hysterectomy with all the trimmings (tubes, ovaries, etc.) two days ago and I want to warn others taking Tamoxifen. Please be vigilant if you are taking Tamoxifen.

Dx 3/28/2018, IDC, Left, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (DUAL) Surgery 5/4/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 5/4/2018 Hormonal Therapy 6/22/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 6/27/2018 Whole-breast: Breast
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Dec 26, 2020 02:17PM flashlight wrote:

Yes, Tamoxifen increased the number of fibroids I had and made them grow larger. Because of that my uterus enlarged. I had a hysterectomy last Feb. I never had bleeding only some abdominal discomfort. There are some good post on this subject if you do a search.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Surgery Lumpectomy: Left
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Dec 26, 2020 09:29PM ReadyAbout wrote:

I've been on Tamoxifen for 2.5 years and a recent MRI of my upper hamstring revealed uterine fibroids, so I went to see my GYN. I had an ultrasound last week that revealed a endometrial thickening, enlarged uterus, 5 uterine fibroids, 2 polyps, Nabothian cysts in the cervix, and some fluid in the endometrial cavity. It's practically a yard sale down there. I've had one abnormal symptom: continuous, daily discharge even though I'm 52 and going through menopause. I never mentioned it to my MO because I thought it was a side effect of Tamo - turns out it's not. GYN says polyps must be removed and she wants me to come in to discuss other things that will be biopsied. On top of that, I'm a teacher and am anxious about how I will juggle school and a hysterectomy/cancer treatment. I know I should think positive thoughts, but I had a heart attack at 41 due to a rare, undiagnosed heart condition, and I had breast cancer at 49, so I'm a little jaded about my prospects.

Dx 2/1/2018, IDC: Papillary, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+ Surgery 2/22/2018 Lumpectomy: Left Surgery 5/15/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 27, 2020 01:34AM flashlight wrote:

ReadyAbout, I am sorry you have to go through this. My daughter is also a teacher and this has been a terrible school year so far. I am postmenopausal. When I had a D&C they found out the fibroids gave a false ultrasound reading. My endometrial thickening wasn't as bad as they thought. That was in August and by Feb my uterus was enlarged with numerous fibroids. The surgery was not terrible. I felt better after 3-days and did not need anything stronger than Tylenol. The worst part is that you can't bend or lift. So no loading the dishwasher or dryer or vacuum cleaning. After 2-weeks you can drive. If you can get in with Covid get it done. Best wishes...

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Surgery Lumpectomy: Left

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