This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.
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Aug 11, 2020 09:59PM
It depends on the brand of cold caps. If you do the cold capping in-clinic I think they do an hour before and an hour after.
If you do Penguin, you do an hour before and 4(?) after, so 8 hours. They may give you a place to sit for the 4 hours after, but I'd suggest heading home and just switching them in the car.
Most people who do ACT don't cold cap because the cold capping is not very effective with that regimen.
Diagnosed at 42, Oncotype score 16, ITC in one node- considered node negative. Lost right implant to infection March 2020. Waiting to start reconstruction all over again.
4/8/2019, ILC, Left, 3cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2-
4/23/2019, ILC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-
5/15/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
6/13/2019 Zoladex (goserelin)
8/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
11/6/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 11, 2020 10:12PM
Aug 11, 2020 10:14PM
I used Dignitana cold caps with TCHP where the T was taxotere. From the time I set foot in the infusion center to the time I left it was about 4 or 5 hours. Taxotere has a higher incident of permanent hair loss than taxol, so that was a factor for me. If I had to make the choice again, knowing what I know now, I think I would give taxol a try and avoid cold capping. It was very uncomfortable and tiring and I spent the time counting the seconds.
Pathologic complete response (pCR) to chemotherapy.
2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH)
6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant