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Aug 17, 2020 03:26PM
Hi All, so I am supposed to start Ibrance today. Big day. I received my Rx in the mail from the specialty pharmacy a couple weeks ago, but I haven't even opened it until today. I just didn't want to face this new chapter until my start date was here.
Anyway, as I was looking through the papers the pharmacy sent, I see that "numbness and tingling of the arms and legs may occur." Huh. From past experience, I know that "numbness and tingling" is one of the euphemisms for neuropathy.
They told me "numbness and tingling" when I had neuropathy from Taxotere, but my neuropathy felt more like beestings and needle jabs. Every moment suspended in pain. Fortunately my body managed to heal somewhat on its own, and it's not as severe now. But that experience put the fear in me, and that is why neuropathy is on my list of things to avoid.
Anyway, I'm going to start Ibrance. My cancer grew back in my axilla again despite Zoladex and Faslodex, so I clearly need something more treatment-wise. Maybe Ibrance will help me. I feel like I should at least try it, and I'll look out for any "numbness and tingling."
Thank you all for your reassurance.
Diagnosed at 32. Local recurrences in skin one year later due to needle seeding at initial biopsy. Now dealing with MBC.
8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2-
8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2-