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Sep 23, 2021 12:17PM
Sep 23, 2021 12:18PM
I did start treatment yesterday. I would love to hear how other people who are getting just weekly taxol plus Herceptin are doing!
Anyone have tips for upcoming ones? Do you feel worse as they continue or pretty much the same?
Here's a copy of what I posted in the weekly taxol group with a bit of editing:
Treatment went well yesterday. I asked my husband to do all the stuff to get our kids ready in the am and I took a long bath and walked on the treadmill before treatment for about 20 min. I also walked for 15 min when I got back. That was harder since I was so tired. My med onc is pushing exercise so I've committed every day to walking. Hoping to keep it up.
It was a long day. I'm glad the next couple of times will be shorter. They gave me 10mg of dexamethasone and 25mg of Benadryl IV. I had to take oral famotidine bc we're experiencing a IV shortage right now. The Benadryl made me loopy so I struggled with the icing my hands and keeping ice in my mouth. I would forgot to put the ice in my mouth, and then forgot to put my hands in the ice packs. My feet survived though. Lol. Strangely enough they hurt in the evening- pins and needles. I can't tell if I accidentally froze them or it's the neuropathy. I wore a pair of socks, stuffed gel freezers down and put on a second pair of socks to keep them in place.
I am happy it was only 10mg dexamethasone. I'm wondering if that does is common on the weekly dose of taxol?
I'm wondering how much weight gain most ppl have gotten over the course of 12 weeks? I read most women put on weight from the steroids with weekly taxol. I'm starting out around 140lbs and 5'6 and premenopausal which I also hear is the group that gains the most (yeah me! Lol).
Yesterday my muscles in my right arm really ached during the infusion of taxol. I was pretty out of it though. I did mention it and they weren't concerned. They have to use a IV for the first two treatments since I won't get my port until the day of my third.
Last night I slept ok. I went to bed around 9:30pm with the help of melatonin (ok'd by pharmacy). I work up a few times but got back to sleep. I work up for a few hrs in the middle of the night around 3-4am but got back to sleep and up for the day at 6:50am. My face was really hot last night and is flushed this am too. I'm thinking from the Herceptin. Interestingly I did feel my lumpectomy site ache during Herceptin infusion…. Or at-least I thought I did. I was a wee bit off with the Benadryl still. Lol. I do have DCIS left in the margins they will need to remove after so might be wishful thinking it's getting cleared up. Haha.
Today I am tired. I'm working from home and works super flexible so work when I can, don't when I can't.
7/13/2021, IDC, Left, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+
8/12/2021 Lumpectomy: Left; Lymph node removal: Sentinel
9/3/2021, DCIS, Left, Stage 0, Grade 2, ER+/PR+, HER2+
9/22/2021 Herceptin (trastuzumab)
9/22/2021 Taxol (paclitaxel)