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Topic: tamoxifen Side effects

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Jul 9, 2020 12:47PM

Via wrote:

my goodness I have been getting more side effects From tamoxifen. I have been taking it for one year and 4 months.

The sleep problem is truly horrible. I have such a hard time falling at sleep and staying at sleep. I wake up like 3 hours after falling at sleep and wide awake for like one hour or so!

I am also having bone pain that I have to stretch due to the pain.

hot flashes that we not that bad now are making me sweat 💦 and am also sensitive to cold and heat.

I am also whenever I do Exercise Or get hot I feel like needles all over my body.

My mensuration has also change to the worse.

I know tamoxifen is the best medication I xan be in according to my doctor but OMG anyone else feeling any of my symptoms?

Thanks for the support,


Hormonal Therapy 3/15/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 9, 2020 05:59PM gb2115 wrote:

I have different side effects, but side effects nonetheless. I feel your pain and frustration. My side effects have gotten worse over time. I was originally slated to go 10 years, and now MO and I are talking about discussing this at the 5 year mark, because of quality of life issues. I'm not sure I can do more than 5. Maybe take it 6 months at a time after that?

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
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Jul 9, 2020 10:51PM Dani444 wrote:

Via- we have been on tamoxifen for about the same time period! I too understand your frustrations. My sleep in the beginning was horrendous, I would sleep 4 hours a night,nothing more. My emotions were all over the place but I basically ended most days in tears over how bad I felt! My MO then started me on Effexor. I sleep more than 4 hours a night now,but like you I wake several times a night. My fatigue has persisted since starting tamoxifen and has really affected my QOL. That along with this so called “brain fog” I consider every day just quitting!! The brain fog has affected how well I do my job and gets much worse if the fatigue is particularly bad. As far as periods go mine have gotten shorter and heavier and that is when I get the worst night sweats.

My MO has not mentioned anything beyond 5 years yet, but there is no way I will do 10. I am sorry you are struggling with these crappy side effects. Just not being able to sleep takes so much out of you, and you have the other side to deal with too! I just wanted to hop on and say I completely understand the struggle! All the best to you

DX @ 46, premenopausal, mammaprint low risk Dx 8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2- (IHC) Surgery 10/24/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant Radiation Therapy 12/6/2018 Lymph nodes, Chest wall Surgery 8/20/2020 Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 25, 2020 10:17PM pleasantsa wrote:


If your Tamoxifen side effects include in kind of abnormal bleeding, please see your doctor. I am 52 and pre-menopausal. I started having bleeding in between periods which I thought was a normal Tamoxifen side effect. I finally mentioned it to my MO who told me to stop the Tamoxifen immediately and referred me to a GYN.

Turns out I had a 6cm mass in my uterus that was endometrial cancer. I just had a hysterectomy 2 days ago and I wanted to come here and warn others taking Tamoxifen. Don't ignore any abnormal bleeding!

Dx 3/28/2018, IDC, Left, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (DUAL) Surgery 5/4/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 5/4/2018 Hormonal Therapy 6/22/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 6/27/2018 Whole-breast: Breast

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