Join Us

We are 218,193 members in 84 forums discussing 160,935 topics.

Help with Abbreviations

Topic: tamoxifen Side effects

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Jul 9, 2020 07:47AM

Via wrote:

my goodness I have been getting more side effects From tamoxifen. I have been taking it for one year and 4 months.

The sleep problem is truly horrible. I have such a hard time falling at sleep and staying at sleep. I wake up like 3 hours after falling at sleep and wide awake for like one hour or so!

I am also having bone pain that I have to stretch due to the pain.


hot flashes that we not that bad now are making me sweat 💦 and am also sensitive to cold and heat.

I am also whenever I do Exercise Or get hot I feel like needles all over my body.

My mensuration has also change to the worse.

I know tamoxifen is the best medication I xan be in according to my doctor but OMG anyone else feeling any of my symptoms?


Thanks for the support,

Via

Hormonal Therapy 3/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Page 1 of 1 (2 results)

Posts 1 - 2 (2 total)

Log in to post a reply

Jul 9, 2020 12:59PM gb2115 wrote:

I have different side effects, but side effects nonetheless. I feel your pain and frustration. My side effects have gotten worse over time. I was originally slated to go 10 years, and now MO and I are talking about discussing this at the 5 year mark, because of quality of life issues. I'm not sure I can do more than 5. Maybe take it 6 months at a time after that?

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
Log in to post a reply

Jul 9, 2020 05:51PM Dani444 wrote:

Via- we have been on tamoxifen for about the same time period! I too understand your frustrations. My sleep in the beginning was horrendous, I would sleep 4 hours a night,nothing more. My emotions were all over the place but I basically ended most days in tears over how bad I felt! My MO then started me on Effexor. I sleep more than 4 hours a night now,but like you I wake several times a night. My fatigue has persisted since starting tamoxifen and has really affected my QOL. That along with this so called “brain fog” I consider every day just quitting!! The brain fog has affected how well I do my job and gets much worse if the fatigue is particularly bad. As far as periods go mine have gotten shorter and heavier and that is when I get the worst night sweats.

My MO has not mentioned anything beyond 5 years yet, but there is no way I will do 10. I am sorry you are struggling with these crappy side effects. Just not being able to sleep takes so much out of you, and you have the other side to deal with too! I just wanted to hop on and say I completely understand the struggle! All the best to you

DX @ 46, premenopausal, mammaprint low risk Dx 8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2- (IHC) Surgery 10/24/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant Radiation Therapy 12/6/2018 Lymph nodes, Chest wall Surgery 8/20/2020 Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Page 1 of 1 (2 results)