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Topic: What do you do all day?

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Sep 5, 2020 04:48AM

Seilien wrote:

"Managing" is fine but what do you actually DO. I realized everyone else walks or gardens or cooks. I really don't have the mental or physical. My mom often comes to cook, clean, get me to eat. But I would say this is generally what I do: I try to get up to dress my daughter. Most days I can. We sit together as my husband gets ready for the day. I deal with SE or take my meds. My husband and child go to work/daycare. I stare at the wall for a while, thinking what will ido. This step can last me to lunch. Or I listen to soothing music. Someone will come try to feed me because I don't eat enough. I sit and "watch tv" but really end up napping. My family comes home and I contemplate eating. Then about my daughter's bed time routine I also start mine and go sleep about 8-9. I feel I'm not very productive but my weakness in my limbs, fatigue, lack of appetite, and emotion are so low. I'm hoping these kinds of days are temporary, its been like a month 😛
Dx 7/30/2018, Right, Stage IV, metastasized to brain, ER+/PR-, HER2+ Radiation Therapy 6/1/2019 Whole-breast: Breast, Brain Surgery 11/22/2019 Reconstruction (right): Tissue expander placement Chemotherapy 7/28/2020 Xeloda (capecitabine) Surgery 8/28/2020 Reconstruction (left)
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Sep 5, 2020 08:08AM illimae wrote:

Since brain surgery in January and covid, I mostly watch movies/mysteries, some cleaning and cooking and sorting/packing to sell our house and move. I spent about 6-7 months unable to eat solid food but now that I can, I feel much more strength and energy. I plan to begin short walks soon but haven’t quite made it there yet.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 5, 2020 10:29AM - edited Sep 5, 2020 10:31AM by etnasgrl

This Post was deleted by etnasgrl.
Diagnosed at 41. Diagnosed 2nd time at 45. Dx 11/5/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/12/2016 Whole-breast: Breast Hormonal Therapy 2/17/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/13/2020, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ (IHC) Surgery 2/24/2020 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 3/19/2020 Taxol (paclitaxel) Targeted Therapy 3/19/2020 Herceptin (trastuzumab) Surgery 8/20/2020 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Sep 5, 2020 10:43AM Spookiesmom wrote:

Don’t beat yourself up. Do what you can, when you can. You could have some depression or PTSD going on. Talk to your MO, maybe a therapist who specializes with cancer patients.

As for what *I* do? Not much. It’s a good day if I manage a shower and get groceries to make dinner. Bonus if I manage laundry and run dishwasher. I can’t blame all of that on age, almost 72. A lot of it is Ibrance. The highlight of the day is going to dog park with my 2. If I feel like it.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3

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