This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.
Posted on:
Jul 9, 2020 07:47AM
United State
Joined:
Mar 2019
Posts:
55
Latest activity:
Aug 8, 2020
Via
wrote:
my goodness I have been getting more side effects From tamoxifen. I have been taking it for one year and 4 months.
The sleep problem is truly horrible. I have such a hard time falling at sleep and staying at sleep. I wake up like 3 hours after falling at sleep and wide awake for like one hour or so!
I am also having bone pain that I have to stretch due to the pain.
hot flashes that we not that bad now are making me sweat đź’¦ and am also sensitive to cold and heat.
I am also whenever I do Exercise Or get hot I feel like needles all over my body.
My mensuration has also change to the worse.
I know tamoxifen is the best medication I xan be in according to my doctor but OMG anyone else feeling any of my symptoms?
Thanks for the support,
Via
Hormonal Therapy
3/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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gb2115
Joined:
Feb 2017
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Latest activity:
Oct 28, 2020
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Jul 9, 2020 12:59PM
gb2115
wrote:
I have different side effects, but side effects nonetheless. I feel your pain and frustration. My side effects have gotten worse over time. I was originally slated to go 10 years, and now MO and I are talking about discussing this at the 5 year mark, because of quality of life issues. I'm not sure I can do more than 5. Maybe take it 6 months at a time after that?
Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
Dani444
Indiana
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Jun 2018
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Oct 26, 2020
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Jul 9, 2020 05:51PM
Dani444
wrote:
Via- we have been on tamoxifen for about the same time period! I too understand your frustrations. My sleep in the beginning was horrendous, I would sleep 4 hours a night,nothing more. My emotions were all over the place but I basically ended most days in tears over how bad I felt! My MO then started me on Effexor. I sleep more than 4 hours a night now,but like you I wake several times a night. My fatigue has persisted since starting tamoxifen and has really affected my QOL. That along with this so called “brain fog” I consider every day just quitting!! The brain fog has affected how well I do my job and gets much worse if the fatigue is particularly bad. As far as periods go mine have gotten shorter and heavier and that is when I get the worst night sweats.
My MO has not mentioned anything beyond 5 years yet, but there is no way I will do 10. I am sorry you are struggling with these crappy side effects. Just not being able to sleep takes so much out of you, and you have the other side to deal with too! I just wanted to hop on and say I completely understand the struggle! All the best to you
DX @ 46, premenopausal, mammaprint low risk
Dx
8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2- (IHC)
Surgery
10/24/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant
Radiation Therapy
12/6/2018 Lymph nodes, Chest wall
Surgery
8/20/2020 Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)